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Unfortunately his comment about the " Hoffman Process " indicates that he see's

PSSD as a psychological problem.

>

>

> Oliver is a UK pychologist (PHD), radical journalist, and author.

> I wrote to him about PSSD two months ago giving him the link to the

> Stuart Shipko film and now he finally replied, and so it just goes to

> show that these people are too busy to write back and problably get tons

> of emails. Below is his reply. Yesterday I also wrote to another very

> radical journalist who campaigns about the environment, and asked him if

> he would send my post on to someone who might be able to make use of it

> if he can't. I expect he will do something with it.

>

> Dear Kaivey,

>

>

> I had no idea that the impact was long term. I knew about the severe

> effect while on the drugs but this is awful.

> I do hope that you find a way to escape the state – have you

> considered the Hoffman Process?

>

>

> All Best,

> Oliver

>

> Kaivey

>

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I sent Oliver some more stuff from our site about how devastaing PSSD

really is. As lots of people often go without sex for weeks at a time once they

have got used to the falling in love and romantic bit, I feel that many people

might think that loss of sex can't be really be so terrible. This is my only

explanation I can give for the lack of empathy I got on my ACT site about PSSD.

Anyway, Oliver say's he will publicise this if he can. I guess it is down to

newspaper editors what happens next and they might think the story is more

trouble than it is worth. It could be a massive story and if no one believes us,

or if psychaitry successfully dismisses it as nonsense, then an editor could

look foolish. But I reckon there is a good chance this will soon be out in the

press.

Kaivey

>

>

> Oliver is a UK pychologist (PHD), radical journalist, and author.

> I wrote to him about PSSD two months ago giving him the link to the

> Stuart Shipko film and now he finally replied, and so it just goes to

> show that these people are too busy to write back and problably get tons

> of emails. Below is his reply. Yesterday I also wrote to another very

> radical journalist who campaigns about the environment, and asked him if

> he would send my post on to someone who might be able to make use of it

> if he can't. I expect he will do something with it.

>

> Dear Kaivey,

>

>

> I had no idea that the impact was long term. I knew about the severe

> effect while on the drugs but this is awful.

> I do hope that you find a way to escape the state – have you

> considered the Hoffman Process?

>

>

> All Best,

> Oliver

>

> Kaivey

>

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Hope you can send him these links of evidence from university studies that PSSD is real:

http://www.ncbi.nlm.nih.gov/pubmed/18173768

http://onlinelibrary.wiley.com/doi/10.1111/j.1743-6109.2007.00630.x/pdf

http://psychrights.org/Research/Digest/SSRIs/PersistentSSRISexSideEffects.pdf

> >> > > > Oliver is a UK pychologist (PHD), radical journalist, and author.> > I wrote to him about PSSD two months ago giving him the link to the> > Stuart Shipko film and now he finally replied, and so it just goes to> > show that these people are too busy to write back and problably get tons> > of emails. Below is his reply. Yesterday I also wrote to another very> > radical journalist who campaigns about the environment, and asked him if> > he would send my post on to someone who might be able to make use of it> > if he can't. I expect he will do something with it.> > > > Dear Kaivey,> > > > > > I had no idea that the impact was long term. I knew about the severe> > effect while on the drugs but this is awful.> > I do hope that you find a way to escape the state – have you> > considered the Hoffman Process?> > > > > > All Best,> > Oliver> > > > Kaivey> >>

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How wrong could you be. How often have I said here that emotional health leads to physical health and I'm sure this is what Oliver meant. Emotional health means contentemnt, low levels of stress, happiness, good and meaningful relationships, etc. Combine this with plenty exercise, omega 3 (for me utra pure EPA), finding someone to love and fall in love with, getting excellent quality sleep, will all boost all the healing chemicals in your brain. And getting your stress chemicals down is mandatory.

In my newspaper today it stated how walking 9 miles per week increases the size of the brain and stops alcheimers disease. Exercise is a wonderful way to feel alive and my prefered physical activity is cycling. Alas, my adrenal exhasution is pretty bad and so I can only cycle for two miles at a time (to and from work).

