Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Thanks , it's a good warning. I wish I knew what to do! Son is 17 so I can't exactly drag him off to his room. He sometimes says " I don't know " when I ask why he's not going to bed. Other times, bothered by " dirt " that came in from a fly or something & can't get past it. Sometimes says he just can't do all that hand-washing again before going to bed. Also issues with his dad and not wanting to walk through a room where Dad has been, therefore can't get to bed. He hates waking up all wet and would like to get back to sleeping every night, just can't " make himself " or something. Has anyone used an over-the-counter sleep med that I could try? Any experience with Benedryl? I hate to see the ERP threatened by his not even getting up some days because he stayed up all night. Rhonda Re: family rituals I don't know how old your son is but staying up all night is not healthy. I wish I would have been more proactive with this with one of my sons. He was a bit of a night owl when younger. In college, he did not maintain a normal sleep schedule and this was a major contributor to his bout with psychosis in January. This was the first thing they concentrated on in the hospital. I am not suggesting that your son will have this problem but now I know that kids with sensitive nervous systems must have a normal sleep schedule. Try to figure out what is causing his disruptive schedule (med., activities, sleep environment). It can be a number of things. My son had unusual beliefs and nonstop thinking and that is why he believed he needed to be up all night. Also, two of my boys( both with ADD) wet the bed til third grade. My doc. said some kids take longer to mature so I guess that was it. I hope that helps. > > Another question - son has taken to staying up all night, then going to bed sometime next afternoon, sleeping 16 hours. Problem is he pees out his bed in a major way, meaning all bedding has to be changed and washed. Also yucks up bathroom in middle of night when he uses it, meaning major cleaning before daughters use in morning. How have you handled all this support stuff that is needed to maintain your child's dysfunction? I would like to stop doing it! But in the past he has frozen up and gotten even worse when I have tried to set down limits. > > Thanks! > Rhonda > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Thanks , it's a good warning. I wish I knew what to do! Son is 17 so I can't exactly drag him off to his room. He sometimes says " I don't know " when I ask why he's not going to bed. Other times, bothered by " dirt " that came in from a fly or something & can't get past it. Sometimes says he just can't do all that hand-washing again before going to bed. Also issues with his dad and not wanting to walk through a room where Dad has been, therefore can't get to bed. He hates waking up all wet and would like to get back to sleeping every night, just can't " make himself " or something. Has anyone used an over-the-counter sleep med that I could try? Any experience with Benedryl? I hate to see the ERP threatened by his not even getting up some days because he stayed up all night. Rhonda Re: family rituals I don't know how old your son is but staying up all night is not healthy. I wish I would have been more proactive with this with one of my sons. He was a bit of a night owl when younger. In college, he did not maintain a normal sleep schedule and this was a major contributor to his bout with psychosis in January. This was the first thing they concentrated on in the hospital. I am not suggesting that your son will have this problem but now I know that kids with sensitive nervous systems must have a normal sleep schedule. Try to figure out what is causing his disruptive schedule (med., activities, sleep environment). It can be a number of things. My son had unusual beliefs and nonstop thinking and that is why he believed he needed to be up all night. Also, two of my boys( both with ADD) wet the bed til third grade. My doc. said some kids take longer to mature so I guess that was it. I hope that helps. > > Another question - son has taken to staying up all night, then going to bed sometime next afternoon, sleeping 16 hours. Problem is he pees out his bed in a major way, meaning all bedding has to be changed and washed. Also yucks up bathroom in middle of night when he uses it, meaning major cleaning before daughters use in morning. How have you handled all this support stuff that is needed to maintain your child's dysfunction? I would like to stop doing it! But in the past he has frozen up and gotten even worse when I have tried to set down limits. > > Thanks! > Rhonda > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Rhonda, Do you have a Whole Foods market or something similar nearby? There are many homeopathic and natural remedies that can be helpful for sleep. I would stay away from Benedryl though because it can sometimes have the opposite effect on people, I know it did on me. There are many things like Valerian, Kava Kava that can be helpful, but you also have to be a little careful with those because you just never know what exactly is going on with these kids and what can affect what. If I recall, your son is not taking any medication? If that is the case, I can only tell you my experience on that front........I am VERY adverse to medications because I've had my own nightmare experiences. I put off my son taking meds for a while because his Tourette's and OCD at the time were not affecting his quality of life. However, once that stopped being the case and his quality of life started declining pretty