Re: Further update on Crystal

[Guest guest]

and Harv,

After the rough week Crystal has had, it may be peace of mind to know she will

be in the hospital for a couple of days even if it's just for " tweaking " .

Undoubtedly you and Harv would not get any rest, watching for any changes in her

condition all weekend long. This way you have her right there for the doctors

and nurses to keep an eye on her as she improves.

Based on your posts the past few days you two sound like a very caring, loving

couple. You guys get some rest (I know, easier said than done) and continue

taking care of each other and your precious Angel.

Penny

wrote:

Bad news. They're keeping Crystal over the weekend because of her

blood counts. Both her white blood cells & her platelets are low.

They're hoping to correct the imbalance by tweaking with her seizure

meds. They're pretty sure that it's the seizure meds that are

causing the imbalance. Their 1st step is to decrease the amount of

felbatol that she is taking. That is a very harsh AED. I wasn't

really for them giving it to her, but at the time it was the only

way to go.

Wish us luck. Harv is worried, as he doesn't want to miss any more

work. I'm hoping that they'll discharge her sometime Sunday instead

of us having to wait until Monday.

We totally appreciate everyone's prayers & good wishes. That makes

all of this so much easier to bear...

With all of our love to everyone & their Angels !

Harv & our Angel, Crystal Aquielle

[Guest guest]

Chris:

Sorry to hear that Crystal had a little set back. I don't doubt for a second

that you are at your wits end. It seems life just keeps throwing you guys curve

balls. Hopefully, in the big picture of things you'll be able to look back on

this time as " a bump in the road of life " . I learn so much from the wonderful

caring parents dealing with these harsh issues. You and Harv sound like such

awsome parents and I am so happy that Crystal has you to love and care for her.

I'll pray for Crystal's doctors that they can figure all this out as well as

strength for you and your family. Take care of yourself as best you can.

Blessings,

Bonnie (grandmother to Lindsey W/ bilateral PMG)

wrote:

Bad news. They're keeping Crystal over the weekend because of her

blood counts. Both her white blood cells & her platelets are low.

They're hoping to correct the imbalance by tweaking with her seizure

meds. They're pretty sure that it's the seizure meds that are

causing the imbalance. Their 1st step is to decrease the amount of

felbatol that she is taking. That is a very harsh AED. I wasn't

really for them giving it to her, but at the time it was the only

way to go.

Wish us luck. Harv is worried, as he doesn't want to miss any more

work. I'm hoping that they'll discharge her sometime Sunday instead

of us having to wait until Monday.

We totally appreciate everyone's prayers & good wishes. That makes

all of this so much easier to bear...

With all of our love to everyone & their Angels !

Harv & our Angel, Crystal Aquielle

---------------------------------

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[Guest guest]

What a bummer, but at least she starting to feel like her old self ago. Any

chance they might let you go Sat. night or Sun. morning?

Good luck

and Kennedy(7yrs.,pmg)

http://www.geocities.com/kenjenjennings/

>

>Reply-To: polymicrogyria

>To: polymicrogyria

>Subject: Further update on Crystal

>Date: Fri, 22 Jun 2007 19:58:08 -0000

>

>Bad news. They're keeping Crystal over the weekend because of her

>blood counts. Both her white blood cells & her platelets are low.

>They're hoping to correct the imbalance by tweaking with her seizure

>meds. They're pretty sure that it's the seizure meds that are

>causing the imbalance. Their 1st step is to decrease the amount of

>felbatol that she is taking. That is a very harsh AED. I wasn't

>really for them giving it to her, but at the time it was the only

>way to go.

>

>Wish us luck. Harv is worried, as he doesn't want to miss any more

>work. I'm hoping that they'll discharge her sometime Sunday instead

>of us having to wait until Monday.

>

>We totally appreciate everyone's prayers & good wishes. That makes

>all of this so much easier to bear...

>

>With all of our love to everyone & their Angels !

>

> Harv & our Angel, Crystal Aquielle

>

>

>

_________________________________________________________________

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[Guest guest]

, actually the weekend doctor came by her room before & told

Harv that they might spring her today. Her platelets are up. Right now

she's sleeping soundly, so we snuck off to grab some lunch.

Thank you, Penny for the kind wishes.

To everyone else who have sent their support, thank you all so very

much !

With love to you all & your Angels...

