Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 I just wanted to send a note and say both of my sons are doing GREAT! I am so thrilled. When my older son is feeling good, he is becoming almost indistinguishable. Of course, if he's system gets overloaded some behaviors return but at the moment none of that is happening and he appears like any other 7 year old. He is so excited about things (right now it's cowboys). He used to be hyper and obsessive but now he's excited and has to share everything with you and talk your head off and ask for things and even get a little sneaky and manipulative (like the rest of us so called " normal " people). Anyway, I am so happy these days because I can finally see there is a chance for my older son too! I caught things real quick with my younger son and DR G brought him around real quick. I have tried no other treatments except following carefully whatever Dr G tells me to do. I figured if I'm going to pay him all this money it's foolish to undermine him. And it works! I see it right before my eyes now. Anyway, I thought I should email when I don't have questions too. I love DR G! Jerri Gann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 Yeah Jerri!!! Hope your good fortune spills over. All the best~~ Rose Success I just wanted to send a note and say both of my sons are doing GREAT! I am so thrilled. When my older son is feeling good, he is becoming almost indistinguishable. Of course, if he's system gets overloaded some behaviors return but at the moment none of that is happening and he appears like any other 7 year old. He is so excited about things (right now it's cowboys). He used to be hyper and obsessive but now he's excited and has to share everything with you and talk your head off and ask for things and even get a little sneaky and manipulative (like the rest of us so called " normal " people). Anyway, I am so happy these days because I can finally see there is a chance for my older son too! I caught things real quick with my younger son and DR G brought him around real quick. I have tried no other treatments except following carefully whatever Dr G tells me to do. I figured if I'm going to pay him all this money it's foolish to undermine him. And it works! I see it right before my eyes now. Anyway, I thought I should email when I don't have questions too. I love DR G! Jerri Gann Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 Hi Jerri, That is so wonderful. I hope it only gets better and better. I'm curious what your sons' delays were before starting. If you wouldn't mind giving more info on their history and progress with this, I'd be grateful. I've just started protocol with my 4 year old daughter and we are still in the dreaded die-off stage. I can't tell you what a boost it is to read a post like yours. I pray that I will write one just like it someday. Jess > I just wanted to send a note and say both of my sons are doing GREAT! I > am so thrilled. When my older son is feeling good, he is becoming almost > indistinguishable. Of course, if he's system gets overloaded some > behaviors return but at the moment none of that is happening and he > appears like any other 7 year old. He is so excited about things (right > now it's cowboys). He used to be hyper and obsessive but now he's > excited and has to share everything with you and talk your head off and > ask for things and even get a little sneaky and manipulative (like the > rest of us so called " normal " people). Anyway, I am so happy these days > because I can finally see there is a chance for my older son too! I > caught things real quick with my younger son and DR G brought him around > real quick. I have tried no other treatments except following carefully > whatever Dr G tells me to do. I figured if I'm going to pay him all this > money it's foolish to undermine him. And it works! I see it right before > my eyes now. Anyway, I thought I should email when I don't have > questions too. I love DR G! Jerri Gann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Congratulations, and we too have the same experience as you! > I just wanted to send a note and say both of my sons are doing GREAT! I > am so thrilled. When my older son is feeling good, he is becoming almost > indistinguishable. Of course, if he's system gets overloaded some > behaviors return but at the moment none of that is happening and he > appears like any other 7 year old. He is so excited about things (right > now it's cowboys). He used to be hyper and obsessive but now he's > excited and has to share everything with you and talk your head off and > ask for things and even get a little sneaky and manipulative (like the > rest of us so called " normal " people). Anyway, I am so happy these days > because I can finally see there is a chance for my older son too! I > caught things real quick with my younger son and DR G brought him around > real quick. I have tried no other treatments except following carefully > whatever Dr G tells me to do. I figured if I'm going to pay him all this > money it's foolish to undermine him. And it works! I see it right before > my eyes now. Anyway, I thought I should email when I don't have > questions too. I love DR G! Jerri Gann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Jerri I needed a little testimonial to help bring my wife's enthusiasm level. Could you list the treatments your are using and the problems you were having prior to Dr G. Bill Klimas Re: Success Congratulations, and we too have the same experience as you! > I just wanted to send a note and say both of my sons are doing GREAT! I > am so thrilled. When my older son is feeling good, he is becoming almost > indistinguishable. Of course, if he's system gets overloaded some > behaviors return but at the moment none of that is happening and he > appears like any other 7 year old. He is so excited about things (right > now it's cowboys). He used to be hyper and obsessive but now he's > excited and has to share everything with you and talk your head off and > ask for things and even get a little sneaky and manipulative (like the > rest of us so called " normal " people). Anyway, I am so happy these days > because I can finally see there is a chance for my older son too! I > caught things real quick with my younger son and DR G brought him around > real quick. I have tried no other treatments except following carefully > whatever Dr G tells me to do. I figured if I'm going to pay him all this > money it's foolish to undermine him. And it works! I see it right before > my eyes now. Anyway, I thought I should email when I don't have > questions too. I love DR G! Jerri Gann Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Thanks everyone for your kind replies. I'll try to make this concise but it could take a book to explain. I know with my older son I am not out of the woods but this is the best I have ever seen him. He has been great before and then get sick and we're right back at the beginning. I have seen the immune connection right before my eyes. I'm sure the medical community has a hard time believing getting sick could cause bizarre behaviors but I've seen it too many times to ever doubt again. My ABA/RDI therapist firmly believed autism was genetic now she speaks of the immune connection all the time because she has seen it very blatantly. My older son is doing so well right now (he's seven and was diagnosed at 4 years old) that she is backing off completely and telling us to stop babying him (a big change for us) and he is trying to be independent from his aide at school. This has been happening for the past week. His sinus' hurt right now and it hurts his eyes but other than this I can tell he feels a lot better. We have been with Dr G for two years in February. Previously I had read all the DAN stuff and had some tests done at Great Plains Labs. He was on Nystatin for a year. I was recommended glutiathione, Supra-Nuthera, malic acid, and Culturelle lactobacillus. I couldn't tell if anything was helping I could only hope. We quit milk before Dr G but his digestion was such a mess. I couldn't tell if anything was helping him or not. Dr G told us to stop all supplements except the Culturelle (which I have recently stopped because of a post here) and switched to kyodophiulus. I pretty much have followed Dr G. I remember one time I was giving him the tiny beta carotene tabs and gummy bears with echinachia (sp?). Our blood labs came back not good and Dr G asked me are you giving him supplements? I was dead silent. I felt so horrible. I have a chiropractor girlfriend who is leery of all the meds and she is always truing to get me to try new stuff. She hates the medical community. Sometimes I do too but Dr G is different. Anyway, I felt so bad for disappointing him and I could see how it was messing up my sons labs. (Dr G must be psychic). I have never done anything different then Dr G's protocol since. Previously I did believe in the vaccine/thimersol issue and had a urine provocation test done to see if he had excessive mercury but he did not. There is of course tons of things in our hair not in our bodies. Thank God he didn't I'm so glad we didn't do chelation. I did not vaccinate my younger son and he was diagnosed at 2. My girlfriend has 3 out of four autistic children and she has only vaccinated one. So I truly believe Dr G has figured this out. The immune system has a problem and then everything can be a problem. I wish he could get the recognition he needs so more children could be helped. I know the past two years have been very difficult and I know enough to know this is not over. But I have so much hope for my son, everyone that knows him does too. They are amazed by the change. Therapy wise, I finally found a therapist in our area that worked with my son one summer and then I had training at Behavioral Analysis in Pleasant Hills, Ca. My therapist quit working for the schools last year and has been with us a year now working with both my sons five hours a day four days a week using ABA/RDI. My first son was very hyper, he would run back and forth most of the time squealing, he was not potty trained, he had a few words but no sentences, he could read but had little understanding, he loved letters and looking at the credits on movies, he would throw things in the air, tear things up, twice smeared poop all over the wall, and would play with himself. By the way, I asked my pediatrician twice to check him for autism and I was given the classic " wait and see " , which I believe is the cruelest thing they can do. After I got the diagnosis, I searched frantically for help and got Maurices book, Behavioral Intervention for Austistic children and found a web sight ABAresources I believe from Saffron? I think. Anyway I feel into despair because I learned the best hope for recovery is if you catch it early (like 2 years old)and work forty hours a week for two/three years they might be able to be mainstreamed into kindergarten. My son was four and I could not find any help. I would have moved anywhere but there was waiting lists everywhere. I tried to do stuff myself but the mountain of it engulfed me. I was paralyzed by fear. I recently looked at our home videos and saw that I was doing a lot of ABA stuff(without knowing it), before my son got diagnosed, teaching him a lot of words, singing and having him finish the song. But when everything hit I could hardly do anything plus I just had another baby. My younger son was perfectly on track until age two and then he started regressing and he was diagnosed and I could not bear it for a long time. But I picked myself up and thought I know what to do and got on Dr G's waiting list and started doing what I could and when I got the therapist things turned