Seating Systems and Wheelchairs/Strollers

[Guest guest]

I'm interested in this topic too. My daughter starts school in March

and we need to get something for the bus but don't know how else

we'll be using it. Sophia crawls (poorly) and I doubt she'll be

walking in time for school. Now her PT tells me she may never really

walk except as exercise and she recommends a wheelchair with a good

seating system like the Panda or Kimba. Her OT, on the other hand,

says we just need something light for the bus because once she's in

school, she'll either be on the floor crawling or at a table. I'm

totally confused and hopefully we'll be discussing it next week at

her IEP meeting.

Anyway, I saw a woman pushing her daughter in the Kimba in Target

and I got her opinion. She liked the adjustability and the fact that

you could pull the seat out and put it onto different bases, like a

stroller base vs. a high chair base. She's had it for two years and

it still has room to grow. You can take it apart to break down and

put in a regular trunk, but it's kind of bulky. If we have to do

more of a wheelchair than a stroller, I think I might try this one.

>

> What about the Kimba by Otto Bock?

>

>

>

> _____

>

> From: polymicrogyria

[mailto:polymicrogyria ]

> On Behalf Of bryanandshelley

> Sent: Friday, August 04, 2006 12:00 AM

> To: polymicrogyria

> Subject: Re: Seating Systems and

Wheelchairs/Strollers

>

>

>

> Thank you Sharon! Who did you get your custom seat through? We

> currently have a custom made seat for Alyssa that is almost 2 year

old

> (she has outgrown it already) but I haven't been to thrilled with

it

> but it does support her. Why didn't the lateral and head supports

work

> for on the Kid Kart?

>

> Anyone else have any seating and wheelchair opinions, comments,

> suggestions??

>

> Thanks,

> , , Layla(8) and Alyssa(3, DOB 8/6/03, Seizures,

Spastic

> Quad CP, feeding problems, globally developmentally delayed, food

> allergies)

>

>

>

>

>

>

[Guest guest]

> >

> > What about the Kimba by Otto Bock?

> >

> >

> >

> > _____

> >

> > From: polymicrogyria

> [mailto:polymicrogyria ]

> > On Behalf Of bryanandshelley

> > Sent: Friday, August 04, 2006 12:00 AM

> > To: polymicrogyria

> > Subject: Re: Seating Systems and

> Wheelchairs/Strollers

> >

> >

> >

> > Thank you Sharon! Who did you get your custom seat through? We

> > currently have a custom made seat for Alyssa that is almost 2

year

> old

> > (she has outgrown it already) but I haven't been to thrilled

with

> it

> > but it does support her. Why didn't the lateral and head

supports

> work

> > for on the Kid Kart?

> >

> > Anyone else have any seating and wheelchair opinions, comments,

> > suggestions??

> >

> > Thanks,

> > , , Layla(8) and Alyssa(3, DOB 8/6/03, Seizures,

> Spastic

> > Quad CP, feeding problems, globally developmentally delayed,

food

> > allergies)

> >

> >

> >

> >

> >

> >

[Guest guest]

Hey ,

We are on our second wheelchair with Dillon. The first one we got was not

approved for the school bus, it did not have the proper hook-ups for safety. If

your daughter will be riding the bus to school, that is one thing to consider.

Also, the first stroller we got was very heavy and took up a lot of room in the

back of the explorer. I don't think it would have even fit in a regular car.

It was about all I could do to get it lifted up into the car. It was a kimba, I

believe, just check it out. Up here we have a seating clinic at Hurley rehab, a

pt, an ot and a rep from the medical supplier make an appt. with you and decide

the best set-up for you and your child. I do like the chair we have now. Good

luck, I hope this helps.

Harriet

[Guest guest]

Hi ,

If Alyssa has no truck contro

bryanandshelley wrote:

Our daughter is in need of a new wheelchair and we are trying to

decide

between the Kid Kart and the Kimba wheelchairs. Does anyone have an

opinion or any advice? Any other options we should look into?

Thanks,

- Mom to Alyssa, 3 years old with BFPP, CP, Seizures, Food

Allergies and Globally Delayed.

