Provigil

[Guest guest]

>

> My first choice of the 4 meds he had me try was Tennuate. It is

> considered

> a diet pill, so insurance wont cover it. I still use it, but very

> sparingly

> because it is expensive.

Just wanted to check is it Tenuate or Tennuate. I'm not being funny - the

first is tenuate-dospan a drug, the second is tennuate a herbal alternative.

I'm looking at anything that people have found that helped them and I just

wanted to be sure which I was looking at.

Thanks

Kirsteen

Chaos, confusion, disorder - my work here is done

[Guest guest]

Well Vicki, I have never received an answer to that specifically. I've been to

the ENT guy several times, my PCP too........they have no answers regarding the

vertigo. I just assume it's one of my symptoms with the CFS. Fortunately, I

don't have it all the time, and it has decreased a great deal since I lost my

job. I can only attribute THAT due to the fact, I'm not pushing as hard

anymore. I am at home now, and have really learned to listen to my body. I

still crash ALL THE TIME, but some symptoms aren't as bad as they used to be,

ie: vertigo, tremors, generalized weakness. I now know, at the first little

signs, to just STOP what I'm doing, whether I'm in the middle or not, and just

rest, if that means the remainder of the day or a day or two, I just do it.

That has been the one of the hardest things for me to adjust in my life, but I

get better at it all the time.

Wish I had a more definite answer for you, but that's all I know!

Good Luck,

STL Jane

Vicki wrote:

Jane, can you please tell me what your dizziness is from? I have been suffering

from chronic nausea and lightheadedness for months now and cant figure out why,

it has been terrible and i cant imagine living my whole life wiht this along

with my auto immune disease. thanks.

[Guest guest]

hi, i have fibro and also sleep apnea i take provigil i take 200mg 2x a day it

does help its better then nothing but i was on adderall before and that was more

effective so of course they took me off of it. also provigil is expensive for me

my co-pay is 50.00 no matter the amount i get. any other suggestions for any

meds for this problem? thanks, lanay

Grant-Tolman wrote: I have a script for

Provigil and find that daily use does me no good at all but if I just take it on

days I have a lot to do or need to be really up all day, no naps etc, it does

help!

[Guest guest]

Hello everyone: I'm knew to this group, but not to CFS, which I've

struggled with for more than 30 years. Regarding all the posts on

Provigil: I've been taking 200mg 1x daily for

several months. I haven't noticed any terrible side effects

other than it intereferes with my naps sometimes (and is very

expensive). It helps keep the brain alert, but doesn't do much for the

body/muscle fatigue. In terms of effectiveness, it's o.k. Until I find

something better, though, I'm continuing to take it daily - all drugs

have side effects, you just have to decide if they are worth what the

drug is doing for you. I'd rather be a little jittery than totally

fogged in.

I did take a drug that was quite effective for more than 20 years -

called Cylert. It was taken off the market last year because of some

political manipulations. I am still angry that someone thinks they

have the right to decide what is good for me. The claim is that

Ritalin is an effective and " safe " alternative. It is NOT! Ritalin is

awful. I am trying it now, but not sure the side effects are worth the

lackluster benefits.

I am interested if anyone else ever used Cylert and have you found a

decent alternative? At least something better than Ritalin?

Thanks, and good luck

[Guest guest]

Hi Pam!!! I have FMS and also Narcolepsy, Sleep Apnea & others wonderful

things lol.

I have been taking Provigil for 6 yrs now. I take 2-200mg tablets a day.

Without it I would be asleep right now at my desk. I can tell a big change when

I miss it. I take about 10 different RX's a day so I probably could blame 1/2

of what is wrong with me on side-effects.

The one thing I've noticed lately though is that I'm shaking alot. It's not

all the time, but my husband really hates it when I start shaking at dinner time

and throw my food off my fork at him. The dr told me that shaking has nothing

to do with FMS, but he's thinking it's from the Narcolepsy. Has anyone heard of

that before?

Welcome to the group Pam... I have 868 emails so you know I'm not here often.

I do enjoy learning what everyone shares though.. Thanks.

ConnieinAkron

Pamela wrote:

Hello everyone: I'm knew to this group, but not to CFS, which I've

struggled with for more than 30 years. Regarding all the posts on

Provigil: I've been taking 200mg 1x daily for

several months. I haven't noticed any terrible side effects

other than it intereferes with my naps sometimes (and is very

expensive).

[Guest guest]

Lanay that is terrible. My dr took my pain meds away (Lortab) and put me on

flexeral (sp)... I bugged him so much that he gave it back.... the other meds

weren't working. I do take the flexeral in the am since it's more of a muscle

relaxant.. the Soma would put me under lol

I can't believe what they charge for meds. If I didn't have insurance, mine

would cost me $1,600. a month... the Provigil alone is almost $600 a month. Has

anyone taken Lyrica or Ultramm? A dr I went to for FMS wanted to change me to

them and take me off the Neurontin 300mg. and the ultramm instead of the Lortab

5/500.

