Re: Sleep-Bonnie

[Guest guest]

Hi Sharon:

Yes, Lindsey did snore to a small degree. Until the ENT did a scope though

the doctors couldn't tell that there was this airway obstruction. They went to

the ENT at Chicago Children's Memorial Hospital for a yearly check up and it was

then he recommended the scope to see if she had an obstruction. When the

surgery was done they fround more excessive tissue that they origionally saw

with the scope. So they vented her just as a precaution. I'm so glad that

Lindsey's parents took her for this test or otherwise Lindsey's obstruction

could have been overlooked. The physical therapy in Chicago also prescribed a

little dose of valuim for sleep. I think (only my thought) that this valium

might be offsetting seziures. She hasn't had them as of yet. She is 4 years

old and we know that she will always be at risk. She was though on the valium

when she began waking up at night. Now we know it was because of the airway

obstruction. I'm glad now that we have this surgery

under our belts and that she sleeps better. It was just awful for my daughter

and son-in-law before so I can totally relate to the words of sleepless nights.

This was Lindsey's problem though. She has acid reflux as well but it is

treated with a medication and seems to be under control.

Bonnie, grandmother to Lindsey 4yo/w PMG

Sharon wrote:

Hi Bonnie,

also had Laryngomalicia and Tracheomalicia. His did clear up at about 1

1/2 years old. My question is, did Lindsey snore to give you the idea to see an

ENT? (9) has never snored but it makes me wonder if he has adenoids that

need to be looked at. Anything to help with sleep..............

Sharon

[Guest guest]

Thank you for the info Bonnie. I will see if we can get started with an ENT to

check out. I would hate to think we missed something that might be

causing the waking. 's Neurologist even presented 's case at a

seminar stating that we kept seizures at bay for many years with the valium for

sleep. My Hubby and I used to say we were science experiments on sleep

deprivation! I have learned to sleep when I can. I can even sleep sitting

upright. zzzzzzzzzzzzz

Blessing to your Grandaughter

Sharon T.

Bonnie Zagrovich wrote:

Hi Sharon:

Yes, Lindsey did snore to a small degree. Until the ENT did a scope though the

doctors couldn't tell that there was this airway obstruction. They went to the

ENT at Chicago Children's Memorial Hospital for a yearly check up and it was

then he recommended the scope to see if she had an obstruction. When the surgery

was done they fround more excessive tissue that they origionally saw with the

scope. So they vented her just as a precaution. I'm so glad that Lindsey's

parents took her for this test or otherwise Lindsey's obstruction could have

been overlooked. The physical therapy in Chicago also prescribed a little dose

of valuim for sleep. I think (only my thought) that this valium might be

offsetting seziures. She hasn't had them as of yet. She is 4 years old and we

know that she will always be at risk. She was though on the valium when she

began waking up at night. Now we know it was because of the airway obstruction.

I'm glad now that we have this surgery

under our belts and that she sleeps better. It was just awful for my daughter

and son-in-law before so I can totally relate to the words of sleepless nights.

This was Lindsey's problem though. She has acid reflux as well but it is treated

with a medication and seems to be under control.

Bonnie, grandmother to Lindsey 4yo/w PMG

Sharon wrote:

Hi Bonnie,

also had Laryngomalicia and Tracheomalicia. His did clear up at about 1

1/2 years old. My question is, did Lindsey snore to give you the idea to see an

ENT? (9) has never snored but it makes me wonder if he has adenoids that

need to be looked at. Anything to help with sleep..............

Sharon