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-How old is your daughter? & #65007; & #65007;

& #65007; & #65007;The diet has definitly has helped in a lot of areas.

& #65007; & #65007;

& #65007; & #65007; & #65007; & #65007; & #65007; & #65007; & #65007; & #65007; & #65007; & #65007;\

& #65007; & #65007; & #65007; & #65007; & #65007; & #65007;-- In

Autism_in_Girls , Larissa Shapiro

wrote: & #65007; & #65007;

> & #65007; & #65007;

> I am so interested in the names of the foods you use, we're just 

& #65007; & #65007;

> starting gfcf, and my kid is also quite picky. The toffuti slices

are  & #65007; & #65007;

> great, we have just gone CF (2 weeks now) and will go GF in 2 more 

& #65007; & #65007;

> weeks. Mostly I think she's doing well, but for some reason today

has  & #65007; & #65007;

> been quite hard (2 poop accidents, 2 huge meltdowns, and she keeps 

& #65007; & #65007;

> licking me....) & #65007; & #65007;

> & #65007; & #65007;

> & #65007; & #65007;

> & #65007; & #65007;

> > Yes, we give her a multi mineral and calcium fruit chews. We get

the & #65007; & #65007;

> > calcium chews from Henrys Market. They come in chocolate flavor

also. & #65007; & #65007;

> > They are good they taste like a taffy. & #65007; & #65007;

> > & #65007; & #65007;

> > We also found that she tolerates some soy products. We use

Tofutti & #65007; & #65007;

> > slices. They come in Mozzarella flavor and American flavor. We

use & #65007; & #65007;

> > them to make pizzas and grilled ch. The same store sells gf bread

and & #65007; & #65007;

> > mixes like chebe bread mix, very easy to make little pizzas out

of & #65007; & #65007;

> > and deserts. & #65007; & #65007;

> > & #65007; & #65007;

> > Let me know if I can help with anything else. My daughter is so

picky & #65007; & #65007;

> > so we have to get things that taste similar to the real thing. So

I & #65007; & #65007;

> > could give you the name of things we have had good luck

with. & #65007; & #65007;

> > & #65007; & #65007;

> > & #65007; & #65007;

> > & #65007; & #65007;

> > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > > Is there anything that can be done to heal this problem

or & #65007; & #65007;

> > > will & #65007; & #65007;

> > > > > she & #65007; & #65007;

> > > > > > > forever be low in IgA? & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > > Her other urine oats test had showed she was

deficient & #65007; & #65007;

> > > > > in " GLUTAMINE " & #65007; & #65007;

> > > > > > > and this report says there is a connection. & #65007; & #65007;

> > > > > > > Anyone want to elaborate on all this? & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > Hi Shanna, & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > There are certain genetic conditions in which IgA is & #65007; & #65007;

> > abnormally & #65007; & #65007;

> > > > > low & #65007; & #65007;

> > > > > > from birth ( I think it's 1 in 400), in which case it

is & #65007; & #65007;

> > > > > challenging & #65007; & #65007;

> > > > > > to correct it. I suspect this may be the case for

Sondra, & #65007; & #65007;

> > since & #65007; & #65007;

> > > > > she & #65007; & #65007;

> > > > > > appears to have a number of endocrine, autoimmune

disorders & #65007; & #65007;

> > and & #65007; & #65007;

> > > > > > intestinal problems. Does show any signs of

any & #65007; & #65007;

> > > autoimmune & #65007; & #65007;

> > > > > > issues? These usually go along with very low IgA. Low IgA

is & #65007; & #65007;

> > > also & #65007; & #65007;

> > > > > > associated with malabsorption and intestinal tract & #65007; & #65007;

> > > inflammation, & #65007; & #65007;

> > > > > > which impairs the ability to properly assimilate

both & #65007; & #65007;

> > nutrients & #65007; & #65007;

> > > > > and & #65007; & #65007;

> > > > > > supplements/ meds. This could be why supplementing

vitamin D & #65007; & #65007;

> > > for & #65007; & #65007;

> > > > > > has not been successful. Has she been tested

for & #65007; & #65007;

> > celiac & #65007; & #65007;

> > > > > disease? & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > *She has not been tesed for " celiac disease " yet. She has

had a & #65007; & #65007;

> > > > urine & #65007; & #65007;

> > > > > test when she was probably 3 years old due to her holding

her & #65007; & #65007;

> > > urine & #65007; & #65007;

> > > > > for 2 days at a time. We used to have to take her to

the & #65007; & #65007;

> > > > pediatrician & #65007; & #65007;

> > > > > to get catherized. She has always had SEVERE CONSTIPATION.

