Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 In a message dated 2/13/2003 3:17:45 PM Eastern Standard Time, youngjaem@... writes: << I ust found out I have mitral valve prolapse and that is why I'm having chest pains, I know it is the mercury that messed my heart up but can candida also effect your heart, and is there anyone else here that has this and what are you doing about it? >> For those symptoms I take the supplements recommended in Andy's book for Angina and am now symptom free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 In a message dated 2/13/03 3:16:03 PM Eastern Standard Time, youngjaem@... writes: << ust found out I have mitral valve prolapse and that is why I'm having chest pains, I know it is the mercury that messed my heart up but can candida also effect your heart, and is there anyone else here that has this and what are you doing about it? >> I was diagnosed with mitral valve when I was 15. I used to get occasional palpitations but otherwise no symptoms until the last few years when the occasional chest pains started. The new cardio. I saw said that it wasn't serious enough to be causing them so I don't know...could have been stress too. It has gotten a bit better but I sometimes feel it. If you find out anything, I'd be curious to know myself. Best, Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 Hi, the key question to ask is whether the prolapse valve has a flow murmur associated with it, without a flow across the valve the need for antibiotics before procedures etc is not indicated, also except for pain, which can be significant, there are really no other physiologic changes associated with prolapse. The mitral valve usually bellows in toward the big chamber of the left heart..the left ventricule, prolapse is when the valve leaflets bellow the other way, but if it just prolapses without a problem shutting off flow between the left atrium (the small chamber) and the left ventricule, pain should be the only problem. Beta blockers (propanolol) have helped this pain in alot of people. I can't see how Hg or candida could cause the problem, but if the valve is damaged, ie a flow is Present then the valve is at risk for an infectious process, although this is usually bacterial, hope this helps > I ust found out I have mitral valve prolapse and that is why I'm > having chest pains, I know it is the mercury that messed my heart up > but can candida also effect your heart, and is there anyone else here > that has this and what are you doing about it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 what happens when there is a murmur with it, The doctor could not hear it but i could feel it? is there a difference in treatment if there is a murmur " rgtarheel <gdownie@...> " <gdownie@...> wrote:Hi, the key question to ask is whether the prolapse valve has a flow murmur associated with it, without a flow across the valve the need for antibiotics before procedures etc is not indicated, also except for pain, which can be significant, there are really no other physiologic changes associated with prolapse. The mitral valve usually bellows in toward the big chamber of the left heart..the left ventricule, prolapse is when the valve leaflets bellow the other way, but if it just prolapses without a problem shutting off flow between the left atrium (the small chamber) and the left ventricule, pain should be the only problem. Beta blockers (propanolol) have helped this pain in alot of people. I can't see how Hg or candida could cause the problem, but if the valve is damaged, ie a flow is Present then the valve is at risk for an infectious process, although this is usually bacterial, hope this helps > I ust found out I have mitral valve prolapse and that is why I'm > having chest pains, I know it is the mercury that messed my heart up > but can candida also effect your heart, and is there anyone else here > that has this and what are you doing about it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 Be very careful here - doctor's love to use this diagnosis and in my opinion, much of the time, its garbage. See a homoepath ;-) -------------------------------------------------------- Sheri Nakken, R.N., MA, Classical Homeopath Vaccination Information & Choice Network, Nevada City CA & Wales UK $$ Donations to help in the work - accepted by Paypal account vaccineinfo@... voicemail US 530-740-0561 (go to http://www.paypal.com) or by mail Vaccines - http://www.nccn.net/~wwithin/vaccine.htm Homeopathy course - http://www.nccn.net/~wwithin/homeo.htm ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE. ****** " Just look at us. Everything is backwards; everything is upside down. Doctors destroy health, lawyers destroy justice, universities destroy knowledge, governments destroy freedom, the major media destroy information and religions destroy spirituality " .... Ellner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 In a message dated 2/14/2003 5:38:21 AM Eastern Standard Time, vaccineinfo@... writes: << Be very careful here - doctor's love to use this diagnosis and in my opinion, much of the time, its garbage. See a homoepath ;-) >> Yep, I have been told my entire life I had a murmer. In my mid thirties I felt odd feelings (fluttering then sort of flip-flop sensations) and went to a cardiologist. Had the entire gamut of testing done and told yes I have a prolapsed mitral valve. Ok from there went to a relatives heart surgeon for an opinion and he checked me out and said " NO Prolapsed mitral valve " . Finally I asked a famous integrative MD about the issue and was told " Be careful, that is something some doctors tell you that you have when they can't figure out what is really going on " . So, now in my mid forties, I started with angina (was having about 15 to 20 episodes a day). I started taking magnesium, coq 10, carnitine & E and haven't had a single episode in days!!!! Wish I could find a homeopath! Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 The best way to check for a real murmur, if it could not be heard, is an echocardiogram, this will show the flow, however sometimes flows don't appear unless you're active etc, the same way a washer would not always leak in a faucet, most echo are done resting. The treatment differences are the recommendations for prophalaxis with antibiotics, I am not up on alternative meds (herbal remedies for pain)but saw a poster suggested looking at andy's rec's for angina pain for some alternatives > > I ust found out I have mitral valve prolapse and that is why I'm > > having chest pains, I know it is the mercury that messed my heart > up > > but can candida also effect your heart, and is there anyone else > here > > that has this and what are you doing about it? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 In a message dated 2/14/2003 3:06:40 PM Eastern Standard Time, vaccineinfo@... writes: > So, now in my mid forties, I > >started with angina (was having about 15 to 20 episodes a day). I started > > >taking magnesium, coq 10, carnitine & E and haven't had a single episode in > > >days!!!! > > What does angina feel like? I am 41 and was told I might have mitral valve prolapse. I had an ultrasound which was negative. In the meantime, problem went away. In the last year or so, I have been having episodes of the fluttering again. I'm told it is related to hormonal changes, pre-menopausal and I have pituary gland dysfunction. Before I go back to the doctors for the fluttering, I would like to try what you have listed above. I'm assuming I can get it in health vitamin stores, correct? Also what is coq 10 and carnitine? By " E " , you mean vitamin E? Just checking. Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 At 12:01 PM 02/14/2003 EST, you wrote: >In a message dated 2/14/2003 5:38:21 AM Eastern Standard Time, >vaccineinfo@... writes: > ><< Be very careful here - doctor's love to use this diagnosis and in my > opinion, much of the time, its garbage. > See a homoepath ;-) >> > >Yep, I have been told my entire life I had a murmer. In my mid thirties I >felt odd feelings (fluttering then sort of flip-flop sensations) and went to >a cardiologist. Had the entire gamut of testing done and told yes I have a >prolapsed mitral valve. Ok from there went to a relatives heart surgeon for >an opinion and he checked me out and said " NO Prolapsed mitral valve " . >Finally I asked a famous integrative MD about the issue and was told " Be >careful, that is something some doctors tell you that you have when they >can't figure out what is really going on " . So, now in my mid forties, I >started with angina (was having about 15 to 20 episodes a day). I started >taking magnesium, coq 10, carnitine & E and haven't had a single episode in >days!!!! You know......in my early 40's I had similar - fluttering and irregular heart beats - several a minute and they would last for days and sometimes weeks. Finally went away after a shiatsu acupressure session. But I found out that everyone of my women friends had the same thing.........and all are fine.... Sheri -------------------------------------------------------- Sheri Nakken, R.N., MA, Classical Homeopath Vaccination Information & Choice Network, Nevada City CA & Wales UK $$ Donations to help in the work - accepted by Paypal account vaccineinfo@... voicemail US 530-740-0561 (go to http://www.paypal.com) or by mail Vaccines - http://www.nccn.net/~wwithin/vaccine.htm Homeopathy course - http://www.nccn.net/~wwithin/homeo.htm ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE. ****** " Just look at us. Everything is backwards; everything is upside down. Doctors destroy health, lawyers destroy justice, universities destroy knowledge, governments destroy freedom, the major media destroy information and religions destroy spirituality " .... Ellner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 What a coincidence-I also have TMJ-I get tension headaches almost daily from it. I have to remind myself to stop clenching my teeth all the time. After reading all of this I just might ask my husband to order the work-up for me as well. Just a thought... Mitral Valve Prolapse > http://www.mvprolapse.com/archive_mama.html > Is Mitral Valve Prolapse an Autoimmune Disease? > The cause of mitral valve prolapse (MVP) is not > known, > but evidence is accumulating that it may involve > an > autoimmune process. Well-recognized autoimmune > diseases include systemic lupus (SLE), rheumatoid > arthritis, Sjogren's syndrome (SS), juvenile > diabetes, > Graves' disease and Hashimoto's thyroiditis > (autoimmune thyroiditis). The