rapidly, I made the very difficult decision to start him on meds. Now in my son's case, the meds have not done much yet, but I think it's mainly because we haven't found the right ones. Sometimes you're lucky and get it right on the first few tries, but often times it takes some trial and error before getting it right. I don't know if this is a possibility for you, but while your son is still under the age of 18 you are able to make medical decisions for him......once he turns 18 that will change unless he's in danger of hurting himself or others. Do you live near Boston or Texas? Would you consider putting him in the residential program at Mclean Hospita http://www.mclean.harvard.edu/patient/adult/ocd.phpl OR http://www.houstonocdprogram.org/ I'm certainly no OCD expert and am fairly new to this myself, but from what you're describing it sounds like your son could really benefit from residential treatment. I'm pretty sure Mclean hospital takes insurance, not sure about the other, but you could give them a call. > Thanks , it's a good warning. I wish I knew what to do! Son is 17 so I can't exactly drag him off to his room. He sometimes says " I don't know " when I ask why he's not going to bed. Other times, bothered by " dirt " that came in from a fly or something & can't get past it. Sometimes says he just can't do all that hand-washing again before going to bed. Also issues with his dad and not wanting to walk through a room where Dad has been, therefore can't get to bed. He hates waking up all wet and would like to get back to sleeping every night, just can't " make himself " or something. Has anyone used an over-the-counter sleep med that I could try? Any experience with Benedryl? I hate to see the ERP threatened by his not even getting up some days because he stayed up all night. > > Rhonda > > Re: family rituals > > I don't know how old your son is but staying up all night is not healthy. I wish I would have been more proactive with this with one of my sons. He was a bit of a night owl when younger. In college, he did not maintain a normal sleep schedule and this was a major contributor to his bout with psychosis in January. This was the first thing they concentrated on in the hospital. I am not suggesting that your son will have this problem but now I know that kids with sensitive nervous systems must have a normal sleep schedule. Try to figure out what is causing his disruptive schedule (med., activities, sleep environment). It can be a number of things. My son had unusual beliefs and nonstop thinking and that is why he believed he needed to be up all night. Also, two of my boys( both with ADD) wet the bed til third grade. My doc. said some kids take longer to mature so I guess that was it. I hope that helps. > > > > > > Another question - son has taken to staying up all night, then going to bed sometime next afternoon, sleeping 16 hours. Problem is he pees out his bed in a major way, meaning all bedding has to be changed and washed. Also yucks up bathroom in middle of night when he uses it, meaning major cleaning before daughters use in morning. How have you handled all this support stuff that is needed to maintain your child's dysfunction? I would like to stop doing it! But in the past he has frozen up and gotten even worse when I have tried to set down limits. > > > > Thanks! > > Rhonda > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Thanks , I was wondering myself about that possible effect of the Benedryl. He does not need more stimulation! I have some valerian in drops and may get brave and try that. We live about an hour from the Lindner Center in Cincinnati. It is supposed to be fabulous, but it has recently joined up with Cincy Childrens somehow and we have not been able to figure out if they still do focused OCD or it's more a psych ward. It would be an answer to prayer to get him into Medicaid-paid OCD treatment there. It's so great to have a group to talk about all these things. Ever go to your church or school group and it's like being in another world?? You can't talk about OCD like diabetes or even -- gluten intolerance. Maybe someday. Rhonda in Ohio Re: family rituals > > I don't know how old your son is but staying up all night is not healthy. I wish I would have been more proactive with this with one of my sons. He was a bit of a night owl when younger. In college, he did not maintain a normal sleep schedule and this was a major contributor to his bout with psychosis in January. This was the first thing they concentrated on in the hospital. I am not suggesting that your son will have this problem but now I know that kids with sensitive nervous systems must have a normal sleep schedule. Try to figure out what is causing his disruptive schedule (med., activities, sleep environment). It can be a number of things. My son had unusual beliefs and nonstop thinking and that is why he believed he needed to be up all night. Also, two of my boys( both with ADD) wet the bed til third grade. My doc. said some kids take longer to mature so I guess that was it. I hope that helps. > > > > > > Another question - son has taken to staying up all night, then going to bed sometime next afternoon, sleeping 16 hours. Problem is he pees out his bed in a major way, meaning all bedding has to be changed and washed. Also yucks up bathroom in middle of night when he uses it, meaning major cleaning before daughters use in morning. How have you handled all this support stuff that is needed to maintain your child's dysfunction? I would like to stop doing it! But in the past he has frozen up and gotten even worse when I have tried to set down limits. > > > > Thanks! > > Rhonda > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Thanks , I was wondering myself about that possible effect of the Benedryl. He does not need more stimulation! I have some valerian in drops and may get brave and try that. We live about an hour from the Lindner Center in Cincinnati. It is supposed to be fabulous, but it has recently joined up with Cincy Childrens somehow and we have not been able to figure out if they still do focused OCD or it's more a psych ward. It would be an answer to prayer to get him into Medicaid-paid OCD treatment there. It's so great to have a group to talk about all these things. Ever go to your church or school group and it's like being in another world?? You can't talk about OCD like diabetes or even -- gluten intolerance. Maybe someday. Rhonda in Ohio Re: family rituals > > I don't know how old your son is but staying up all night is not healthy. I wish I would have been more proactive with this with one of my sons. He was a bit of a night owl when younger. In college, he did not maintain a normal sleep schedule and this was a major contributor to his bout with psychosis in January. This was the first thing they concentrated on in the hospital. I am not suggesting that your son will have this problem but now I know that kids with sensitive nervous systems must have a normal sleep schedule. Try to figure out what is causing his disruptive schedule (med., activities, sleep environment). It can be a number of things. My son had unusual beliefs and nonstop thinking and that is why he believed he needed to be up all night. Also, two of my boys( both with ADD) wet the bed til third grade. My doc. said some kids take longer to mature so I guess that was it. I hope that helps. > > > > > > Another question - son has taken to staying up all night, then going to bed sometime next afternoon, sleeping 16 hours. Problem is he pees out his bed in a major way, meaning all bedding has to be changed and washed. Also yucks up bathroom in middle of night when he uses it, meaning major cleaning before daughters use in morning. How have you handled all this support stuff that is needed to maintain your child's dysfunction? I would like to stop doing it! But in the past he has frozen up and gotten even worse when I have tried to set down limits. > > > > Thanks! > > Rhonda > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Rhonda,  My daughter with OCD suffers from sleep disturbances and insomnia, and her therapist recommended the hormone Melatonin. We don't give her much--just .5 mg in the liquid serum form--but she's out like a light within 30 minutes without fail, and makes it through the whole night! We don't let her use it that often, as we don't want her to get too hooked, but it's a relief on rough nights, when she feels the compulsion to check her closet over and over before she can go to sleep. Luckily she's in a good compulsion-free phase right now and has been sleeping pretty well without it, but it's good to know there's a magic potion on hand that's more natural than sleep meds and benedryl.  Good luck!  Jen ________________________________ To: Sent: Sunday, March 18, 2012 9:01 AM Subject: Re: Re: family rituals  Thanks , it's a good warning. I wish I knew what to do! Son is 17 so I can't exactly drag him off to his room. He sometimes says " I don't know " when I ask why he's not going to bed. Other times, bothered by " dirt " that came in from a fly or something & can't get past it. Sometimes says he just can't do all that hand-washing again before going to bed. Also issues with his dad and not wanting to walk through a room where Dad has been, therefore can't get to bed. He hates waking up all wet and would like to get back to sleeping every night, just can't " make himself " or something. Has anyone used an over-the-counter sleep med that I could try? Any experience with Benedryl? I hate to see the ERP threatened by his not even getting up some days because he stayed up all night. Rhonda Re: family rituals I don't know how old your son is but staying up all night is not healthy. I wish I would have been more proactive with this with one of my sons. He was a bit of a night owl when younger. In college, he did not maintain a normal sleep schedule and this was a major contributor to his bout with psychosis in January. This was the first thing they concentrated on in the hospital. I am not suggesting that your son will have this problem but now I know that kids with sensitive nervous systems must have a normal sleep schedule. Try to figure out what is causing his disruptive schedule (med., activities, sleep environment). It can be a number of things. My son had unusual beliefs and nonstop thinking and that is why he believed he needed to be up all night. Also, two of my boys( both with ADD) wet the bed til third grade. My doc. said some kids take longer to mature so I guess that was it. I hope that helps. > > Another question - son has taken to staying up all night, then going to bed sometime next afternoon, sleeping 16 hours. Problem is he pees out his bed in a major way, meaning all bedding has to be changed and washed. Also yucks up bathroom in middle of night when he uses it, meaning major cleaning before daughters use in morning. How have you handled all this support stuff that is needed to maintain your child's dysfunction? I would like to stop doing it! But in the past he has frozen up and gotten even worse when I have tried to set down limits. > > Thanks! > Rhonda > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2012 Report Share Posted March 23, 2012 I got the Melatonin - tried some myself and got very tired. Son