My sex drive has been much higher for 5 days in a row now, and I'm looking forward to another go tonight. When it gets better like this it is so encouraging.

http://www.guardian.co.uk/education/2010/oct/13/walking-could-protect-brain-against-shrinking

Kaivey

> >> > > > Oliver is a UK pychologist (PHD), radical journalist, and author.> > I wrote to him about PSSD two months ago giving him the link to the> > Stuart Shipko film and now he finally replied, and so it just goes to> > show that these people are too busy to write back and problably get tons> > of emails. Below is his reply. Yesterday I also wrote to another very> > radical journalist who campaigns about the environment, and asked him if> > he would send my post on to someone who might be able to make use of it> > if he can't. I expect he will do something with it.> > > > Dear Kaivey,> > > > > > I had no idea that the impact was long term. I knew about the severe> > effect while on the drugs but this is awful.> > I do hope that you find a way to escape the state – have you> > considered the Hoffman Process?> > > > > > All Best,> > Oliver> > > > Kaivey> >>

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kaivey is it mostly men or women on your ACT site? I have received no true

sympathy from a single woman (not including women in this group), but I have

received real sympathy from some men. I am a woman myself by the way, and I'm

quite sure I would have been horrified if somebody had told me about this.

Oh wait - there is one woman who has given me sympathy. She also thanked me

because a small part of her was considering taking an SSRI and now she says she

never, ever, ever will.

> >

> >

> > Oliver is a UK pychologist (PHD), radical journalist, and author.

> > I wrote to him about PSSD two months ago giving him the link to the

> > Stuart Shipko film and now he finally replied, and so it just goes to

> > show that these people are too busy to write back and problably get tons

> > of emails. Below is his reply. Yesterday I also wrote to another very

> > radical journalist who campaigns about the environment, and asked him if

> > he would send my post on to someone who might be able to make use of it

> > if he can't. I expect he will do something with it.

> >

> > Dear Kaivey,

> >

> >

> > I had no idea that the impact was long term. I knew about the severe

> > effect while on the drugs but this is awful.

> > I do hope that you find a way to escape the state – have you

> > considered the Hoffman Process?

> >

> >

> > All Best,

> > Oliver

> >

> > Kaivey

> >

>

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At least the tabloids should be interested, because it is about sex and often

they don't care much about scientific proof. So first we have to approach the

tabloids. And we can approach internet radio stations and local radio stations.

> Anyway, Oliver say's he will publicise this if he can. I guess it is down to

newspaper editors what happens next and they might think the story is more

trouble than it is worth. It could be a massive story and if no one believes us,

or if psychaitry successfully dismisses it as nonsense, then an editor could

look foolish. But I reckon there is a good chance this will soon be out in the

press.

>

> Kaivey

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In a private individual conversation it is pretty safe for a psychiatrist to

tell his patient that PSSD doesn't exist. But I think that most psychiatrist

won't take the risk of stating that in public, if there are a number of

webforums and websites about PSSD.

And a newspaper can totally safely report about this PSSD patient group, without

claiming that our message is true.

" Kaivey " <akaivey@> wrote:

I guess it is down to newspaper editors what happens next and they might think

the story is more trouble than it is worth. It could be a massive story and if

no one believes us, or if psychaitry successfully dismisses it as nonsense, then

an editor could look foolish.

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I just sent the following email the depression research clinic at my university

to see if I can get them interested. I am hoping the fact that I am a graduate

student at the University will help them become more interested in the condition

or at least help me find someone who would be. We'll see.

Dear Depression Research Clinic,

I wanted to try and see if I could raise to your attention a problem related to

depression and SSRIs.

I am actually a graduate student here at Stanford in one of the biosciences

departments. I am hoping that fact may encourage you to take this email

seriously.

Anyhow, myself and many a large number of other people who have taken SSRIs

(http://health.groups.yahoo.com/group/SSRIsex/) have reported that the sexual

side effects of SSRIs continue after terminating the use of the drugs and

overcoming their depression. This condition has been termed Post-SSRI Sexual

Dysfunction. The symptoms are generally not the same as those from depression

induced sexual side effects (for example genital anesthesia, lack of morning

erections, inability to get normal erections even with the use of viagra, etc) .