Connie

lanay skeels wrote:

hi, i have fibro and have alot of fatigue i also have sleep apnea

central my dr was giving me adderall and out of the blue stopped and gave me

provigil 200 1-2 a day wel it helps slightly and is expensive i have ask for the

adderall back and they refused now they are trying to take my pain meds away. i

am very frustrated by this. any suggestions? thanks, lanay

[Guest guest]

I have had what I call tremors for years... I find they get worse if I am tired.

I also have what I call fits.... when my muscles jerk all of a sudden for no

reason. I have thrown a cup of coffee on my son before... he didn't appreciate

that LOL At least once a day I am picking up stuff from the floor that I have

knocked off my computer table because my arm has went flying by itsself LOL

Vickie

Connie wrote:

Hi Pam!!! I have FMS and also Narcolepsy, Sleep Apnea & others

wonderful things lol.

I have been taking Provigil for 6 yrs now. I take 2-200mg tablets a day. Without

it I would be asleep right now at my desk. I can tell a big change when I miss

it. I take about 10 different RX's a day so I probably could blame 1/2 of what

is wrong with me on side-effects.

The one thing I've noticed lately though is that I'm shaking alot.

[Guest guest]

Lyrica is for nerve pain. IT is esp helpful if you have pheriperal nueopathy or

pain and numbness in the extremities. Problem is you think it is expensive for

the other meds, you should see how expensive lyrica is! It does have side

effects that do not get notices unless youare really listening to your body. I

took if for months and actually asked for monthly samples from the dr! It works.

They get monthly samples for those who are drug poor. All youhave to do is ask.

I was haveing twitches and uncontrolled movements like seizures and severe

muscle spasms. We ruled out everything else, but finally I decided the only

thing left that we didn't try was the lyrica. I stopped taking it and the

twitched stopped along with a few other symptoms, of which I can't remeber

rightnow. But I would have not have noticed unless I stopped taking it. They

were not bothersome. Drs. say that the twitches could not have been from the

lyrica, but I looked it up and it can. What do they know anyways when it comes

to side effects and counteractions with other drugs. ???? Better to be in the

know before you take ANYTIhNG! Much less get it filled. !!

But on the birght side, I think I have 2 full bottles of 75 mg of lyrica

unopened here at thehouse if someone is taking it and wants it and would be

willing to pay the postage>

Better not to go to waste. I know I have Plenty of drugs here that are wasted

and I do not take anymore. It is a shame really. I just threw out a bunch,. I

get a 3 month prescription and if I stop taking it, well it is a loss.

I also have 5 mg tablets of generic coumadin if anyone is on that too. I have

blood clots in my leg for 6 months and miraculously GOd healed me out of the

blue. They were gone. I had 7 " of clots behind my left knee and went to see a dr

and then a surgeon. I was unchanged even after 3 1/2 months in sept. and went in

end of november. I ended up in the ER for ( long story) but all my hormones were

out of whack and did scans and do clots ANYWHERE@ !! Not even the venous

abnormality in my head! Clots don't disappear like that and we were moving and

all. It had been a nightmare for months.

Anyways, off subject.

lyrica works, When i was off, i noticed pain and numbness return. not worht

twitching, which started after 5 months. if nuerontin works stick with it.

Ultram, GREAT DRUG! non sedating , not habitual and makes you ffeel great.

As for provigil, great drug too. I take that and zanaflex.

carol

Connie wrote:

Lanay that is terrible. My dr took my pain meds away (Lortab) and put

me on flexeral (sp)... I bugged him so much that he gave it back.... the other

meds weren't working. I do take the flexeral in the am since it's more of a

muscle relaxant.. the Soma would put me under lol

I can't believe what they charge for meds. If I didn't have insurance, mine

would cost me $1,600. a month... the Provigil alone is almost $600 a month. Has

anyone taken Lyrica or Ultramm? A dr I went to for FMS wanted to change me to

them and take me off the Neurontin 300mg. and the ultramm instead of the Lortab

5/500.

[Guest guest]

r u taking lyrica? i already posted something about it. I was a total spasz and

looked horrible esp under stress. Drs said it wasn't form any of my meds either.

Consider what youhave been adding that is new to you since youhave started

shaking? or if yu increased or decreased a med? that is where you start. when

they finish laying withyour drugs then you come to the conclusion that it must

be something else yourself and you fix yourself. i did. you can emailme

personally ifyouhave any questions. I am a nurse, but I too takew loads of meds

and have taken loads of meds. some do not work and some casue problems.

carol

Connie wrote:

Hi Pam!!! I have FMS and also Narcolepsy, Sleep Apnea & others

wonderful things lol.

I have been taking Provigil for 6 yrs now. I take 2-200mg tablets a day. Without

it I would be asleep right now at my desk. I can tell a big change when I miss

it. I take about 10 different RX's a day so I probably could blame 1/2 of what

is wrong with me on side-effects.

The one thing I've noticed lately though is that I'm shaking alot. It's not all

the time, but my husband really hates it when I start shaking at dinner time and

throw my food off my fork at him. The dr told me that shaking has nothing to do

with FMS, but he's thinking it's from the Narcolepsy. Has anyone heard of that

before?