Guest guest Posted February 8, 2007 Report Share Posted February 8, 2007 I am the exact same way, although I've always had a really easy life. I bring my own stress on myself -- mostly due to my career. I work for my bf, and we " compete " with each other on who can be the most ambitious and successful each day. The man is 20 years older than me, and has more energy than ten 30-year-olds. Since CFS or FM hit me 3 years ago, I have absolutely no stamina, and the slightest little thing totally stresses me out. I develop instant pain, headaches, bowel problems, shakiness, etc. About two weeks ago, I finally decided I've had enough. No more competing with my sweetheart. He has energy, and I don't. Simple as that. I started deliberately relaxing. Really making a conscious effort to do it. Something I've NEVER been able to do. I usually come home from work, and bring home a folder of paperwork with me, I will work into the night til bedtime. Well, no more. I started just plopping in front of the TV and cuddling with my dogs and a good book or magazine. I will make dinner, and just make a conscious effort to not get stressed out. I have distanced myself from my employees (I used to be available 24/7 & would tell everyone where I'd be etc. etc. Our office is open from 7:00 a.m. to 10:30 p.m. So imagine even if I am at home, the phone is ringing with both shifts of workers calling me with incessant questions. NO MORE!) I indulged in yoga classes last year, and it helped me a lot. I don't do a whole one-hour practice anymore, but I do some poses to adjust my painful areas of my body and just to relax. My pets are a god-send. They de-stress me in an instant. Good luck to you, keep coming here and sharing your thoughts. K2 > > I have always had a really hard life. I think from the time I was born > I went from one stressfull situation to another. I have always had a > really high stress level. Now I can't seem to handle any stress. When > it first started I would just get tired. I couldn't cope I would just > need to sleep. Now It's affecting me physically. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2007 Report Share Posted February 8, 2007 I think that is the $64000 question...........I certainly haven't mastered it by any means, but I do try VERY hard to do one day at a time. Don't let the things you cannot control, control you................I know, I know..........this is SO SIMPLE to say, and tough as all get out to do. Keeping a positive attitude (I was able to do the dishes today, etc) and prayer are the only things that keep me personally going. You're right, we cannot avoid stress, it is part of life, but we can change how we handle it............and not let it handle us! Do I still have days where I cry my eyes out becuz my life has changed so drastically overnight? YES, of course! But I try again tomorrow. What are the options? Hang in there and know that there are so many people - HERE - on your side, with complete understanding and empathy for your situation. The people here are a Godsend to me. STL Jane veryniceblonde wrote: I have always had a really hard life. I think from the time I was born I went from one stressfull situation to another. I have always had a really high stress level. Now I can't seem to handle any stress. When it first started I would just get tired. I couldn't cope I would just need to sleep. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2007 Report Share Posted February 8, 2007 I have been wondering the same thing ~ why does stress ~ any stress cause my symptoms to flare. It had steady gotten worse over the past few years so that I can't watch an intense tv show, or any emotional show on tv without my body reacting like I am in a crisis. I used to be able to deal with alot of stress and now any little thing sets me off. I hate to give up the shows I like on tv ~ I am homebound and don't get out nor feel well enough to have others over only a few times a year. Talking on the phone is also stressful for me much of the time. I am trying to figure out how to stop the downhill slide! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2007 Report Share Posted February 8, 2007 This would be to do with the adrenals, which normally are exhausted/fatigued in CF sufferers. Any sort of stress, good or bad will cause a relapse. Regards Barbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 From what I understand our body's ability to regulate itself is not functioning right if at all, it is called, easier for me to just give the definition. It makes a lot of sense to me. I know even laughing can exhaust me or talking on the phone, my body's ability to adjust to temperature changes is off, my bodies ability to regulate is gone. Homeostasis is the property of an _open system_ (http://en.wikipedia.org/wiki/Open_system_(system_theory)) , especially living _organisms_ (http://en.wikipedia.org/wiki/Organism) , to regulate its internal environment to maintain a stable, constant condition, by means of multiple _dynamic equilibrium_ (http://en.wikipedia.org/wiki/Dynamic_equilibrium) adjustments, controlled by interrelated regulation mechanisms. In a message dated 2/8/2007 8:14:19 PM Pacific Standard Time, reneejoel@... writes: I have been wondering the same thing ~ why does stress ~ any stress cause my symptoms to flare. It had steady gotten worse over the past few years so that I can't watch an intense TV show, or any emotional show on TV without my body reacting like I am in a crisis. I used to be able to deal with alot of stress and now any little thing sets me off. I hate to give up the shows I like on tv ~ I am homebound and don't get out nor feel well enough to have others over only a few times a year. Talking on the phone is also stressful for me much of the time. I am trying to figure out how to stop the downhill slide! