ADULT ISSUES RESOURCE from my files

[Guest guest]

____________________________________

Adult Issues -- University, Employment, Support

_OASIS -- Online Asperger Syndrome Information and Support_

(http://www.udel.edu/bkirby/asperger/index.html)

This is one of the most comprehensive sites for children and adults with

Asperger Syndrome.

_ASPIRES -- Asperger Syndrome Partners & Individuals Resources,

Encouragement & Support_ (http://www.aspires-relationships.com/index.html)

From the site: " ASPIRES is an on-line resource for spouses and family

members of adults diagnosed or suspected to be on the autistic spectrum. Our

approach to one another and towards our " significant others " is directed

towards

solving problems in our relationship with a spectrum-sitting spouse. "

_Book: Preparing for Life: The Complete Guide for Transitioning to Adulthood

for Those With Autism And Asperger's Syndrome (Paperback)_

(http://www.amazon.com/gp/product/1932565337/104-9745336-1036731?v=glance & n=2831\

55)

A new book about transition issues. This is the page from Amazon.com. The

page also gives book references for other books regarding transition and adult

life.

_University Students With Autism And Asperger's Syndrome_

(http://www.users.dircon.co.uk/~cns/index.html)

If you are currently, or planning to be, a university student, this site has

good information on the university experience, including how to succeed

during your years in attendance, life in the dormitories, extracurriculars,

support services, moving from university to work, and many other subjects.

_Teaching College Students with Disabilities_

(http://www.udel.edu/cte/disabilities.htm)

From the site: " A Selection of Online Resources for Faculty and Staff. "

Includes extensive ADA information.

_The Civil Rights of Students with Hidden Disabilities Under Section 504 of

the Rehabilitation Act of 1973_

(http://www.ed.gov/about/offices/list/ocr/docs/hq5269.html)

From the site: " If you are a student with a hidden disability or would like

to know more about how students with hidden disabilities are protected

against discrimination by Federal law, this pamphlet is for you. "

_Taking Responsibility: Good practice guidelines for services_

(http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=368 & a=3925)

Practical ideas to support adults with Asperger Sydrome. Includes medical,

education, employment, and other information.

_Book: Employment for Individuals with Asperger Syndrome or Non-Verbal

Learning Disability: Stories and Strategies_

(http://www.jkp.com/catalogue/book.php?isbn=1-84310-766-X)

From the site: " Most people with Non-Verbal Learning Disorder (NLD) or

Asperger Syndrome (AS) are underemployed. This book sets out to change this.

With

practical and technical advice on everything from job hunting to interview

techniques, from ‘fitting in’ in the workplace to whether or not to

disclose a

diagnosis, this book guides people with NLD or AS successfully through the

employment field. There is also information for employers, agencies and

careers counsellors on AS and NLD as ‘invisible’ disabilities, including an

analysis of the typical strengths of somebody with NLD or AS, and how to use

these

positively in the workplace. Practical information and lists of career

resources are supported by numerous case studies to inspire and advise. "

_Vocational Supports for Individuals with Asperger Syndrome_

(http://www.autastics.org/JVRpaper.htm)

From the site: " Meeting the Vocational Support Needs of Individuals with

Asperger Syndrome and Other Autism Spectrum Disabilities "

_Disability Benefits in CA_ (http://www.disabilitybenefits101.org/)

From the site: " Meeting the Vocational Support Needs of Individuals with

Asperger Syndrome and Other Autism Spectrum Disabilities "

_Department of Education Information_

(http://www.ed.gov/policy/speced/guid/rsa/tac-05-01.pdf)

From the site: " Guidelines for assessing the functional capacities of an

individual with specific learning disabilities to determine significance of

disability for order of selection purposes. "

_Partners in Employment_

(http://www.partnersinpolicymaking.com/employment/index.html)

From the site: " Welcome to Partners in Employment, a self-study course

designed to help people with developmental disabilities find meaningful jobs

and

jumpstart their careers. "

_National Resources for Adults with Learning Disabilities_

(http://www.nifl.gov/nifl/ld/archive/nalldpub.htm)

From the site: " This guide contains a selection of national resources to

assist individuals who suspect they may have a learning disability. It is not a

comprehensive list of resources, but rather a collection of organizations,

publications, and programs. Only organizations that operate on a national level

and can put inquirers in contact with regional or local resources have been

selected. A short description of each organization's activities is provided

to help readers identify which resources are best suited to their needs and

concerns. Publications listed in this guide provide general information for

adults with learning disabilities. Programs listed not only provide the

learning

component, but also offer residential housing. "