She & #65007; & #65007;

> > > > turned & #65007; & #65007;

> > > > > any milk away after I breastfed her for 6 months. She

still & #65007; & #65007;

> > will & #65007; & #65007;

> > > > not & #65007; & #65007;

> > > > > drink milk! & #65007; & #65007;

> > > > > * & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > IgA is essential for mucosal immunity on all inner and

out & #65007; & #65007;

> > body & #65007; & #65007;

> > > > > > surfaces, as it is a protective factor against

infectious & #65007; & #65007;

> > > agents, & #65007; & #65007;

> > > > > > allergens, and foreign proteins that enter the body via

the & #65007; & #65007;

> > > > mouth, & #65007; & #65007;

> > > > > > nose, upper respiratory tracts, intestines, and the & #65007; & #65007;

> > > reproductive & #65007; & #65007;

> > > > > > tract. IgA deficiency often manifests as respiratory

system & #65007; & #65007;

> > > > > problems & #65007; & #65007;

> > > > > > such as hay fever and asthma, inflammatory problems of

the & #65007; & #65007;

> > > > > kidneys, & #65007; & #65007;

> > > > > > bladder, and urethra, inflammatory reproductive

tract & #65007; & #65007;

> > disorders & #65007; & #65007;

> > > > > > involving the uterus, ovaries, vagina, inflammatory

joint & #65007; & #65007;

> > > > > disorders & #65007; & #65007;

> > > > > > such as rheumatoid arthritis, and in cases of

vaccine & #65007; & #65007;

> > > reactions. & #65007; & #65007;

> > > > > Did & #65007; & #65007;

> > > > > > suffer a vaccine reaction that you are aware

of? & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > *I only know that she showed " autistic symptoms " from

BIRTH. & #65007; & #65007;

> > She & #65007; & #65007;

> > > > > wouldnt make eye contact, she stimmed on staring at her

fingers & #65007; & #65007;

> > > for & #65007; & #65007;

> > > > 6 & #65007; & #65007;

> > > > > hours at a time, she NEVER cryed for bottle or wet/poop.

She & #65007; & #65007;

> > had & #65007; & #65007;

> > > a & #65007; & #65007;

> > > > > white spot on her head and her hair was white in an area

the & #65007; & #65007;

> > size & #65007; & #65007;

> > > > of & #65007; & #65007;

> > > > > palm of hand on her head. SHe was diagnosed with

MACROCEPHALY @ & #65007; & #65007;

> > > > > birth. & #65007; & #65007;

> > > > > * & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > In order to get the whole hormonal-immune picture, you

should & #65007; & #65007;

> > > > have & #65007; & #65007;

> > > > > > tests for cortisol, total estrogen, thyroid T3 and T4,

and & #65007; & #65007;

> > IgA, & #65007; & #65007;

> > > > > IgG, & #65007; & #65007;

> > > > > > and IgM immunoglobulins. Aside from the IgA, have you had

any & #65007; & #65007;

> > > of & #65007; & #65007;

> > > > > the & #65007; & #65007;

> > > > > > other things tested? & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > *I only know that he did TSH this past time. I didnt

see & #65007; & #65007;

> > anything & #65007; & #65007;

> > > > > about T3 or T4. As far as IgG, he did that through Immuno

LABS. & #65007; & #65007;

> > I & #65007; & #65007;

> > > > > guess it would be good to know IgA/IgM. What else can that

help & #65007; & #65007;

> > > to & #65007; & #65007;

> > > > > know? & #65007; & #65007;

> > > > > * & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > Glutamine deficiency is definitely related to the low

IgA. & #65007; & #65007;

> > > > > Glutamine & #65007; & #65007;

> > > > > > helps protect intestinal integrity and is the primary

source & #65007; & #65007;

> > of & #65007; & #65007;

> > > > > > energy for intestinal cells and cells of the immune

system. & #65007; & #65007;

> > It & #65007; & #65007;

> > > is & #65007; & #65007;

> > > > > an & #65007; & #65007;

> > > > > > overall source of energy, promotes wound healing,

increases & #65007; & #65007;

> > > > growth & #65007; & #65007;

> > > > > > hormone production which preserves muscle and

decreases & #65007; & #65007;

> > > > > accumulation & #65007; & #65007;

> > > > > > of fat. Deficiencies cause increased permeability of

the & #65007; & #65007;

> > > > > intestines & #65007; & #65007;

> > > > > > to allergens and toxins, inflammation of the intestines,

food & #65007; & #65007;

> > > > > > allergies, inflammatory arthritis , fatigue, skin

rashes, & #65007; & #65007;

> > > > impaired & #65007; & #65007;

> > > > > > immune function, poor wound healing and slow recovery

from & #65007; & #65007;

> > > > > illness. & #65007; & #65007;

> > > > > > Have you tried any glutamine supplementation? & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > *She is on 600mg of L-Gluatmine in the neurolink a day. THe

lab & #65007; & #65007;

> > > is & #65007; & #65007;

> > > > > recommending 3000 (I think..dont have the paper in front

of & #65007; & #65007;

> > me).I & #65007; & #65007;

> > > > > looked up that product and will bring the paper with me to

dr. & #65007; & #65007;

> > on & #65007; & #65007;

> > > > > that product. You are not confusing me. I do think there is

a & #65007; & #65007;

> > > total & #65007; & #65007;

> > > > > link in our kids immune systems and their autistic

symptoms & #65007; & #65007;

> > > though. & #65007; & #65007;

> > > > > * & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > This is an excellent & #65007; & #65007;

> > > > > > product: & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > http://tinyurl. com/2eaqwb & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > Sorry this was so long and I hope I have not confused

you & #65007; & #65007;

> > > further. & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > [Non-text portions of this message have been

removed] & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > Get the name you always wanted with the new y7mail

email & #65007; & #65007;

> > > > address. & #65007; & #65007;

> > > > > www.yahoo7.com.au/y7mail & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > >

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Guest guest

Guest guest

Posted
Posted

-How old is your daughter? & #65007; & #65007;

& #65007; & #65007;The diet has definitly has helped in a lot of areas.