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 Wow! I KNEW there was a reason I kept reading this group's entries, and does this one ever strike home! If I have FM it must be very minimal (only after sitting for long periods of time, or after walking for 2 km.) But I'm quite sure I have CFS/ME. And I have been diagnosed with MCS. Having said all that, it is music to my ears to hear you all talk about not being able to handle things the way you used to, or the way others can. That's the hard part, isn't it! I figured out the " Pace and Switch " activities thing simply because that's what my body will allow. One of the ways I got there was by a simple change in my " To Do " List. After weeks of not accomplishing what was on my list, a finally had such a bad day that I felt horribly guilty about not pulling my own weight around the house. Sound familiar? So on my " to do " list, I began writing done what I did all day long. At first, it was: -got out of bed -found some food -ate -slept in recliner -got out of recliner -found some food -ate & then on a better day, it might have included: -dusted the side table -found some food -ate -rested and read Slowly I have been getting better days. But usually I still use my " Done " list as a way of seeing that I do get things done. My way, my time, my body. My positive way of viewing. I have also arranged my world so that I can rest before I am needed, like sleep 2-4 and then prep for supper. Rest while kids set table. It feels good to see all the check marks down the list of things I have done. It helps my family to see what I have accomplished too. What other ploys have you found? Debbie mcsbarrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 Hi - wanted to address a couple of issues that have been bantering around the last few days. Would we ask a Diabetic why they can't have sugar? We dont ask why sugar does what it does to them? Because this is " stress " we tend to think in terms of mental illness etc. It is not a mental deficit that causes us not to be able to handle stress - it is a biological one. I understand it feel lousy and makes us feel deficient somehow - but believe me your not causing it... as in I am too sensitive, or should be able to etc....... I too can't watch any tv that is stimulating - we got around that by teevo it and watching Lost and other stimulating programs earlier in the evening - you might even want to watch them during the day to give you some energy. I undersand the cost can be a problem but what other enjoyments do you have but tv? Someone called it sensory overload - when we get too excited, too stimulated, too much sugar, (at one time milk for me) too much of anything it can set it off. It is a lifetimes work to learn how to deal with this illness. And until they come up with better solutions it is up to us to adapt. My daughter is an occupational therapist. With kids that have sensory overload she brushes them - arms legs back trunk with a soft bristled brush - calms the nervous system down So I talked to her about myself and she said to put a heavy blanket on - even sew something heavy into the blanket - carry something heavy (hard for us to do) but lift dumbells - 1/2 lb or 1 lbs would be fine - it calms the nervous system down. Also the dry brushes would also be good. So when you feel it coming you can do some of these things. I find Kava Kava and Passion Flower help a lot and they are part of my nightime sleeping routine - along with 5-HTP and Inisotol which also feeds the nervous system. I find it hard to be in a car - that gets my senses going for sure - I find I need to close my eyes sometimes and just be a passenger - I take extra passion flower or kava Sometimes it is helpful - sometimes life just deals you something that boom you are down for the count like the 2 hours we sat on the New York Thruway because of an accident Then I was down for a day or so Keep on keeping on - hope this helps. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 O another thing - learning to deep breathe routinely - especially when the stress or sensory overload gets going You can get books out of the library on it and it is really simple. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2007 Report Share Posted February 10, 2007 This is very true for me and every week I ask myself " Why does a relatively average level of work wipe me out? " . I know it's just part of the bigger problem but it's limiting. So I have to budget my time/energy very carefully and it's become a precious commodity to me. ~P.J. > > This would be to do with the adrenals, which normally are exhausted/fatigued > in CF sufferers. Any sort of stress, good or bad will cause a relapse. > > Regards > > Barbie > Quote Link to comment Share on other sites More sharing options...
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