I was hoping I could raise this to the attention of research based

psychiatrists. I was hoping to find someone interested in researching the

subject further. Many people suffering from this condition find it difficult

because when we talk to those in the medical community they often dismiss the

condition even though there are published studies noting its existence. I was

hoping now that we could find someone willing to do research on the causes and

maybe help us find a way to cure the disorder.

Here are some resources regarding the condition.

http://www.ncbi.nlm.nih.gov/pubmed/18173768

http://onlinelibrary.wiley.com/doi/10.1111/j.1743-6109.2007.00630.x/pdf

http://psychrights.org/Research/Digest/SSRIs/PersistentSSRISexSideEffects.pdf

http://www.sexsmartfilms.com/free-videos/libido-lost/ (video by a psychiatrist

discussing the condition)

If you are unable to help can you please help direct me to a psychiatry

researcher here at Stanford who would be interested in researching this further.

Thanks,

>

>

> Oliver is a UK pychologist (PHD), radical journalist, and author.

> I wrote to him about PSSD two months ago giving him the link to the

> Stuart Shipko film and now he finally replied, and so it just goes to

> show that these people are too busy to write back and problably get tons

> of emails. Below is his reply. Yesterday I also wrote to another very

> radical journalist who campaigns about the environment, and asked him if

> he would send my post on to someone who might be able to make use of it

> if he can't. I expect he will do something with it.

>

> Dear Kaivey,

>

>

> I had no idea that the impact was long term. I knew about the severe

> effect while on the drugs but this is awful.

> I do hope that you find a way to escape the state – have you

> considered the Hoffman Process?

>

>

> All Best,

> Oliver

>

> Kaivey

>

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I hope you're right Kaivey.

> > >

> > >

> > > Oliver is a UK pychologist (PHD), radical journalist, and

> author.

> > > I wrote to him about PSSD two months ago giving him the link to the

> > > Stuart Shipko film and now he finally replied, and so it just goes

> to

> > > show that these people are too busy to write back and problably get

> tons

> > > of emails. Below is his reply. Yesterday I also wrote to another

> very

> > > radical journalist who campaigns about the environment, and asked

> him if

> > > he would send my post on to someone who might be able to make use of

> it

> > > if he can't. I expect he will do something with it.

> > >

> > > Dear Kaivey,

> > >

> > >

> > > I had no idea that the impact was long term. I knew about the severe

> > > effect while on the drugs but this is awful.

> > > I do hope that you find a way to escape the state – have you

> > > considered the Hoffman Process?

> > >

> > >

> > > All Best,

> > > Oliver

> > >

> > > Kaivey

> > >

> >

>

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It seems to be equal. You have to remember that his is a ACT site and many

people who don't take medication are not interested in my posts about how

dangerous these drugs are. But this is a site where many people take medication

so I would have ignored these people but the people who do take medication hated

my message as well.

You can problably understand why they hated my message. All the warnings I put

out about these drugs here I have put out on my ACT site and they problably felt

that they might have made a terrible mistake by taking these things. The fact

that these drugs seem to cause chronic depression in most users, and manic

depression in 25% of the rest, is not what they want to hear, so they shoot the

messenger. They also hated it when I told them that therapy without drugs works

better than therapy with drugs, as Dr Burns states in his book, When Panic

Attacks.

Anyway, they could not beat me as I had all the facts, and all they had is what

their had doctors told them. After years and years of brain washing (Drug

company marketing) I come along with something that is the complete opposite of

what they had been told. But I also gave them real hope which they also did not

want hear- that they are not permanenlty stuck with a faulty biology and that

they can get better.

Kaivey

> > >

> > >

> > > Oliver is a UK pychologist (PHD), radical journalist, and author.

> > > I wrote to him about PSSD two months ago giving him the link to the

> > > Stuart Shipko film and now he finally replied, and so it just goes to

> > > show that these people are too busy to write back and problably get tons

> > > of emails. Below is his reply. Yesterday I also wrote to another very

> > > radical journalist who campaigns about the environment, and asked him if

> > > he would send my post on to someone who might be able to make use of it

> > > if he can't. I expect he will do something with it.

> > >

> > > Dear Kaivey,

> > >

> > >

> > > I had no idea that the impact was long term. I knew about the severe

> > > effect while on the drugs but this is awful.