& #65007; & #65007;

& #65007; & #65007; & #65007; & #65007; & #65007; & #65007; & #65007; & #65007; & #65007; & #65007;\

& #65007; & #65007; & #65007; & #65007; & #65007; & #65007;-- In

Autism_in_Girls , Larissa Shapiro

wrote: & #65007; & #65007;

> & #65007; & #65007;

> I am so interested in the names of the foods you use, we're just 

& #65007; & #65007;

> starting gfcf, and my kid is also quite picky. The toffuti slices

are  & #65007; & #65007;

> great, we have just gone CF (2 weeks now) and will go GF in 2 more 

& #65007; & #65007;

> weeks. Mostly I think she's doing well, but for some reason today

has  & #65007; & #65007;

> been quite hard (2 poop accidents, 2 huge meltdowns, and she keeps 

& #65007; & #65007;

> licking me....) & #65007; & #65007;

> & #65007; & #65007;

> & #65007; & #65007;

> & #65007; & #65007;

> > Yes, we give her a multi mineral and calcium fruit chews. We get

the & #65007; & #65007;

> > calcium chews from Henrys Market. They come in chocolate flavor

also. & #65007; & #65007;

> > They are good they taste like a taffy. & #65007; & #65007;

> > & #65007; & #65007;

> > We also found that she tolerates some soy products. We use

Tofutti & #65007; & #65007;

> > slices. They come in Mozzarella flavor and American flavor. We

use & #65007; & #65007;

> > them to make pizzas and grilled ch. The same store sells gf bread

and & #65007; & #65007;

> > mixes like chebe bread mix, very easy to make little pizzas out

of & #65007; & #65007;

> > and deserts. & #65007; & #65007;

> > & #65007; & #65007;

> > Let me know if I can help with anything else. My daughter is so

picky & #65007; & #65007;

> > so we have to get things that taste similar to the real thing. So

I & #65007; & #65007;

> > could give you the name of things we have had good luck

with. & #65007; & #65007;

> > & #65007; & #65007;

> > & #65007; & #65007;

> > & #65007; & #65007;

> > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > > Is there anything that can be done to heal this problem

or & #65007; & #65007;

> > > will & #65007; & #65007;

> > > > > she & #65007; & #65007;

> > > > > > > forever be low in IgA? & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > > Her other urine oats test had showed she was

deficient & #65007; & #65007;

> > > > > in " GLUTAMINE " & #65007; & #65007;

> > > > > > > and this report says there is a connection. & #65007; & #65007;

> > > > > > > Anyone want to elaborate on all this? & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > Hi Shanna, & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > There are certain genetic conditions in which IgA is & #65007; & #65007;

> > abnormally & #65007; & #65007;

> > > > > low & #65007; & #65007;

> > > > > > from birth ( I think it's 1 in 400), in which case it

is & #65007; & #65007;

> > > > > challenging & #65007; & #65007;

> > > > > > to correct it. I suspect this may be the case for

Sondra, & #65007; & #65007;

> > since & #65007; & #65007;

> > > > > she & #65007; & #65007;

> > > > > > appears to have a number of endocrine, autoimmune

disorders & #65007; & #65007;

> > and & #65007; & #65007;

> > > > > > intestinal problems. Does show any signs of

any & #65007; & #65007;

> > > autoimmune & #65007; & #65007;

> > > > > > issues? These usually go along with very low IgA. Low IgA

is & #65007; & #65007;

> > > also & #65007; & #65007;

> > > > > > associated with malabsorption and intestinal tract & #65007; & #65007;

> > > inflammation, & #65007; & #65007;

> > > > > > which impairs the ability to properly assimilate

both & #65007; & #65007;

> > nutrients & #65007; & #65007;

> > > > > and & #65007; & #65007;

> > > > > > supplements/ meds. This could be why supplementing

vitamin D & #65007; & #65007;

> > > for & #65007; & #65007;

> > > > > > has not been successful. Has she been tested

for & #65007; & #65007;

> > celiac & #65007; & #65007;

> > > > > disease? & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > *She has not been tesed for " celiac disease " yet. She has

had a & #65007; & #65007;

> > > > urine & #65007; & #65007;

> > > > > test when she was probably 3 years old due to her holding

her & #65007; & #65007;

> > > urine & #65007; & #65007;

> > > > > for 2 days at a time. We used to have to take her to

the & #65007; & #65007;

> > > > pediatrician & #65007; & #65007;

> > > > > to get catherized. She has always had SEVERE CONSTIPATION.

