9 month old son with PMG, hydrocephalus, low musle tone and no answers

[Guest guest]

Hi, I've never posted here before but am hoping to get support from

people who understand. My son has PMG, hydrocephalus and low muscle

tone. He is seeing an OT and PT and seems to be doing good with

therapy. He is now starting to hold his head steady. His neuro called

last week and informed us of a cyst on his 3rd ventricle that they

found on his MRI (it was done June 1 and they are just now telling us).

My problem is they don't want to listen to me that everything is

connected. He has alot of delays but has had no seizures. They won't

even do a EEG to see if he has ever had any. I'm lost as to what else

to do. He goes to the Shriners Nov. 21 so hoping to find outmore. Sorry

this is long.