PROPER HISTORY for NAMES ME & CFS- -

[Guest guest]

I was incorrect in what I had previously posted about the term ME being

a latin term. Dr Enlander, my primary doctor sent me the following

information;

Dr Melvin Ramsay described the first group outbreak in 1955 in the

Royal Free Hospital in London, he initially used the term Post Viral

Fatigue or The Royal Free Disease. Similarly an outbreak in Iceland led

to the term Icelandic disease. Dr Ramsay thought it was a sub acute

inflammatory process affecting Muscle, Brain and the Central Nervous

System . He used the term Myalgic Encephalomyelitis to signify the

inflammation in the three areas. This term was abbreviated to M.E. and

was used in Britain, Ireland and the Commonwealth.

Two decades later a doctor who practiced in Incline Village, a small

ski resort on the California / Nevada border, saw an outbreak and

thought he had discovered a new disease. He had not access to a medical

library so he termed it Chronic Fatigue Syndrome. An unfortunate term

that causes disbelief and problems for patients.

Hope that this sort of clarifies things; at one time Dr Enlander had a

book which was I believe mostly the writings of Dr Ramsey at the time.

That is to say, the history of the illness in the UK.

Best to all,

Jane (the one with the hound)

[Guest guest]

>>>>>Two decades later a doctor who practiced in Incline Village, a small ski

resort on the California / Nevada border, saw an outbreak and thought he had

discovered a new disease. He had not access to a medical

library so he termed it Chronic Fatigue Syndrome. An unfortunate term that

causes disbelief and problems for patients.<<<<<

WHOA! Not True! Are you sure Dr. Enlander said this?!

Dr. Cheney and Dr. , in Incline Village called in the CDC

when over 200 patients were devastatingly sick and debilitated, with severe

cognitive symptoms,following a flu-like illness.

The CDC looked over a few charts, left, referring to the town, the doctors, the

patients as quirky, not unusually sick. Dr.s Cheney, and the patients

were viciously persecuted by the tourist community.

The CDC also dismissed a similar call from Bell in Lyndonville New York

regarding his pediatric patients.

By 1987,88, besides those communities, the CDC received so many calls from

around the country, they had to meet and name it " something " . A few Beurocrats,

who had never examined a patient named it " Chronic Fatigue Syndrome " , with an

EBV type definition.

There were ME-aware Scientists in the room, who walked out in protest, saying

" You are dooming the Research, you are dooming the patients! "

PLEASE read Osler's Web to get the story of those years in the United States, at

the CDC, and some about Incline Village.

Cheney and Dan , who put their careers on the line have continued

researching and treating PWCS for over 20 years.

Katrina

>

> I was incorrect in what I had previously posted about the term ME being

> a latin term. Dr Enlander, my primary doctor sent me the following

> information;

>

> Dr Melvin Ramsay described the first group outbreak in 1955 in the

> Royal Free Hospital in London, he initially used the term Post Viral

> Fatigue or The Royal Free Disease. Similarly an outbreak in Iceland led

> to the term Icelandic disease. Dr Ramsay thought it was a sub acute

> inflammatory process affecting Muscle, Brain and the Central Nervous

> System . He used the term Myalgic Encephalomyelitis to signify the

> inflammation in the three areas. This term was abbreviated to M.E. and

> was used in Britain, Ireland and the Commonwealth.

> Two decades later a doctor who practiced in Incline Village, a small

> ski resort on the California / Nevada border, saw an outbreak and

> thought he had discovered a new disease. He had not access to a medical

> library so he termed it Chronic Fatigue Syndrome. An unfortunate term

> that causes disbelief and problems for patients.

>

> Hope that this sort of clarifies things; at one time Dr Enlander had a

> book which was I believe mostly the writings of Dr Ramsey at the time.

> That is to say, the history of the illness in the UK.

>

> Best to all,

> Jane (the one with the hound)

>

[Guest guest]

>>>>>Two decades later a doctor who practiced in Incline Village, a small ski

resort on the California / Nevada border, saw an outbreak and thought he had

discovered a new disease. He had not access to a medical

library so he termed it Chronic Fatigue Syndrome. An unfortunate term that

causes disbelief and problems for patients.<<<<<

WHOA! Not True! Are you sure Dr. Enlander said this?!

Dr. Cheney and Dr. , in Incline Village called in the CDC

when over 200 patients were devastatingly sick and debilitated, with severe

cognitive symptoms,following a flu-like illness.

The CDC looked over a few charts, left, referring to the town, the doctors, the

patients as quirky, not unusually sick. Dr.s Cheney, and the patients

were viciously persecuted by the tourist community.

