RE: Joan/meds

[Guest guest]

Joan,

I think the only reason I was able to come off of pred was because I gave up

a lot of " normal " activities like school and work. If I was still up in WA

and still needed (my Christianity has reached a level where literally all I

need is God. I am learning to rely on Him for almost everything. I am still

not all that good at it though) those things I would be on pred. I am still

on MTX and the handfuls of hair in the shower I could do without. I am too

scared to stop that, though I think about it often. I think my mom wouldn't

allow it. She is a nurse, and I am her only child. Her parents are sick, and

my dad is sick and leaving me vulnerable like that scares the life out of

her. I am just waiting for her God to be as big as mine is. When the time

comes though and I need meds, trust me, bring on the meds via IV. Till then,

I have the stubborn athlete's soul inside and lying around reading and

showering once a week is good enough for me. Life is what you make it out to

be. If you don't believe, I am sorry if I offended you. Please ignore the

comments mentioned. I was just letting you know that is what gets me through

life with Stills. Take care. Any more questions let me know.

Current meds: prtonix and phenergan when the nausea reminds me to take them.

Folic acid everyday. And 15 mg of MTX once a week. And I am alternating from

2 somas and 1 vicodin to 1 soma and 2 vicodins in the evening before bed,

and Ibuprofen as needed.

Take care!

In His Strength,

, CA

Please visit my websites:

www.freewebs.com/faithfights

http://Writing.Com/authors/faithfights

Reply-To: Stillsdisease

To: <Stillsdisease >

Subject: RE:

Date: Wed, 6 Dec 2006 16:03:18 -0000

Dear

I was interested to read your post saying that you have come off of your

medication completely, I have often felt like doing just that, I am sure

like many more of us have as well. Personally being that much older I will

take the option of being fairly pain free and take what comes but I am

interested in how long you have been without your various pills and good

luck to you hope it works for you.

Glad your family are taking good care of you.

Love

Joan U.K.

_____

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of Kate Vasquez

Sent: 04 December 2006 23:05

To: Stillsdisease

Subject:

Hey ,

My name is . I am 20 years old and was diagnosed in Nov. 2004. There

have been a few times I got so sick of the meds that I just stopped taking

them without telling anyone. Obvioulsy this is very scary, and I got very

lucky, but I am off a lot of medicine (I hope we are all knocking on wood)

because I am not on Prednisone. I have 15 mg of MTX and the regular pain

pills and that is about it. I suck it up through the pain all day and

relieve the knees and back at night around bed/tv time. I did have to drop

out of school and I moved home and my parents are taking great care of me,

but I am off the meds. In my experience it is a balancing act. I take lots

of pills, yeah I might feel a little better, but how exhausting is it to

remember all of the pills and to deal with all the side effects. So, more

pills, more energy/strength to be young, or less pills and I suck it up and

make the best of things.

In terms of the itching, in my case, it is not an allergy. You have to

remember that the skin is a system, it is the largest organ we have. And we

have a systemic auto-immune disease. So in my case, the disease attacks my

skin and I get itchy, all over, randomly. I take atarax and it really helps.

So you might want to discuss all the possibilities for itching with your

doctor and see an allergy specialist...with us you just never know what is

going on with our bodies.

Any time you want to discuss things further or vent, let me know! Take care

and welcome!

In His Strength,

, CA

Please visit my websites:

www.freewebs.com/faithfights

http://Writing. <http://Writing.Com/authors/faithfights>

Com/authors/faithfights

Hello. My name is . I am twenty three years old. I have been

diagnosed with Still's for about 6 years now. It gets very hard at

times and I can't take it with all the medications. I am on not as

many now but I used to be on everything almost. Kineret works well for

me. However, my medications have caused so many other problems. I have

gained weight lately, my eyes have got worse in the past three years,

and I am allergic to something because I itch a lot. I just want to be

taken off of everything. I know it will be so painful though. I also

take zyrtec for my itching, but this makes me tired. I am 23 I want to

enjoy my years when I can but when I get tired at 10pm its not fun. I

just needed to vent and I figured this would be the best place. You

all seem so nice. If you would like to chat my yahooID is nikkic783...

or email back. Thanks

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