Re: thoughts on researcher comment

[Guest guest]

I interpreted it the same way Kari did. My sister is a researcher and has

encountered many comments about specific things she said or asserted that didn't

bring in " existent literature " . I actually think it would be very

interesting to consider that the parents' characteristics could influence how

they

interpret abandonment or isolation as a part of the overall study. You may find

no

connection or perhaps it could offer those working with parents even more

insight into how to ultimately support them.

As far as my experience with parents of autistic kids goes, social skills

tend to vary greatly. I have noticed that it is very common for one or both of

the parents of kids with Asperger Syndrome to also have some of the traits. I

see it less with autistic kids but then there are other symptoms these parents

sometimes share like sensory issues.

Gaylen

In a message dated 5/4/2007 10:25:15 PM Central Daylight Time,

kariconness@... writes:

<<Primarily, the researcher is asking you to investigate and incorporate

" existent literature " on your topic; create a dialogue between what you want to

contribute to the field and what others may have already said, (ie, " Another

major weakness of the paper is the dialogue it establishes with the existent

literature. The author(s) does not accomplish a critical

> and thoughtful examination of relevant studies. " ) He/she is only suggesting

that perhaps ONE way to do this is to look at the behavioral/emotiona and

thoughtful examination of relevant studies. " ) He/she is only suggesting that

perhaps ONE way to do this is to look at the behaviora>>

************************************** See what's free at http://www.aol.com.

[Guest guest]

>

>

> Are you saying you think children who have mothers that are socially

> withdrawn have more children with Autism? What about fathers?

>

> Hi folk. I submitted a research article to a serious peer reviewed

> journal. I did the study and wrote it up explaining the results in

> terms of the mother's loneliness and how the mother is often abandoned

> by the community. 2 reviews were positive but the 3rd reviewer made

> this odd comment which I have cut and pasted. It reminded me of the

> myth only recently dispelled that children w/ASD had refrigerator

> mothers, but maybe I am mis-interpreting. How does it strike you guys?

> The article was rejected but it was suggested I re-work it as it adds

> to the literature.

> Another major weakness of the paper is the dialogue it establishes with

> the existent literature. The author(s) does not accomplish a critical

> and thoughtful examination of relevant studies. The literature on

> emotional and behavioral aspects of mother of children with autism may

> not be

> overwhelming, but definitely exists. One whole, potentially relevant,

> aspect of this literature, completely ignored by the manuscript's

> author(s), is the possibility that mothers of autistic children

> present what

> has be labeled and a 'broad autistic phenotype' (see Piven et al and

> others). That is, mothers would have some of the same characteristics of

> their children (e.g., social withdrawn) but in a milder level,

> suggesting the mild expression in relatives of genes related to

> autism. If this

> literature was explored, the notion of community abandonment would

> certainly become more complex.

> Thanks. Diane

>

>

[Guest guest]

>but maybe I am mis-interpreting. How does it strike you guys? The article

>was > rejected but it was suggested I re-work it as it adds to the

>literature.

>

There is no misinterpreting to me. You are right. This guy sounds ignorant

and has no clue about Autism.

Just for the record, I am not sure what he means by " social withdrawn " , but

I am often referred to as the social butterfly in the family and my husband

and his family are the " loner " ones.

[Guest guest]

I have yet to meet a SINGLE autism mom that is socially withdrawn in any sense

of the word. Not one. I'd say I've met about 100, give or take 5.

Aliza

....the test of a civilization is in the way that it cares for its helpless

members.

-Pearl S. Buck

Re: thoughts on researcher comment

>

>

> Are you saying you think children who have mothers that are socially

> withdrawn have more children with Autism? What about fathers?

>

> Hi folk. I submitted a research article to a serious peer reviewed

> journal. I did the study and wrote it up explaining the results in

> terms of the mother's loneliness and how the mother is often abandoned

> by the community. 2 reviews were positive but the 3rd reviewer made

> this odd comment which I have cut and pasted. It reminded me of the

> myth only recently dispelled that children w/ASD had refrigerator

> mothers, but maybe I am mis-interpreting. How does it strike you guys?

> The article was rejected but it was suggested I re-work it as it adds

> to the literature.

> Another major weakness of the paper is the dialogue it establishes with

> the existent literature. The author(s) does not accomplish a critical

> and thoughtful examination of relevant studies. The literature on

> emotional and behavioral aspects of mother of children with autism may

> not be

> overwhelming, but definitely exists. One whole, potentially relevant,

> aspect of this literature, completely ignored by the manuscript's

> author(s), is the possibility that mothers of autistic children

> present what

> has be labeled and a 'broad autistic phenotype' (see Piven et al and

> others). That is, mothers would have some of the same characteristics of

> their children (e.g., social withdrawn) but in a milder level,

> suggesting the mild expression in relatives of genes related to

> autism. If this

> literature was explored, the notion of community abandonment would

> certainly become more complex.