[Guest guest]

Hi ,

If Alyssa has no truck contro

bryanandshelley wrote:

Our daughter is in need of a new wheelchair and we are trying to

decide

between the Kid Kart and the Kimba wheelchairs. Does anyone have an

opinion or any advice? Any other options we should look into?

Thanks,

- Mom to Alyssa, 3 years old with BFPP, CP, Seizures, Food

Allergies and Globally Delayed.

[Guest guest]

Hi ,

No Idea What Is Going On With My Emails !!!

If Alyssa has no trunk or head control the Kid Kart might not be right for

her. It was a good seating system while our was under the age of 3 but

from that point on he needed a chair with more custom support. The Kid Kart

does break down quite easy. I have seen pictures of the Kimba and have heard

great things about it. Good luck,

Sharon

bryanandshelley wrote:

Our daughter is in need of a new wheelchair and we are trying to

decide

between the Kid Kart and the Kimba wheelchairs. Does anyone have an

opinion or any advice? Any other options we should look into?

Thanks,

- Mom to Alyssa, 3 years old with BFPP, CP, Seizures, Food

Allergies and Globally Delayed.

[Guest guest]

Hi our son Daire recently got a Quickie wheelchair Ziggy is the model,

it has tilt ability, great when youre out and he falls asleep. I found

it great and he's very comfortable in it. He had a Kimba star prior to

this which i found cumbersome especially when you had to put it in boot

of car, fiddly and arkward to put together especially in rain. Hope

this helps. mum to Daire age 4 years.

[Guest guest]

Does this chair provide good head and trunk control because my son is

22 months and has a kid chart and it doesn't seem to have a good head

piece on it.

>

> Hi our son Daire recently got a Quickie wheelchair Ziggy is the

model,

> it has tilt ability, great when youre out and he falls asleep. I

found

> it great and he's very comfortable in it. He had a Kimba star prior

to

> this which i found cumbersome especially when you had to put it in

boot

> of car, fiddly and arkward to put together especially in rain. Hope

> this helps. mum to Daire age 4 years.

>

[Guest guest]

>

> Harriet,

> What chair do you have now?

>

> Thx,

>

,'

Sorry I accidentally deleted this mail and just remembered it. We

now have a Spree XT by invacare. I works great for the bus and

school, but it is bulky and heavy. I am not sure you can get away

from that. We have a lg. size umbrella type stroller that a friend

whos daughter has cp finally outgrew. That works good for fast

trips. Dillon has pretty good trunk control now so he really doesn't

need a whole lot of support. The wheelchair is custom ordered, we

went to Hurley to the wheelchair clinic and they set it up for us.

It can tilt back so if Dillon falls asleep he can be tipped back for

comfort. It's a pretty nice chair.

Harriet

[Guest guest]

Hi ,

has the SpreeXt by Invacare.. It is bulky but we love it. Our DME

guy is from National Seating and Mobility and found us the perfect custom

head/shoulder rest for . It is called a HAWC is by Metalcraft-Industri

es. It is located under Pads, Cushions & Covers. used to use their

Occipital Ring but his head still had to have something under the chin. The HAWC

is bendable and bends under his chin enough to keep his head up but not so up

that he can't see his tray/computer/ artwork etc. The Teacher/Therapist/ Bus

Drivers are sooo happy with it. We do not use the snap piece that the HAWC comes

with that is made to go under the chin. It is made to unsnap when the child's

head rests on it so as not to choke but we have never used it because the way

the HAWC already bends in under 's chin. The HAWC has even helped with

the drooling for whatever reason. The teachers feel that is much happier

and has even made a possible yes/no movement with

his head. We do not have a stroller. We like how the Spree tilts back when

is sleepy or needs to rest his head. Maybe you have a DME facility

that you can look at all the different types our kiddos are in. Good luck.

Sharon T.

bryanandshelley wrote:

Thanks for the info Sharon. What do you suggest??

Anyone else have suggestions on another chair we should look at??

Thanks!

- Mom to Alyssa, 3 years old with BFPP, CP, Seizures, Food

Allergies and Globally Delayed.