_Federation of Invisible Disabilities [Canada]_

(http://www.fids.bc.ca/index.html)

From the site: " The purpose of FIDS is to: [1] ensure children with

invisible disabilities have access to education, recreation, and other services

that

help them to reach their potential as members of society, [2] regularly

address the needs of children, youth and adults with invisible disabilities

with

governments, communities and others, [3] educate and increase awareness of

invisible disabilities at service, funding and policy levels, [4] create

partnerships with government in providing services to children with invisible

disabilities, [5] educate the public regarding invisible disabilities, [6]

provide

information and support to parents and caregivers, [7] in furtherance of the

above charitable objects, establish a broad-based organization to work to

improve the lives of children, youth and adults with invisible disabilities. "

_TRI -- Transition Research Institute -- transition from school to work_

(http://www.ed.uiuc.edu/SPED/tri/institute.html)

From the site: " Identifies effective practices, conducts intervention and

evaluation research, and provides technical assistance activities that promote

the successful transition of youth with disabilities from school to adult

life. "

_Police and Autism: Avoiding Unfortunate Situations_

(http://policeandautism.cjb.net/)

Information for persons with autism, their families, and law enforcement

personnel, regarding the unique issues presented by persons with autism and law

enforcement concerns.

_Autism and Law Enforcement Video_

(http://www.risingbird.net/asr/email.html)

From the site: " The video merges documentary techniques and vignettes to

explore and explain critical issues for first responders, including: sensory

over-stimulation; wandering; communications and behaviors; responding to the

call; restraint and arrest; interview; constitutional rights; and street crime.

With guidance from professional law enforcement and first response advisors,

this video offers tips and options for communications and responses designed

to successfully resolve a call involving a person with autism. "

_Bully OnLine_ (http://www.successunlimited.co.uk/)

This site includes advice on individual rights and how to handle " bullies "

in different environments, including work and school, plus advice on stress,

medical issues, legal issues, and books that may provide further assistance.

_Disabled Sports USA_ (http://www.dsusa.org/index.html)

From the site: " Established in 1967 by disabled Vietnam veterans to serve

the war injured. DS/USA now offers nationwide sports rehabilitation programs to

anyone with a permanent physical disability. Activities include winter

skiing, water sports, summer and winter competitions, fitness and special

sports

events. Participants include those with visual impairments, amputations,

spinal cord injury, dwarfism, multiple sclerosis, head injury, cerebral palsy,

and

other neuromuscular and orthopedic conditions. "

_Auties.org_ (http://www.auties.org/)

From the site: " Auties.org is for people on the Autistic Spectrum who are

ready to dare reach out to occupation and employment, open the doors to the

community and market their abilities directly to the public and for those

interested in supporting these pioneers. "

_Asperger/Autism: Independent Living_ (http://www.inlv.demon.nl/)

From the site: " We are an online support group for people with Autism or

related conditions, including but not limited to Asperger Syndrome. We come

together here to make friends, support each other, and share practical

experiences and tips relevant to independent living with our condition. Our

members

live all over the world. "

_Fair Housing Law_ (http://www.fairhousinglaw.org/)

From the site: " Housing discrimination doesn't always mean having a door

slammed in your face or a bigoted remark directed your way. Unsuspecting

renters

or home buyers may be politely turned away from the housing of their choice,

even though they are qualified. "

_Career Paths for Disabled Youths_

(http://www.high-school-high-tech.com/pubs/19_47_228.CFM)

This site is a land program for high school youth with disabilities,

primarily cerebral palsy. It is specifically for " Promoting science,

engineering, and technology careers for students with disabilities " , but gives

some very

good information and links for all people with disabilities.

_Job Accommodation Network_ (http://janweb.icdi.wvu.edu/)

This site is by West Virginia University, and provides an " international

toll-free consulting service that provides information about job accommodations

and the employability of people with disabilities. JAN also provides

information regarding the Americans with Disabilities Act (ADA). "

_Parents with Disabilities Online!_ (http://www.disabledparents.net/)

From the site: " For too long, people with disabilities had been told that

having families of our own was not an option. The truth is, though, that we

have always been parents, and as our society evolves, more and more of us will

have access to that opportunity. If you are a parent with a disability, a

person with a disability who is planning to become a parent, or a nondisabled

partner of a disabled parent, this page is for you. We hope that this page is a

good place to start on your own journey toward independent parenting. "

_The National Autistic Society - people with autism and Asperger syndrome in

the UK_ (http://www.oneworld.org/autism_uk/)

From the site: " Welcome to The National Autistic Society (NAS) website! The

site includes information about autism and Asperger syndrome, and about the

support and services available in the UK. "

_Autistics.org_ (http://www.autistics.org/)

From the site: " The purpose of the autistics.org project is to connect

autistic people with the services we need to live whole and happy lives. The

immediate goal of autistics.org is to build a global database of information

and

resources by and for persons on the autistic spectrum. "

Adult Personal Issues

_** Seasonal Affective Disorder [sAD]_ (http://www.danasview.net/sad.htm)

Information on causes and help to reduce seasonal depression which often

occurs in autumn/winter months.

