Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Thank you for the welcome. It has been a very long road before this diagnosis. So many people thought Logan had C.P except a few of the doctors. I in my heart thought he just had some delays and would just get better. Thanks to UCLA medical center this summer we finally have a diagnosis. So now we start hopefully getting him where he needs to be. There doesn't seem to be much information out there about this condition or i'm just looking in all the wrong places. I'm just glad i found this site for some support from people who are going through some of the same things. Tina & Logan shell2040@... wrote: Welcome! I am glad you found this group. It has been a lifesaver for me. Tell us more about your son. Take care, and Alyssa (3 yo, BFPP, micro, spastic quad CP....) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2007 Report Share Posted February 26, 2007 Welcome ! Juri, dad of Josse (10 months old, diagnosed PMG, bilateral perisylvian PMG) www.familieplanckaert.be <http://www.familieplanckaert.be/> Belgium _____ Van: polymicrogyria [mailto:polymicrogyria ] Namens Kim Raub Verzonden: maandag 26 februari 2007 15:25 Aan: polymicrogyria Onderwerp: Welcome to new member > Email address: hnhamiltonhedder > <heatherroach@ <mailto:heatherroach%40hotmail.com> hotmail.com> > > Comment from user: > Our two year old daughter was diagnosed with PMG last > May. She is doing > well, but struggles physically. Would really appreciate > being apart of > this group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2007 Report Share Posted February 26, 2007 Thank you! You have a beautiful family > >Reply-To: polymicrogyria >To: <polymicrogyria > >Subject: RE: Welcome to new member >Date: Mon, 26 Feb 2007 16:43:01 +0100 > >Welcome ! > > > >Juri, dad of Josse (10 months old, diagnosed PMG, bilateral perisylvian >PMG) > > > >www.familieplanckaert.be <http://www.familieplanckaert.be/> > >Belgium > > > > _____ > >Van: polymicrogyria [mailto:polymicrogyria ] >Namens Kim Raub >Verzonden: maandag 26 februari 2007 15:25 >Aan: polymicrogyria >Onderwerp: Welcome to new member > > > > > Email address: hnhamiltonhedder > > <heatherroach@ <mailto:heatherroach%40hotmail.com> hotmail.com> > > > > Comment from user: > > Our two year old daughter was diagnosed with PMG last > > May. She is doing > > well, but struggles physically. Would really appreciate > > being apart of > > this group. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 Ask away... Kim Raub wrote: > Email address: pmotkaluk > > Comment from user: > My son just gor diagnosed with PMG however I am so > confused and have > soooo many unanswered questions. > Thank you Ann Hasselberger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 All of us know what you are going through. Ask us whatever questions you have. Everyone on here has an amazing amount of knowledge and its amazing when we put it all together to answer questions. I still feel very confused at times but the times are fewer and more far between now that I have been dealing with pmg, cp, seizures, etc for almost 3 and a half years. Stay strong and let us help you answer the questions you have. Take care, and Alyssa (3yo, BFPP, Spastic Quad CP, Partial Seizures, Globally Delayed) <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2007 Report Share Posted March 21, 2007 Welcome! Juri, father of Josse with PMG, 11 months old. www.familieplanckaert.be <http://www.familieplanckaert.be/> _____ Van: polymicrogyria [mailto:polymicrogyria ] Namens Kim Raub Verzonden: woensdag 21 maart 2007 17:23 Aan: polymicrogyria Onderwerp: Welcome to new member Email address: ky_doodlebug <TNmom0379aol (DOT) <mailto:TNmom0379%40aol.com> com Comment from user: Hi, my name is and my 5 year old son has polymicrogyria, among other things. I would love the chance to join the group and share storys with other parents. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 Where do you come from? _____ Van: polymicrogyria [mailto:polymicrogyria ] Namens Kim Raub Verzonden: vrijdag 30 maart 2007 2:39 Aan: polymicrogyria Onderwerp: Welcome to New Member Email address: gem12bella1@ <mailto:gem12bella1%40yahoo.com> yahoo.com Comment from user: I am a mother of a child with congenital bilateral perisylvian syndrome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2007 Report Share Posted April 10, 2007 Davies wrote: Hi there! Just thought I would give you a warm welcome. I live in the UK, but in Cumbria (Lake District area) It would be great to keep in touch if you like. Any questions that you may have please do not hesitate to ask. I have 4 children and my 4th child inherited PMG from her father. She is now 8 (Saskia) x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2007 Report Share Posted April 11, 2007 Hello Elliott We live in SE London and our son (5) has pmg. This is a great place to get information and support. Annelies, mum to Finlay (5, bilateral fronto-parietal pmg) Welcome to New Member Email address: elliottgerner Comment from user: Hi, I have a 13 month old boy with polymicrogyria. I live in London with my partner and would very much like to read more about the condition. Best Wishes, Elliott Gerner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2007 Report Share Posted April 13, 2007 Email address: clairegoodbody Comment from user: My daughter has polymicrogyria and also chromosome 1abnormalities. It will be interesting to hear progress of others going through similar moments of joy but also advice when the child struggles. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2007 Report Share Posted April 14, 2007 Hi Let us welcome you to the group - we live in Ireland. One of the few from this side of the world. Our son Daire is now nearly 5 and has Bilateral Frontpartial PMG diagnosed at 12 weeks. Cause unknown. He's 2nd of 4 kids. Contact me by email with any of your querys, Id be willing to help you any way I can. & Co. Quote Link to comment Share on other sites More sharing options...
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