Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Hi , I just finished my phone consultation with Dr. G. Based on talking with him and reading this list. I realize now never to let Tyler stay sick so long. I need to call Dr.G right away and have him put on an anti-viral for the flu. I need to really stay on top of congestion and keep it dried up with triminic, or zyrtec and flonase. He is getting better behavior-wise but no where near as good as he was. I'm hoping I can get him back up to par before school starts on Monday. Sicknesswise he is over it, he just has a little congestion. He is not even coughing anymore but autistic behaviorwise he has taken some big steps backwards. This really does fit with Dr. G's overall message of don't overload the immune system too much, remove as many offenders as possible and our kids do get better. I am heart broken that we have taken such a leap back but am convinced more then ever that Dr. G is right on. He also told me not to worry about MCV and MCH being high, he said this had to do with cell size and metabolism and is nothing to worry about. I hope I didn't misquote him and this might apply only to my son but I do remember someone asking about this before. I hope this helps. We are staying the course with all his meds until he is fully well because how can you tell what the meds are doing until we are over this. Jerri Jerri, Please post Dr. Goldberg's recommendations. My son sees Dr. in Austin and follow's a similar protocol but we don't have that close followup. Your message sounded just like my past week. My 4 year old was doing so well the past several weeks that we were afraid to even say anything because we were afraid we would jinx it. The flu came and after several days we went down hill. I just don't know what to do about it. He was the best he had ever been and has taken a giant leap backwards. Thanks to everybody for their emails. I am usually just a reader but had to write on this one. >> I just wanted to chime in on this thread. My son has always been > > one who >> appears fine when he is ill except this time. Before my son got the > > flu >> last week, he has been the best I've ever seen him. I have been > > greatly >> relieved and feeling very optimistic about him. Well, he got the > > flu and >> was doing pretty well, symptoms were minimal and then on the sixth > > day >> of being sick all his autistic symptoms are back in full gear. It > > is >> absolutely heartbreaking to see and endure. I wish I had known > > about Dr >> G's desire for us to contact him right away on any illness and to > > not >> let them go longer than five days as it is too hard on the immune > > system >> (as I have just read on past lists.) I can see that as far as > > my >> son goes. Dr. G is absolutely on track. If I ever doubted him > > before I >> certainly don't now. The immune connection with the autistic > > symptoms >> has been so dramatic and obvious this time and exactly on day six > > of >> being sick, just like Dr G said. I guess his immune system just got > > over >> stressed after being sick for five days and now he is freaking out, > > he >> is so intense and loud and non-sensical and difficult to be around. > > I >> wonder how long to get him back where he was. Anyone out there been >> through this? It is interesting how he has switched from appearing >> normal when sick to now appearing almost normal when well and > > completely >> autistic when ill. Maybe this is a good sign. I emailed the > > office. >> I'll let you know what he recommends. Here's wishing you all Happy >> Holidays and hoping we all get through this to better times. Jerri > > Gann Quote Link to comment Share on other sites More sharing options...
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