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12mo old daugher

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Our daughter is 12 mo and is able to roll from tummy

to back, she is not sitting and has poor head control

She has bilateral PMG and she is deaf. She is very

social and usually a happy baby. We are thinking that

she is beginning to have infantile spasms now. We go

to the neurologist the end of the month after we keep

a diary of any activity. She is a difficult feeder and

they are still contemplating putting in a GT. We will

see how much she has gained at the next appt. One

thing I have noticed is that kids with this disorder

are all so different.

I am very happy to have this group available to ask

questions!!

Thanks to you all!!

Dana

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