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Sorry for the cross-post. My husband is interviewing for a job in England.

The area is Swindon & Lynham. We are curious about schools, transportation,

wheelchair vans, Physical Therapy and doctors.

Thank you.

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So are we. My husband & I have been entertaining the thought of moving

to England. He's of English descent. He wants to move to the Liverpool/

Manchester area. Due to our daughter's illness, we feel that living in a

country with socialized medicine would give us all a better chance for a

more normal life. As it stands now, we're forced to live barely above

the poverty level, or our daughter will lose her social security

benefits. To say that it bites is a vast understatement < sigh >

Thanks.

& family

England

Sorry for the cross-post. My husband is interviewing for a job in

England. The area is Swindon & Lynham. We are curious about schools,

transportation, wheelchair vans, Physical Therapy and doctors.

Thank you.

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Share on other sites

Hi

We live in the North of England (W Yorkshire). I think it is fair to say that

provision for children depends on each local area. We live in an area where all

paediatric services are centralised and work together. This includes education

services, social services and health services. We have Portage, OT, PT, speech

and language therapists, podiatry, hearing, opthalmists etc. which work with our

family. The provision we receive is excellent, however funding can be an issue

(e.g. we are waiting for the funding to be available to give him one to one

support in his nursery) but we have been really lucky with equipment from the

OT.

Schools in England have to have an 'inclusion' policy - which basically means

that all children, if at all possible, should be included in mainstream

education. This clearly has its benefits but many parents of SEN children feel

that the closure of Special Schools is not necessarily a good thing to do as a

blanket policy....

Public transport is definitely improving in the area of access. Most buses

are wheelchair/pushchair friendly. However, older buildings can be a problem.

Doctors; again this depends on the individual and the area. Children with PMG

will be on the list of a consultant paediatrician at the hospital who they

should see regularly for medical reviews etc. Day to day stuff is still taken

care of by the local GP. Paediatric nuerologists are not too common so will

likely have to travel a bit further afield for this (although ours comes to out

town once every 2 motnhs for a clinic).

Anyway, hope this helps!

Sharon wrote:

Sorry for the cross-post. My husband is interviewing for a job in

England. The area is Swindon & Lynham. We are curious about schools,

transportation, wheelchair vans, Physical Therapy and doctors.

Thank you.

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Share on other sites

, that information is perfect. Thank you so much for filling me in

on how it works in " your neck of the woods " .

Take care, dear.

- mom of Crystal Aquielle - BPP grade 3 - intractable seizures -

G-tube - Vagal Nerve Stimulator - & a smile that lights up our world !

Re: England

Hi

We live in the North of England (W Yorkshire). I think it is fair to

say that provision for children depends on each local area. We live in

an area where all paediatric services are centralised and work together.

This includes education services, social services and health services.

We have Portage, OT, PT, speech and language therapists, podiatry,

hearing, opthalmists etc. which work with our family. The provision we

receive is excellent, however funding can be an issue (e.g. we are

waiting for the funding to be available to give him one to one support

in his nursery) but we have been really lucky with equipment from the

OT.

Schools in England have to have an 'inclusion' policy - which

basically means that all children, if at all possible, should be

included in mainstream education. This clearly has its benefits but

many parents of SEN children feel that the closure of Special Schools is

not necessarily a good thing to do as a blanket policy....

Public transport is definitely improving in the area of access. Most

buses are wheelchair/pushchair friendly. However, older buildings can

be a problem.

Doctors; again this depends on the individual and the area. Children

with PMG will be on the list of a consultant paediatrician at the

hospital who they should see regularly for medical reviews etc. Day to

day stuff is still taken care of by the local GP. Paediatric

nuerologists are not too common so will likely have to travel a bit

further afield for this (although ours comes to out town once every 2

motnhs for a clinic).

Anyway, hope this helps!

Sharon wrote:

Sorry for the cross-post. My husband is interviewing for a job in

England. The area is Swindon & Lynham. We are curious about schools,

transportation, wheelchair vans, Physical Therapy and doctors.

Thank you.

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Share on other sites

Hello,

We are based in Bromley, Kent. In our borough services for disabled

children are quite well organized. Finlay goes to a SEN school for

children with physical disabilities and medical needs. He is entitled to

transport and the physio, OT and speech ands language therapy is

provided at the school.

We have him working privately with a conductor from the Peto institute

to increase his mobility. In my opinion, physiotherapy provided by the

NHS is OK, but not intensive enough. I suppose the budget does have to

stretch a long way...

Finlay has equipment such as a chair for home, toilet and shower chair,

walker and wheelchair provided for him. I believe that type of

entitlement runs until the children turn sixteen. If I am wrong in this,

please correct me anyone...

Annelies

England

Sorry for the cross-post. My husband is interviewing for a job in

England. The area is Swindon & Lynham. We are curious about schools,

transportation, wheelchair vans, Physical Therapy and doctors.

Thank you.

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Share on other sites

Thank you for the information, Annelies. What happens after the child

turns 16 ? We are still seriously considering moving to England.

Take care, all.

- mommy of Crystal Aquielle - 7 years old - BPP - Grade 3 -

intractable seizures - VNS - g-tube

England

Sorry for the cross-post. My husband is interviewing for a job in

England. The area is Swindon & Lynham. We are curious about schools,

transportation, wheelchair vans, Physical Therapy and doctors.

Thank you.

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Share on other sites

I am not entirely sure how things work after 16. I believe the

entitlement to free medication and equipment ends and you have to start

paying adult rates. As Finlay is only 4 we have not actually looked that

far ahead apart from starting up a savings scheme for him. It is

something we will have to look into, but we have another one on the way

and are currently focusing on how we are going to manage our already

hectic life and needs of our three children in the next year or so...

Good luck with your decision

Annelies, mum to Gregor (7), Finlay (4, BPP & microcephaly)

England

Sorry for the cross-post. My husband is interviewing for a job in

England. The area is Swindon & Lynham. We are curious about schools,

transportation, wheelchair vans, Physical Therapy and doctors.

Thank you.

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Share on other sites

Annelies - How much do you pay for medications over there? Do you pay

full price, or is there a co-payment plan ? Some of Crystal's

medications are very expensive !

I appreciate any information you can give us. Congratulations on number

3. I have 4 kids, so I can definitely relate !

With love to all.

& family

England

Sorry for the cross-post. My husband is interviewing for a job in

England. The area is Swindon & Lynham. We are curious about schools,

transportation, wheelchair vans, Physical Therapy and doctors.

Thank you.

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Hi Chris

Will butt in here as I'm on line. All children's medication up to the age

of 16 is free - it then continues to be free up to 18 if they are still in

education - after that each item on a prescription is about ?6, although you

can pay an annual lump sum (not sure how much as haven't had to do it yet)

which is considerably less than paying per item. Similarly all hospital

treatment, GP visits free.

How is Crystal doing?

Take care

England

Sorry for the cross-post. My husband is interviewing for a job in

England. The area is Swindon & Lynham. We are curious about schools,

transportation, wheelchair vans, Physical Therapy and doctors.

Thank you.

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Thank you for butting in...

As I said, I had not actually checked past the mark of 16 years of age

yet, as that is still a way off for us. Now I know too...

Regards

Annelies

England

Sorry for the cross-post. My husband is interviewing for a job in

England. The area is Swindon & Lynham. We are curious about schools,

transportation, wheelchair vans, Physical Therapy and doctors.

Thank you.

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Share on other sites

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