> > > I do hope that you find a way to escape the state – have you

> > > considered the Hoffman Process?

> > >

> > >

> > > All Best,

> > > Oliver

> > >

> > > Kaivey

> > >

> >

>

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I have just sent everything I have to the Daily Mail (a UK tabloid). I hate the

paper and I have been avoiding this, but this crap tabloid loves these sort of

stories. This is problaby the most powerful email I have ever sent to anyone. If

nothing comes of it then you know the owner of the newspaper has loads of shares

in the drug companies, or the paper is worried about advertising sales.

Kaivey

> > Anyway, Oliver say's he will publicise this if he can. I guess it is down to

newspaper editors what happens next and they might think the story is more

trouble than it is worth. It could be a massive story and if no one believes us,

or if psychaitry successfully dismisses it as nonsense, then an editor could

look foolish. But I reckon there is a good chance this will soon be out in the

press.

> >

> > Kaivey

>

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Thanks for your initiative. You can repeat this email after two months, if you

get no reply. And after another month you can call the same person to whom you

have sent your emails and ask for an appointment in his office to discuss you

request. Make sure you won't be charged financially for such a conversation, if

that person also gives psychiatric consultations.

Adress your emails preferrably personally, to a specific person person that are

most likely to be responsible in this field. You can send the same email tot

different persons in one institute, if you can find their email adresses.

>

> I just sent the following email the depression research clinic at my

university to see if I can get them interested. I am hoping the fact that I am

a graduate student at the University will help them become more interested in

the condition or at least help me find someone who would be. We'll see.

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Great Kaivey. We should realize that we need endurance, before we reach the

tipping point that media will quote from each other about PSSD. Regard this as

an exciting adventure in which we are the action figures.

Maybe nineteen tabloids won't publish it yet, because they have lots of other

copy, and the twentieth will.

But they can read what we write about them in this Yahoo group, so we have to be

diplomatic and respectful to all parties involved. And we need to cooporate with

all of them! We simply cannot solve this problem on our own.

>

> I have just sent everything I have to the Daily Mail (a UK tabloid). I hate

the paper and I have been avoiding this, but this crap tabloid loves these sort

of stories. This is problaby the most powerful email I have ever sent to anyone.

If nothing comes of it then you know the owner of the newspaper has loads of

shares in the drug companies, or the paper is worried about advertising sales.

>

> Kaivey

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Great job . I would encourage you to tell them there are ~2,500 members

on this website rather than just " a large number " . That might be construed as

just 100 or 200. You might also point out that it is 2,500 people who were

fortunate enough to find this group. There are thousands and thousands more out

there that don't know anything about this group. I've had PSSD now for 2 years.

I only found this site less than 3 month ago and believe me I do a lot of

research on the topic daily. How many more PSSD sufferers are out there that

don't know about this group?

> >

> >

> > Oliver is a UK pychologist (PHD), radical journalist, and author.

> > I wrote to him about PSSD two months ago giving him the link to the

> > Stuart Shipko film and now he finally replied, and so it just goes to

> > show that these people are too busy to write back and problably get tons

> > of emails. Below is his reply. Yesterday I also wrote to another very

> > radical journalist who campaigns about the environment, and asked him if

> > he would send my post on to someone who might be able to make use of it

> > if he can't. I expect he will do something with it.

> >

> > Dear Kaivey,

> >

> >

> > I had no idea that the impact was long term. I knew about the severe

> > effect while on the drugs but this is awful.

> > I do hope that you find a way to escape the state – have you

> > considered the Hoffman Process?

> >

> >

> > All Best,

> > Oliver

> >

> > Kaivey

> >

>

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Does anybody know how to link this group to the Wiki article on PSSD? If you

google 'permanent sexual dysfunction,' the PSSD entry on wiki is listed right

away but does not easily connect to this group.

Also, we know people have reversed it and recovered, I just use 'permanent

sexual dysfunction' because that is the first term that I searched with when

looking for anybody else out there with this problem so I assume it is a common

choice.

It took me about 20-30 search terms before finally finding this group...

The important thing is that if people can get to the wiki entry, we should make

it easy for them to then find us...

>There are thousands and thousands more out there that don't know anything about

this group.