> Thanks. Diane

>

>

[Guest guest]

Im not sure what the researcher means. I think he is saying my research paper

does not have validity because i did not refer to moms of kids w/autism also

being withdrawn like their kids are. I was so in shock I cut and pasted his

comment to see 8if you had a different interpretation. This is an expert called

on to review my study.

and Trina Sherman wrote: >

>

> Are you saying you think children who have mothers that are socially

> withdrawn have more children with Autism? What about fathers?

>

> Hi folk. I submitted a research article to a serious peer reviewed

> journal. I did the study and wrote it up explaining the results in

> terms of the mother's loneliness and how the mother is often abandoned

> by the community. 2 reviews were positive but the 3rd reviewer made

> this odd comment which I have cut and pasted. It reminded me of the

> myth only recently dispelled that children w/ASD had refrigerator

> mothers, but maybe I am mis-interpreting. How does it strike you guys?

> The article was rejected but it was suggested I re-work it as it adds

> to the literature.

> Another major weakness of the paper is the dialogue it establishes with

> the existent literature. The author(s) does not accomplish a critical

> and thoughtful examination of relevant studies. The literature on

> emotional and behavioral aspects of mother of children with autism may

> not be

> overwhelming, but definitely exists. One whole, potentially relevant,

> aspect of this literature, completely ignored by the manuscript's

> author(s), is the possibility that mothers of autistic children

> present what

> has be labeled and a 'broad autistic phenotype' (see Piven et al and

> others). That is, mothers would have some of the same characteristics of

> their children (e.g., social withdrawn) but in a milder level,

> suggesting the mild expression in relatives of genes related to

> autism. If this

> literature was explored, the notion of community abandonment would

> certainly become more complex.

> Thanks. Diane

>

>

[Guest guest]

Dear Diane,

Primarily, the researcher is asking you to investigate and incorporate

" existent literature " on your topic; create a dialogue between what you want to

contribute to the field and what others may have already said, (ie, " Another

major weakness of the paper is the dialogue it establishes with the existent

literature. The author(s) does not accomplish a critical

> and thoughtful examination of relevant studies. " ) He/she is only suggesting

that perhaps ONE way to do this is to look at the behavioral/emotional

characteristics of the mother that the ASD child might share, and that PERHAPS

ONE of those characteristics might be asocial behavior.

Try not to be too offended... this is what happens in academia all the time.

A person reviews and offers a POSSIBLE way for you to further investigate/study

your particular claim. If you don't think that this kind of examination

(behavioral connection between mother and child) fits your article, then fine;

perhaps the reviewer missed your point. However, I would take his/her advice to

incorporate existent literature if you haven't already done so as creating a

dialogue (disputing/agreeing wtih others who have written on your subject) will

generally only serve to bolster your position.

all the best,

kari

Diane V Murrell wrote:

Im not sure what the researcher means. I think he is saying my

research paper does not have validity because i did not refer to moms of kids

w/autism also being withdrawn like their kids are. I was so in shock I cut and

pasted his comment to see 8if you had a different interpretation. This is an

expert called on to review my study.

and Trina Sherman wrote: >

>

> Are you saying you think children who have mothers that are socially

> withdrawn have more children with Autism? What about fathers?

>

> Hi folk. I submitted a research article to a serious peer reviewed

> journal. I did the study and wrote it up explaining the results in

> terms of the mother's loneliness and how the mother is often abandoned

> by the community. 2 reviews were positive but the 3rd reviewer made

> this odd comment which I have cut and pasted. It reminded me of the

> myth only recently dispelled that children w/ASD had refrigerator

> mothers, but maybe I am mis-interpreting. How does it strike you guys?

> The article was rejected but it was suggested I re-work it as it adds

> to the literature.

> Another major weakness of the paper is the dialogue it establishes with

> the existent literature. The author(s) does not accomplish a critical

> and thoughtful examination of relevant studies. The literature on

> emotional and behavioral aspects of mother of children with autism may

> not be

> overwhelming, but definitely exists. One whole, potentially relevant,

> aspect of this literature, completely ignored by the manuscript's

> author(s), is the possibility that mothers of autistic children

> present what

> has be labeled and a 'broad autistic phenotype' (see Piven et al and

> others). That is, mothers would have some of the same characteristics of

> their children (e.g., social withdrawn) but in a milder level,

> suggesting the mild expression in relatives of genes related to

> autism. If this

> literature was explored, the notion of community abandonment would

> certainly become more complex.

