new to the group

[Guest guest]

--- cre8within wrote:

---------------------------------

Hello. I realized my mother had BPD about 3 or 4

months ago after my therapist mentioned the diagnosis.

WOW! What an eye opener! Finally

some validation for the abusive behavior. I remember

the first time I saw " Mommie Dearest " I felt a twinge

of validation and understanding also. Now I know why.

My father passed away almost 2 years ago and since

then I became very involved with my mother (previously

it was just a phone call once a

week). SO much has been revealed to me in the past few

months. I FINALLY see the one-sidedness of the

relationship and the way I feel when I see her or talk

to her. I have spent one or two days a week

with her for the last two years and it almost

completey took over my life. Everytime I left I felt

SO much anger and frustration and a tightness in my

chest. Those feelings would last for a day or so and

then it was time to go back.

At any rate, the last straw was when my mom found out

that my sister and I had discussed her and our

feelings about her situation (always been

forbidden)and she left a message saying that she never

wanted to see me again, never hear from me again.

So, I decided to agree to her terms. She called me a

week or so after the message and tried to act like

nothing happened. I called her on it and she said she

was upset because no one called that day (untrue)

and she was a grieving widow and when I told her that

wasn't good enough she tried more guilt and

manipulation. Anything but accept responsibility. So,

during the conversation I uttered to myself " I

can't do this anymore " . And I haven't. I have not

spoken to her or my sister (who is angry because she

feels like I left her with all the work)for one month.

It hasn't been easy because even though I know I am

doing the right thing I lost what family I had with my

decision. So here I am hoping to connect with others

who understand. Any suggestions on staying focused on

one's decision and not allowing guilt and feelings of

responsibility destroy my new found freedom?

Apologies for the lengthiness here, I have a lot

inside right now.

Thanks for listening.

__________________________________________________

You are fantastic! You set the boundaries, and are

carrying them through. Oh, the guilt, the poor widow

thing, acting like nothing happened - such classic

BPDnada behaviour!

Punch the air and say << Y E S >> as you do it!

Ellie

http://mobile.yahoo.com.au - Yahoo! Mobile

- Check & compose your email via SMS on your Telstra or Vodafone mobile.

[Guest guest]

,

An excellent book to read is " Understanding the Borderline Mother "

(referred to as UBM in this forum). It will give you great insight.

Good luck to you on your independence!!

Elyse

> Hello. I realized my mother had BPD about 3 or 4 months ago after

my

> therapist mentioned the diagnosis. WOW! What an eye opener! Finally

> some validation for the abusive behavior. I remember the first time

I

> saw " Mommie Dearest " I felt a twinge of validation and

understanding

> also. Now I know why.

>

> My father passed away almost 2 years ago and since then I became

very

> involved with my mother (previously it was just a phone call once a

> week). SO much has been revealed to me in the past few months. I

> FINALLY see the one-sidedness of the relationship and the way I

feel

> when I see her or talk to her. I have spent one or two days a week

> with her for the last two years and it almost completey took over

my

> life. Everytime I left I felt SO much anger and frustration and a

> tightness in my chest. Those feelings would last for a day or so

and

> then it was time to go back.

>

> At any rate, the last straw was when my mom found out that my

sister

> and I had discussed her and our feelings about her situation

(always

> been forbidden)and she left a message saying that she never wanted

to

> see me again, never hear from me again.

>

> So, I decided to agree to her terms. She called me a week or so

after

> the message and tried to act like nothing happened. I called her on

> it and she said she was upset because no one called that day

(untrue)

> and she was a grieving widow and when I told her that wasn't good

> enough she tried more guilt and manipulation. Anything but accept

> responsibility. So, during the conversation I uttered to myself " I

> can't do this anymore " . And I haven't. I have not spoken to her or

my

> sister (who is angry because she feels like I left her with all the

> work)for one month. It hasn't been easy because even though I know

I

> am doing the right thing I lost what family I had with my decision.

> So here I am hoping to connect with others who understand. Any

> suggestions on staying focused on one's decision and not allowing

> guilt and feelings of responsibility destroy my new found freedom?

> Apologies for the lengthiness here, I have a lot inside right now.

> Thanks for listening.