She & #65007; & #65007;

> > > > turned & #65007; & #65007;

> > > > > any milk away after I breastfed her for 6 months. She

still & #65007; & #65007;

> > will & #65007; & #65007;

> > > > not & #65007; & #65007;

> > > > > drink milk! & #65007; & #65007;

> > > > > * & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > IgA is essential for mucosal immunity on all inner and

out & #65007; & #65007;

> > body & #65007; & #65007;

> > > > > > surfaces, as it is a protective factor against

infectious & #65007; & #65007;

> > > agents, & #65007; & #65007;

> > > > > > allergens, and foreign proteins that enter the body via

the & #65007; & #65007;

> > > > mouth, & #65007; & #65007;

> > > > > > nose, upper respiratory tracts, intestines, and the & #65007; & #65007;

> > > reproductive & #65007; & #65007;

> > > > > > tract. IgA deficiency often manifests as respiratory

system & #65007; & #65007;

> > > > > problems & #65007; & #65007;

> > > > > > such as hay fever and asthma, inflammatory problems of

the & #65007; & #65007;

> > > > > kidneys, & #65007; & #65007;

> > > > > > bladder, and urethra, inflammatory reproductive

tract & #65007; & #65007;

> > disorders & #65007; & #65007;

> > > > > > involving the uterus, ovaries, vagina, inflammatory

joint & #65007; & #65007;

> > > > > disorders & #65007; & #65007;

> > > > > > such as rheumatoid arthritis, and in cases of

vaccine & #65007; & #65007;

> > > reactions. & #65007; & #65007;

> > > > > Did & #65007; & #65007;

> > > > > > suffer a vaccine reaction that you are aware

of? & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > *I only know that she showed " autistic symptoms " from

BIRTH. & #65007; & #65007;

> > She & #65007; & #65007;

> > > > > wouldnt make eye contact, she stimmed on staring at her

fingers & #65007; & #65007;

> > > for & #65007; & #65007;

> > > > 6 & #65007; & #65007;

> > > > > hours at a time, she NEVER cryed for bottle or wet/poop.

She & #65007; & #65007;

> > had & #65007; & #65007;

> > > a & #65007; & #65007;

> > > > > white spot on her head and her hair was white in an area

the & #65007; & #65007;

> > size & #65007; & #65007;

> > > > of & #65007; & #65007;

> > > > > palm of hand on her head. SHe was diagnosed with

MACROCEPHALY @ & #65007; & #65007;

> > > > > birth. & #65007; & #65007;

> > > > > * & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > In order to get the whole hormonal-immune picture, you

should & #65007; & #65007;

> > > > have & #65007; & #65007;

> > > > > > tests for cortisol, total estrogen, thyroid T3 and T4,

and & #65007; & #65007;

> > IgA, & #65007; & #65007;

> > > > > IgG, & #65007; & #65007;

> > > > > > and IgM immunoglobulins. Aside from the IgA, have you had

any & #65007; & #65007;

> > > of & #65007; & #65007;

> > > > > the & #65007; & #65007;

> > > > > > other things tested? & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > *I only know that he did TSH this past time. I didnt

see & #65007; & #65007;

> > anything & #65007; & #65007;

> > > > > about T3 or T4. As far as IgG, he did that through Immuno

LABS. & #65007; & #65007;

> > I & #65007; & #65007;

> > > > > guess it would be good to know IgA/IgM. What else can that

help & #65007; & #65007;

> > > to & #65007; & #65007;

> > > > > know? & #65007; & #65007;

> > > > > * & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > Glutamine deficiency is definitely related to the low

IgA. & #65007; & #65007;

> > > > > Glutamine & #65007; & #65007;

> > > > > > helps protect intestinal integrity and is the primary

source & #65007; & #65007;

> > of & #65007; & #65007;

> > > > > > energy for intestinal cells and cells of the immune

system. & #65007; & #65007;

> > It & #65007; & #65007;

> > > is & #65007; & #65007;

> > > > > an & #65007; & #65007;

> > > > > > overall source of energy, promotes wound healing,

increases & #65007; & #65007;

> > > > growth & #65007; & #65007;

> > > > > > hormone production which preserves muscle and

decreases & #65007; & #65007;

> > > > > accumulation & #65007; & #65007;

> > > > > > of fat. Deficiencies cause increased permeability of

the & #65007; & #65007;

> > > > > intestines & #65007; & #65007;

> > > > > > to allergens and toxins, inflammation of the intestines,

food & #65007; & #65007;

> > > > > > allergies, inflammatory arthritis , fatigue, skin

rashes, & #65007; & #65007;

> > > > impaired & #65007; & #65007;

> > > > > > immune function, poor wound healing and slow recovery

from & #65007; & #65007;

> > > > > illness. & #65007; & #65007;

> > > > > > Have you tried any glutamine supplementation? & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > *She is on 600mg of L-Gluatmine in the neurolink a day. THe

lab & #65007; & #65007;

> > > is & #65007; & #65007;

> > > > > recommending 3000 (I think..dont have the paper in front

of & #65007; & #65007;

> > me).I & #65007; & #65007;

> > > > > looked up that product and will bring the paper with me to

dr. & #65007; & #65007;

> > on & #65007; & #65007;

> > > > > that product. You are not confusing me. I do think there is

a & #65007; & #65007;

> > > total & #65007; & #65007;

> > > > > link in our kids immune systems and their autistic

symptoms & #65007; & #65007;

> > > though. & #65007; & #65007;

> > > > > * & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > This is an excellent & #65007; & #65007;

> > > > > > product: & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > http://tinyurl. com/2eaqwb & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > Sorry this was so long and I hope I have not confused

you & #65007; & #65007;

> > > further. & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > > [Non-text portions of this message have been

removed] & #65007; & #65007;

> > > > > > & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > Get the name you always wanted with the new y7mail

email & #65007; & #65007;

> > > > address. & #65007; & #65007;

> > > > > www.yahoo7.com.au/y7mail & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > >

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Posted
Posted

I am ready for your list!