latter is the most > common cause of hypothyroidism in adults, and > Graves' > disease is the most common cause of > hyperthyroidism in > adults. Like MVP, autoimmune disorders are more > prevalent in women, and have a genetic link. __________________________________ > Responsibility for the content of this message > lies strictly with > the original author(s), and is not necessarily > endorsed by or the > opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Wow, this is spooky! The first I heard of MVP was last Friday. I had a heart " episode " Thursday (I've had a few over the last couple of years) and spent the whole night in the Emergency hooked up to a million machines. They haven't found a cause for my episodes yet, but in doing my own research on the Internet I found out about MVP. After reading about it, I am convinced that is what I have. And I was diagnosed with TMJ when I was twenty. Rhoda Mitral Valve Prolapse > http://www.mvprolapse.com/archive_mama.html > Is Mitral Valve Prolapse an Autoimmune Disease? > The cause of mitral valve prolapse (MVP) is not > known, > but evidence is accumulating that it may involve > an > autoimmune process. Well-recognized autoimmune > diseases include systemic lupus (SLE), rheumatoid > arthritis, Sjogren's syndrome (SS), juvenile > diabetes, > Graves' disease and Hashimoto's thyroiditis > (autoimmune thyroiditis). The latter is the most > common cause of hypothyroidism in adults, and > Graves' > disease is the most common cause of > hyperthyroidism in > adults. Like MVP, autoimmune disorders are more > prevalent in women, and have a genetic link. __________________________________ > Responsibility for the content of this message > lies strictly with > the original author(s), and is not necessarily > endorsed by or the > opinion of the Research Institute. Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Hi, I'm going to look into this asap.. Presently, I do jaw excercises and take lots of Advil during the day. At night if I wake with either clenched teeth or grinding I usually take a Tylenol PM. I can't remember the last time I felt rested because of this. My liver is fine, it amazes me with three teenagers and with , that I haven't hit the bottle hard yet. I will admit that I do enjoy fine red wine but I could certainly give it up for a few days . Thanks again, - Original Message ----- From: Sent: Sunday, March 07, 2004 8:36 PM Subject: Re: Mitral Valve Prolapse Hi - Re TMJ - if you can find a physiatrist MD, they tend to be great w/working w/ TMJ. Also, Toradol 60mg injections are awesome. They will usually relieve the pain and tension headaches for up to a month. It's a powerful non-steroid anti-inflammatory, much better when injected. Has to be 60 mg to work. Never get the shot on an empty stomach (yes, even for a shot), and eat little snacks all day or it will cause horrendous tummy pain, but will not hurt at all if you stay well-fed the day of the shot. Toradol pills don't work nearly as well. The med is hard on the liver, so if there is any liver problem, skip the shot, and don't drink alcohol within a couple of days of it. --- LINDA ANAGNOSTAKOS <lsa5885@...> wrote: > What a coincidence-I also have TMJ-I get tension > headaches almost daily from it. I have to remind > myself to stop clenching my teeth all the time. > After reading all of this I just might ask my > husband to order the work-up for me as well. > Just a thought... ===msg thread truncated=== Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Rhoda- What was the heart 'episode' like? --- Rhoda Boyd <rboyd@...> wrote: > Wow, this is spooky! The first I heard of MVP was > last Friday. I had a heart " episode " Thursday (I've > had a few over the last couple of years) and spent > the whole night in the Emergency hooked up to a > million machines. They haven't found a cause for my > episodes yet, but in doing my own research on the > Internet I found out about MVP. After reading about > it, I am convinced that is what I have. And I was > diagnosed with TMJ when I was twenty. > > Rhoda ===msg thread truncated=== Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. ---------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 It always happens at night after I have gone to bed. I am very restless, toss and turn a lot, just don't feel " right " . I feel overheated and my mouth goes dry. When I am restless I can usually do relaxation techniques that help a lot. I learned them after my TMJ diagnosis and they help with teeth clenching, etc. But on these occasions they just don't work. Eventually, my heart starts racing wildly and it pounds so hard it feels like it will leap out of my chest. My left arm gets tingly and I have nausea on and off. I try to talk myself through it in a relaxed mode but eventually it gets kind of scary. The racing and pounding last for about 10 to 15 minutes. My last episode before this one was a little over a year ago. By the time I am seen by a doctor it's over and the heart monitors aren't picking up anything. My mother has arrhythmia, but I don't think she has quite the same thing as I do. I am going to my GP tomorrow to ask if she can refer me to a cardiologist. I think there's a test they can administer for MVP so I'm hoping I can convince them that is the route to take. The link to TMJ is interesting and certainly fits in my case. And the connection to an autoimmune scenario is also a fit if you consider that I have one child with ADHD, one with and no strong autoimmune history in our backgrounds. Rhoda Re: Mitral Valve Prolapse Rhoda- What was the heart 'episode' like? --- Rhoda Boyd <rboyd@...