> Thanks. Diane

>

>

[Guest guest]

You are correct I am going to re-work the lit review but after amassing a huge

amount of reading and work experience I have yet to observe a pattern of mothers

having a shadow of autism traits particularly in the arena of social deficit and

so my query was what have I missed. perhaps I am over sensitive to the

observation if the kids have autism the moms share the genes, therefore...

having said that yes a minority may share some features but in my sample group

that did not occur so I did not include that and I have yet to find it in the

lit although I will look more carefully now. THanks for the comments

Googahly@... wrote:

I interpreted it the same way Kari did. My sister is a researcher and has

encountered many comments about specific things she said or asserted that didn't

bring in " existent literature " . I actually think it would be very

interesting to consider that the parents' characteristics could influence how

they

interpret abandonment or isolation as a part of the overall study. You may find

no

connection or perhaps it could offer those working with parents even more

insight into how to ultimately support them.

As far as my experience with parents of autistic kids goes, social skills

tend to vary greatly. I have noticed that it is very common for one or both of

the parents of kids with Asperger Syndrome to also have some of the traits. I

see it less with autistic kids but then there are other symptoms these parents

sometimes share like sensory issues.

Gaylen

In a message dated 5/4/2007 10:25:15 PM Central Daylight Time,

kariconness@... writes:

<<Primarily, the researcher is asking you to investigate and incorporate

" existent literature " on your topic; create a dialogue between what you want to

contribute to the field and what others may have already said, (ie, " Another

major weakness of the paper is the dialogue it establishes with the existent

literature. The author(s) does not accomplish a critical

> and thoughtful examination of relevant studies. " ) He/she is only suggesting

that perhaps ONE way to do this is to look at the behavioral/emotiona and

thoughtful examination of relevant studies. " ) He/she is only suggesting that

perhaps ONE way to do this is to look at the behaviora>>

************************************** See what's free at http://www.aol.com.

[Guest guest]

I have often wondered about that. I am a single mother and was

extremely socially withdrawn ,had no friends or support system and was

extremely emotionally distressed throughout my pregancy. The father

and I broke up at 7 months pregnant and it was very hard on me and I

moved back to Texas with an uncertain future ahead of me. I cried

every day for a long time and worried if I would hurt the baby by

feeling so sad constantly. I really did not have much of a social life

again until my child was almost two, plus I worked from home doing web

design at the time so i was REALLY isolated.

>

>

> Hi folk. I submitted a research article to a serious peer reviewed

journal. I did the study and wrote it up explaining the results in

terms of the mother's loneliness and how the mother is often abandoned

by the community. 2 reviews were positive but the 3rd reviewer made

this odd comment which I have cut and pasted. It reminded me of the

myth only recently dispelled that children w/ASD had refrigerator

mothers, but maybe I am mis-interpreting. How does it strike you guys?

The article was rejected but it was suggested I re-work it as it adds

to the literature.

> Another major weakness of the paper is the dialogue it establishes

with

> the existent literature. The author(s) does not accomplish a critical

> and thoughtful examination of relevant studies. The literature on

> emotional and behavioral aspects of mother of children with autism

may not be

> overwhelming, but definitely exists. One whole, potentially relevant,

> aspect of this literature, completely ignored by the manuscript's

> author(s), is the possibility that mothers of autistic children

present what

> has be labeled and a 'broad autistic phenotype' (see Piven et al and

> others). That is, mothers would have some of the same

characteristics of

> their children (e.g., social withdrawn) but in a milder level,

> suggesting the mild expression in relatives of genes related to

autism. If this

> literature was explored, the notion of community abandonment would

> certainly become more complex.

> Thanks. Diane

>

>

>

>

>

[Guest guest]

i hope he is wrong because I always find ways to blame myself anyway,

this is all I need.

having a bad day...

>

>

> >but maybe I am mis-interpreting. How does it strike you guys? The

article

> >was > rejected but it was suggested I re-work it as it adds to the

> >literature.

> >

>

> There is no misinterpreting to me. You are right. This guy sounds

ignorant

> and has no clue about Autism.

>

> Just for the record, I am not sure what he means by " social

withdrawn " , but

> I am often referred to as the social butterfly in the family and my

husband

> and his family are the " loner " ones.

>

>

>

[Guest guest]

i hope he is wrong because I always find ways to blame myself anyway,

this is all I need.

having a bad day...

>

>

> >but maybe I am mis-interpreting. How does it strike you guys? The

article

> >was > rejected but it was suggested I re-work it as it adds to the

> >literature.

> >

>

> There is no misinterpreting to me. You are right. This guy sounds

ignorant

> and has no clue about Autism.

>

> Just for the record, I am not sure what he means by " social

withdrawn " , but

> I am often referred to as the social butterfly in the family and my

husband

> and his family are the " loner " ones.

>

>

>

[Guest guest]

I am finishing a class involving research and writing journal articles for

publication. The advise received from this class stated that you must be

clear, concise, and to the point. You should include ALL data gathered,

whether it supports your hypothesis or not. If it appears to be only one or

two small areas that don't fit with your general hypothesis, you should

explain in detail the circumstances surrounding why they were different. But

you should never leave out ANY of the data you have collected...you must

report it all.