Going shopping today. Getting Rice Milk, and Tofutti slices (if I can find

them!). She loves her Cheerios and Milk and cheese too....these are her two big

dairy items....

Going to the health food store to find the multi-mineral, calcium fruit chews

and fish oil stuff.

wish me luck!

Lynn Shoop

Co-Director

www.novatomothersclub.com

www.mycmsite.com/lynnshoop

In a message dated 03/30/08 18:52:59 Pacific Daylight Time,

marcus_maryberry@... writes:

Yes, we give her a multi mineral and calcium fruit chews. We get the

calcium chews from Henrys Market. They come in chocolate flavor also.

They are good they taste like a taffy.

We also found that she tolerates some soy products. We use Tofutti

slices. They come in Mozzarella flavor and American flavor. We use

them to make pizzas and grilled ch. The same store sells gf bread and

mixes like chebe bread mix, very easy to make little pizzas out of

and deserts.

Let me know if I can help with anything else. My daughter is so picky

so we have to get things that taste similar to the real thing. So I

could give you the name of things we have had good luck with.

> > > >

> > > > > Is there anything that can be done to heal this problem or

> will

> > > she

> > > > > forever be low in IgA?

> > > >

> > > > > Her other urine oats test had showed she was deficient

> > > in " GLUTAMINE "

> > > > > and this report says there is a connection.

> > > > > Anyone want to elaborate on all this?

> > > >

> > > >

> > > > Hi Shanna,

> > > >

> > > > There are certain genetic conditions in which IgA is

abnormally

> > > low

> > > > from birth ( I think it's 1 in 400), in which case it is

> > > challenging

> > > > to correct it. I suspect this may be the case for Sondra,

since

> > > she

> > > > appears to have a number of endocrine, autoimmune disorders

and

> > > > intestinal problems. Does show any signs of any

> autoimmune

> > > > issues? These usually go along with very low IgA. Low IgA is

> also

> > > > associated with malabsorption and intestinal tract

> inflammation,

> > > > which impairs the ability to properly assimilate both

nutrients

> > > and

> > > > supplements/ meds. This could be why supplementing vitamin D

> for

> > > > has not been successful. Has she been tested for

celiac

> > > disease?

> > >

> > > *She has not been tesed for " celiac disease " yet. She has had a

> > urine

> > > test when she was probably 3 years old due to her holding her

> urine

> > > for 2 days at a time. We used to have to take her to the

> > pediatrician

> > > to get catherized. She has always had SEVERE CONSTIPATION. She

> > turned

> > > any milk away after I breastfed her for 6 months. She still

will

> > not

> > > drink milk!

> > > *

> > >

> > > >

> > > > IgA is essential for mucosal immunity on all inner and out

body

> > > > surfaces, as it is a protective factor against infectious

> agents,

> > > > allergens, and foreign proteins that enter the body via the

> > mouth,

> > > > nose, upper respiratory tracts, intestines, and the

> reproductive

> > > > tract. IgA deficiency often manifests as respiratory system

> > > problems

> > > > such as hay fever and asthma, inflammatory problems of the

> > > kidneys,

> > > > bladder, and urethra, inflammatory reproductive tract

disorders

> > > > involving the uterus, ovaries, vagina, inflammatory joint

> > > disorders

> > > > such as rheumatoid arthritis, and in cases of vaccine

> reactions.

> > > Did

> > > > suffer a vaccine reaction that you are aware of?

> > >

> > > *I only know that she showed " autistic symptoms " from BIRTH.

She

> > > wouldnt make eye contact, she stimmed on staring at her fingers

> for

> > 6

> > > hours at a time, she NEVER cryed for bottle or wet/poop. She

had

> a

> > > white spot on her head and her hair was white in an area the

size

> > of

> > > palm of hand on her head. SHe was diagnosed with MACROCEPHALY @

> > > birth.

> > > *

> > >

> > > >

> > > > In order to get the whole hormonal-immune picture, you should

> > have

> > > > tests for cortisol, total estrogen, thyroid T3 and T4, and

IgA,

> > > IgG,

> > > > and IgM immunoglobulins. Aside from the IgA, have you had any

> of

> > > the

> > > > other things tested?

> > >

> > > *I only know that he did TSH this past time. I didnt see

anything

> > > about T3 or T4. As far as IgG, he did that through Immuno LABS.

I

> > > guess it would be good to know IgA/IgM. What else can that help

> to

> > > know?

> > > *

> > >

> > > >

> > > > Glutamine deficiency is definitely related to the low IgA.

> > > Glutamine

> > > > helps protect intestinal integrity and is the primary source

of

> > > > energy for intestinal cells and cells of the immune system.