[Guest guest]

,

It is very hard to hang tight to this decision. I did the same thing

about six years ago, and I've never felt better about

my " relationship " with my nada. I know it's what's best, since she

will never, ever change.

The hard part is dealing with everybody's feeling of " but she's your

*mother*! " I've turned that around a bit to tell myself, " but I'm

her daughter. " My whole life she has been focused on herself first.

(When I was little, I was convinced she had kids just so she'd have

someone to take care of her.)

My whole life, I have found " family " in my friends. At least your

sister isn't BP, so she may change and may come to the same

conclusion as you.

Hang tight! You're doing the right thing.

mm.

>I have not spoken to her or my

sister (who is angry because she feels like I left her with all the

work)for one month. It hasn't been easy because even though I know I

am doing the right thing. I lost what family I had with my decision.

So here I am hoping to connect with others who understand. Any

suggestions on staying focused on one's decision and not allowing

guilt and feelings of responsibility destroy my new found freedom?<

[Guest guest]

Dear ,

I agree with Michele () about hanging tough with your decision.

Maybe your sister would read UBM and SWOE and then you could have a united

front. sounds like your sister is suffering too.

[Guest guest]

Dear ,

I agree with Michele () about hanging tough with your decision.

Maybe your sister would read UBM and SWOE and then you could have a united

front. sounds like your sister is suffering too.

[Guest guest]

In a message dated 4/29/03 6:07:59 PM Pacific Daylight Time,

Tslothrop@... writes:

Wow , did you talk to my mom?

LOL...

Malene

> I can hear

> her response now: " How can you say that after all I sacrificed for

> you? (never understood that one) Noboby had a childhood like mine.

> You should feel lucky you didn't live my childhood, etc. " My mother

> has NEVER listened to me and her version of my childhood makes me

> think she's from another planet.

>

[Guest guest]

In a message dated 4/29/03 6:07:59 PM Pacific Daylight Time,

Tslothrop@... writes:

Wow , did you talk to my mom?

LOL...

Malene

> I can hear

> her response now: " How can you say that after all I sacrificed for

> you? (never understood that one) Noboby had a childhood like mine.

> You should feel lucky you didn't live my childhood, etc. " My mother

> has NEVER listened to me and her version of my childhood makes me

> think she's from another planet.

>

[Guest guest]

Hi Jodi,

Welcome! Sorry for the reason you are here, but glad you found us.

Where do you live now?

There are also spouses on this group, so if you need any ideas on how

to educate your husband or someone who could talk to him about the

frustrations spouses feel, feel free to ask here.

Glad you introduced yourself - jump on in!

Houston

[Guest guest]

hi jodi,my name is elly and i have been a member of this group a long time.i

welcome you and hope we can provide the support you and you family might need

along the way.i have some relatives in the uk,my mom was a war bride,yes i'm

old!!!!!!!!!! my oldest grandchild is invited to study at oxford next summer,a

literature and english program,studying four authors,and she is only 16

today.i'm sure she gets her wonderful brain from my daughter,but i am so proud

of her. it kind of takes my mind off of my pain when i can focus on the

grandkids acheivements.anyway,welcome and i hope the doctor can get you back on

track.

we are all here for you. elly

Mumta Bhutta wrote: welcome jodi, new to the

group but not new to stills, i hope you feel better soon.

very nice to read your message.

Mumta (uk)

Jodi Braun wrote:

