Re: Response to today's News-Herald editorial

[Guest guest]

Hi Marcia:

Do you have their email address, I would love to give them a piece of my mind,

what little is left that is.

Jeanette

Response to today's News-Herald editorial

The CO-CURE list alerted it's members to an editorial today that

disparaged the CDC's use of taxpayers' money for the CFS Awareness

campaign. It said (and I quote), " Chronic fatigue syndrome is just not

that important. " I submitted the following comment (and believe me, I

was really holding back on some of the things I *wanted* to say!).

Marcia on

Salem, MA

[Guest guest]

Hi Jeanette!

*** Here's the link to that editorial:

http://tinyurl.com/29h58v

*** You may need to scroll down slightly to see the " Brickbat " section

that mentions CFS.

Hi Marcia:

Do you have their email address, I would love to give them a piece of

my mind, what little is left that is.

Jeanette

[Guest guest]

Awesome response, Marcia!!! You said it all, perfectly.

K2

I submitted the following comment (and believe me, I

> was really holding back on some of the things I *wanted* to say!).

>

> Marcia on

> Salem, MA

[Guest guest]

Thanks Marcia

Jeanette

Re: Response to today's News-Herald editorial

Hi Jeanette!

*** Here's the link to that editorial:

http://tinyurl.com/29h58v

*** You may need to scroll down slightly to see the " Brickbat " section

that mentions CFS.

[Guest guest]

Marcia:

My comments I submitted to this editorial:

How dare this person say that Chronic Fatigue is just not that important. I hope

he gets it, and he can feel how it feels. You have no idea what you are talking

about, and you should not make a comment like that not knowing anything about

this illness. If you did, you would not have said what you said. Maybe you

should start doing some real research and find out the real answers. This

funding money came from people who wanted to donate to this cause, and they

should not be berated for donating to the cause of their choice. Obviously they

think it a good cause or they wouldn't have donated their hard earned money.I

feel you should make a retraction of your statement and apologize to those who

have this debilitating illness.

(Marcia-I know that this money came from the CFS group( and was money that was

donated to them)

Thanks

Jeanette

Re: Response to today's News-Herald editorial

Hi Jeanette!

*** Here's the link to that editorial:

http://tinyurl.com/29h58v

[Guest guest]

That article was also from the AP News Wire to our Newspaper as well.

Would like a copy of my response to the paper? Made me so mad. Oh and Hi

in case I didn't introduce myself, my name is b4cjcll or Doe Serena Cochran.

Just when we have made great strides to remove the stigma, someone comes

along with that. Its politics already in place when the President leaves,

" lets see what money can we take to reduce the national debt? "

Blessings~~Doe Serena

there before the grace of God go I..........

[Guest guest]

Marcia, I'm saying thank you too, I did go read the editorial (more stupid

ignorant poison), and your reply, and the others there, were very moving to me.

It actually gives me hope that we are getting so fed up we're not going to take

it anymore - I don't know what that looks like, but it feels great! Perhaps with

all that's going on now, the tide is really beginning to turn. Aylwin

[Guest guest]

Marcia,

Hooray for you for writing such an informative reply to this " idiot! " I was

truly brought to tears by this. I am so tired of not being able to find medical

treatment, so tired of being sick and tired, so tired of not being able to do

for myself around my home. I moved here 4 years ago and am still not unpacked.

I am beginning to seriously doubt if I ever will be. I am sick of having

friends not understand the seriousness and hopelessness of this disease. I find

myself becoming more and more isolated from the outside world. It is no wonder

we become depressed on top of everything else.

-----

[Guest guest]

Hi,

I came to live with my Mom cause I couldn't work, and she constantly wants me to

do things for her. It drives me crazy, and I feel like she has made me her

social outlet. I have tried to talk to her about not feeling like talking, and

she says, I understand, but them she wants me to look at what's on TV, which is

blaring loud, and wants me to send out emails for her, print off music, pay her

bills on line, etc...it seems like everyday there is a new request. I try not to

even go out of my room most days. I am so going crazy living here. I wish I

could afford to move. She is 80 and she doesn't remember or care about how I

feel. She knows I have had a migraine for 9 days yet the TV still is so loud you

can hear it outside. I think this is a perfect example of not believing I am

sick. I want there to be someone who would help me once in awhile, not me having

to do stuff here all the time. I never ask for anything, no help with anything,

if I can't do it, like my laundry, it sits and waits for me.She makes dinner

every night, and I have to clean up the kitchen. I get so sick of all of it. God

is really punishing me. I get up and she talks to me about something and my mind

is blown, I can't focus on anything after that. I can't get anything done for

myself. My mind shuts down, and I am lost.Just a bad situation and she has no

clue. She acts like I am there to serve her purpose, and not because I am sick.

Really gets to me sometimes. I have to keep reminding myself she has given me a

place to live, but now I wish I had never moved in here. The public housing says

you have to have some kind of income to qualify, so that is out for now. OK,

sorry, she is out of the house right now, and it is nice and quiet. Wish it was

like this all the time. I am so sick of that TV going 24/7 all news. How many

times can you watch the same story over and over again, and she thinks the world

is going to end tomorrow, lol

Sorry, just had to vent, no one even has to reply to this, just venting. Thanks

for listening.

Jeanette

[Guest guest]

Oh Jeanette, I am SO SORRY you are having to go thru this. I wish I had a

solution, or at least some wise words, but know that we are out here, feeling

your pain and always with a compassionate, understanding ear.

Try to take care of yourself and God Bless you always,

STL Jane

Jeanette French wrote:

Hi,

I came to live with my Mom cause I couldn't work, and she constantly wants me

to do things for her. It drives me crazy, and I feel like she has made me her

social outlet. I have tried to talk to her about not feeling like talking, and

she says, I understand, but them she wants me to look at what's on TV, which is

blaring loud, and wants me to send out emails for her, print off music, pay her

bills on line, etc...it seems like everyday there is a new request. I try not to

even go out of my room most days. I am so going crazy living here. I wish I

could afford to move. She is 80 and she doesn't remember or care about how I

feel.

[Guest guest]

OH.....This REALLY ticked me off, I sent my comments - I'm sure they don't give

a rip, but at least I got to give them my 2 cents worth!

STL Jane

Jeanette French wrote:

Marcia:

My comments I submitted to this editorial:

How dare this person say that Chronic Fatigue is just not that important. I hope

he gets it, and he can feel how it feels. You have no idea what you are talking

about, and you should not make a comment like that not knowing anything about

this illness. If you did, you would not have said what you said. Maybe you

should start doing some real research and find out the real answers.