Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Dear Listmates, I am glad to hear that many of you are seeing Dr. Layton and are happy with him. Based on these experiences and those of others, I made an appointment with Dr. Layton in February for my AS son age 7, first grade. I am in the process of reading Dr. McCandlesses Book about Starving Brains and am also reading ' GFCF book. We just started the diet recently and I am keeping a food log. I have not seen regression or improvement, but I do think I am noticing some food reactions -- interactions -- allergies?? That leads to my question -- when you went to Dr. Layton the first time, can those of you with experience in this area share how you approached treatment? For example, did you bring the protocol, the DAN protocol and choose items, or did you let him draw his own conclusions from your data? I need to clarify my goals so I don't waste time and money. We will pay out of pocket without reimbursement (very expensive at $300 per hour) and I want to be sure I help my son with the visit. When I talked to the appointments person she rattled off a lot of information that went over my head: allergy testing, enterdermal [sic], proctative, sublingual ($8 each), immunotherapy, anitgens in a vial etc. My point is that I don't feel very well educated on this subject. What should I read so that I am prepared to talk with this doctor? My son is high functioning aspergers, anxiety, Paxil, no apparent food allergies, no bowel problems, no sleep problems, tantrums at home only. He has trouble with visual scanning, focus and sometimes is hyper (after eating) and silly after eating, grouchy in the mornings and circles under the eyes. Also diagnosed with environmental asthma (stage 2) and seasonal environmental allergies of no determined origin. Thanks in advance for the advice. Schultz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 , The treatments Neuro-Immune Dysfunction Syndromes as a disease process that leads to ASD requires thorough and experienced analysis of the disease symptoms that present - bloodwork, medical background (of patient and family), and patient evaluation on examination. Treatment is a systematic process and is not a matter of choosing bits of this and that protocol. It is a matter of an experienced physician choosing the treatments that suit the patient's requirements. Read the papers on Dr Goldberg's site and the bloodwork requirements. You may need to read them several times - I re-read them after 4 years and still discover new information! Do not opt for " band-aid " medicine. I don't know Dr Layton, however if you bring the right information and have the right tests done, he, like any scientifically minded physician should be able to make appropriate decisions for your son's treatment. best wishes RE: Dr. Layton / question Dear Listmates, I am glad to hear that many of you are seeing Dr. Layton and are happy with him. Based on these experiences and those of others, I made an appointment with Dr. Layton in February for my AS son age 7, first grade. I am in the process of reading Dr. McCandlesses Book about Starving Brains and am also reading ' GFCF book. We just started the diet recently and I am keeping a food log. I have not seen regression or improvement, but I do think I am noticing some food reactions -- interactions -- allergies?? That leads to my question -- when you went to Dr. Layton the first time, can those of you with experience in this area share how you approached treatment? For example, did you bring the protocol, the DAN protocol and choose items, or did you let him draw his own conclusions from your data? I need to clarify my goals so I don't waste time and money. We will pay out of pocket without reimbursement (very expensive at $300 per hour) and I want to be sure I help my son with the visit. When I talked to the appointments person she rattled off a lot of information that went over my head: allergy testing, enterdermal [sic], proctative, sublingual ($8 each), immunotherapy, anitgens in a vial etc. My point is that I don't feel very well educated on this subject. What should I read so that I am prepared to talk with this doctor? My son is high functioning aspergers, anxiety, Paxil, no apparent food allergies, no bowel problems, no sleep problems, tantrums at home only. He has trouble with visual scanning, focus and sometimes is hyper (after eating) and silly after eating, grouchy in the mornings and circles under the eyes. Also diagnosed with environmental asthma (stage 2) and seasonal environmental allergies of no determined origin. Thanks in advance for the advice. Schultz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Hi, : When we went to Dr. Layton for the first time, I was very organized. I had copies of all the medical tests and relevant information that I thought might be useful (i.e. OT evaluations, blood tests, physicals, nutritional data ect.). We had already been on the GFCF diet and the nutritional therapy about 6 months before we saw him and I was fairly well read on the topic of many alternative treatments for ASD. Dr. McCandless's book is an excellent reference, and if you are even just vaguely familiar with some of the things she talks about, you'll be fine. Kim already gave you an excellent account of what will likely happen. Dr. Layton will ask a TON of questions and then try to see a pattern. Because your son has a history of allergies (my son didn't), it will be useful for you to either bring with you or send copies in advance of any allergy testing you have already had done. That will save you some time. My hunch is the dr. will want to do the allergy testing with your son. My son was so sensitive, it took THREE days to do all the testing. We ended up staying overnight in the