around real quick for him. My therapist has helped a lot of children but most of them lose what they have learned from her and I believe this is because Dr G is right, this is a medical condition and if you don't get them feeling well all the ABA in the world can only go so far. Anyway, I am writing a book, sorry but I hope this helps others out there stay the course. It HAS NOT been EASY and many times I have wanted to quit but I am so glad I didn't. Thanks, Jerri Hi Jerri, That is so wonderful. I hope it only gets better and better. I'm curious what your sons' delays were before starting. If you wouldn't mind giving more info on their history and progress with this, I'd be grateful. I've just started protocol with my 4 year old daughter and we are still in the dreaded die-off stage. I can't tell you what a boost it is to read a post like yours. I pray that I will write one just like it someday. Jess Subject: RE: Re: Success Jerri I needed a little testimonial to help bring my wife's enthusiasm level. Could you list the treatments your are using and the problems you were having prior to Dr G. Bill Klimas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2008 Report Share Posted May 28, 2008 Yay!!!!!How wonderful!!!!!!! Deborah <esmin42@...> wrote: I have to celebrate a success. I met with the school special ed teacher, the school district psychologist/program director (also specializes in autism), the speech pathologist, and two counselors to review the latest IEP for my 18 year old son. He's essentially a sophomore in high school credits so they are moving him to the running start college program (high school pays tuition, I pay books and fees). He'll attend college and report once a day to the high school for the next two years. Well, the speech pathologist was the original one that evaluated him and recognized my son was "different", and helped us get the help to have him diagnosed with Aspergers. So, her evaluation 3 years ago showed some serious disconnect with communication. Today, she confirmed he's made tremendous strides and is very effective as a communicator. His biggest hangup now is accepting or recognizing he needs to communicate. Example of 3 years ago: he could not read body language, could not pick up on nuances or cues from voice tempo, feeling etc. He scored close to a zero on that part of the test. Now: he scores close to 100 and can read body language, picks up on tone of voice, etc. This is HUGE for us. His other communication levels have gone up tremendously as well. So, I'm very happy at his successes and very encouraged he will be able to function somewhat successfully when he is ready to be on his own. This is a very happy day for us. Oh, and they changed his classification from behavioral disorder (what they had to use until we got an official diagnosis) to autism/asperger's/highly functioning. They'd delayed in the past because it meant a change in case workers. Now they have provision by the IEP to keep him with the same case worker (who is wonderful). I wish all of you similar successes. It's so hard seeing them struggle. Deb S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Hi everyone - my daughter is now 20.5 months old. She has/had mild torticollis - diagnosed at 5.5 months and HAD plagiocephaly - 14.8 mm diagnol difference. She also had visible facial assymetry. She was in Starband from 6 mo. to 14 mo and was just measured yesterday. Since the helmet has been off - she has actuallly continued to improve - down to 3.0 mm diag diff - ie - within normal (0to 6.0) . We also continually stretch her and will continue to do so - esp during growth spurts. She is in PT. We stretch at least 3-4 times a day - or more - to the count of 30 seconds during diaper changes or whenever she is in the mood - and sign songs - liek one little two little three little bears - or whatever. The orthist says that the stretching has made the biggest diff in controlling and correcting the tort. She still tilts - only now and then and you have to look for it - not regularly at all anymore - thank Goodness. So my advice to all of those - stretch and stretch and also - tummy time (reading on her tum helps) and helmet!!! By the way -the face asymm. is GONE. **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Hi , I'm so glad that she's doing well and that she improved after her band. Thanks for updating us. She's lucky to have such dedicated parents to stretch her :-) -christine sydney 2.5 yrs starband grad > > Hi everyone - my daughter is now 20.5 months old. She has/had mild > torticollis - diagnosed at 5.5 months and HAD plagiocephaly - 14.8 mm diagnol > difference. She also had visible facial assymetry. She was in Starband from 6 mo. to 14 > mo and was just measured yesterday. Since the helmet has been off - she has > actuallly continued to improve - down to 3.0 mm diag diff - ie - within normal > (0to 6.0) . We also continually stretch her and will continue to do so - esp > during growth spurts. She is in PT. We stretch at least 3-4 times a day - or > more - to the count of 30 seconds during diaper changes or whenever she is in the > mood - and sign songs - liek one little two little three little bears - or > whatever. The orthist says that the stretching has made the biggest diff in > controlling and correcting the tort. She still tilts - only now and then and you > have to look for it - not regularly at all anymore - thank Goodness. > So my advice to all of those - stretch and stretch and also - tummy time > (reading on her tum helps) and helmet!!! By the way -the face asymm. is GONE. > > > > ************** > Looking for a car that's sporty, fun and fits in your > budget? Read reviews on AOL Autos. > > (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) > Quote Link to comment Share on other sites More sharing options...
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