Re:The Quest for Rest: Worn-Out-Woman Syndrome?

[Guest guest]

Hi, give me a break! Well, yes, I do know women who seem to have milder froms of

immune dysregulation with some fatigue, but that's not ME. But that having been

said, if CFS is a ridiculous name, then what about WOW?! Just what we bleedin'

need, another stupid, trivializing name to cause more misunderstanding and

misdiagnosis (sigh)...Aylwin

ps I am also new to the list, I love it, and I'll post a proper intro when I

have more time and energy! Gotta gird myself for the doc. appointment! A

[Guest guest]

Is the acronym for this 'WOW'? Give me a break too. What knucklehead

is coming up with these degrading names? It's as bad as having a 'kick

me' sign taped to your back.

My 2 cents,

~P.J.

>

> Hi, give me a break! Well, yes, I do know women who seem to have

milder froms of immune dysregulation with some fatigue, but that's not

ME. But that having been said, if CFS is a ridiculous name, then what

about WOW?! Just what we bleedin' need, another stupid, trivializing

name to cause more misunderstanding and misdiagnosis (sigh)...Aylwin

[Guest guest]

WOW - now that's intelligent. if only...

no one seems to understand what we're going through but us!

> >

> > Hi, give me a break! Well, yes, I do know women who seem to have

> milder froms of immune dysregulation with some fatigue, but that's

not

> ME. But that having been said, if CFS is a ridiculous name, then what

> about WOW?! Just what we bleedin' need, another stupid, trivializing

> name to cause more misunderstanding and misdiagnosis (sigh)...Aylwin

>

[Guest guest]

I had the same reaction, but was reluctant to say anything negative!!

Give me a break -- squared!!! Cubed!!! I have enough problems being

taken seriously about my condition without having someone call it " WOW "

and if I hear one more person say to me, " OH, you're just doing too

much " I'm gonna smack 'em! lol

K2

>

> Is the acronym for this 'WOW'? Give me a break too. What knucklehead

> is coming up with these degrading names? It's as bad as having

a 'kick

> me' sign taped to your back.

>

[Guest guest]

I am also new to the list and will intro myself soon, am having a very difficult

time right now...a relapse of sorts I call it.

How about it is all in your head!!! I am really MORE sick and tired of friends

and family not GETTING IT, but Doctors NOT GETTING IT, aggravates me to no

end...and we really don't need THAT added stress do we?

I moved to Melbourne, FL 4 years ago. The first doc I was referred to after

living here for a year wasn't the least bit interested in the CFIDS, but

attempted to treat the FM by having me buy one of those damn hooked cane

thingies...well hell I can hardly use my left side how in the hell am I supposed

to use it on myself?

The next doc, a neuro they sent me to, says...after being with him for all of 5

minutes... " oh I don't BELIEVE in CFIDS! " I wanted to SLAP him!!! Needless to

say I didn't bother with the tests he wanted to run or follow up with any

appointments!

So now once again I am doctorless. At least I still can take the meds that my

doc in RI prescribed for me years and years ago. He believed, but had no

solutions, but tried his best to prescribe meds for my problems as they arose.

Black, Gold & Hoomin Hugs & Kitty Purrs,

Melbourne, FloriDUH

Without animals man would die of a great loneliness.

Chief Seattle

[Guest guest]

Welcome ,

I would be interested in what kind of doctor you (and others in this group)

have been seeing or trying to find. Have you tried an endocrinologist? There

is supposed to be some Dr list available from our mother ship but I have

emailed to request it and have never received one.

English

Re:The Quest for Rest: Worn-Out-Woman Syndrome?

I am also new to the list and will intro myself soon, am having a very

difficult time right now...a relapse of sorts I call it.

How about it is all in your head!!! I am really MORE sick and tired of

friends and family not GETTING IT, but Doctors NOT GETTING IT, aggravates me

to no end...and we really don't need THAT added stress do we?

I moved to Melbourne, FL 4 years ago.

[Guest guest]

Hi I am also new to this group. Many years ago I started getting dizzy

spells and went to an Ear Nose and Throat Specialist. She put me thru various

tests and diagnosed me with Meneres. I take antivert when I get these spells.

Thanks to my Fibro Fog yes I have that too, I can't recall if this was before

or

after my diagnoses. My Rheumatologist feels that I have both CFS and

Fibromyaligia. I was diagnosed by the first Dr. I saw. He had been recommended

by a

therapist who was a freind and also suffered from Fibro. I was in denial. I

couldn't be sick. I played tennis, jogged, rollerblade, etc. Well, I am

divorced 8 years mother of one daughter. I am now 52 and the longer I have this

the

more depressed I get. I am from New York but have lived in South East

Florida for about 18 years. Sorry this is so long.

Blair

[Guest guest]

Welcome to the group Blair! I have already found great comfort and

information in this group and I hope you will too!

English

[Guest guest]

Dear Blair,

Does the antivert help you during your dizzy spells? Are there any

side effects?

Thank You, P.J.

>

>

>

> Hi I am also new to this group. Many years ago I started getting

dizzy

> spells and went to an Ear Nose and Throat Specialist. She put me

thru various

> tests and diagnosed me with Meneres. I take antivert when I get

these spells.

[Guest guest]

Do people actually think that " worn out women's syndrome " is real??

[Guest guest]

Welcome Blair,

I just joined the group as well. I am 43 and was diagnosed almost three

years ago, although I think I maybe had CFS for a long time before that.

I moved to Maine about 1 ½ years ago or so from S. Florida. I lived in

Boynton Beach and then Royal Palm Beach. I only lived there about 5

years I think, moved down to help my Grandma out and spend time with

her. I hate FL and knew I wouldn’t stay after she passed on. She

passed in 2001 and I figured I’d get vested in my retirement fund, then

move up north again. Instead I lost my job when I couldn’t work anymore

and eventually moved as I don’t do well at all with the heat and was

unhappy there and lost my friends so figured there was no reason to

stay. I totally understand about the depression. I have suffered

severe depression for the better part of my life and have been on meds

since I was 18. I am doing much better with depression right now, and

as bad as the symptoms are of CFS and Fibro that I have now, I think

that I would always pick a physical illness over the horror of

depression. I am still on meds and they help and I have had years on

end of therapy which has helped too. I still have trouble, but haven’t

had the extreme lows for months on end for a while. I try to consider

that a blessing and remember how bad things were before. That helps me

realize that this physical stuff isn’t as horrendous, as strange as that

sounds.

Sandrea

[Guest guest]

Hi Sandrea,

I, too, am 43 years old...living in Maine.

I'm finding it frustrating to have others ask me, " do you think it

might be depression? It's no wonder given what you've been through

in the past few years! "

I know what depression is...my ex had chronic depression (dysthymia)

and I worked for a mental health agency. If what I had was truly only

related

to clinical depression, then I would assume that I would not have the desire

to

go out and be around people. That is not the case. I am still very social

and even when I am not feeling my " normal " self, I do push myself to go out

and listen to live bands with my friends, even if my joints are too painful

to dance.

Hearing my friends in the bands play is therapy for me and even just

watching

my friends dance is therapy as well.

Do you know of any doctor or support group in Maine for ME/CFS?

in Auburn

[Guest guest]

No kidding if there are still doctors around that don't think that CFS is real

then I am sure they will REALLY embrace WOW!!! IDIOTS!

Re:The Quest for Rest: Worn-Out-Woman Syndrome?

Do people actually think that " worn out women's syndrome " is real??