tried some earlier in the day and got tired. But then he forgot to take it last night at his bedtime. I gave him 1.25 mg. I hope to try again. It might work. Thanks for the tip! Rhonda Re: family rituals I don't know how old your son is but staying up all night is not healthy. I wish I would have been more proactive with this with one of my sons. He was a bit of a night owl when younger. In college, he did not maintain a normal sleep schedule and this was a major contributor to his bout with psychosis in January. This was the first thing they concentrated on in the hospital. I am not suggesting that your son will have this problem but now I know that kids with sensitive nervous systems must have a normal sleep schedule. Try to figure out what is causing his disruptive schedule (med., activities, sleep environment). It can be a number of things. My son had unusual beliefs and nonstop thinking and that is why he believed he needed to be up all night. Also, two of my boys( both with ADD) wet the bed til third grade. My doc. said some kids take longer to mature so I guess that was it. I hope that helps. > > Another question - son has taken to staying up all night, then going to bed sometime next afternoon, sleeping 16 hours. Problem is he pees out his bed in a major way, meaning all bedding has to be changed and washed. Also yucks up bathroom in middle of night when he uses it, meaning major cleaning before daughters use in morning. How have you handled all this support stuff that is needed to maintain your child's dysfunction? I would like to stop doing it! But in the past he has frozen up and gotten even worse when I have tried to set down limits. > > Thanks! > Rhonda > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2012 Report Share Posted March 23, 2012 Prairie, thanks for sharing. Your son sounds a lot like mine. From what we can gather, in order to get into the treatment program nearest us, son would have to be admitted to emergency room, undergo full medical tests there. To do that he needs to be wearing clean clothes. How to get on clean clothes? He has given up changing because he can never get the new clothes clean enough to put on. Old clothes are soaked with skin oils and all manner of crud. He said he'd like a treatment program but if he has to change clothes, he wants some medication that will make him not mind! Rhonda Re: family rituals Hi Rhonda: Just wanted to let you know I have been in your shoes and know how painful it is. My son also did not leave the house due to rituals and areas of the house would come " unclean " because people walked or coughed there. He was so fearful! He was on medication, but it wasn't working. Pshyciatrist had put him on Celexa, then kept adding different drugs because he was angry and agitated. The other drugs would make him even worse rather than calm. The doctor said he was using all the drugs they gave the kids at the Texas State Hospital where he used to work. Then the doctor refused to treat him anymore because he wouldn't come into his office due to OCD. We called the mental health police to bring to the hospital (mental health). They did an excellent job - very kind and knew how to talk with him. He hated the hospital, but they found the right drug (Zoloft) that he is on today. He is in school (a private one since the public school had a lot of bullying which his sensitive personality could not take) and with the Zoloft and ERP is doing well - though still in therapy even after 3 years. Recently, I read in the paper that the psychatrists at the Texas State Hospital were prescribing adult drugs to kids with horrible side effects and were being made to stop. Texas is the bottom as to mental health services, so I'm sure this is just TX specific. Anyway, if things don't get better and your son can't get to a psychiatrist's office, you might consider hospitalizing so they can find the right drug for him. He was only in for 2 weeks, and I realized how much I needed the break once he was in. The psychiatrist my son now has told us that he has seen parents become physically ill with serious diseases trying to care for a mentally ill child and that we needed to take of ourselves first, so we were there for our son for the long haul. Prairie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2012 Report Share Posted March 23, 2012 Thanks , I did not see this before. I didn't know if I could give every night. Lozenges are 2.50 - is cutting in half okay or too much? Rhonda Re: family rituals I would suggest melatonin as a sleep aid. I have anxiety-induced insomnia and it runs in my family. I started taking melatonin 1mg every night about six months ago. It has worked wonders for me. No hangover effect like you would get from something like Tylenol PM. It is supposed to be a natural safe sleep-aid. From what I have read, it is impossible to overdose on it. > > > > Another question - son has taken to staying up all night, then going to bed sometime next afternoon, sleeping 16 hours. Problem is he pees out his bed in a major way, meaning all bedding has to be changed and washed. Also yucks up bathroom in middle of night when he uses it, meaning major cleaning before daughters use in morning. How have you handled all this support stuff that is needed to maintain your child's dysfunction? I would like to stop doing it! But in the past he has frozen up and gotten even worse when I have tried to set down limits. > > > > Thanks! > > Rhonda > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2012 Report Share Posted March 23, 2012 Makes me angry and sad to hear this. Daughter in a homeschool class had a couple other boys (brothers) who were talking about their sister always coating her hands with hand cleaner after getting in the car. And how she has to sing to do her homework. This is their sister and they seemed to be clueless. It's awful how little information is out there. Rhonda Re: family rituals I know what you mean about not being able to talk to people about it at church or school. I had a teacher conference with all my dd's teachers. And one of her teachers had a complete lack of compassion and was just a total jerk. And we actually stopped going to church because my dd was being bullied by girls in her youth group at church and at school. And the youth minister and his wife were no help and even made some things worse. We stopped going about six months ago and they have not once reached out to my dd to tell her they miss her or ask how she is doing. I was very active in the church prior to this and taught Sunday School and Vacation Bible school. Since this, I have no desire to go back to church. > > > > > > Another question - son has taken to staying up all night, then going to bed sometime next afternoon, sleeping 16 hours. Problem is he pees out his bed in a major way, meaning all bedding has to be changed and washed. Also yucks up bathroom in middle of night when he uses it, meaning major cleaning before daughters use in morning. How have you handled all this support stuff that is needed to maintain your child's dysfunction? I would like to stop doing it! But in the past he has frozen up and gotten even worse when I have tried to set down limits. > > > > > > Thanks! > > > Rhonda > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2012 Report Share Posted March 23, 2012 Rhonda, Do they actually require him to have clean clothes on, or is this what you would prefer? Most emergency rooms are used to all kinds of wounds, messes, etc. that most of us wouldn't want to deal with. When you are dealing with severe OCD, sometimes you have to revise your expectations completely. Our almost 12 yo dd is doing fairly well right now although teasing and bullying are a problem in middle school. However, at age 9, when she was at her worst, we gave her a shower fully dressed because she was completely unwilling to undress to take one. We also took her to the therapist's office at least once in her PJs and once with a bedspread that she wrapped around herself over her clothes. I would have preferred normal showers and big kid clothes, but getting treatment and getting clean took priority over those. Just my two cents. I haven't been following all your posts so I don't have all the details. (mom w/OCD, almost 12 yo dd w/OCD, 9.5 yr old dd w/tics and possible just right OCD) ________________________________ To: Sent: Friday, March 23, 2012 4:00 PM Subject: Re: Re: family rituals Prairie, thanks for sharing. Your son sounds a lot like mine. From what we can gather, in order to get into the treatment program nearest us, son would have to be admitted to emergency room, undergo full medical tests there. To do that he needs to be wearing clean clothes. How to get on clean clothes? He has given up changing because he can never get the new clothes clean enough to put on. Old clothes are soaked with skin oils and all manner of crud. He said he'd like a treatment program but if he has to change clothes, he wants some medication that will make him not mind! Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2012 Report Share Posted March 23, 2012 From what husband reports, Lindner Center wants clean clothes and will change him if he is not clean. Because he is not in life-threatening situation, I don't know if emergency room will even take, or Medicaid will pay. That is a great point about ER being used to all kinds of stuff. We're talking he has peed out repeatedly over last 2-3 months because couldn't get hands washed in time and hates going to bathroom, and has not changed those jeans. So I started talking to him about this process and he said he would be able to shower and change at the ER! Really? It turns out that living here with his dad is a HUGE issue, therapist never really validated. Son would put on new clothes after showering but not clothes from home. If ER would not take him, he might consider going to motel and showering and changing there, as long as he knows he's on his way to the center. This is a boy who has not showered for six months. He might be able to stay at motel if doctor orders lab tests and everything takes awhile. I thought everything " out there " was dirty, but it seems it's related to where dad has been and what dad has touched (like, it was just the car seat that was dirty, not everything else.) He doesn't really know if the motel would " work " or not, in terms of feeling clean enough and him being able to put on different clothes. Said he would think about it. He's been up about 30 hours on this go-round and just took the melatonin. Thanks for your ideas and input, really helping me think through this. Rhonda Re: Re: family rituals Prairie, thanks for sharing. Your son sounds a lot like mine. From what we can gather, in order to get into the treatment program nearest us, son would have to be admitted to emergency room, undergo full medical tests there. To do that he needs to be wearing clean clothes. How to get on clean clothes? He has given up changing because he can never get the new clothes clean enough to put on. Old clothes are soaked with skin oils and all manner of crud. He said he'd like a treatment program but if he has to change clothes, he wants some medication that will make him not mind! Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2012 Report Share Posted March 23, 2012 Rhonda, If I were you, I would try the emergency room if that's what you must do to get him into treatment. If your son has urinated repeatedly in his jeans without showering or changing them, he could easily have skin, fungal, or urinary infections and you might not be aware. Our dd struggles with being wet at night and not cleaning her personal areas thoroughly. She has had recurrent yeast infections (until I put her on Lactobacillus tablets) and recurrent urinary tract infections. She also went through a period three years ago when she would only use the bathroom twice a day. At that time, she was washing for an hour each time and her arms looked like she had suffered burns (the skin was so raw). I find it hard to believe that any experienced OCD treatment center would forcefully change a patient. I can imagine them limiting privileges or devising exposures to deal with the clothing issue and requiring the patient to have clean clothing available. I also think your son may be right that he could do some things at the ER or the hotel that he cannot do at home. OCD is a tricky disorder. People with OCD can often manage things in public that they cannot do in private/at home. We can cover rituals up sometimes if people are visiting. We can also play mind games with our OCD. When my own OCD was worst over 20 yrs ago, I could not plan an overnight or longer trip away from my apartment. If I did and then tried to leave, the checking rituals would be both exhausting and time consuming. If I told myself I was just going to work and did not pack anything, the rituals were still there but not as bad. Once I got to work, I could call my parents and tell them I had decided to come after all--and could I borrow a nightgown (because I could not pack). I did this more than once, so at some level, I must have known I might go away overnight--but I could not pack and prepare for the trip in advance because that would make the rituals much worse when it was time to leave the apartment. Best wishes, whatever you decide. (mom w/OCD, almost 12 yo dd w/OCD, 9.5 yo dd w/ tics and possible just right OCD) ________________________________ To: Sent: Friday, March 23, 2012 9:05 PM Subject: Re: Re: family rituals From what husband reports, Lindner Center wants clean clothes and will change him if he is not clean. Because he is not in life-threatening situation, I don't know if emergency room will even take, or Medicaid will pay. That is a great point about ER being used to all kinds of stuff. We're talking he has peed out repeatedly over last 2-3 months because couldn't get hands washed in time and hates going to bathroom, and has not changed those jeans. So I started talking to him about this process and he said he would be able to shower and change at the ER! Really? It turns out that living here with his dad is a HUGE issue, therapist never really validated. Son would put on new clothes after showering but not clothes from home. If ER would not take him, he might consider going to motel and showering and changing there, as long as he knows he's on his way to the center. This is a boy who has not showered for six months. He might be able to stay at motel if doctor orders lab tests and everything takes awhile. I thought everything " out there " was dirty, but it seems it's related to where dad has been and what dad has touched (like, it was just the car seat that was dirty, not everything else.) He doesn't really know if the motel would " work " or not, in terms of feeling clean enough and him being able to put on different clothes. Said he would think about it. He's been up about 30 hours on this go-round and just took the melatonin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2012 Report Share Posted March 24, 2012 - it's always good to hear that someone else has done what my child is doing!! Thanks for your thoughts - I will probably call ER to see how they would handle him coming in. Is it okay to take him home if it gets to be too much or he stalls out in the middle of the process? Rhonda Re: Re: family rituals From what husband reports, Lindner Center wants clean clothes and will change him if he is not clean. Because he is not in life-threatening situation, I don't know if emergency room will even take, or Medicaid will pay. That is a great point about ER being used to all kinds of stuff. We're talking he has peed out repeatedly over last 2-3 months because couldn't get hands washed in time and hates going to bathroom, and has not changed those jeans. So I started talking to him about this process and he said he would be able to shower and change at the ER! Really? It turns out that living here with his dad is a HUGE issue, therapist never really validated. Son would put on new clothes after showering but not clothes from home. If ER would not take him, he might consider going to motel and showering and changing there, as long as he knows he's on his way to the center. This is a boy who has not showered for six months. He might be able to stay at motel if doctor orders lab tests and everything takes awhile. I thought everything " out there " was dirty, but it seems it's related to where dad has been and what dad has touched (like, it was just the car seat that was dirty, not everything else.) He doesn't really know if the motel would " work " or not, in terms of feeling clean enough and him being able to put on different clothes. Said he would think about it. He's been up about 30 hours on this go-round and just took the melatonin. Quote Link to comment Share on other sites More sharing options...
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