Hello all,

First, I must apologize for my delay in introducing myself. My name is

Jodi, I was diagnosed with Still's in 2000 at age 25 after a lengthly

hospitalization/episode wherein they could not figure out what was wrong

with me. I was tested for everything under the sun. While in the hosptial,

I developed a fever of 105 plus and ended up in Intensive Care with

pneumonia and pleurisy on my lungs. They called my mother in from Seattle

(I live in MN) and told her that I was not going to make it through the

night. After about a month in the hospital, they sent me home, undiagnosed,

on prednisone. A few weeks later, I went to see the Rheaumatologist that

saw me in the hospital for a follow-up appointment. At that time, he told

me that he had been doing his research and that every symptom I had was

textbook Stills Disease. I continued treatement for the next few years on

prednisone and methotrexate. I moved out to Seattle to stay with my mom in

an effort to " get healthy " and dropped 100 pounds. Eventually I was able to

get off of all of my medications. I got married and got pregnant with my

second child with no problems, no symptoms (however, put all the weight I

lost back on). I was foolish enough to believe that my Stills was gone,

despite everything I knew and had learned about the disease. Well, here I

am 4 years since getting off of my meds and I am experiencing another flare

up. I am meeting with my doctor today to discuss treatment again as my body

seems to be moving downhill fast and I want to avoid hospitalization at all

costs. I am working full-time and cannot afford to have Still's take over

again. I am hoping we can stabilize most of my symptoms soon. My husband

is new to all of this Still's stuff, so I have been trying to educate him

some so he understands. Now I am trying to live a healthier lifestyle and

eat right so I can take this weight back off as to avoid the added stress on

my joints and trying to slow down as much as possible so I can continue to

work. I am so thankful that there is a group like this out here. So many

people, doctors even, don't know what Still's is, and many have never even

heard of it. I look forward to getting to know you all more. It give me

hope that I am not alone. Neither are you.

God Bless,

Jodi

Mumta Bhutta

---------------------------------

New Yahoo! Mail is the ultimate force in competitive emailing. Find out more at

the Yahoo! Mail Championships. Plus: play games and win prizes.

[Guest guest]

Tom,

Hi Tom, i live in northern new jersey (Fort Lee) my

hospital is New York Presbyterian Hospital Cornell,

rated #6 in the US. My platelets, red & white cell

counts were really low also and the splenectomy

boosted everything up within two days after the

surgery. My rheumatologist is great and the surgens

were excellent. The reason i was in so long was

because they tried several things and that was the

last option and then i went to rehab to learn how to

walk again. Let me know if you need more information.

Kathy

--- drwooly2006 wrote:

> Kathy,

>

> I am in SE PA outside Philly. Where in NJ are you?

> What hospital for

> your splenectomy? Several docs have very vaguely,

> remotely. off the

> cuff, not quite to that point yet, mentioned

> splenectomy for me. I can

> not seem to keep my platelet (or red cell) count up.

> Enlarged spleen

> (one of the dragon's many possible effects) seems to

> be eating them up

> faster than I can make them. Procrit seems to keep

> them at a steady

> state, but that is about it. (at $17000 a month for

> Procrit I would

> hope for more improvement) Have had 1 Prednisone

> pulse in Dec. One

> more try in Feb to see if that makes any difference.

> We will see, I

> guess.

>

> Anyway, if splenectomy, I hope my stay will be

> shorter than yours.

>

> Tom from PA

>

> >

> > Hi Jodi,

> > Welcome to the group. I was also new last year.

> Last year I was

> also in the hospital a couple of times, practically

> spent most of the

> year in and out. They also tested me for every

> horrible disease one

> could imagine but finally came up with Stills. I

> actually haven't

> written in a while because I just got out of the

> hospital last week. I

> went in on November 16th and was released on January

> 11th. I had my

> spleen taken out]

> >

>

>

>

________________________________________________________________________________\

____

Cheap talk?

Check out Yahoo! Messenger's low PC-to-Phone call rates.

http://voice.yahoo.com

[Guest guest]

Hi Jodi,

Welcome to the group.

Chris

Jodi Braun wrote:

Hello all,

First, I must apologize for my delay in introducing myself. My name is

Jodi, I was diagnosed with Still's in 2000 at age 25 after a lengthly

hospitalization/episode wherein they could not figure out what was wrong

with me. I was tested for everything under the sun. While in the hosptial,

I developed a fever of 105 plus and ended up in Intensive Care with

pneumonia and pleurisy on my lungs. They called my mother in from Seattle

(I live in MN) and told her that I was not going to make it through the

night. After about a month in the hospital, they sent me home, undiagnosed,

on prednisone. A few weeks later, I went to see the Rheaumatologist that

saw me in the hospital for a follow-up appointment. At that time, he told

me that he had been doing his research and that every symptom I had was

textbook Stills Disease. I continued treatement for the next few years on

prednisone and methotrexate. I moved out to Seattle to stay with my mom in

an effort to " get healthy " and dropped 100 pounds. Eventually I was able to

get off of all of my medications. I got married and got pregnant with my

second child with no problems, no symptoms (however, put all the weight I

lost back on). I was foolish enough to believe that my Stills was gone,

despite everything I knew and had learned about the disease. Well, here I

am 4 years since getting off of my meds and I am experiencing another flare

up. I am meeting with my doctor today to discuss treatment again as my body

seems to be moving downhill fast and I want to avoid hospitalization at all

costs. I am working full-time and cannot afford to have Still's take over

again. I am hoping we can stabilize most of my symptoms soon. My husband

is new to all of this Still's stuff, so I have been trying to educate him

some so he understands. Now I am trying to live a healthier lifestyle and

eat right so I can take this weight back off as to avoid the added stress on

my joints and trying to slow down as much as possible so I can continue to

work. I am so thankful that there is a group like this out here. So many

people, doctors even, don't know what Still's is, and many have never even

heard of it. I look forward to getting to know you all more. It give me

hope that I am not alone. Neither are you.

God Bless,

Jodi

---------------------------------

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.

[Guest guest]

Jodi WELCOME!

You are in a good place here. I am sorry you are going thru all of

this. I am 34 and was dx with Stills at 30 yrs old. I was dx with

Juvenile Rheumatoid Arthritis at 11 years old. I am not on meds now

either and am in a flare , so I know how you feel. Feel better Sweetie!

I will keep you in my thoughts. Love Sharon xxoo

> Hello all,

>

> First, I must apologize for my delay in introducing myself. My name is

> Jodi, I was diagnosed with Still's in 2000 at age 25 after a lengthly

> hospitalization/episode wherein they could not figure out what was

> wrong

> with me. I was tested for everything under the sun. While in the

> hosptial,

> I developed a fever of 105 plus and ended up in Intensive Care with

> pneumonia and pleurisy on my lungs. They called my mother in from

> Seattle

> (I live in MN) and told her that I was not going to make it through

> the

> night. After about a month in the hospital, they sent me home,

> undiagnosed,

> on prednisone. A few weeks later, I went to see the Rheaumatologist

> that

> saw me in the hospital for a follow-up appointment. At that time,

> he told

> me that he had been doing his research and that every symptom I had

> was

> textbook Stills Disease. I continued treatement for the next few

> years on

> prednisone and methotrexate. I moved out to Seattle to stay with my

> mom in

> an effort to " get healthy " and dropped 100 pounds. Eventually I was

> able to

> get off of all of my medications. I got married and got pregnant

> with my

> second child with no problems, no symptoms (however, put all the

> weight I

> lost back on). I was foolish enough to believe that my Stills was

> gone,

> despite everything I knew and had learned about the disease. Well,

> here I

> am 4 years since getting off of my meds and I am experiencing

> another flare

> up. I am meeting with my doctor today to discuss treatment again as

> my body

> seems to be moving downhill fast and I want to avoid

> hospitalization at all

> costs. I am working full-time and cannot afford to have Still's

> take over

> again. I am hoping we can stabilize most of my symptoms soon. My

> husband

> is new to all of this Still's stuff, so I have been trying to

> educate him

> some so he understands. Now I am trying to live a healthier

> lifestyle and

> eat right so I can take this weight back off as to avoid the added

> stress on

> my joints and trying to slow down as much as possible so I can

> continue to

> work. I am so thankful that there is a group like this out here. So

> many

> people, doctors even, don't know what Still's is, and many have

> never even

> heard of it. I look forward to getting to know you all more. It

> give me

> hope that I am not alone. Neither are you.

>

> God Bless,

> Jodi

>

>

>



[Guest guest]

Jodi WELCOME!

You are in a good place here. I am sorry you are going thru all of

this. I am 34 and was dx with Stills at 30 yrs old. I was dx with

Juvenile Rheumatoid Arthritis at 11 years old. I am not on meds now

either and am in a flare , so I know how you feel. Feel better Sweetie!

