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Vagal Nerve Surgery

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Just wondering if anyone out there with pmg has had vagal nerve to

help control seizures which have been poorly controlled with drugs.

Desperate to get my daughter off these drugs and see what she is like

without them. She has been on massive doses since sezizures began on

day 2 of life.

Jon , Dad to Amalie Jo who has found a big temper for a 2year

old.

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  • 2 weeks later...

hello, our daughter has a vns and we are very greatful for it.

It was placed when she was 10 mon. and she is now 2 1/2. It has

helped but not stopped her seizures. I would be glad to answer any

fufurther questions.

~carrie

>

> Just wondering if anyone out there with pmg has had vagal nerve to

> help control seizures which have been poorly controlled with drugs.

> Desperate to get my daughter off these drugs and see what she is

like

> without them. She has been on massive doses since sezizures began on

> day 2 of life.

>

> Jon , Dad to Amalie Jo who has found a big temper for a

2year

> old.

>

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