_** Classmates of AS Adult_ (http://www.danasview.net/clasmate.htm)

Question: I am a college student. There is an autistic man in my biology

class. What can I expect?

_** Transition of AS Adult to new living arrangement_

(http://www.danasview.net/transliv.htm)

Question: My brother is an AS adult. He lives with my mother but she is

getting older and will be passing on soon. What would be the best living

arrangement for my brother who hates transitions, and how do I transition him

the

best I can?

_** Transition for End of Personal Relationship_

(http://www.danasview.net/transrel.htm)

Question: My significant other has left me after 10 years, saying a

counselor told him that he needed to be completely separate.

_** Organizing Life During Major Time of Stress and Transition_

(http://www.danasview.net/transorg.htm)

Question: I am experiencing a major time of stress and transition in my life

and everything is very overwhelming for me.

_** Adult Restroom Difficulty_ (http://www.danasview.net/adultrr.htm)

Question: I don’t like to use the bathroom until I am almost bursting and

then sometimes I don’t get there in time.

_Coping: A Survival Guide for People with Asperger Syndrome_

(http://www-users.cs.york.ac.uk/~alistair/survival/)

From the site: " Marc knows from the inside what people with Asperger

Syndrome need to understand, and much of his knowledge has been acquired

through

bitter experience. His expressed wish is that others should not have to learn

by

such a hard route, and that some of his own short term disasters should be

avoided by others coming after him. "

_Managing Grief_ (http://www.thearc.org/faqs/grief.html)

From the site: " People with disabilities have a right to participate fully

in the grief and mourning process and in all of society's support systems and

rituals associated with these losses. Concerted effort is needed to offer

death education to professionals and to parent organizations so that they may

become familiar with normal grief reactions and provide proper supports. Death

education can be introduced into the school and adult education curriculum

for people with developmental disabilities. Advice is needed to construct

guidelines for special agencies to follow when a death does occur. This might

include helping professional caregivers rehearse breaking the news of a death.

Practical plans to avoid immediate admission to residential care are required.

The importance of ensuring that the bereaved person has some mementos of

their deceased relative must be remembered and advice on the importance of

nonverbal rituals at the funeral may be helpful. Bereavement counseling for

persons

with a developmental disability should be made available routinely and not

just when a maladaptive reaction has been recognized as grief. Both individual

and group work with bereaved individuals may be helpful, particularly if

nonverbal approaches, such as the use of counseling picture books, are

available. "

_Shattered innocents -- self-injury links_

(http://asarian-host.org/shattered/si_links.html)

This is a comprehensive site of links for self-injury. It lists links of

other sites and gives a commentary on whether those sites are helpful for

people

who self-injure, whether they are primarily advertisements for paid

services, whether they include triggering information or visuals without buffer

warnings, etc. Very good site to help determine whether a self-injury site is

helpful or just self-serving.

_Self-injury information and support_

(http://www.palace.net/~llama/psych/injury.html)

This is the best self-injury site on the internet [my not-so-humble

opinion]. From the site: " If you cause physical harm to your body in order to

deal

with overwhelming feelings, know that you are doing nothing shameful. It's

likely that you're keeping yourself alive and maintaining psychological

integrity

with the only tool you have right now. It's a crude and ultimately

self-destructive tool, but it works; you get relief from the overwhelming

pain/fear/anxiety in your life. For some, though, there comes a breakthrough

moment when

they realize that change is possible, that they can escape, that things can

be different. They begin to believe that other tools exist and begin figuring

out what non-destructive ways of coping work for them. I hope that when you

leave this site, you will have come closer to that moment. "

_Self-stimulation -- I'm Okay, You Have a Mannerism_

(http://www.tsbvi.edu/Outreach/seehear/archive/mannerism.html)

This is from a deaf/blind site, but it is a really good description of what

are self-stimulation activities and how all people do them, just for some

people they look different from the " normal " self-stimulation activities of the

majority of the population. Discusses ways to use self-stimulation activities

to learn how each of us as individuals best deal with stressful situations,

idleness/boredom, how we learn best, etc. Very good descriptions of what is

self-stimulation activity and how to put it to good use.