I will keep you in my thoughts. Love Sharon xxoo

> Hello all,

>

> First, I must apologize for my delay in introducing myself. My name is

> Jodi, I was diagnosed with Still's in 2000 at age 25 after a lengthly

> hospitalization/episode wherein they could not figure out what was

> wrong

> with me. I was tested for everything under the sun. While in the

> hosptial,

> I developed a fever of 105 plus and ended up in Intensive Care with

> pneumonia and pleurisy on my lungs. They called my mother in from

> Seattle

> (I live in MN) and told her that I was not going to make it through

> the

> night. After about a month in the hospital, they sent me home,

> undiagnosed,

> on prednisone. A few weeks later, I went to see the Rheaumatologist

> that

> saw me in the hospital for a follow-up appointment. At that time,

> he told

> me that he had been doing his research and that every symptom I had

> was

> textbook Stills Disease. I continued treatement for the next few

> years on

> prednisone and methotrexate. I moved out to Seattle to stay with my

> mom in

> an effort to " get healthy " and dropped 100 pounds. Eventually I was

> able to

> get off of all of my medications. I got married and got pregnant

> with my

> second child with no problems, no symptoms (however, put all the

> weight I

> lost back on). I was foolish enough to believe that my Stills was

> gone,

> despite everything I knew and had learned about the disease. Well,

> here I

> am 4 years since getting off of my meds and I am experiencing

> another flare

> up. I am meeting with my doctor today to discuss treatment again as

> my body

> seems to be moving downhill fast and I want to avoid

> hospitalization at all

> costs. I am working full-time and cannot afford to have Still's

> take over

> again. I am hoping we can stabilize most of my symptoms soon. My

> husband

> is new to all of this Still's stuff, so I have been trying to

> educate him

> some so he understands. Now I am trying to live a healthier

> lifestyle and

> eat right so I can take this weight back off as to avoid the added

> stress on

> my joints and trying to slow down as much as possible so I can

> continue to

> work. I am so thankful that there is a group like this out here. So

> many

> people, doctors even, don't know what Still's is, and many have

> never even

> heard of it. I look forward to getting to know you all more. It

> give me

> hope that I am not alone. Neither are you.

>

> God Bless,

> Jodi

>

>

>



[Guest guest]

Hi Russ, I went through that...one day my knee hurt, then it didn't. My

folks didn't believe me

Anyway...welcome...you will meet a lot of nice people here that will help

you.

Some people are luckier than others. I would be sick for a year then good

for 9...then a bad year.

Now, I am in the middle...actually....I am pretty good at the moment knock

on wood

I wish you a fast and long remissions. I found rest helps a lot.

I live near Philadelphia in NJ

Hang in there Liz

[Guest guest]

Hi Russ and welcome. I to have this for a long time before any one knew

what it was.

I have gone threw times of not doing well and times of doing so good I

almost forget I have stills. I understand the work you do as that is

also what my father did. I say dad go to work when he should not have

sick and all. He to this day is an inspiration to me to carry on. Dad

was a diabetic and it put him in the hospital now and then but he would

be right back at work the next day. I still do not know how he did it.

Russ sorry you found us and why you were looking but glad you did. There

a great bunch of folks here so jump on in

Marty the redneck

[Guest guest]

Welcome Russ,

Everyone here is great you have come to the right place for support &

information in dealing with Still's disease.

Take Care,

Chris

nodakcanoe wrote:

Hi, my name is Russ and I,m new to the group, i found out that i have

stills about a year ago but i've had it alot longer but didn't know

what it was. This condition drives me crazy, i don't know what is going

to hurt each day, i'm a heavy equipment " field " mechanic so i work alot

outdoors. I've had to wear wrist and knee braces to get through the day

and then the next day i don't need them. I don't know what is worse

sometimes the disease or the meds, i take

methotrexate,enbrel,prednisone and alot of antacids. I missed a week of

work over this when my Dr. put me in the hospital to figure this out, i

hurt so bad that i could barely walk. Does it get any better? Most

people have a hard time understanding the pain your in when the disease

is pretty much invisible to them. I medicate on the weekends so i don't

do much because i feel sick. Well enough for now thank you for letting

me be apart of your group and hope to chat more.

