Re: Intro: newbie Kathy from Massachusetts. I call myself K2

[Guest guest]

Hi Kathy from MA. I am ( Cat ) ex MA, from Peabody, MA to Las

Vegas.

As I read your story so many things came to mind, I have had ME/FM to

many years and your doctor stories sounds all to familiar.

Has any of these doctors done any tests?

You might try and call the " National CFIDS Foundation in Needham, MA they

may be able to refer you.

Let me know how you make out and good luck.

Sorry you have to be here but welcome.

Cat with Parrot

My name is Kathy, I live in Massachusetts, in a long-term cohabiting

relationship with the same guy for 22 years, and we have no kids

except for two big dopey dogs and a cat. He has two adult kids, they

are my " step-children " are my " step-children " <WBR>. I am vice presi

company, and as such work really long hours and am a high-achiever

type personality.

[Guest guest]

Hi Cat,

Thank you, I was not aware that the CFIDS foundation was right here

in my back yard!! Yes, I have had tests by a rheumatologist who

basically took one look at me (twice) and said there is nothing wrong

with me. I am always smiling, despite being in intense pain and

exhausted. She said I didn't have enough tender points to be

diagnosed with FM, and she dismissed me as I started taking out my

notes to discuss CFS, Lupus and Lyme. She actually groaned and

said, " oh, no! " when I took out my notes. I was devastated, and just

basically caved in right then and there and gave up trying to talk to

her. My new PCP whom I started seeing after that has proved to be

much more cooperative, understanding and helpful. According to the

CDC guidelines, I have just about every symptom of CFS/CFIDS, yet the

rheum wrote to my PCP that I do not have the qualifying symptoms for

either CFS or FM. She prescribed calcium & vit D and said I am just

vitamin deficient, and that calcium deficiency causes muscle pain.

It's been two months now, and I take these vitamins as instructed,

and the pain is still very intense and it's constant.

K2

>

> As I read your story so many things came to mind, I have had

ME/FM to

> many years and your doctor stories sounds all to familiar.

> Has any of these doctors done any tests?

> You might try and call the " National CFIDS Foundation in

Needham, MA

[Guest guest]

You might also try ACAM which is the American College for the Advancement of

Medicine. You will be able to find doctors in your area that are " more ahead of

the game "

If energy is the issue, have them run a Metabolic Anaylsis profile from

Genovations. It will show you where the Krebs cycle is stuck.

Janet

K2 wrote:

Hi Cat,

Thank you, I was not aware that the CFIDS foundation was right here

in my back yard!! Yes, I have had tests by a rheumatologist who

basically took one look at me (twice) and said there is nothing wrong

with me.