It

> is

> > > an

> > > > overall source of energy, promotes wound healing, increases

> > growth

> > > > hormone production which preserves muscle and decreases

> > > accumulation

> > > > of fat. Deficiencies cause increased permeability of the

> > > intestines

> > > > to allergens and toxins, inflammation of the intestines, food

> > > > allergies, inflammatory arthritis , fatigue, skin rashes,

> > impaired

> > > > immune function, poor wound healing and slow recovery from

> > > illness.

> > > > Have you tried any glutamine supplementation?

> > >

> > > *She is on 600mg of L-Gluatmine in the neurolink a day. THe lab

> is

> > > recommending 3000 (I think..dont have the paper in front of

me).I

> > > looked up that product and will bring the paper with me to dr.

on

> > > that product. You are not confusing me. I do think there is a

> total

> > > link in our kids immune systems and their autistic symptoms

> though.

> > > *

> > >

> > > This is an excellent

> > > > product:

> > > >

> > > > http://tinyurl. com/2eaqwb

> > > >

> > > > Sorry this was so long and I hope I have not confused you

> further.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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Posted
Posted

Hi Lynn, I just saw your post. You probly already went shopping. How

did it go? I remember feeling so overwhelmed in the begining. My

friend who was already doing the diet met me at the health food store

and I'm not sure I remembered anything she said. Something that I

have heard the kids like more is Almond Milk. My daughter liked this

a little better but prefers none of them. The Almond Milk comes in

Regular, Chocolate and Vanilla.

Here are a few other items we always have in our cupboards

raw fruits

raw veges. (she will not eat cooked or steamed)

chebe bread mix (variety of them)

organic popcorn plain with organic coconut oil and sea salt

Pamelas has the best brownies and cake mixes)

Vans Gf\Cf frozen waffles

organic eggs

Soy Silk chocolate velvet ice cream

Pamelas boxed cookie gf/cf

Tinkyada Pasta products (they are the best they do not stick or get

mushy and we tried a lot of products)

Glutano pretzles

My daughter likes chicken so she eats a lot of this

My daughter is so picky that it makes it kind of easy to stick to the

diet.

You may want to check out the gluten free pantry online

What I did that helped me is just try to replace the things that she

liked to eat with the same things but with no dairy in them. I was

freaked because everything she ate had dairy in them. So in the

begining whenever she wanted milk I would give her diluted juice.

When she wanted doritos I gave her popcorn etc. etc.. Then I found

this movie called food fun and she started wanting different veges

and fruit which she absolutely never ate and she was seven or eight

at the time. Sometimes we will get pizza from a restraunt and we will

get her a small with no cheese. This works when we go to birthday

parties and such.

I hope this helps some. Let me know if I can help with anything at

all.

> > > > >

> > > > > > Is there anything that can be done to heal this problem

or

> > will

> > > > she

> > > > > > forever be low in IgA?

> > > > >

> > > > > > Her other urine oats test had showed she was deficient

> > > > in " GLUTAMINE "

> > > > > > and this report says there is a connection.

> > > > > > Anyone want to elaborate on all this?

> > > > >

> > > > >

> > > > > Hi Shanna,

> > > > >

> > > > > There are certain genetic conditions in which IgA is

> abnormally

> > > > low

> > > > > from birth ( I think it's 1 in 400), in which case it is

> > > > challenging

> > > > > to correct it. I suspect this may be the case for Sondra,

> since

> > > > she

> > > > > appears to have a number of endocrine, autoimmune disorders

> and

> > > > > intestinal problems. Does show any signs of any

> > autoimmune

> > > > > issues? These usually go along with very low IgA. Low IgA

is

> > also

> > > > > associated with malabsorption and intestinal tract

> > inflammation,

> > > > > which impairs the ability to properly assimilate both

> nutrients

> > > > and

> > > > > supplements/ meds. This could be why supplementing vitamin

D

> > for

> > > > > has not been successful. Has she been tested for

> celiac

> > > > disease?

> > > >

> > > > *She has not been tesed for " celiac disease " yet. She has had

a

> > > urine

> > > > test when she was probably 3 years old due to her holding her

> > urine

> > > > for 2 days at a time. We used to have to take her to the

> > > pediatrician

> > > > to get catherized. She has always had SEVERE CONSTIPATION.

She

> > > turned

> > > > any milk away after I breastfed her for 6 months. She still

> will

> > > not

> > > > drink milk!

> > > > *

> > > >

> > > > >

> > > > > IgA is essential for mucosal immunity on all inner and out

> body

> > > > > surfaces, as it is a protective factor against infectious

> > agents,

> > > > > allergens, and foreign proteins that enter the body via the

> > > mouth,

> > > > > nose, upper respiratory tracts, intestines, and the

> > reproductive

> > > > > tract. IgA deficiency often manifests as respiratory system

> > > > problems

> > > > > such as hay fever and asthma, inflammatory problems of the

> > > > kidneys,

> > > > > bladder, and urethra, inflammatory reproductive tract

> disorders

> > > > > involving the uterus, ovaries, vagina, inflammatory joint

> > > > disorders

> > > > > such as rheumatoid arthritis, and in cases of vaccine

> > reactions.

> > > > Did

> > > > > suffer a vaccine reaction that you are aware of?

> > > >

> > > > *I only know that she showed " autistic symptoms " from BIRTH.