---------------------------------

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[Guest guest]

Welcome! I am Sharon. I am sorry that you have Still's. But you are

in a good place here. Everyone here cares and gives great advice. I

think I have had Still's for a long time too, 23 years. I was 11 when

had the arthritis part and was diagnosed W/ Rheumatoid Arthritis. I

had fevers since I was 1yr old w/ seizures. I am 34 and was just dx

at 29 after surgery caused a paralyzing, painful flare. People are

rough sometimes. Some people act like in order to have Still's or any

disease that you should look sick, or have to use crutches or a

wheelchair. I feel terrible for people that need a walker wheelchair

or crutches, and in no way am I trying to disrespect or underestimate

their suffering. I know the meds are awful too. I have a full bottle

of Pepto bismol, ginger ale and saltines on hand at all times I get

nausea from methatrexate sometimes. If you get nausea, ask your doc

to prescribe something. Peppermint tea helps your belly too. But

definitely talk to your doc about your belly. They have good meds for

that. We call Still's The Dragon and people w/ Still's Stilligans-

like Stilligans Island? We are sending hugs and wishes of

comfort..... Love Sharon and xxxxooo

> Hi, my name is Russ and I,m new to the group, i found out that i have

> stills about a year ago but i've had it alot longer but didn't know

> what it was. This condition drives me crazy, i don't know what is

> going

> to hurt each day, i'm a heavy equipment " field " mechanic so i work

> alot

> outdoors. I've had to wear wrist and knee braces to get through the

> day

> and then the next day i don't need them. I don't know what is worse

> sometimes the disease or the meds, i take

> methotrexate,enbrel,prednisone and alot of antacids. I missed a

> week of

> work over this when my Dr. put me in the hospital to figure this

> out, i

> hurt so bad that i could barely walk. Does it get any better? Most

> people have a hard time understanding the pain your in when the

> disease

> is pretty much invisible to them. I medicate on the weekends so i

> don't

> do much because i feel sick. Well enough for now thank you for letting

> me be apart of your group and hope to chat more.

>

>

>



[Guest guest]

Hi Russ

Welcome to the group although sorry we had to meet this way. I also don't

know which is worse the medication or stills. It must be very difficult

doing such a physical job and I can understand your frustration. As for

getting any better I think it is more up and down although I know some

people have had a long good time there is no way of knowing.

Anyway hope you are having a good day today

Best wishes

Joan U.K.

_____

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of nodakcanoe

Sent: 04 February 2007 23:35

To: Stillsdisease

Subject: New to the group

Hi, my name is Russ and I,m new to the group, i found out that i have

stills about a year ago but i've had it alot longer but didn't know

what it was. This condition drives me crazy, i don't know what is going

to hurt each day, i'm a heavy equipment " field " mechanic so i work alot

outdoors. I've had to wear wrist and knee braces to get through the day

and then the next day i don't need them. I don't know what is worse

sometimes the disease or the meds, i take

methotrexate,enbrel,prednisone and alot of antacids. I missed a week of

work over this when my Dr. put me in the hospital to figure this out, i

hurt so bad that i could barely walk. Does it get any better? Most

people have a hard time understanding the pain your in when the disease

is pretty much invisible to them. I medicate on the weekends so i don't

do much because i feel sick. Well enough for now thank you for letting

me be apart of your group and hope to chat more.

[Guest guest]

Hey Joni:

My RD told me that if 3 of the symptoms appeared toghether, it was

Still's. He diagnosed me very quickly and give the appropriate

treatment. thanks to that i recovered quicly too.

Good luck.

[Guest guest]

Hi Joni

Welcome to the group. I have not been posting much as not up to it a lot

of late. On the rash part mine never looked the same twice ever. It also

never looked like the pics of them on the deferent web sights ether. But

then again I never fit any of the stills things but then as I know it

there is no normal with this stills stuff. The one thing I have learned

over the years with it is nothing is normal. One thing I do tell every

one that is new is this

Stills can and most likely will change life for you and how you see it

and how you loved ones and or partner see it. For this reason I always

suggest for the whole family to go to councialing so they can also

understand how an illness like this can and dose change things in life.

I did not do this and in the end my ex could not deal with it and the

other life stresses at the time so she left me. I am remarried now and

my wife now knew I had stills from day one. She is more supportive then

my ex by far but she also grow up with a father that was disabled so she

did understand the limits it can place on you. So with that welcome and

the best of pain free days to you and every one other out here

Hugs all

Marty the redneck

[Guest guest]

Is your daughter taking any medications? Our daughter (PDD-NOS, 8 in April) had

an abnormal EEG. I suspected seizures (absence ones-zoning out), but the

pediatrician and psychiatrist didn't see it. Lo and behold she was having them,

we had just tried a new medication, so we stopped it, and started her on

Carnosine - supplement that her pediatrician and DAN doctor both thought was

worth trying. It has helped tremendously! No more seizure activity (normal EEG)

and increase in socialization AND language.