Harv, Crystal Aquielle, and family

[Guest guest]

Super news, give her a hug from the family!

K

************************************** See what's free at http://www.aol.com.

[Guest guest]

Thank you everyone, for your kind thoughts, prayers & positive energy

sent to Crystal. You have all been so supportive to us through this.

They sent Crystal home yesterday. We arrived home last night. So far,

so good. She has a few follow ups with various doctors. I will let

everyone know as things progress. She is eating & back to her normal

routine.

With love to you all...

Harv, Crystal Aquielle & family

[Guest guest]

So glad to hear that things are getting back to order.

and Kennedy(7yrs.,pmg)

http://www.geocities.com/kenjenjennings/

>

>Reply-To: polymicrogyria

>To: polymicrogyria

>Subject: Re: Further update on Crystal

>Date: Sun, 24 Jun 2007 19:57:35 -0000

>

>Thank you everyone, for your kind thoughts, prayers & positive energy

>sent to Crystal. You have all been so supportive to us through this.

>They sent Crystal home yesterday. We arrived home last night. So far,

>so good. She has a few follow ups with various doctors. I will let

>everyone know as things progress. She is eating & back to her normal

>routine.

>

>With love to you all...

>

> Harv, Crystal Aquielle & family

>

>

_________________________________________________________________

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[Guest guest]

Chris:

I'm so happy to hear that Crystal is home! It's amazing what we have learned

to be grateful for!

Bonnie (grandmother to Lindsey with bilateral PMG)

wrote:

Thank you everyone, for your kind thoughts, prayers & positive energy

sent to Crystal. You have all been so supportive to us through this.

They sent Crystal home yesterday. We arrived home last night. So far,

so good. She has a few follow ups with various doctors. I will let

everyone know as things progress. She is eating & back to her normal

routine.

With love to you all...

Harv, Crystal Aquielle & family

---------------------------------

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[Guest guest]

I'm so glad to hear that Crystal is home and doing better. I will keep

you all in my thoughts with wishes for continued progress and good reports

from the docs.

Christie

[Guest guest]

and family,

Our prayers continue to be with you. I do hope that Crystal is on the mend.

I also hope that you and Harv can get some well deserved rest.

Patty

_________________________________________________________________

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[Guest guest]

Dear

Wishing Crystal continued recovery, and some rest for you and Harv.

Meg and Teddy

---------------------------------

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always stay connected to friends.

[Guest guest]

I wanted to thank everyone for their continued support. Crystal is very

much back to her normal self. Unfortunately, she has resumed having

seizures. They have changed form. Now she is having tonic clonics, in

which her hands clench into claws & her body jerks. We haven't observed

her having any other types of seizures, which is a good thing.

I'm sorry to read that other children are also having problems with

seizures, undefined spells, and g-tube issues. I will keep all of you

in my thoughts & prayers.

With love to you all...

Crystal Aquielle & family

>

> Dear

>

> Wishing Crystal continued recovery, and some rest for you and Harv.

>

> Meg and Teddy

>

>

> ---------------------------------

> Don't be flakey. Get Yahoo! Mail for Mobile and

> always stay connected to friends.

>

>

[Guest guest]

Sorry to hear your still fighting the seizure monster. Have the doctors

have any other ideas?

and Kennedy(7yrs,pmg)

http://www.geocities.com/kenjenjennings/

>

>Reply-To: polymicrogyria

>To: polymicrogyria

>Subject: Re: Further update on Crystal

>Date: Sat, 30 Jun 2007 21:05:41 -0000

>

>I wanted to thank everyone for their continued support. Crystal is very

>much back to her normal self. Unfortunately, she has resumed having

>seizures. They have changed form. Now she is having tonic clonics, in

>which her hands clench into claws & her body jerks. We haven't observed

>her having any other types of seizures, which is a good thing.

>I'm sorry to read that other children are also having problems with

>seizures, undefined spells, and g-tube issues. I will keep all of you

>in my thoughts & prayers.

>

>With love to you all...

>

> Crystal Aquielle & family

>

>

> >

> > Dear

> >

> > Wishing Crystal continued recovery, and some rest for you and Harv.

> >

> > Meg and Teddy

> >

> >

> > ---------------------------------

> > Don't be flakey. Get Yahoo! Mail for Mobile and

> > always stay connected to friends.

> >

> >