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There used to be a link at the bottom of the wiki page, but someone kept

removing it. You know, " it's against Wiki rules " blah blah blah..

Maybe I will put it back.

V

> >There are thousands and thousands more out there that don't know anything

about this group.

>

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Right now somebody has added the sentence, " This condition has not been

well-established or proven in the field of medicine. "

How about changing that to:

" This condition has not been well-established or tested in the field of

medicine, though a smattering of case studies, newspaper articles, and academic

presentations have addressed the issue in recent years.

Furthermore, the overwhelming number of reports of 'PSSD' come from anonymous

members of a yahoo group called 'ssrisex.' Of thousands of claims, there is

not one that is not entirely anecdotal. At this point in time the scientific

community does not have a method in place to substantiate the validity of this

condition in any way, and is largely skeptical of its existence. "

OKAY - so I made it sound sort of dismissive and of PSSD on purpose, so that at

least the yahoo group will be mentioned and that way anybody who KNOWS what has

happened to them will know where to look. Because that is the important thing.

What do you guys think about this edit? I have not changed anything yet.

> > >There are thousands and thousands more out there that don't know anything

about this group.

> >

>

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I dunno...why use language that appears to invalidate it further?

> > > >There are thousands and thousands more out there that don't know anything

about this group.

> > >

> >

>

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The yahoo group is prominently mentioned in this article, published in a peer

reviewed journal:

http://psychrights.org/research/Digest/SSRIs/PersistentSSRISexSideEffects.pdf

The article builds a case that PSSD is far more common than is capturable with

current research paradigms or reporting methods. Has anyone actually bothered to

read this article?

And the Csoka, Bahrick and Mehtonen case reports article is based on interviews

with three emmbers of THIS group.

> > > >There are thousands and thousands more out there that don't know anything

about this group.

> > >

> >

>

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Yes, I read it and also posted it here a few weeks back so it could be used by

others trying to contact the media. In addition, I spoke with Audrey Bahrick on

the phone. She sent me copies of two other articles she was involved with that

I also posted. She truly believes in the PSSD however she also knows we have a

tough road ahead of us in terms of getting the attention of the masses and

thinks trying to get reporters and journalists to write about it is the best way

to start. She suggested I get ahold of Whitaker who wrote the book

" Anatomy of an Epidemic " . (Someone else mentioned him on this board about a

week ago.) He is a journalist who is very much against psychiatric drugs. I am

trying to find a telephone number for him where I can call him and use her name

as a reference to hopefully get a call back. I don't want to email him blindly

since I imagine he gets tons of emails already.

In addition, I have been compiling a list of editors from some of the major US

news sources that I want to start contacting. Unfortunately it all takes time

so things aren't going as quickly as I'd hoped. I would really like to somehow

pool our efforts and devise some kind of press packet we can supply these folks

with that show the medical research that has been done to verify its " real " .

Right now we are all just trying to throw a bunch of " stuff " at the wall hoping

something will stick. We really need to work on some better kind of plan.

> > > > >There are thousands and thousands more out there that don't know

anything about this group.

> > > >

> > >

> >

>

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I sent Whitaker another email yesterday with a lot more information in it

which was more hard hitting than the last one I sent to him. I put in some real

life accounts of how horrible PSSD really is. In the last one I said that is was

not just about loss of sex drive, but also a loss of eroticism and sensuality.

Before I got PSSD dancing with a lovely woman would be charged with amazing

feelings which were not all just about sex, but also, wow! After PSSD dancing

with a women was as about as exciting as holding a cardbaord cut out and going

to parties or clubs has no special thrill because meeting a lovely women is

meaningless. So your your whole world becomes kind of dead with PSSD.

In the email I sent to yesterday I put in some real life disturbing

experiences of PSSD that I collected from this site. These are only extracts and

no names were given so I hope that is okay, which I'm sure it is. When I sent a

second email to Oliver putting in real life accounts it motivated him to

say that he will try to get the message out for us.

I also sent a load of stuff to the Independant Newsaper yesterday. They had this

front page story about how 'over the counter' (OTC) codienne with paracetomol

was causing addiction problems for many people, I told them this was nothing

campared to the trajedy of PSSD.

