Guest guest Posted June 7, 2012 Report Share Posted June 7, 2012 That is wonderful to hear - what are you doing for last 5%? Is she still on meds? Do you do maintenance stuff? I'm trying to understand where to go next with son. He says his contamination thoughts have come back some but so far no rituals. <<<yes!!>>> We are seeing therapist once/week or 2 weeks but because he has no rituals, she has not assigned erp, just told him to keep touching door knobs. She has OCD herself so she has credibility with him. Rhonda Re: Doctor specialty for PANDAS/PANS testing My dd is doing really well right now...so close to 100%. Of course every time I say that it seems it comes back to bite me...but the bites get smaller every time (little nips now). It seems like it's been a slow process with ups an downs. But the trend has been steady improvement. It took a couple of months to go from debilatating OCD/rages, etc. to tolerable...a few more months to get to 80 or 90% better. I feel like the last six months or so we are just working on the final 5%. In total, since we started treating for PANDAS, it's been a little over two years. A little over a year since we started the LYme and Bartonella. If you have/can find a cooperative pediatrician to run lots of test before seeing Dr., you will save yourself some time and possibly an additional trip (i.e. first trip where she tests, second trip to go over results). If you can have results before the first visit, you can go over those then. You could ask if there are standard tests she runs so you can get those done first...if they won't tell you, I can tell you what Dr. B ran for us. Their lists are probably relatively similar. Kara --- Quote Link to comment Share on other sites More sharing options...
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