_Alliance for Technology Access for the Disabled_ (http://www.ataccess.org/)

From the site: " The Alliance for Technology Access (ATA) is a network of

community-based Resource Centers, Developers and Vendors, Affiliates, and

Associates dedicated to providing information and support services to children

and

adults with disabilities, and increasing their use of standard, assistive,

and information technologies. These ATA Members can be found all across the

country. We hope that this web site will let you get to know us a little

better,

make use of our resources, contact one of our members and perhaps consider

joining us in achieving our mission of " connecting children and adults with

disabilities to technology tools. "

_Tools for Coping with a Variety of Life's Stressors_

(http://www.coping.org/)

This site includes very good information on a variety of life stressors.

Parent/child issues including raising responsible children, study skills,

children with disabilities, etc. Adult issues include self-esteem, 12-step

guide,

handling loss, personal growth, relationships, communication, anger, control,

and other self-understanding and improvement.

_Find Counseling_ (http://www.findcounseling.com/)

From the site: " Welcome to Find Counseling.com - where you can search with

confidence. We realize that finding a therapist is a private and personal

matter. You want to find someone who not only has the expertise you need but

also

makes you feel comfortable. Find Counseling.com's search technology will

help you make that first step with ease. Using our advanced search process, you

can sort for a professional by location, expertise, language spoken, gender,

HMO or PPO, and more. And with just a few clicks, you can learn about each

therapist's education and training and hear first-hand from them about how they

approach the therapy process. "

Entitlements and Insurance

_NHeLP Managed Care Advocacy for People with Disabilities_

(http://www.healthlaw.org/managedcare.shtml)

Site includes links for managed care advocacy, Medicaid, Medicare, industry

links, consumer assistance and involvement, disabilities and special needs,

contracts, litigation, and updates on managed care issues.

_The Managed Care Clearinghouse Home Page_ (http://www.mcare.net/)

From the site: " MCARE is the National Clearinghouse on Managed Care and

Long-Term Services and Support for Adults with Developmental Disabilities and

Their Families, which is funded through a grant from the Administration on

Developmental Disabilities at the U.S. Department of Health and Human Services.

The MCARE website seeks to provide the most current information available on

managed care, long-term services and supports, self-determination, and other

related areas. MCARE will provide the latest news articles, upcoming

conferences and events, government documents, research and policy papers, and

individual perspectives. "

_Resources on Managed Care for People with Disabilities_

(http://www.jik.com/pwdmc1.html)

Understanding Managed Care, How to Pick a Plan, How to Evaluate Your Current

Plan, Strategies for Managing Your Health Care, What to Look for in Health

Care Providers, Resources for Choosing Health Care Providers, Medicare and

Medicaid, Medication, Disability-related Issues, Advocacy Issues, Advocacy

Resources, Medical Information, Research Projects, and Other Resources.

_Social Security Administration Office of Disability - Disability Programs_

(http://www.ssa.gov/disability/)

From the site: " Did You Know... Social Security has two programs that pay

benefits to people with disabilities? Social Security Disability Insurance pays

benefits to you and certain members of your family if you are " insured "

meaning that you worked long enough and paid Social Security taxes.

Supplemental

Security Income pays benefits based on financial need. When you apply for

either program, we will collect medical and other information from you and make

a decision about whether or not you meet Social Security's definition of

disability. "

_Exploratory Study of Health Care Coverage and Employment of People with

Disabilities_ (http://aspe.hhs.gov/daltcp/reports/eshcclit.htm)

From the site: " This literature review examines empirical evidence on health

care coverage, employment, and public program participation among people

with disabilities. The review is part of a larger project investigating the

relationship between health care coverage and the employment of people with

disabilities. "

Disability Information and Advocacy

_Tony Attwood_ (http://www.tonyattwood.com.au/)

Tony Attwood's site, an expert on Asperger Syndrome.

_United Nations Charter for People with Autism_

(http://www.autismeurope.arc.be/english/charter.htm)

From the site: " Points out that people with autism should have the same

rights enjoyed by all EU citizens (where such are appropriate and in the best

interest of the person with autism) ; these should be enhanced and enforced by

appropriate legislation in each Member State and include : (a) the right to

live independently ; ( the right to representation and involvement as far as

possible in decisions affecting their future ; © the right to accessible

and appropriate education, housing, assistance and support services; (d) the

right to freedom from fear, threat and from abusive treatment. "

_The Council for Disability Rights_ (http://www.disabilityrights.org/)

From the site: " Advancing rights and enhancing lives of people with

disabilities. " Site includes information on news items, ADA, special education,

structural barriers, and voting.