Kaivey

> > > > > >There are thousands and thousands more out there that don't know

anything about this group.

> > > > >

> > > >

> > >

> >

>

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Thank you. You are doing very important work. It would be handy if there would

also be a weblog with a well arranged easy-view summary of the main information

from this PSSD group. That weblog should be well organised in chapters and

paragraphs. Emails to journalists can than easily give a weblink to that weblog.

That summary in a weblog can be provisional and can gradually be made more

accurate and elaborate. And pictures can be added.

In my experience it is best to first send a clear email with good arguments, if

you want to convince an important stranger of a new idea. And if you don't want

to wait two months for a reply on that email, you can call this person after two

weeks, during office hours in his or her country. So mind the international time

differences.

If you call a journalist or scientist initially and unexpected, without emailing

him beforehand, there is a change that you get an immediate rejection, just

because you can come totally inconvenient for him at that specific time. And

than it is harder to follow up with an email.

I am trying to

find a telephone number for him where I can call him and use her name as a

reference to hopefully get a call back. I don't want to email him blindly since

I imagine he gets tons of emails already.

>

> In addition, I have been compiling a list of editors from some of the major US

news sources that I want to start contacting. Unfortunately it all takes time

so things aren't going as quickly as I'd hoped. I would really like to somehow

pool our efforts and devise some kind of press packet we can supply these folks

with that show the medical research that has been done to verify its " real " .

Right now we are all just trying to throw a bunch of " stuff " at the wall hoping

something will stick. We really need to work on some better kind of plan.

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Thank you. You are doing very important work. It would be handy if there would

also be a weblog with a well arranged easy-view summary of the main information

from this PSSD group. That weblog should be well organised in chapters and

paragraphs. Emails to journalists can than easily give a weblink to that weblog.

That summary in a weblog can be provisional and can gradually be made more

accurate and elaborate. And pictures can be added.

In my experience it is best to first send a clear email with good arguments, if

you want to convince an important stranger of a new idea. And if you don't want

to wait two months for a reply on that email, you can call this person after two

weeks, during office hours in his or her country. So mind the international time

differences.

If you call a journalist or scientist initially and unexpected, without emailing

him beforehand, there is a change that you get an immediate rejection, just

because you can come totally inconvenient for him at that specific time. And

than it is harder to follow up with an email.

I am trying to

find a telephone number for him where I can call him and use her name as a

reference to hopefully get a call back. I don't want to email him blindly since

I imagine he gets tons of emails already.

>

> In addition, I have been compiling a list of editors from some of the major US

news sources that I want to start contacting. Unfortunately it all takes time

so things aren't going as quickly as I'd hoped. I would really like to somehow

pool our efforts and devise some kind of press packet we can supply these folks

with that show the medical research that has been done to verify its " real " .

Right now we are all just trying to throw a bunch of " stuff " at the wall hoping

something will stick. We really need to work on some better kind of plan.

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Yes, I realized as soon as I posted that I made a mistake. I have read the

wiki article many times but for some reason last night the reference to the

yahoo group escaped me.

For some reason I thought that people were purposely trying to remove mention of

this group, and that the way to get them to leave it alone would be by

mentioning it in a dismissive way.

As I said, my thinking was completely wrong, and fortunately I did not edit

anything. PSSD should be addressed with the seriousness it deserves...

Back to my original intent, PSSD should be very easy to find on the internet for

anyone going through this, and the wiki article should lead people to this group

as easily as possible.

> > > > >There are thousands and thousands more out there that don't know

anything about this group.

> > > >

> > >

> >

>

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Yes, I realized as soon as I posted that I made a mistake. I have read the

wiki article many times but for some reason last night the reference to the

yahoo group escaped me.

For some reason I thought that people were purposely trying to remove mention of

this group, and that the way to get them to leave it alone would be by

mentioning it in a dismissive way.

As I said, my thinking was completely wrong, and fortunately I did not edit

anything. PSSD should be addressed with the seriousness it deserves...

Back to my original intent, PSSD should be very easy to find on the internet for

anyone going through this, and the wiki article should lead people to this group

as easily as possible.

> > > > >There are thousands and thousands more out there that don't know

anything about this group.

> > > >

> > >

> >

>

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