question pmg with west and arthrogryposis

[Guest guest]

Hello everybody

Yesterday we went with our son Josse to the neurologist.

Josse is doing it good. As medication he takes:

* Topamax

* Depakine

* Sabril

* Rivotril

* Hydrocortisone

* Bactrim

* Kaliumcitrate

He has no seizures for the moment.

Josse is now 2 years and 3 months and he has bilateral perisylvian

polymicrogyria, with West Syndrome and arthrogryposis.

The doctor told us that he is probably alone in the world with this 3

problems. But I want to ask if there also childs on this forum who has the

bilateral perisylvian pmg, west syndrome and arthrogryposis.

Please let me know,

Thank you in advance!!

Juri and family

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