adjoining Ramada Hotel because it was easier than fighting Washington rush hour traffic or getting up at the crack of dawn to be at the office for the all-day testing. Honestly, I was stunned by the results -- he was allergic to some degree or another to practically EVERYTHING we tried (food, mold, dust, pet dander, you name it!). I had no idea he was so sensitive. Luckily, because of the immunotherapy drops, it didn't mean he couldn't have any of those foods (only those that were off the scale!) or that we'd have to get rid of the dog. We just had to go easy on certain foods and rotate them until his immune system stopped getting so fired up anytime he had them. He'll also probably suggest certain dietary or nutriotional supplements - if you can afford them, trust him on this. It seems my son has a very similiar case history to yours, except his hyperactivity and behavioral issues carried over into school. Perhaps the best advice I can give you is try not to get overwhelmed. Prioritize. We decided to worry first about the allergies -- focusing on a superstrict diet and adding the Feingold; taking the immunotherapy drops and trying to ease his allergies any other way we could -- i.e. getting protective bedding, an air purifier, vigilant vacuuming and dusting. Then we moved on to a more intense approach at healing the gut, and then addressing his auditory/sensory issues and so on until where we are now -- taking acylcovir with cheleation to come next. Be patient. We did not see immediate results, but the pay-off finally did come and is still coming for us some two and a half years later. Good luck! > Dear Listmates, > > That leads to my question -- when you went to Dr. Layton the first time, can > those of you with experience in this area share how you approached > treatment? For example, did you bring the protocol, the DAN protocol > and choose items, or did you let him draw his own conclusions from your > data? I need to clarify my goals so I don't waste time and money. We will > pay out of pocket without reimbursement (very expensive at $300 per hour) > and I want to be sure I help my son with the visit. > > When I talked to the appointments person she rattled off a lot of > information that went over my head: allergy testing, enterdermal [sic], > proctative, sublingual ($8 each), immunotherapy, anitgens in a vial etc. My > point is that I don't feel very well educated on this subject. What should > I read so that I am prepared to talk with this doctor? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 What are immunotherapy drops? Barb --- juliemoffett <juliemoffett@...> wrote: > Hi, : > > When we went to Dr. Layton for the first time, I was > very organized. > I had copies of all the medical tests and relevant > information that I > thought might be useful (i.e. OT evaluations, blood > tests, physicals, > nutritional data ect.). We had already been on the > GFCF diet and the > nutritional therapy about 6 months before we saw him > and I was fairly > well read on the topic of many alternative > treatments for ASD. Dr. > McCandless's book is an excellent reference, and if > you are even just > vaguely familiar with some of the things she talks > about, you'll be > fine. > > Kim already gave you an excellent account of what > will likely > happen. Dr. Layton will ask a TON of questions and > then try to see a > pattern. Because your son has a history of > allergies (my son > didn't), it will be useful for you to either bring > with you or send > copies in advance of any allergy testing you have > already had done. > That will save you some time. > > My hunch is the dr. will want to do the allergy > testing with your > son. My son was so sensitive, it took THREE days to > do all the > testing. We ended up staying overnight in the > adjoining Ramada Hotel > because it was easier than fighting Washington rush > hour traffic or > getting up at the crack of dawn to be at the office > for the all-day > testing. Honestly, I was stunned by the results -- > he was allergic > to some degree or another to practically EVERYTHING > we tried (food, > mold, dust, pet dander, you name it!). I had no > idea he was so > sensitive. Luckily, because of the immunotherapy > drops, it didn't > mean he couldn't have any of those foods (only those > that were off > the scale!) or that we'd have to get rid of the dog. > We just had to > go easy on certain foods and rotate them until his > immune system > stopped getting so fired up anytime he had them. > > He'll also probably suggest certain dietary or > nutriotional > supplements - if you can afford them, trust him on > this. It seems my > son has a very similiar case history to yours, > except his > hyperactivity and behavioral issues carried over > into school. > > Perhaps the best advice I can give you is try not to > get > overwhelmed. Prioritize. We decided to worry first > about the > allergies -- focusing on a superstrict diet and > adding the Feingold; > taking the immunotherapy drops and trying to ease > his allergies any > other way we could -- i.e. getting protective > bedding, an air > purifier, vigilant vacuuming and dusting. Then we > moved on to a more > intense approach at healing the gut, and then > addressing his > auditory/sensory issues and so on until where we are > now -- taking > acylcovir with cheleation to come next. > > Be patient. We did not see immediate results, but > the pay-off > finally did come and is still coming for us some two > and a half years > later. > > Good luck! > > > > That leads to my question -- when you went to Dr. > Layton the first > time, can > > those of you with experience in this area share > how you approached > > treatment? <<<<<< === msg thread truncated === Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.