> wrote: > Wow, this is spooky! The first I heard of MVP was > last Friday. I had a heart " episode " Thursday (I've > had a few over the last couple of years) and spent > the whole night in the Emergency hooked up to a > million machines. They haven't found a cause for my > episodes yet, but in doing my own research on the > Internet I found out about MVP. After reading about > it, I am convinced that is what I have. And I was > diagnosed with TMJ when I was twenty. > > Rhoda ===msg thread truncated=== Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. ---------------------------------------------------------- Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Hi Rhoda - First, the link to TMJ was mentioned on one of the websites but the average dr who doesn't work w/ TMJ will not have found that connection, so don't bother mentioning it if you don't want them to lecture you about how there's no connection. Sounds like there could be dysautonomia involved. Also, if this happens every night, you can wear a 24-hr holter monitor that would monitor your rhythm and the palpatations and fast beats should be picked up. It is worth looking into. Cardiologists in general don't get very involved w/ MVP (I read). You may want to check to see if there are any practitioners who specialize in it - you could probably call a cardiologist's office and ask. You shouldn't have to live with that. It can be helped as long as it's properly evaluated. Also, it can eventually go away on it's own like mine did, but you should still have help now as well. --- Rhoda Boyd <rboyd@...> wrote: > It always happens at night after I have gone to bed. > I am very restless, toss and turn a lot, just don't > feel " right " . I feel overheated and my mouth goes > dry. When I am restless I can usually do relaxation > techniques that help a lot. I learned them after my > TMJ diagnosis and they help with teeth clenching, > etc. But on these occasions they just don't work. > Eventually, my heart starts racing wildly and it > pounds so hard it feels like it will leap out of my > chest. My left arm gets tingly and I have nausea on > and off. I try to talk myself through it in a > relaxed mode but eventually it gets kind of scary. > The racing and pounding last for about 10 to 15 > minutes. My last episode before this one was a > little over a year ago. By the time I am seen by a > doctor it's over and the heart monitors aren't > picking up anything. My mother has arrhythmia, but I > don't think she has quite the same thing as I do. I > am going to my GP tomorrow to ask if she can refer > me to a cardiologist. I think there's a test they > can administer for MVP so I'm hoping I can convince > them that is the route to take. The link to TMJ is > interesting and certainly fits in my case. And the > connection to an autoimmune scenario is also a fit > if you consider that I have one child with ADHD, one > with and no strong autoimmune history in our > backgrounds. > > Rhoda ===msg thread truncated=== >Responsibility for the content of this message >lies strictly with the original author(s), and is >not necessarily >endorsed by or the opinion of the Research >Institute. ---------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Rhoda, check out the book " Confronting Mitral Valve Prolapse Syndrome " on Amazon. I found it very useful when I was first dx'd. It is very scary having heart " episodes " . I've found that the biggest thing for me is reducing my stress level and getting plenty of rest. I also feel tons better with regular, moderate exercise. Yoga does wonders for helping you relax and stay in shape. Becky Re: Mitral Valve Prolapse > Wow, this is spooky! The first I heard of MVP was last Friday. I had a heart " episode " Thursday (I've had a few over the last couple of years) and spent the whole night in the Emergency hooked up to a million machines. They haven't found a cause for my episodes yet, but in doing my own research on the Internet I found out about MVP. After reading about it, I am convinced that is what I have. And I was diagnosed with TMJ when I was twenty. > > Rhoda > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Thanks . It doesn't happen every night (thank goodness), but I am being sent for a 24-hour halter monitor anyway to see if they can pick anything up. I am also going for an echocardiogram next week so at least things are moving in the right direction. I was just surprised at how many mothers on this list seem to have MVP. Rhoda Re: Mitral Valve Prolapse Hi Rhoda - First, the link to TMJ was mentioned on one of the websites but the average dr who doesn't work w/ TMJ will not have found that connection, so don't bother mentioning it if you don't want them to lecture you about how there's no connection. Sounds like there could be dysautonomia involved. Also, if this happens every night, you can wear a 24-hr holter monitor that would monitor your rhythm and the palpatations and fast beats should be picked up. It is worth looking into. Cardiologists in general don't get very involved w/ MVP (I read). You may want to check to see if there are any practitioners who specialize in it - you could probably call a cardiologist's office and ask. You shouldn't have to live with that. It can be helped as long as it's properly evaluated. Also, it can eventually go away on it's own like mine did, but you should still have help now as well. Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Soooo interesting.....I don't have anything known autoimmune in my family either, but the more I learn, the more I realize I probably do. I have the heart episodes but not as severe as yours, Rhoda. My heart will either skip a beat several times or beat many times fast in succesion, then slow down. It does give you a wierd nauseated feeling. When it was at its worst (I was working full time at a job I hated and having family problems) I saw my GP because I was actually having stabbing chest pains, too, and feeling very short of breath all the time. She suspected MVP right away and ordered an echocardiogram (ultrasound of the heart). That proved positive but the prolapse was mild and the valve doesn't let any blood backflow, so we never did anything to treat it. I guess in severe cases you can take beta blockers. I saw a cardiologist too and he thought it was no big deal (easy for him to say) I'm supposed to take antibiotics for all dental procedures (per dentist) but the cardiologist said skip them since my prolapse is mild so I usually don't take them. I'd rather not have the yeast infection, thanks...... I also find that staying really hydrated helps (my blood pressure is always low). When I have the episodes, I put my finger on my pulse to see how my heart really is beating and try to relax. I've never had it last more than a few minutes, tho. 10 to 15 mins would be very scary. When mine flares up I also find that I'm very aware of my heartbeat....I read that is common. Funny about the TMJ.....I was on my way to TMJ problems before I quit my job. I was clenching and grinding all night. Becky Re: Mitral Valve Prolapse > It always happens at night after I have gone to bed. I am very restless, toss and turn a lot, just don't feel " right " . I feel overheated and my mouth goes dry. When I am restless I can usually do relaxation techniques that help a lot. I learned them after my TMJ diagnosis and they help with teeth clenching, etc. But on these occasions they just don't work. Eventually, my heart starts racing wildly and it pounds so hard it feels like it will leap out of my chest. My left arm gets tingly and I have nausea on and off. I try to talk myself through it in a relaxed mode but eventually it gets kind of scary. The racing and pounding last for about 10 to 15 minutes. My last episode before this one was a little over a year ago. By the time I am seen by a doctor it's over and the heart monitors aren't picking up anything. My mother has arrhythmia, but I don't think she has quite the same thing as I do. I am going to my GP tomorrow to ask if she can refer me to a cardiologist. I think there's a test they can administer for MVP so I'm hoping I can convince them that is the route to take. The link to TMJ is interesting and certainly fits in my case. And the connection to an autoimmune scenario is also a fit if you consider that I have one child with ADHD, one with and no strong autoimmune history in our backgrounds. > > Rhoda > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2004 Report Share Posted March 11, 2004 This has been a very interesting & informative topic. I've printed out some of the posts & links to talk with my doctor about next visit. It does seem a lot of us have this problem. I haven't been diagnosed with Mitro-Valve, but I've been checked for it 3 times now. During my pregnancy with my 2nd son, my heart started racing and it's given me problems ever since (he's almost 4). My diagnosis is Tachycardia. Some of my worst episodes were also when I would lay down & try to go to sleep. It's a very scary feeling. I was given beta-blockers then, and have taken them ever since. As long as I take them, everything is usually o.k. Stress doesn't seem to be as much of a trigger as being physically tired(working too many hours with too little sleep). My cardiologist keeps telling me if I'd just exercise on a regular basis I wouldn't have any problems. If I can just fit that into my " spare time " !!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Hi Diane, _____ From: [mailto: ] On Behalf Of Evie Subject: Re: RE: leaky gut / magnesium Hi, Ian and Canary, Yet another dx Sue and I have in common--mitral valve prolapse! We might find we are twins separated at birth yet! lol j/k --------------------------------------------------------------------------- That is VERY interesting. When we started looking at the book it struck us that it explained a lot of Sue's symptoms going back a long way, well before she got her ES. It explained why her body has tended to have a " hair-trigger " mechanism which is hard to keep in balance (e.g. adrenalin/cortisol levels) when it has got out of synch. We were wondering after that whether others in the group might have had it, because it seemed it would create the right conditions for susceptibility