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Gail,

I've not been through anything like what you are facing, but I wanted

to say ouch, wow, and eek. I sure would want to find the cause and

try my damndest to remedy it. Not only is just the inconvenience of

bleeding horrific, but the pain, hormone fluctuations and the

irritation of having to catch the bleeding just can't be good for you.

Are you also having blood taken out each month? My dad has to donate

as much as possible so the iron doesn't load up. He can either donate

blood to an organization, or he has to go in so the doc can do it (but

they just throw that blood away). Just wondering if you are doing

that and the bleeding.

Let us know how the appt goes and what the outcome and decision are.

I would definitely recommend a 2nd opinion before a hysterectomy. It

can't hurt to see what another qualified, trusted doc thinks before

you go the surgery option. We'll be thinking about you.

Houston

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HI Gail,

I'm sorry to hear about your worries. I havent had that problem, but in the

past year my periods seem to be a lot more painful and heavier. Good luck

with your appointment tomorrow............

Hugs,

Carey

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HI Gail,

I'm sorry to hear about your worries. I havent had that problem, but in the

past year my periods seem to be a lot more painful and heavier. Good luck

with your appointment tomorrow............

Hugs,

Carey

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Hi gail

Just posting to wish you well with your gyno appointment tomorrow hope they

come up with a solution for you as you do have some difficult medical

problems. Can't offer any ideas but thinking of you.

All the best

Joan U.K.

_____

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of Gail

Sent: 10 December 2006 18:59

To: stillsdisease

Subject: female issues...

Hey, gang, I am worried about an appt with my gyno tomorrow. Okay, fellas, I

got no beef with any of you reading this, but please be aware, it IS about

female problems, lol...

I am sure this has nothing to do with Still's, but over the past year it's

gotten worse. I am 38 and am basically bleeding most of the month. Plus I

have terrible cramps, so bad it puts me down for a couple days with a

heating pad. Pain meds don't even help. I am to where I am only having 5-12

days between cycles and I am getting very sick and tired of buying boxes &

boxes of tampons!

I guess my fear is, I probably need surgery and with the Still's & meds I

take, it worries me. I also have Hemochromatosis (Iron Loading Disease)

which my Rheumy thinks is causing all my bleeding (my body's natural way of

ridding me of the excess iron). However, the pain and inconvenience of it

are just too much. If I didn't have to deal with Still's, maybe I'd tolerate

it better. So, if I end up having a hysterectomy, my iron will begin loading

even more quickly than before. So I feel like I am damned if I do and damned

if I don't.

The only logic answer I can come up with is, I know that eventually

menopause will occur naturally, so I am just putting off the inevitable. I

had surgery 3 years ago to remove my right ovary & fallopian tube (I had

severe scarring from a previous ruptured ectopic pregnancy). Now, my worst

pain is there, in the right side. I am sure it is more scar tissue that

developed.

Okay, I'm just worried and wanted to talk... surgery scares me with my

medical history. I still have a blood clot in my sub-clavian vein, so they

always make me stay longer to go through a couple bags of Heparin as a

precaution.

So, if any of you gals have been through this, I'd appreciate your comments.

And I will let you know what the doc says...

Hope everyone is having a good weekend..

Gail

Visit me, your Kay Independent Beauty Consultant (10% of your order

will be donated to the International Still's Disease Foundation)

http://www.marykay. <http://www.marykay.com/glmurphy> com/glmurphy

---------------------------------

Want to start your own business? Learn how on Yahoo! Small Business.

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Hi gail

Just posting to wish you well with your gyno appointment tomorrow hope they

come up with a solution for you as you do have some difficult medical

problems. Can't offer any ideas but thinking of you.

All the best

Joan U.K.

_____

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of Gail

Sent: 10 December 2006 18:59

To: stillsdisease

Subject: female issues...

Hey, gang, I am worried about an appt with my gyno tomorrow. Okay, fellas, I

got no beef with any of you reading this, but please be aware, it IS about

female problems, lol...

I am sure this has nothing to do with Still's, but over the past year it's

gotten worse. I am 38 and am basically bleeding most of the month. Plus I

have terrible cramps, so bad it puts me down for a couple days with a

heating pad. Pain meds don't even help. I am to where I am only having 5-12

days between cycles and I am getting very sick and tired of buying boxes &

boxes of tampons!

