Re:Cognitive problems -- venting!

[Guest guest]

thank you-I do not get many of them anymore.

Nerida

ninnyanddonald wrote:

Huggies Nerida [:-/]

[Guest guest]

I had the problem solved for awhile. I just

asked my father who has late stage Alzheimer's

to remind me if he could. He helped a lot.

Now that he cannot recall 5 minutes ago very

often, I'm out of luck!

I've had CFS/ME for 32 years! I'm 55. I think

the coxsackie virus is still in my brain!

Sandi Harrington, Los Angeles County, California

>

> I am glad we are discussing this as I have been having cognitive

problems up the wazoo! For me it often goes beyond " brain fog "

(though that's also present. when I was working, I thought it was me

and why can't I get my act together etc) for me - I am forgetting

like there's no tommorrow. my mother even said it's like knowing a

person with alzheimer's at times. it's something i've tried to keep

hidden from pretty much everyone that I know (except my mother)

because part of me just feels embarassed or feels like somehow I will

be judged...

>

> Watching TV makes it worse. While I do need to rest, I find

working on the computer and making little projects for myself helps

my brain.

>

[Guest guest]

Dear N,

Yes! hee hee. I get lots of books from the library, and it's

usually only after I've read a good deal of the book that I realize I

am familiar with the story. But, like you, I usually read

on....because after all, I'm missing a good deal of the plot! <grin>

Debbie mcsbarrie

ps. I've taken to powdering the books with baking soda to remove the

fragrances of previous readers' hand lotions. (with mostly romances,

I've noticed.) Baking soda will not hurt the books.

> As for reading-it is great because I can take a book out from the

library and be almost to the end and think-maybe I have read this

before but I can not remember the ending anyway so just read it again.

[Guest guest]

Hi Aylwin,

>

> I will say that I have an excellent alternative person (who I've

been working with for almost 3 years) who has been as helpful as

possible, and she helped me clear most of my severe (even

anaphylactic) food and scent etc.etc.allergies. But I think even she

was shocked at this, and we seem to have reached a point where all the

accupuncture and supplements (and she is really expert and current

about all that) can only do so much.

**********Don't give up. I've had 2 break throughs in the last 2

months. She was almost ready to give up. Keep at it. Start thinking

outside the box. has she done your organs? Plastics? Formaldehyde?

Pesticides? Very recently we did Water! We've also done all the

pituitary hormones and adrenals and stuff like that. And each time I

have a breakthrough I feel more and more like " myself " .

> BTW Miriam, a friend of mine calls it " energy calories " , kinda the

same idea, I guess we're all on a diet:-)

********hee hee I like that! Have you read " The Spoon Theory " at

www.butyoudontlooksick.com ?

http://www.butyoudontlooksick.com/2007/02/the_spoon_theory.php#more

That tells HOW to show people about our " energy calories " as you and

Miriam call them <grin>

Debbie mcsbarrie

[Guest guest]

Morning Debbie, yes we have been through every conceivable thing, including

water and all the enviro toxins etc. My person is VERY highly trained in it (and

TCM, nutrition, western herbs etc.) I think that my bod has had all the allergic

adjustment it's gonna take at this point. Before I move away we will recheck and

boost anything that needs it, and check more for combination reactions.

It has helped me so much, but for me, I guess 20 years of severe ME neuroimmune

damage cannot be erased...oh well!

But I have to say that of all the idiots I went to see, and things I have tried,

both mainstream and alternative, this is the ONE thing that has been an

effective treatment modality for me. Energy work of various types has been

helpful too,especially for temporary relief of pain and cognitive stuff. Cheers,

Aylwin

[Guest guest]

yes lol. I do not find that I am so sensitive to perfumes or anything anymore.

My body was full of chemicals but the naturopath seems to have sorted that one

problem out, thank goodness!!!!!!!

Nerida

mcsbarrie wrote:

Dear N,

Yes! hee hee. I get lots of books from the library, and it's

usually only after I've read a good deal of the book that I realize I

am familiar with the story. But, like you, I usually read

on....because after all, I'm missing a good deal of the plot! <grin>

Debbie mcsbarrie

ps. I've taken to powdering the books with baking soda to remove the

fragrances of previous readers' hand lotions. (with mostly romances,

I've noticed.) Baking soda will not hurt the books.

> As for reading-it is great because I can take a book out from the

library and be almost to the end and think-maybe I have read this

before but I can not remember the ending anyway so just read it again.

[Guest guest]

LOL, yes. I turned 40 last Friday, and as a birthday present one of

my closest friends (who has lupus) gave me a spoon - in a wooden box

with a glass front, and a " break glass in case of emergency " printed

on the front! It had me in tears!

Miriam

>********hee hee I like that! Have you read " The Spoon Theory "

[Guest guest]

Sometimes I think it actually helps to watch particular TV shows of interest as

it helps with cognitive issues for me. On the otherhand I do think overviewing

has serious issues, as in too much of a variety.

With books, I am pretty much hopeless, I can still follow the plot is I read the

book daily, but after it is completed and shelved, I can remember that is was

either good, indifferent or bad and that is about all.

[Guest guest]

My most 'infamous' cognitive problem was attending a concert for the late,

great, one and only Ray and getting into an argument with a very good

friend about whether or not we had attended the concert the year before. I

SWORE that I had NOT been with her. This was before being dxed with CFIDS...now

I just joke around with people who aren't aware of my condition and refer to my

'moments'...(sarcasm implied) as OLDSHEIMERS!

[Guest guest]

Well, I did it again. Only worse. I was the one who began this

thread, venting about how I'd screwed up at work because of cognitive

problems. Yesterday, I screwed up REALLY BAD. I completely forgot.

Just plain FORGOT to do this particular part of my job. Thank

goodness I don't have a " real " job, I would've been fired for sure.

My assistant helped bail me out and we fixed the problem, just by the

skin of our teeth. Long story, and too complicated to get into. It

really worried me that I would just plumb forget, entirely, to do

something so important. I spoke to my assistant, and my boyfriend

(he owns the company), and we are taking steps for other people to

learn some parts of my job. They have all been used to me working

overtime for 20-plus years, and I can't even work a full day anymore,

let alone O/T. I do the work of at least three people, and have

never had a problem before, but I have reached my limit. I'm

physically incapable of doing what I used to do, and yesterday proved

it. I was SO profoundly disappointed in myself. But, I moved on,

and now I just have to cross-train some people so some of this can be

taken off my very full plate.

Thanks for letting me vent, yet again!

K2

>

> Isn't it odd - I also try to keep my cognitive problems hidden,

> pretending to remember conversations etc, yet it is a part of the

> illness, but when my brain gets called into question I get ashamed

and

> afraid of being judged.

>

>

[Guest guest]

Hi Miriam,

What a wonderful, understanding friend!

Debbie mcsbarrie

>

> LOL, yes. I turned 40 last Friday, and as a birthday present one of

> my closest friends (who has lupus) gave me a spoon - in a wooden box

> with a glass front, and a " break glass in case of emergency " printed

> on the front! It had me in tears!

>

> Miriam

>

> >********hee hee I like that! Have you read " The Spoon Theory "

>

[Guest guest]

Hi K2, isn't that the way of it...we just can't let go until it becomes insane,

THEN we make the necessary changes. I'm glad you are doing what you need to.

Take Care, Aylwin