to ME, CFS, MCS and ES. Ian We Made Changes Your email is all new. Learn <http://us.lrd./_ylc=X3oDMTJtcHVjdXFhBF9TAzk3MzU5NzE0BF9wAzEEZ3JwSW QDMTE5NzkzMDQEZ3Jwc3BJZAMxNjAwMDYyMjE1BHNlYwNuY21vZARzbGsDaW5mbwRzdGltZQMxMT UwNzMzMjQ3;_ylg=1/SIG=11gd5l5o4/**http%3a///local/newemail.h tml> More Share <http://us.lrd./_ylc=X3oDMTJuZG1xdWJxBF9TAzk3MzU5NzE0BF9wAzIEZ3JwSW QDMTE5NzkzMDQEZ3Jwc3BJZAMxNjAwMDYyMjE1BHNlYwNuY21vZARzbGsDZmRiY2sEc3RpbWUDMT E1MDczMzI0Nw--;_ylg=1/SIG=11im36rmb/**http%3a//surveylink./wix/p141 2899.aspx> Feedback Recent Activity * 2 New <http://us.lrd./_ylc=X3oDMTJnOGdrYWFiBF9TAzk3MzU5NzE0BGdycElkAzExOT c5MzA0BGdycHNwSWQDMTYwMDA2MjIxNQRzZWMDdnRsBHNsawN2bWJycwRzdGltZQMxMTUwNzMzMj Q3;_ylg=1/SIG=11gljlihe/**http%3a///group//members> Members * 3 New <http://us.lrd./_ylc=X3oDMTJnZHZwbm5wBF9TAzk3MzU5NzE0BGdycElkAzExOT c5MzA0BGdycHNwSWQDMTYwMDA2MjIxNQRzZWMDdnRsBHNsawN2cGhvdARzdGltZQMxMTUwNzMzMj Q3;_ylg=1/SIG=11eg6g6st/**http%3a///group//spnew> Photos Visit <http://us.lrd./_ylc=X3oDMTJmYjYwY2QxBF9TAzk3MzU5NzE0BGdycElkAzExOT c5MzA0BGdycHNwSWQDMTYwMDA2MjIxNQRzZWMDdnRsBHNsawN2Z2hwBHN0aW1lAzExNTA3MzMyND c-;_ylg=1/SIG=118umf4sf/**http%3a///group/> Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Hi, Ian, I am going to have to get the book you are talking about and read it! My nutritionist wrote a book that was very helpful to me (which is how I began seeing him, btw--I called him to talk about his book!) His book was about how hormones in the body interplay and interrelate; How organs affect one another via chemical and hormonal cues. His help and info have been instrumental in my recovery thus far. His book was more general and took all the hormones into account at points, the master hormone being leptin. It was more a book devoted to diet and dieting. It sounds like this book you mention could be a more specific rendering of what my nutritionist wrote about as it pertains to the mitral valve. Thanks for the info. Diane Ian Kemp <ianandsue.kemp@...> wrote: Hi Diane, _____ From: [mailto: ] On Behalf Of Evie Subject: Re: RE: leaky gut / magnesium Hi, Ian and Canary, Yet another dx Sue and I have in common--mitral valve prolapse! We might find we are twins separated at birth yet! lol j/k ---------------------------------------------------------- That is VERY interesting. When we started looking at the book it struck us that it explained a lot of Sue's symptoms going back a long way, well before she got her ES. It explained why her body has tended to have a " hair-trigger " mechanism which is hard to keep in balance (e.g. adrenalin/cortisol levels) when it has got out of synch. We were wondering after that whether others in the group might have had it, because it seemed it would create the right conditions for susceptibility to ME, CFS, MCS and ES. Ian We Made Changes Your email is all new. Learn <http://us.lrd./_ylc=X3oDMTJtcHVjdXFhBF9TAzk3MzU5NzE0BF9wAzEEZ3JwSW QDMTE5NzkzMDQEZ3Jwc3BJZAMxNjAwMDYyMjE1BHNlYwNuY21vZARzbGsDaW5mbwRzdGltZQMxMT UwNzMzMjQ3;_ylg=1/SIG=11gd5l5o4/**http%3a///local/newemail.h tml> More Share <http://us.lrd./_ylc=X3oDMTJuZG1xdWJxBF9TAzk3MzU5NzE0BF9wAzIEZ3JwSW QDMTE5NzkzMDQEZ3Jwc3BJZAMxNjAwMDYyMjE1BHNlYwNuY21vZARzbGsDZmRiY2sEc3RpbWUDMT E1MDczMzI0Nw--;_ylg=1/SIG=11im36rmb/**http%3a//surveylink./wix/p141 2899.aspx> Feedback Recent Activity * 2 New <http://us.lrd./_ylc=X3oDMTJnOGdrYWFiBF9TAzk3MzU5NzE0BGdycElkAzExOT c5MzA0BGdycHNwSWQDMTYwMDA2MjIxNQRzZWMDdnRsBHNsawN2bWJycwRzdGltZQMxMTUwNzMzMj Q3;_ylg=1/SIG=11gljlihe/**http%3a///group//members> Members * 3 New <http://us.lrd./_ylc=X3oDMTJnZHZwbm5wBF9TAzk3MzU5NzE0BGdycElkAzExOT c5MzA0BGdycHNwSWQDMTYwMDA2MjIxNQRzZWMDdnRsBHNsawN2cGhvdARzdGltZQMxMTUwNzMzMj Q3;_ylg=1/SIG=11eg6g6st/**http%3a///group//spnew> Photos Visit <http://us.lrd./_ylc=X3oDMTJmYjYwY2QxBF9TAzk3MzU5NzE0BGdycElkAzExOT c5MzA0BGdycHNwSWQDMTYwMDA2MjIxNQRzZWMDdnRsBHNsawN2Z2hwBHN0aW1lAzExNTA3MzMyND c-;_ylg=1/SIG=118umf4sf/**http%3a///group/> Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Hi Diane, The book is called The Mitral Valve Prolapse Syndrome/Dysautonomia Survival Guide by Durante et al. Sue warns me that it is quite heavy going in places - as the title might suggest! - but helpful. The best-known book before that was Confronting Mitral Valve Syndrome by Lyn Frederickson, which is about 15 years old but still reckoned to be good (judging from the Amazon reviews). Probably more " accessible " than the new book, but we found it harder to get hold of. However Lyn F also endorses the new book. I believe it has some more recent results. Ian _____ From: [mailto: ] On Behalf Of Evie Sent: 19 June 2006 21:14 Subject: RE: mitral valve prolapse Hi, Ian, I am going to have to get the book you are talking about and read it! My nutritionist wrote a book that was very helpful to me (which is how I began seeing him, btw--I called him to talk about his book!) His book was about how hormones in the body interplay and interrelate; How organs affect one another via chemical and hormonal cues. His help and info have been instrumental in my recovery thus far. His book was more general and took all the hormones into account at points, the master hormone being leptin. It was more a book devoted to diet and dieting. It sounds like this book you mention could be a more specific rendering of what my