I guess my fear is, I probably need surgery and with the Still's & meds I

take, it worries me. I also have Hemochromatosis (Iron Loading Disease)

which my Rheumy thinks is causing all my bleeding (my body's natural way of

ridding me of the excess iron). However, the pain and inconvenience of it

are just too much. If I didn't have to deal with Still's, maybe I'd tolerate

it better. So, if I end up having a hysterectomy, my iron will begin loading

even more quickly than before. So I feel like I am damned if I do and damned

if I don't.

The only logic answer I can come up with is, I know that eventually

menopause will occur naturally, so I am just putting off the inevitable. I

had surgery 3 years ago to remove my right ovary & fallopian tube (I had

severe scarring from a previous ruptured ectopic pregnancy). Now, my worst

pain is there, in the right side. I am sure it is more scar tissue that

developed.

Okay, I'm just worried and wanted to talk... surgery scares me with my

medical history. I still have a blood clot in my sub-clavian vein, so they

always make me stay longer to go through a couple bags of Heparin as a

precaution.

So, if any of you gals have been through this, I'd appreciate your comments.

And I will let you know what the doc says...

Hope everyone is having a good weekend..

Gail

Visit me, your Kay Independent Beauty Consultant (10% of your order

will be donated to the International Still's Disease Foundation)

http://www.marykay. <http://www.marykay.com/glmurphy> com/glmurphy

---------------------------------

Want to start your own business? Learn how on Yahoo! Small Business.

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Dearest Gail . Please get to a doc as soon as possible! And let us

know what they say. Well wishes for you. Love Sharon and xxxxoooo

> Hey, gang, I am worried about an appt with my gyno tomorrow. Okay,

> fellas, I got no beef with any of you reading this, but please be

> aware, it IS about female problems, lol...

>

> I am sure this has nothing to do with Still's, but over the past

> year it's gotten worse. I am 38 and am basically bleeding most of

> the month. Plus I have terrible cramps, so bad it puts me down for

> a couple days with a heating pad. Pain meds don't even help. I am

> to where I am only having 5-12 days between cycles and I am getting

> very sick and tired of buying boxes & boxes of tampons!

>

> I guess my fear is, I probably need surgery and with the Still's &

> meds I take, it worries me. I also have Hemochromatosis (Iron

> Loading Disease) which my Rheumy thinks is causing all my bleeding

> (my body's natural way of ridding me of the excess iron). However,

> the pain and inconvenience of it are just too much. If I didn't

> have to deal with Still's, maybe I'd tolerate it better. So, if I

> end up having a hysterectomy, my iron will begin loading even more

> quickly than before. So I feel like I am damned if I do and damned

> if I don't.

>

> The only logic answer I can come up with is, I know that eventually

> menopause will occur naturally, so I am just putting off the

> inevitable. I had surgery 3 years ago to remove my right ovary &

> fallopian tube (I had severe scarring from a previous ruptured

> ectopic pregnancy). Now, my worst pain is there, in the right side.

> I am sure it is more scar tissue that developed.

>

> Okay, I'm just worried and wanted to talk... surgery scares me with

> my medical history. I still have a blood clot in my sub-clavian

> vein, so they always make me stay longer to go through a couple

> bags of Heparin as a precaution.

>

> So, if any of you gals have been through this, I'd appreciate your

> comments. And I will let you know what the doc says...

>

> Hope everyone is having a good weekend..

>

> Gail

>

> Visit me, your Kay Independent Beauty Consultant (10% of your

> order will be donated to the International Still's Disease

> Foundation) http://www.marykay.com/glmurphy

>

> ---------------------------------

> Want to start your own business? Learn how on Yahoo! Small Business.

>

>

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HI Gail,

I used to have a horrible time with my periods then at 32 I had a complete

hysterectomy I wasn't sick with Stills then. It was a blessing because I really

suffered with that time of the month from a young age. Just my 2 cents.

Chris

Gail wrote:

Hey, gang, I am worried about an appt with my gyno tomorrow. Okay,

fellas, I got no beef with any of you reading this, but please be aware, it IS

about female problems, lol...

I am sure this has nothing to do with Still's, but over the past year it's

gotten worse. I am 38 and am basically bleeding most of the month. Plus I have

terrible cramps, so bad it puts me down for a couple days with a heating pad.