The CDC also dismissed a similar call from Bell in Lyndonville New York

regarding his pediatric patients.

By 1987,88, besides those communities, the CDC received so many calls from

around the country, they had to meet and name it " something " . A few Beurocrats,

who had never examined a patient named it " Chronic Fatigue Syndrome " , with an

EBV type definition.

There were ME-aware Scientists in the room, who walked out in protest, saying

" You are dooming the Research, you are dooming the patients! "

PLEASE read Osler's Web to get the story of those years in the United States, at

the CDC, and some about Incline Village.

Cheney and Dan , who put their careers on the line have continued

researching and treating PWCS for over 20 years.

Katrina

>

> I was incorrect in what I had previously posted about the term ME being

> a latin term. Dr Enlander, my primary doctor sent me the following

> information;

>

> Dr Melvin Ramsay described the first group outbreak in 1955 in the

> Royal Free Hospital in London, he initially used the term Post Viral

> Fatigue or The Royal Free Disease. Similarly an outbreak in Iceland led

> to the term Icelandic disease. Dr Ramsay thought it was a sub acute

> inflammatory process affecting Muscle, Brain and the Central Nervous

> System . He used the term Myalgic Encephalomyelitis to signify the

> inflammation in the three areas. This term was abbreviated to M.E. and

> was used in Britain, Ireland and the Commonwealth.

> Two decades later a doctor who practiced in Incline Village, a small

> ski resort on the California / Nevada border, saw an outbreak and

> thought he had discovered a new disease. He had not access to a medical

> library so he termed it Chronic Fatigue Syndrome. An unfortunate term

> that causes disbelief and problems for patients.

>

> Hope that this sort of clarifies things; at one time Dr Enlander had a

> book which was I believe mostly the writings of Dr Ramsey at the time.

> That is to say, the history of the illness in the UK.

>

> Best to all,

> Jane (the one with the hound)

>

[Guest guest]

Booooo!! Hound Dog's mama!

Thanks for that publication of information. I've heard so many

stories and it's nice to have the truth of it all.

Nice to see you posting today, hope your hangin in there!

Huggz!!

/Dutchie

>

> I was incorrect in what I had previously posted about the term ME being

> a latin term. Dr Enlander, my primary doctor sent me the following

> information;

>

> Dr Melvin Ramsay described the first group outbreak in 1955 in the

> Royal Free Hospital in London, he initially used the term Post Viral

> Fatigue or The Royal Free Disease. Similarly an outbreak in Iceland led

> to the term Icelandic disease. Dr Ramsay thought it was a sub acute

> inflammatory process affecting Muscle, Brain and the Central Nervous

> System .

[Guest guest]

Booooo!! Hound Dog's mama!

Thanks for that publication of information. I've heard so many

stories and it's nice to have the truth of it all.

Nice to see you posting today, hope your hangin in there!

Huggz!!

/Dutchie

>

> I was incorrect in what I had previously posted about the term ME being

> a latin term. Dr Enlander, my primary doctor sent me the following

> information;

>

> Dr Melvin Ramsay described the first group outbreak in 1955 in the

> Royal Free Hospital in London, he initially used the term Post Viral

> Fatigue or The Royal Free Disease. Similarly an outbreak in Iceland led

> to the term Icelandic disease. Dr Ramsay thought it was a sub acute

> inflammatory process affecting Muscle, Brain and the Central Nervous

> System .

[Guest guest]

This is the way I understand it also Katrina. I guess where I'm a

little confused is the doctors who left. Did they leave because this

was ME and the US wasn't calling it that? OR....did they leave

because this is NOT ME? I've always been a little foggy on that

point.

STL Jane

[Guest guest]

Do you mean left the room at the CDC? They were leaving in protest of the

horrific name/definition....knowing it was ME. At the least, knowing the

name/def did not give the picture. The name/def were supposed to be only for

research purposes. Dr. Cheney and others figured it would be very short-lived.

TC,

Katrina

>

> This is the way I understand it also Katrina. I guess where I'm a

> little confused is the doctors who left. Did they leave because this

> was ME and the US wasn't calling it that? OR....did they leave

> because this is NOT ME? I've always been a little foggy on that

> point.

> STL Jane

>

[Guest guest]

Yeah, we see how short lived it was, don't we? What a shame!

God Bless,

STL Jane

kattemayo wrote:

Do you mean left the room at the CDC? They were leaving in protest of the

horrific name/definition....knowing it was ME. At the least, knowing the

name/def did not give the picture. The name/def were supposed to be only for

research purposes. Dr. Cheney and others figured it would be very short-lived.

TC,

Katrina