nutritionist wrote about as it pertains to the mitral valve. Thanks for the info. Diane Ian Kemp <ianandsue.kemp@ <mailto:ianandsue.kemp%40ukgateway.net> ukgateway.net> wrote: Hi Diane, _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of Evie Subject: Re: RE: leaky gut / magnesium Hi, Ian and Canary, Yet another dx Sue and I have in common--mitral valve prolapse! We might find we are twins separated at birth yet! lol j/k ---------------------------------------------------------- That is VERY interesting. When we started looking at the book it struck us that it explained a lot of Sue's symptoms going back a long way, well before she got her ES. It explained why her body has tended to have a " hair-trigger " mechanism which is hard to keep in balance (e.g. adrenalin/cortisol levels) when it has got out of synch. We were wondering after that whether others in the group might have had it, because it seemed it would create the right conditions for susceptibility to ME, CFS, MCS and ES. Ian We Made Changes Your email is all new. Learn <http://us.lrd. <http://us.lrd./_ylc=X3oDMTJtcHVjdXFhBF9TAzk3MzU5NzE0BF9wAzEEZ3JwSW > /_ylc=X3oDMTJtcHVjdXFhBF9TAzk3MzU5NzE0BF9wAzEEZ3JwSW QDMTE5NzkzMDQEZ3Jwc3BJZAMxNjAwMDYyMjE1BHNlYwNuY21vZARzbGsDaW5mbwRzdGltZQMxMT UwNzMzMjQ3;_ylg=1/SIG=11gd5l5o4/**http%3a///local/newemail.h tml> More Share <http://us.lrd. <http://us.lrd./_ylc=X3oDMTJuZG1xdWJxBF9TAzk3MzU5NzE0BF9wAzIEZ3JwSW > /_ylc=X3oDMTJuZG1xdWJxBF9TAzk3MzU5NzE0BF9wAzIEZ3JwSW QDMTE5NzkzMDQEZ3Jwc3BJZAMxNjAwMDYyMjE1BHNlYwNuY21vZARzbGsDZmRiY2sEc3RpbWUDMT E1MDczMzI0Nw--;_ylg=1/SIG=11im36rmb/**http%3a//surveylink./wix/p141 2899.aspx> Feedback Recent Activity * 2 New <http://us.lrd. <http://us.lrd./_ylc=X3oDMTJnOGdrYWFiBF9TAzk3MzU5NzE0BGdycElkAzExOT > /_ylc=X3oDMTJnOGdrYWFiBF9TAzk3MzU5NzE0BGdycElkAzExOT c5MzA0BGdycHNwSWQDMTYwMDA2MjIxNQRzZWMDdnRsBHNsawN2bWJycwRzdGltZQMxMTUwNzMzMj Q3;_ylg=1/SIG=11gljlihe/**http%3a///group//members> Members * 3 New <http://us.lrd. <http://us.lrd./_ylc=X3oDMTJnZHZwbm5wBF9TAzk3MzU5NzE0BGdycElkAzExOT > /_ylc=X3oDMTJnZHZwbm5wBF9TAzk3MzU5NzE0BGdycElkAzExOT c5MzA0BGdycHNwSWQDMTYwMDA2MjIxNQRzZWMDdnRsBHNsawN2cGhvdARzdGltZQMxMTUwNzMzMj Q3;_ylg=1/SIG=11eg6g6st/**http%3a///group//spnew> Photos Visit <http://us.lrd. <http://us.lrd./_ylc=X3oDMTJmYjYwY2QxBF9TAzk3MzU5NzE0BGdycElkAzExOT > /_ylc=X3oDMTJmYjYwY2QxBF9TAzk3MzU5NzE0BGdycElkAzExOT c5MzA0BGdycHNwSWQDMTYwMDA2MjIxNQRzZWMDdnRsBHNsawN2Z2hwBHN0aW1lAzExNTA3MzMyND c-;_ylg=1/SIG=118umf4sf/**http%3a///group/> Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Skipper, Symptoms basically, so I tried it, but I think the symptoms can be related to several other things also, primarily other hormones dropping off.LinnOn Jun 19, 2006, at 7:24 PM, Skipper Beers wrote:>From: Linn <linnmillerentouchonline (DOT) net>>Reply-iodine >>> I actually was pretty high in my testosterone level, I wonder if>that's why I didn't do well on it.What possible reason would a female who was not low in testosterone want to take a primarily male hormone? It has side effects.Skipper__________________________________________________________On the road to retirement? Check out MSN Life Events for advice on how to get there! http://lifeevents.msn.com/category.aspx?cid=Retirement Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 >From: " Gracia " <circe@...> >Reply-iodine ><iodine > >Subject: Re: Re: Mitral valve prolapse >Date: Sun, 18 Jun 2006 00:02:44 -0500 > > > OH > well I think thyroid patients think a lot of Hotze Clinic. > I have just been thinking lately that the allopathic system is about to >fall, and the last ones to know seem to be the docs. It's a huge crisis. > My friend in Paris who sees Thierry Hertoghe MD says that he is going to >open up treatment centers in US, with docs trained by him! He is my >hormone guru. I think the allopathic docs have blown it, and someone like >Hertoghe can move right in. It may not be so easy. The drug companies and medical profession put a lot of money into our political system to defend their corrupt way of life. They're talking about changing the Internet to help big companies generate profit, you think that'll be so we can keep talking freely like this? There are reasons the government is spending a few billion on Tamiflu. The drug company connection is the company that makes it had our current Secretary of Defense as CEO until he stepped down for his current position, and he's still a major stockholer in the corporation. (He is incidentally the one who got Nutrasweet passed through the FDA by political means because it wasn't safe.) There are reasons why immunity from liability for vaccine manufacturers was snuck into a homeland security bill (but repealed, thanks to pressure), why they keep talking about limiting lawsuit verdicts to $250,000, why the president thinks if something is FDA approved people shouldn't be able to sue, and why something called the " mental health initiative " is encouraged for state adoption where they would screen every man, woman, pregnant women, and infant for mental health, and give psychiatric drugs to everyone who needs them. The last I heard,at least Illinois had adopted the initiative, which was a gift to some of the president's friends and contributors. No, it won't be so simple. They try to regulate certain things, because