Pain meds don't even help. I am to where I am only having 5-12 days between

cycles and I am getting very sick and tired of buying boxes & boxes of tampons!

I guess my fear is, I probably need surgery and with the Still's & meds I take,

it worries me. I also have Hemochromatosis (Iron Loading Disease) which my

Rheumy thinks is causing all my bleeding (my body's natural way of ridding me of

the excess iron). However, the pain and inconvenience of it are just too much.

If I didn't have to deal with Still's, maybe I'd tolerate it better. So, if I

end up having a hysterectomy, my iron will begin loading even more quickly than

before. So I feel like I am damned if I do and damned if I don't.

The only logic answer I can come up with is, I know that eventually menopause

will occur naturally, so I am just putting off the inevitable. I had surgery 3

years ago to remove my right ovary & fallopian tube (I had severe scarring from

a previous ruptured ectopic pregnancy). Now, my worst pain is there, in the

right side. I am sure it is more scar tissue that developed.

Okay, I'm just worried and wanted to talk... surgery scares me with my medical

history. I still have a blood clot in my sub-clavian vein, so they always make

me stay longer to go through a couple bags of Heparin as a precaution.

So, if any of you gals have been through this, I'd appreciate your comments. And

I will let you know what the doc says...

Hope everyone is having a good weekend..

Gail

Visit me, your Kay Independent Beauty Consultant (10% of your order will be

donated to the International Still's Disease Foundation)

http://www.marykay.com/glmurphy

---------------------------------

Want to start your own business? Learn how on Yahoo! Small Business.

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Hello Gail,

Sorry to hear you are so unwell.

I had a similar experience when I was 39 - which we

now know with hindsight was the onset of an early

menopause.

I was having severe flairs at the time which wasn't

diagnosed as Still's 'til years later - so the

possible connection between the conditions was not

explored.

Wishing you well with the gyno appointment and hope

you feel much better soon.

Carole (UK)

> Gail wrote:

> Hey, gang, I am worried about an appt with

> my gyno tomorrow. Okay, fellas, I got no beef with

> any of you reading this, but please be aware, it IS

> about female problems, lol...

>

> I am sure this has nothing to do with Still's, but

> over the past year it's gotten worse. I am 38 and am

> basically bleeding most of the month. Plus I have

> terrible cramps, so bad it puts me down for a couple

> days with a heating pad. Pain meds don't even help.

> I am to where I am only having 5-12 days between

> cycles and I am getting very sick and tired of

> buying boxes & boxes of tampons!

>

> I guess my fear is, I probably need surgery and with

> the Still's & meds I take, it worries me. I also

> have Hemochromatosis (Iron Loading Disease) which my

> Rheumy thinks is causing all my bleeding (my body's

> natural way of ridding me of the excess iron).

> However, the pain and inconvenience of it are just

> too much. If I didn't have to deal with Still's,

> maybe I'd tolerate it better. So, if I end up having

> a hysterectomy, my iron will begin loading even more

> quickly than before. So I feel like I am damned if I

> do and damned if I don't.

>

> The only logic answer I can come up with is, I know

> that eventually menopause will occur naturally, so I

> am just putting off the inevitable. I had surgery 3

> years ago to remove my right ovary & fallopian tube

> (I had severe scarring from a previous ruptured

> ectopic pregnancy). Now, my worst pain is there, in

> the right side. I am sure it is more scar tissue

> that developed.

>

> Okay, I'm just worried and wanted to talk... surgery

> scares me with my medical history. I still have a

> blood clot in my sub-clavian vein, so they always

> make me stay longer to go through a couple bags of

> Heparin as a precaution.

>

> So, if any of you gals have been through this, I'd

> appreciate your comments. And I will let you know

> what the doc says...

>

> Hope everyone is having a good weekend..

>

> Gail

>

> Visit me, your Kay Independent Beauty

> Consultant (10% of your order will be donated to the

> International Still's Disease Foundation)

> http://www.marykay.com/glmurphy

>

> ---------------------------------

> Want to start your own business? Learn how on Yahoo!

> Small Business.

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> ---------------------------------

> Cheap Talk? Check out Yahoo! Messenger's low

> PC-to-Phone call rates.

>

> [Non-text portions of this message have been

> removed]

>

>

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