RE: Thank you Heidi Jean, the Glutenator

[Guest guest]

On Thursday, May 26, 2005, at 11:31 PM, Robin Reese wrote:

> get tested for

> either or both of the two genes, HLADQ2 and HLADQ8. I'd test my kids

> too. I think that Prometheus Labs is the only one with the new gene

> test(?)

>

>

So do you have to go to the doctor to get the test?

Sandy

[Guest guest]

> Re: Thank you Heidi the Glutenator

>

>

>

>On Thursday, May 26, 2005, at 11:31 PM, Robin Reese wrote:

>

>> get tested for

>> either or both of the two genes, HLADQ2 and HLADQ8. I'd test my kids

>> too. I think that Prometheus Labs is the only one with the new gene

>> test(?)

>>

>>

>

>So do you have to go to the doctor to get the test?

>

>Sandy

>

No you don't. I'm having the gene test done at Enterolab, where several

other NT'ers have gotten theirs' done. I'm doing it in conjunction with the

stool test (most sensitive avaialbe, I think), as well as the casein test. I

ordered it online and they sent it to me. I have to send in a stool sample

as well as some swabs that I've swabbed the inside of my cheeks with (which

is the gene test).

More info here: www.enterolab.com

Suze Fisher

Lapdog Design, Inc.

Web Design & Development

http://members.bellatlantic.net/~vze3shjg

Weston A. Price Foundation Chapter Leader, Mid Coast Maine

http://www.westonaprice.org

----------------------------

" The diet-heart idea (the idea that saturated fats and cholesterol cause

heart disease) is the greatest scientific deception of our times. " --

Mann, MD, former Professor of Medicine and Biochemistry at Vanderbilt

University, Tennessee; heart disease researcher.

The International Network of Cholesterol Skeptics

<http://www.thincs.org>

----------------------------

[Guest guest]

>He said that I have both genes (HLADQ2 and HLADQ8)

>for celiac disease. All you need is one gene to be officially celiac

>although even if you have neither gene you can still be gluten

>intolerant.

Wow, really? That is a new thing, if that is the official stance.

Last I heard if you have " n degree " of villi damage you are

officially celiac, but one gene puts you at risk, and some docs

are just assuming that if you have one gene that's a good

enough reason to do the diet. There are a couple of other

genes that are associated with gluten intolerance though,

which is why you can have " neither one " and be intolerant.

Or maybe there are other conditions that can cause it

(tho the genetic link accounts for like 99% of the people,

it seems).

And you are welcome! I'm glad people are getting

aware of all this ... it will save the world from a lot

of misery ...

Heidi Jean

[Guest guest]

>>>>>>> >He said that I have both genes (HLADQ2 and HLADQ8)

>for celiac disease. All you need is one gene to be officially celiac

>although even if you have neither gene you can still be gluten

>intolerant.

Wow, really? That is a new thing, if that is the official stance.

Heidi >>>>>>>>>>

I'll get clarification on that. When my doctor called with test results he

said I " had the gene " and when I asked him if that meant I officially had

celiac disease he said yes. He also said that his assistant would phone the

next day to schedule a biopsy and so maybe he was jumping the gun and

assuming that he would find what he expected to find.

My sense of it at the time was that if he, as a licensed gastroenterologist,

said I had celiac disease then I had celiac disease. Period. Of course when

I posted about the genes I didn't know a fraction of the stuff I know now so

maybe I'm completely deluded...

I wonder how much leeway a doctor has in making a pronouncement of disease?

I'll see what I can learn..

~Robin

[Guest guest]

>My sense of it at the time was that if he, as a licensed gastroenterologist,

>said I had celiac disease then I had celiac disease. Period. Of course when

>I posted about the genes I didn't know a fraction of the stuff I know now so

>maybe I'm completely deluded...

>

>I wonder how much leeway a doctor has in making a pronouncement of disease?

>I'll see what I can learn..

>

>~Robin

Well, the reason that interests me is that I've

been kind of tending toward the same opinion:

at least, if you have the gene, and you have ANY

symptoms, chances are gluten is the problem. By

Dr. Fine's numbers, anyway, it seems most folks

with the gene are actively reactive to gluten.

There IS an " official " diagnosis for " celiac " ,

which is like " level 4 damage to the villi " (Level 3

damage doesn't count, for some reason). Some

researchers have been saying THAT criteria for

diagnosis needs to change: it just doesn't make

sense these days. They are saying that " celiac "

should be " gluten sensitive enteropathy " (enteropathy

meaning: villi damage: there are other things

that cause villi damage too). And that " gluten intolerance "

be a major health issue, like diabetes and high

blood pressure (and possibly the CAUSE of many cases

of both of those ...)

Heidi Jean