Re: Has anyone found anything helpful for sleep?

[Guest guest]

>

> I would appreciate any help the group can offer. Thank you!

> Sue

>

Hi Sue,

I have found Phenergan (Promethazine hydrochlor) & Piriton

(chlorpheniramine maleate)both sedative Antihistamines usefull.

Regards

Geraldine

[Guest guest]

An eyebag helps me get to sleep. It's like a small beanbag you can get in new

age/yoga type stores or make yrself.

blessings,

Paresh

http://home.earthlink.net/~sunmoonyoga/

[Guest guest]

My " Therapist " has me on " Trazodone " for sleep and it works wonders.....

Rhonda

[Guest guest]

--- of course do ensure that you have done some physical exercise

and try a device called the radial appliance ----and edgar cayce

invention

phil

In CFAlliance , " sb2boys " wrote:

>

> I would appreciate any help the group can offer. Thank you!

> Sue

>

[Guest guest]

ambien

Jeanette

Re: Has anyone found anything helpful for sleep?

>

> I would appreciate any help the group can offer. Thank you!

> Sue

>

Hi Sue,

I have found Phenergan (Promethazine hydrochlor) & Piriton

(chlorpheniramine maleate)both sedative Antihistamines usefull.

Regards

Geraldine

[Guest guest]

I'm way behind on the posts, due to a not-very-good week or two :>) However, it

does interest me that there are so many different " helps " for sleep...Proving (at

least to me) that each of us with this illness is so different.

I've finally decided to see a neurologist at the local sleep center. He was

recommended by my therapist. I haven't seen a neurologist since I was finally

diagnosed--12 yrs. ago. It will be interesting to see what he has to say.

Right now, I'm having trouble sleeping, alternating with sleeping too much...

All the best,

Theresa in TN

[Guest guest]

I am a chronic insomniac and have restless leg syndrome. I have been on many

medications but right now I am on Clonazepam and Amitryptaline. They seem to

be working well. My problem is most of the meds stay in my system too long

and I could barely wake up after 8 hours of sleep. Also, some natural Sleep

products help if your problems aren't severe. I use Sleep Blend SP-17 by

Soloray when I need to relax. Good Luck!

_____

From: CFAlliance [mailto:CFAlliance ] On

Behalf Of sb2boys

Sent: Sunday, July 30, 2006 5:03 PM

To: CFAlliance

Subject: Has anyone found anything helpful for sleep?

I would appreciate any help the group can offer. Thank you!

Sue

[Guest guest]

When I find something that helps me to sleep, I'll be sure to let this

board know.

Does everyone suffer from " restless leg syndrome " ????? It drives me

crazy but in addition to that I have involuntary jerks and movements

in the body, arms and hands now too!

Can anyone comment?

God Bless,

/Dutchie

[Guest guest]

hi

im on clonzepan for tremors i get them in arms and hands,

i take zoloft and norotryptyiline to sleep i get at least 4 or hours if i

forget to take it i get 2 hours if im lucky

[Guest guest]

I, too suffer from restless legs syndrome. It is my understanding that

this condition is common in people with CFS. My neurologist has

prescribed a drug called Requip, which you see advertised on TV a lot.

It's approved for RLS and it really works. I also take Mirapex and it

works, too. Both drugs were originally developed for Parkinson's, I

believe.

Don't continue to suffer, , there are drugs to help you. I know

what you're going through. I experience it as an overwhelming need to

move my legs. It sometimes starts in the afternoon if I'm trying to

relax or take a nap and in the evening and at bedtime. Anytime I'm

resting or trying to sleep. If I had to live with this, I'd go crazy.

I take 25 mg. of Requip at about 5:00 p.m. and 75mg. of Mirapex about

an hour before bedtime. It can be sedating, but you get used to it and

the effect lessens.

One possible problem with these drugs, I've heard, is that you can get

what's called " augmentation. " This is where the problem actually gets

worse because of the medication. However, my doctor said you can just

increase the dosage.

Call your neurologist tomorrow and ask about getting some relief.

[Guest guest]

I am a complete insomniac as well have sever problems with Anxiety and

Depression. I have been on many different meds for sleep because it was

impossible for me to find one that didn't make me sleep 12 hours at a time.

I tried lower doses but then couldn't get to sleep. After 2 horrid sleep

studies (I barely slept) they said I had restless leg syndrome. My doctor

prescribed Amitriptyline, 50 mg and Clonazepam, 1 mg. They seem to work well

together for me. It's very hard to find meds that work because everyone's

body is different.

I would be wary of any drug that made my problem worse! Just increasing the

dosage is not good! I know this because I was on Xanax for awhile and they

'Just increased the dosage' many times until I was so dependant on it I had

to come off it and go on something else. I had to take time off work when I

was 'coming off of it' because I could not sleep and was a mess!

Also, if it makes the problem worse is this permanent?

I believe my RLS may have been caused by one of the many Depression drugs I

was on that is now no longer prescribed because of so many lawsuits from the

ill side effects.

Definitely call your neurologist. Good Luck!

Alison

[Guest guest]

Hi,

I wanted to add is that finding a comfortable position in bed or anywhere

when the pain cycle hits is really hard.

So my husband decided that I needed comfort things in my life. : )

One of the 'comfort' things I have that helps is a special HUGE pillow that

cradles my body.

It's bigger than a normal body pillow & its U shaped so I can also lay on my

side & have my legs elevated.

I believe its made by leachco. My sleep has improved a lot with this.

Plus it's 1 pillow instead of 4 or 5.

Also- it helps me to have soothing scents around. I use a tea light candle

holder with soy candles of different scents.

I know those are not medical things- they help a lot. I hope some of these

ideas are of assistance to others.

With peace,

Debbi