New to Group

[Guest guest]

Hello there everyone. My name is Radtke & I am new to this

group. I haven't officially been diagnosed with Fibromyalgia, but

several doctors have mentioned it & when confronted with the actual

diagnosis, have avoided the issue & referred me to someone else. I

exhibit a lot of the symptoms - fatigue, muscle/joint pain (with &

without swelling), general body aches & pains, brain fog, IBS,

blurred vision, headaches (have had migraines since I can remember),

dexterity, muscle weakness, nausea, dizziness, & many others I'm sure

I've forgotten. I am 36 years old & all of these medical issues came

about within the past 2 - 3 years. I have seen Internal Medicine

doctors, Psyiatrist (Physical Medicine & Rehabilitation),

Neurosurgeon, & Family Practice. All mention Fibromyalgia, but never

come right out & say it is my diagnosis. I work full-time & own a

home. My other half, Larry, of 16 + years & not married, was

diagnosed with Epstein Barr Virus in August of 2002 after two years

of similar medical issues with him. He is 35. He has been on Social

Security since January of 2003, Medicare since January of 2005. His

symptoms range from fatigue, sleeping 10 - 14 hours per day,

irregular heartbeat, sleep problems (other than too much), loss of

appetite, alcohol intolerance, joint/muscle pain, & many others I

can't think of right now.

I wanted to join this group to vent & get support & suggestions to

carry out our lives, both Larry & I, since most things apply to

both. I don't necessarily believe in alternative medicine, but want

to someday see doctors more educated about these conditions. I

worked at Hennepin County Medical Center for over 11 years & had

contact with many doctors there. Almost too much opportunity because

I was starting to know more about EBV than they did.

I don't have a computer at home yet. My Internet access is limited

to the county libraries in my area, friends with computers, & work,

so my responses may be a few days out. I would like to get to know

many of you & hope we can all get along.

Thanks for the opportunity to join & hope to hear from you all soon.