it's for our own good. (Like you better wear your seatbelt or you'll get a ticket. Or, ephedra is evil because one out-of-shape baseball player who was practicing in the hot sun while starving himself and drinking Nutrasweet died, and only the ephedra could have killed him, so the government needed to protect us from similar occurences. The European Union wants to limit the quantity of a vitamin that can be sold, and the drug companies over here would like that too. It's already difficult to get Lugol's Solution.) It will not be easy, for anyone interested in true health to succeed over here, unless they keep very quiet. That's why outspoken thyroid docs on the Internet Dr. Durrant-Peatfield was suspended from practice and almost immediately Dr. Derry in the UK who specialized in thyroid and iodine received notice he was under review and was ultimately suspended. Skipper _________________________________________________________________ On the road to retirement? Check out MSN Life Events for advice on how to get there! http://lifeevents.msn.com/category.aspx?cid=Retirement Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Hi, Ian, Thanks for the info. And also, forgive me, ALL! I accidently posted a couple personal emails here which I thought I changed the addies to (to and Ellen). Thanks again, Ian, Diane Ian Kemp <ianandsue.kemp@...> wrote: Hi Diane, The book is called The Mitral Valve Prolapse Syndrome/Dysautonomia Survival Guide by Durante et al. Sue warns me that it is quite heavy going in places - as the title might suggest! - but helpful. The best-known book before that was Confronting Mitral Valve Syndrome by Lyn Frederickson, which is about 15 years old but still reckoned to be good (judging from the Amazon reviews). Probably more " accessible " than the new book, but we found it harder to get hold of. However Lyn F also endorses the new book. I believe it has some more recent results. Ian _____ From: [mailto: ] On Behalf Of Evie Sent: 19 June 2006 21:14 Subject: RE: mitral valve prolapse Hi, Ian, I am going to have to get the book you are talking about and read it! My nutritionist wrote a book that was very helpful to me (which is how I began seeing him, btw--I called him to talk about his book!) His book was about how hormones in the body interplay and interrelate; How organs affect one another via chemical and hormonal cues. His help and info have been instrumental in my recovery thus far. His book was more general and took all the hormones into account at points, the master hormone being leptin. It was more a book devoted to diet and dieting. It sounds like this book you mention could be a more specific rendering of what my nutritionist wrote about as it pertains to the mitral valve. Thanks for the info. Diane Ian Kemp <ianandsue.kemp@ <mailto:ianandsue.kemp%40ukgateway.net> ukgateway.net> wrote: Hi Diane, _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of Evie Subject: Re: RE: leaky gut / magnesium Hi, Ian and Canary, Yet another dx Sue and I have in common--mitral valve prolapse! We might find we are twins separated at birth yet! lol j/k ---------------------------------------------------------- That is VERY interesting. When we started looking at the book it struck us that it explained a lot of Sue's symptoms going back a long way, well before she got her ES. It explained why her body has tended to have a " hair-trigger " mechanism which is hard to keep in balance (e.g. adrenalin/cortisol levels) when it has got out of synch. We were wondering after that whether others in the group might have had it, because it seemed it would create the right conditions for susceptibility to ME, CFS, MCS and ES. Ian We Made Changes Your email is all new. Learn <http://us.lrd. <http://us.lrd./_ylc=X3oDMTJtcHVjdXFhBF9TAzk3MzU5NzE0BF9wAzEEZ3JwSW > /_ylc=X3oDMTJtcHVjdXFhBF9TAzk3MzU5NzE0BF9wAzEEZ3JwSW QDMTE5NzkzMDQEZ3Jwc3BJZAMxNjAwMDYyMjE1BHNlYwNuY21vZARzbGsDaW5mbwRzdGltZQMxMT UwNzMzMjQ3;_ylg=1/SIG=11gd5l5o4/**http%3a///local/newemail.h tml> More Share <http://us.lrd. <http://us.lrd./_ylc=X3oDMTJuZG1xdWJxBF9TAzk3MzU5NzE0BF9wAzIEZ3JwSW > /_ylc=X3oDMTJuZG1xdWJxBF9TAzk3MzU5NzE0BF9wAzIEZ3JwSW QDMTE5NzkzMDQEZ3Jwc3BJZAMxNjAwMDYyMjE1BHNlYwNuY21vZARzbGsDZmRiY2sEc3RpbWUDMT E1MDczMzI0Nw--;_ylg=1/SIG=11im36rmb/**http%3a//surveylink./wix/p141 2899.aspx> Feedback Recent Activity * 2 New <http://us.lrd. <http://us.lrd./_ylc=X3oDMTJnOGdrYWFiBF9TAzk3MzU5NzE0BGdycElkAzExOT > /_ylc=X3oDMTJnOGdrYWFiBF9TAzk3MzU5NzE0BGdycElkAzExOT c5MzA0BGdycHNwSWQDMTYwMDA2MjIxNQRzZWMDdnRsBHNsawN2bWJycwRzdGltZQMxMTUwNzMzMj Q3;_ylg=1/SIG=11gljlihe/**http%3a///group//members> Members * 3 New <http://us.lrd. <http://us.lrd./_ylc=X3oDMTJnZHZwbm5wBF9TAzk3MzU5NzE0BGdycElkAzExOT > /_ylc=X3oDMTJnZHZwbm5wBF9TAzk3MzU5NzE0BGdycElkAzExOT c5MzA0BGdycHNwSWQDMTYwMDA2MjIxNQRzZWMDdnRsBHNsawN2cGhvdARzdGltZQMxMTUwNzMzMj Q3;_ylg=1/SIG=11eg6g6st/**http%3a///group//spnew> Photos Visit <http://us.lrd. <http://us.lrd./_ylc=X3oDMTJmYjYwY2QxBF9TAzk3MzU5NzE0BGdycElkAzExOT > /_ylc=X3oDMTJmYjYwY2QxBF9TAzk3MzU5NzE0BGdycElkAzExOT c5MzA0BGdycHNwSWQDMTYwMDA2MjIxNQRzZWMDdnRsBHNsawN2Z2hwBHN0aW1lAzExNTA3MzMyND c-;_ylg=1/SIG=118umf4sf/**http%3a///group/> Your Group Quote Link to comment Share on other sites More sharing options...
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