Re: Re: celiac question

May 27, 2008

My friend who has 2 celiac kids said (I sent her a description of

Allie's trans-glutaminase labs, I hope that was ok) that that is very

very very likely a positive for celiac and that she didn't do further

testing past the trans-glutaminase on her son, since her daughter

already has a biopsy confirmation. I don't know if a biopsy is

necessary per se... she thinks you should go gluten free. BUT, she

said, and you probably already knew this, if you're considering a

biopsy don't go GF until after or you can reverse the intestinal

damage somewhat and skew the results.

> Yeah, I don't think I'd opt for a biopsy unless I could get the

> awesome British hands of Dr. Wakefield to do it, lol. Allie had an

> upper GI a few yrs ago & the ped GI told me all was fine, then I get

> the report that showed notations of epithelial changes here, cellular

> differences there. Maybe it wasn't the end of the world, but in my op,

> no 4 yr-old should have no changes! I'm fed up with going to anyone

> except a respected autism doc.

>

> Allie doesn't eat pizza, so thankfully that's not too big a deal. In

> fact, she doesn't eat that much gluten, she doesn't eat that much

> anything but potatoes!

>

> Debi

>

May 27, 2008

thats surprising she lost weight after starting the celiac diet. I have a

diabetic daughter who was diagnosed with celiac...the reason why she was losing

weight rapidly, so we did the blood test, then the thing down the throat and it

all showed to celiac. once she got on the diet within weeks you could see the

weight coming on and she was looking healthy again.

Cheryl S [chez]

To: Autism_in_Girls@...: pritchard2000_1997@...: Wed,

28 May 2008 01:02:15 +0000Subject: Re: celiac question

---hi my name is kristi and I have a daughter that is autistic with celiac

disease and mitochondrial disease our specialist diagnosed her but just with

labs and also said to start her on the diet but she said if there was no

physical change that we could stop the diet which we did because she lost 4 lbs

in 5 wks this was not a good change---kristiIn Autism_in_Girls ,

Larissa Shapiro wrote:>> My friend who has 2 celiac kids said (I

sent her a description of > Allie's trans-glutaminase labs, I hope that was ok)

that that is very > very very likely a positive for celiac and that she didn't

do further > testing past the trans-glutaminase on her son, since her daughter >

already has a biopsy confirmation. I don't know if a biopsy is > necessary per

se... she thinks you should go gluten free. BUT, she > said, and you probably

already knew this, if you're considering a > biopsy don't go GF until after or

you can reverse the intestinal > damage somewhat and skew the results.> > On May

26, 2008, at 9:16 PM, Debi wrote:> > > Yeah, I don't think I'd opt for a biopsy

unless I could get the> > awesome British hands of Dr. Wakefield to do it, lol.

Allie had an> > upper GI a few yrs ago & the ped GI told me all was fine, then I

get> > the report that showed notations of epithelial changes here, cellular> >

differences there. Maybe it wasn't the end of the world, but in my op,> > no 4

yr-old should have no changes! I'm fed up with going to anyone> > except a

respected autism doc.> >> > Allie doesn't eat pizza, so thankfully that's not

too big a deal. In> > fact, she doesn't eat that much gluten, she doesn't eat

that much> > anything but potatoes!> >> > Debi> >> >> > > > > > [Non-text

portions of this message have been removed]>

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May 27, 2008