Hope this helps.

nna

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10:34 AM

[Guest guest]

I seem to recall that someone has taken a look at the technology

pockets (i.e., Silicon Valley and MIT) to muse about why autism rates

appear to be higher in those areas. One theory went something like -

women are entering the computer and engineering fields more and more

(where people with shades of autistic characteristics might go), thus

similar men and women are meeting and getting married, and they are

producing children that have shades on top of shades which results in

full blown autism. I can't for the life of me remember where this

article came from, but I know I read it online. Maybe you can find

it if you think it will help.

S.

>

> I interpreted it the same way Kari did. My sister is a researcher

and has

> encountered many comments about specific things she said or

asserted that didn't

> bring in " existent literature " . I actually think it would be very

> interesting to consider that the parents' characteristics could

influence how they

> interpret abandonment or isolation as a part of the overall study.

You may find no

> connection or perhaps it could offer those working with parents

even more

> insight into how to ultimately support them.

>

> As far as my experience with parents of autistic kids goes, social

skills

> tend to vary greatly. I have noticed that it is very common for one

or both of

> the parents of kids with Asperger Syndrome to also have some of the

traits. I

> see it less with autistic kids but then there are other symptoms

these parents

> sometimes share like sensory issues.

> Gaylen

>

>

>

> In a message dated 5/4/2007 10:25:15 PM Central Daylight Time,

> kariconness@... writes:

>

> <<Primarily, the researcher is asking you to investigate and

incorporate

> " existent literature " on your topic; create a dialogue between what

you want to

> contribute to the field and what others may have already said,

(ie, " Another

> major weakness of the paper is the dialogue it establishes with the

existent

> literature. The author(s) does not accomplish a critical

> > and thoughtful examination of relevant studies. " ) He/she is only

suggesting

> that perhaps ONE way to do this is to look at the

behavioral/emotiona and

> thoughtful examination of relevant studies. " ) He/she is only

suggesting that

> perhaps ONE way to do this is to look at the behaviora>>

>

> ************************************** See what's free at

http://www.aol.com.

>

>

[Guest guest]

I serioulsy disagree with this article, it sounds just as bad as the tv article.

MY family and the families that I know with children with autism, and even

families with

children withouth autism, we are all nothing but social, meeting all the time,

and getting

together for eveythiing.

That is just wrong, they need to spend more time researching things that are a

little more

productive than making mother's feel guilty, as if is not enough to have the

terrible

diagnosed then have some person come and tell you about this purposless

researchs.

I read some of the mom's here, were already feeling guilty, and it anger's me

that

someone

will try to put this guilt trip in to so many of us hard working mother's.

Also I know many moms that do not do much for socializing and their kid's

behavior's are

as autistics as my children.

So that is my evidence to this research, researcher sure has to much time in his

or her

hands, maybe next time she or he will pick, Down syndrome or bipolar's for

research.

>

> I have yet to meet a SINGLE autism mom that is socially withdrawn in any sense

of the

word. Not one. I'd say I've met about 100, give or take 5.

>

> Aliza

>

>

> ...the test of a civilization is in the way that it cares for its helpless

members.

>

> -Pearl S. Buck

>

>

>

> Re: thoughts on researcher comment

>

> >

> >

> > Are you saying you think children who have mothers that are socially

> > withdrawn have more children with Autism? What about fathers?

> >

>

> > Hi folk. I submitted a research article to a serious peer reviewed

> > journal. I did the study and wrote it up explaining the results in

> > terms of the mother's loneliness and how the mother is often abandoned

> > by the community. 2 reviews were positive but the 3rd reviewer made

> > this odd comment which I have cut and pasted. It reminded me of the

> > myth only recently dispelled that children w/ASD had refrigerator

> > mothers, but maybe I am mis-interpreting. How does it strike you guys?

> > The article was rejected but it was suggested I re-work it as it adds

> > to the literature.

> > Another major weakness of the paper is the dialogue it establishes with

> > the existent literature. The author(s) does not accomplish a critical

> > and thoughtful examination of relevant studies. The literature on

> > emotional and behavioral aspects of mother of children with autism may

> > not be

> > overwhelming, but definitely exists. One whole, potentially relevant,

> > aspect of this literature, completely ignored by the manuscript's

> > author(s), is the possibility that mothers of autistic children

> > present what

> > has be labeled and a 'broad autistic phenotype' (see Piven et al and

> > others). That is, mothers would have some of the same characteristics of

> > their children (e.g., social withdrawn) but in a milder level,

> > suggesting the mild expression in relatives of genes related to

> > autism. If this

> > literature was explored, the notion of community abandonment would

> > certainly become more complex.

> > Thanks. Diane

> >

> >