> She

> > > > wouldnt make eye contact, she stimmed on staring at her

fingers

> > for

> > > 6

> > > > hours at a time, she NEVER cryed for bottle or wet/poop. She

> had

> > a

> > > > white spot on her head and her hair was white in an area the

> size

> > > of

> > > > palm of hand on her head. SHe was diagnosed with MACROCEPHALY

@

> > > > birth.

> > > > *

> > > >

> > > > >

> > > > > In order to get the whole hormonal-immune picture, you

should

> > > have

> > > > > tests for cortisol, total estrogen, thyroid T3 and T4, and

> IgA,

> > > > IgG,

> > > > > and IgM immunoglobulins. Aside from the IgA, have you had

any

> > of

> > > > the

> > > > > other things tested?

> > > >

> > > > *I only know that he did TSH this past time. I didnt see

> anything

> > > > about T3 or T4. As far as IgG, he did that through Immuno

LABS.

> I

> > > > guess it would be good to know IgA/IgM. What else can that

help

> > to

> > > > know?

> > > > *

> > > >

> > > > >

> > > > > Glutamine deficiency is definitely related to the low IgA.

> > > > Glutamine

> > > > > helps protect intestinal integrity and is the primary

source

> of

> > > > > energy for intestinal cells and cells of the immune system.

> It

> > is

> > > > an

> > > > > overall source of energy, promotes wound healing, increases

> > > growth

> > > > > hormone production which preserves muscle and decreases

> > > > accumulation

> > > > > of fat. Deficiencies cause increased permeability of the

> > > > intestines

> > > > > to allergens and toxins, inflammation of the intestines,

food

> > > > > allergies, inflammatory arthritis , fatigue, skin rashes,

> > > impaired

> > > > > immune function, poor wound healing and slow recovery from

> > > > illness.

> > > > > Have you tried any glutamine supplementation?

> > > >

> > > > *She is on 600mg of L-Gluatmine in the neurolink a day. THe

lab

> > is

> > > > recommending 3000 (I think..dont have the paper in front of

> me).I

> > > > looked up that product and will bring the paper with me to

dr.

> on

> > > > that product. You are not confusing me. I do think there is a

> > total

> > > > link in our kids immune systems and their autistic symptoms

> > though.

> > > > *

> > > >

> > > > This is an excellent

> > > > > product:

> > > > >

> > > > > http://tinyurl. com/2eaqwb

> > > > >

> > > > > Sorry this was so long and I hope I have not confused you

> > further.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

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Posted
Posted

If your daughter eats most of the things on your list, I can assure

you, she is NOT a picky child!!!! I know, it's all relative. Don't

mean to make light of struggles for you. I have a friend who complains

that her daughter with autism will only eat her husband's homemade

chili, vegetarian & pepperoni pizza, almond butter sandwiches,

waffles, bananas. I would LOVE for Allie to get that much variety!!!

I'm trying to get Allie back on gfcf, we're gonna go full-time as soon

as school is out. I took her to Earth Fare last week, she was MAD

about it. I tried to explain that she has allergies and she will feel

better. She doesn't care. We are having success with Kinnikinnick's

vanilla coated donuts for breakfast. For lunch we send gfcf chicken

nuggets, chips, and sometimes toss in some tings or pretzels or

cookies. She isn't eating much, but we had agreed before deciding the

diet that she could also get a lunch tray at school to help her open

to more variety. The daily notes that she picked something cheesey

and/or a bun or bread off the tray helped it click we needed to try

the diet again.

For supper all she wants are fries. I have been getting her in the

past Gerber meat sticks, but it has skim milk powder in is so we're

gonna have to stop. She will drink the crap out of some lemonade and

some fruit juices. Before she had problems with salicylates, so we had

to limit her fruit juice to pear or mango.

Anyone know if the almond or rice milks come in the individual

strawberry flavors? I got some soy tonight, but I know soy isn't too

good to give. I figured if I rotate it out like once a week she may

not develop any problems with it. Last time we were gfcf she got a

very high IgG to rice so I really think a rotation diet would be most

successful for Allie Kat.

Debi

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Posted
Posted

-Thats the problem, thats all she eats maybe with a couple other

things. Everyday, the same thing and it has to be prepared a certain

way. I'm not complaining because I know she is eating healthy. I

guess it would be nice if she would eat a hamburger or a hotdog with

the rest of the family. I am so used to the diet now. It's just a

part of our life for us. It's just more preparation now. So I bought

myself a roller ice chest and this is what I take her meals in when

we go anywhere. & #65007; & #65007;

& #65007; & #65007;Yeah! when we started looking at lables we could not believe

that

everything she ate had milk in it. & #65007; & #65007;

& #65007; & #65007; & #65007; & #65007;

& #65007; & #65007;  & #65007; & #65007;

& #65007; & #65007; & #65007; & #65007; & #65007; & #65007; & #65007; & #65007; & #65007; & #65007;\

& #65007; & #65007; & #65007; & #65007; & #65007; & #65007;-- In

Autism_in_Girls , " Debi "

wrote: & #65007; & #65007;

> & #65007; & #65007;

> If your daughter eats most of the things on your list, I can

assure & #65007; & #65007;

> you, she is NOT a picky child!!!! I know, it's all relative.