_Disability Resources on the Internet_ (http://www.disabilityresources.org/)

From the site: " Information is power! Most people with disabilities can

live, learn, love, work and play independently and in the mainstream of

society,

but they often need information to achieve their goals: information about

legal rights, financial resources, assistive technology, employment

opportunities, housing modifications, childrearing and educational options,

transportation and mobility services, and more. This information is available

from a wide

variety of resources - nonprofit organizations, government agencies, books,

pamphlets, magazines, videotapes, and online - often at little or no cost.

Finding it, however, isn't always so easy. Disability Resources is a nonprofit

organization that monitors, reviews, and reports on these resources every day.

We disseminate information about them to libraries, disability

organizations, health and social service professionals, consumers and family

members. "

_June Isaacson Kailes, Disability Policy Consultant_

(http://www.jik.com/index.html)

Site includes information for people with disabilities, including advocacy,

disaster preparedness, health and wellness, independent living, and managed

care.

_The DRM WebWatcher: Abuse of People with Disabilities_

(http://www.disabilityresources.org/ABUSE.html)

A list of sites with information on the abuse and neglect of people with

disabilities, including domestic violence, child abuse, and sexual abuse.

_Through the Looking Glass_ (http://www.lookingglass.org/)

From the site: " Through the Looking Glass (TLG) is a community non-profit

organization which emerged from the disability independent living movement in

1982. TLG has pioneered clinical and supportive services, training and

research serving families in which one or more members--whether parent or

child--has

a disability or medical issue. TLG's mission has been to create, demonstrate

and encourage resources and model early intervention services which are

non-pathological and empowering. "

_Disability Rights Advocates_ (http://www.dralegal.org/)

From the site: " Founded in 1993, Disability Rights Advocates is a national

and international non-profit organization dedicated to protecting and

advancing the civil rights of people with disabilities. Operated by and

established

for people with disabilities, DRA pursues its mission through research,

education, and legal advocacy. DRA's mission is to ensure dignity, equality,

and

opportunity for people with all types of disabilities throughout the United

States and worldwide. " Site includes non-litigation, litigation, and class

action litigation, with descriptions of representative cases.

_Mainstream -- News and Advocacy in Disability Rights_

(http://www.mainstream-mag.com/)

From the site: " For over 25 years, MAINSTREAM has been advocating for

disability rights. Produced by, for and about people with disabilities,

MAINSTREAM

covers news & current affairs, new products & technology, profiles of movers

& shakers, education, employment, sexuality & relationships, housing,

transportation, travel & recreation. "

_Ragged Edge Magazine Online_ (http://www.ragged-edge-mag.com/)

From the site: " WHO WE ARE: Ragged Edge magazine is successor to the

award-winning periodical, The Disability Rag. In Ragged Edge, and on this

website,

you'll find the best in today's writing about society's " ragged edge " issues:

medical rationing, genetic discrimination, assisted suicide, long-term care,

attendant services. We cover the disability experience in America -- what it

means to be a crip living at the start of the 21st century. "

_Freedom Clearinghouse -- Keep People Out of Nursing Homes and other

Institutions_ (http://www.freedomclearinghouse.org/)

From the site: " As of June 22, 1999, when the Supreme Court handed down the

Olmstead decision, the " most integrated setting " provision of the ADA is the

law of the land. States which provide long-term care services to people with

disabilities must now offer choice to each person: Where do you want those

services to be delivered? Our MISSION . . . 1. To recruit and organize

grassroots advocates who will press states to obey the law and free our people.

2. To

furnish tools to those advocates so that they can succeed in their mission.

3. To communicate to states and advocates information about the best methods

for delivering services at home. "

_Speaking for Ourselves_ (http://www.speaking.org/)

From the site: " We are an award winning self-advocacy organization run by

and for people with developmental disabilities. We empower members to speak up,

find real jobs, and help themselves become more independent. We have 500

members across Pennsylvania. "

_Not Dead Yet_ (http://www.notdeadyet.org/)

From the site: " The targets of legalized assisted suicide and euthanasia

have come together to oppose the political movement that would sacrifice our

lives for their idea of dignity and " the greater good " - and the profits of the

health care industry .... What we oppose is a public policy that singles out

individuals for legalized killing based on their health status. This violates

the Americans With Disabilities Act, denies us the equal protection of the

law, and health professionals decide who is " eligible. "

____________________________________

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