_____________________________________________________________

Click to see huge collection of designer watches.

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[Guest guest]

,

My daughter was just put on seizure medication but I believe it

is to strong so I have taken her off the medication. I am calling

the doctors office tomorrow. She is aslo going to have the 48 hour

EEG done next monday and I am praying that she will be ok with it.

I really believe that she is having seizures because some of her

rages lately are not like they use to be, and after she comes down

from the rage her pupils go from small to big and then she is so hot

and then she goes limp. The one neuroglist we seen really believes

that she is have them and that when she goes into a rage a seizure

comes on.

Dawn

>

> Is your daughter taking any medications? Our daughter (PDD-NOS, 8

in April) had an abnormal EEG. I suspected seizures (absence ones-

zoning out), but the pediatrician and psychiatrist didn't see it. Lo

and behold she was having them, we had just tried a new medication,

so we stopped it, and started her on Carnosine - supplement that her

pediatrician and DAN doctor both thought was worth trying. It has

helped tremendously! No more seizure activity (normal EEG) and

increase in socialization AND language.

>

>

>

> _____________________________________________________________

> Click to see huge collection of designer watches.

>

http://thirdpartyoffers.netzero.net/TGL2221/fc/Ioyw6i4tYRHjFM0wwXaKVD

7HzPZerUpx8Kbe0rZAO4wN29Ufg3vZct/

>

>

>

[Guest guest]

Was it carnosine or carnitine? I thought the former

was contraindicated in seizures, but carnitine helps

loads for some people.

Kassiane,

with her rather massive carnitine dosage

--- " dlwyrick@... "

wrote:

> Is your daughter taking any medications? Our

> daughter (PDD-NOS, 8 in April) had an abnormal EEG.

> I suspected seizures (absence ones-zoning out), but

> the pediatrician and psychiatrist didn't see it. Lo

> and behold she was having them, we had just tried a

> new medication, so we stopped it, and started her on

> Carnosine - supplement that her pediatrician and DAN

> doctor both thought was worth trying. It has helped

> tremendously! No more seizure activity (normal EEG)

> and increase in socialization AND language.

>

>

>

>

_____________________________________________________________

> Click to see huge collection of designer watches.

>

http://thirdpartyoffers.netzero.net/TGL2221/fc/Ioyw6i4tYRHjFM0wwXaKVD7HzPZerUpx8\

Kbe0rZAO4wN29Ufg3vZct/

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

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know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Was it carnosine or carnitine? I thought the former

was contraindicated in seizures, but carnitine helps

loads for some people.

Kassiane,

with her rather massive carnitine dosage

--- " dlwyrick@... "

wrote:

> Is your daughter taking any medications? Our

> daughter (PDD-NOS, 8 in April) had an abnormal EEG.

> I suspected seizures (absence ones-zoning out), but

> the pediatrician and psychiatrist didn't see it. Lo

> and behold she was having them, we had just tried a

> new medication, so we stopped it, and started her on

> Carnosine - supplement that her pediatrician and DAN

> doctor both thought was worth trying. It has helped

> tremendously! No more seizure activity (normal EEG)

> and increase in socialization AND language.

>

>

>

>

_____________________________________________________________

> Click to see huge collection of designer watches.

>

http://thirdpartyoffers.netzero.net/TGL2221/fc/Ioyw6i4tYRHjFM0wwXaKVD7HzPZerUpx8\

Kbe0rZAO4wN29Ufg3vZct/

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

As a person who had and outgrew those behaviors, I'd be glad to assure

things WILL get better!

Feel free to write me, please.

sharisajoy@...

>

> Hello, I would love for someone to be able to tell me everything will

> get easier!!! My daughter Haley is 8yrs. very very impulsive...hands

> never stop touching, grabbing everything in her view, we have to keep

> everything out of reach and all doors locked, she will get into

> everything. Does not play with anything of hers, always hitting or

> pushing us. Can't sit at all!, always on the go. Thanks for reading

>

> Ronda

>