Don't & #65007; & #65007;

> mean to make light of struggles for you. I have a friend who

complains & #65007; & #65007;

> that her daughter with autism will only eat her husband's

homemade & #65007; & #65007;

> chili, vegetarian & pepperoni pizza, almond butter sandwiches, & #65007; & #65007;

> waffles, bananas. I would LOVE for Allie to get that much

variety!!! & #65007; & #65007;

> & #65007; & #65007;

> I'm trying to get Allie back on gfcf, we're gonna go full-time as

soon & #65007; & #65007;

> as school is out. I took her to Earth Fare last week, she was

MAD & #65007; & #65007;

> about it. I tried to explain that she has allergies and she will

feel & #65007; & #65007;

> better. She doesn't care. We are having success with

Kinnikinnick's & #65007; & #65007;

> vanilla coated donuts for breakfast. For lunch we send gfcf

chicken & #65007; & #65007;

> nuggets, chips, and sometimes toss in some tings or pretzels

or & #65007; & #65007;

> cookies. She isn't eating much, but we had agreed before deciding

the & #65007; & #65007;

> diet that she could also get a lunch tray at school to help her

open & #65007; & #65007;

> to more variety. The daily notes that she picked something

cheesey & #65007; & #65007;

> and/or a bun or bread off the tray helped it click we needed to

try & #65007; & #65007;

> the diet again. & #65007; & #65007;

> & #65007; & #65007;

> For supper all she wants are fries. I have been getting her in

the & #65007; & #65007;

> past Gerber meat sticks, but it has skim milk powder in is so

we're & #65007; & #65007;

> gonna have to stop. She will drink the crap out of some lemonade

and & #65007; & #65007;

> some fruit juices. Before she had problems with salicylates, so we

had & #65007; & #65007;

> to limit her fruit juice to pear or mango. & #65007; & #65007;

> & #65007; & #65007;

> Anyone know if the almond or rice milks come in the individual & #65007; & #65007;

> strawberry flavors? I got some soy tonight, but I know soy isn't

too & #65007; & #65007;

> good to give. I figured if I rotate it out like once a week she

may & #65007; & #65007;

> not develop any problems with it. Last time we were gfcf she got

a & #65007; & #65007;

> very high IgG to rice so I really think a rotation diet would be

most & #65007; & #65007;

> successful for Allie Kat. & #65007; & #65007;

> & #65007; & #65007;

> Debi & #65007; & #65007;

> & #65007; & #65007;

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Posted
Posted

Well, you are an inspiration to me! That's one of my biggest concerns,

we've developed a habit of eating out when ever we travel. I'm doing

really well at cooking at home (one of my resolutions this year) but

the traveling thing still makes me nervous.

One thing I would love is to see Allie eat just one fruit & one

veggie. She has in recent months taken a bite of a banana and a bite

of an apple, but she still doesn't want it. I saw the organic

applesauces tonight & thought of how wonderful it would be if I could

send her a pack of applesauce each day.

We can dream, right?

Debi

>

> -Thats the problem, thats all she eats maybe with a couple other

> things. Everyday, the same thing and it has to be prepared a certain

> way. I'm not complaining because I know she is eating healthy. I

> guess it would be nice if she would eat a hamburger or a hotdog with

> the rest of the family. I am so used to the diet now. It's just a

> part of our life for us. It's just more preparation now. So I bought

> myself a roller ice chest and this is what I take her meals in when

> we go anywhere. & #65007; & #65007;

>

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Guest guest

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Posted
Posted

-Oh yeah! I do a lot of dreaming.

One thing good about Miranda being picky is that she will not want

most of the items from the places we go. She is happy with the food

she is familiar with, that we brought with us. This has helped with

her having two older sistes close in age. They have learned to

respect there sister and not eat certain things in front of her like

macaroni and cheese, which Miranda will still ask for sometimes. Her

sisters know first hand the results of her eating this product first

hand. And let me tell you it's not pretty.

They might sell those indiviual drinks you were asking about. I

remember seeing something. I think they were chocolate though.

-- In Autism_in_Girls , " Debi "

wrote:

>

> Well, you are an inspiration to me! That's one of my biggest

concerns,

> we've developed a habit of eating out when ever we travel. I'm doing

> really well at cooking at home (one of my resolutions this year) but

> the traveling thing still makes me nervous.

>

> One thing I would love is to see Allie eat just one fruit & one

> veggie. She has in recent months taken a bite of a banana and a bite

> of an apple, but she still doesn't want it. I saw the organic

> applesauces tonight & thought of how wonderful it would be if I

could

> send her a pack of applesauce each day.

>

> We can dream, right?

>

> Debi

>

>

> >

> > -Thats the problem, thats all she eats maybe with a couple other

> > things. Everyday, the same thing and it has to be prepared a

certain

> > way. I'm not complaining because I know she is eating healthy. I

> > guess it would be nice if she would eat a hamburger or a hotdog

with

> > the rest of the family. I am so used to the diet now. It's just a

> > part of our life for us. It's just more preparation now. So I

bought

> > myself a roller ice chest and this is what I take her meals in

when

> > we go anywhere. & #65007; & #65007;

> >

>

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