Re: Dr.Goldstein's treatment

[Guest guest]

Ok the Goldstein we are talking about is Dr.Irvin Goldstein (San Diego Sexual Medicine) from San Diego, CA. Some folks from our forum started getting treatment from him (some directly and some with the help of their local practitioners who consulted Dr.Goldstein) and some have reported consistent improvements while on the medicine and some reported lasting improvements even after they quit the medications. His treatment mainly includes 1 or 2 dopamine agonists - like Dostinex/Amantadine and Chlomid - if your Testosterone is low, and Arimidex - if your Estrogen is high, etc etc. Basically if you can convince your primary physician to give you these medicines, then there's no reason why you need to go all the way to San Diego. Subject: Re: Dr.Goldstein's treatmentTo: SSRIsex Date: Friday, October 29, 2010, 8:23 PM

http://search.yahoo.com/search;_ylt=Am63zLzSZRKziH3wweT8FhuevZx4?p=%22Goldstein+Protocol%22 & toggle=1 & cop=mss & ei=UTF-8 & fr=yfp-t-892

> >

> > where can ik read 'Goldstein Protocol'?? that can i give to my doct...

[Guest guest]

I don't think there is a one size fits all protocol. I had called Dr. Goldstein

at one point. He'll do a free 15 minute assessment over the phone. Then you are

supposed to do a very extensive first exam with him. Some people have been

treated with dostinex/cabergoline when they have high prolactin. Others get

TRT. I don't know much beyond that.

You should go to his website: http://www.sandiegosexualmedicine.com/

You could contact him for more information if you like.

> > > > >

> > > > > Don't give up.

> > > > >

> > > > > Some of us have been dealing with this for years now (four years

myself), and we just don't know what will happen in each of our cases.

> > > > >

> > > > > I've been on the 'Goldstein Protocol' for several months now, and I

can honestly say, things are getting better. Slowly. Whether it's the passage of

time or the drugs or the placebo effect or the circumstances in my life or or or

- who can say? But things are getting better. My libido is back to a fairly

healthy level, I am back to having nocturnal erections and erotic dreams, I can

get and maintain erections, my sensation is improving, my orgasmic experience is

improving, I'm beginning to have physiological responses to visual stimuli...But

all of this is rather unpredictable. There are times when I have relatively

little sensation or physiological response. All I can say is that healing does

not appear to be a linear path...So try to hold on and be patient.

> > > > >

> > > > > I KNOW how frustrating and hopeless it can seem. Believe me, I have

wanted to end it all many, many, many times. I'm a gay man - relatively young -

32 years old. I spent all of my high school years avoiding sexuality while my

peers were experimenting and dating etc...throughout my twenties, I struggled to

reconcile my religious upbringing with my emerging and at the time shameful

desires for other men.

> > > > >

> > > > > I was in 'reparative' therapy to become straight punishing myself at

every turn for what came as naturally to me as breath. I was a very conflicted,

depressed young man. Most of my youth, when I was at my most attractive and

energetic, I was walking in circles trying to be something I was not - trying to

fix myself. Sabotaging potential relationships and running from any opportunity

for sexual fulfillment.

> > > > >

> > > > > When I finally got it all sorted out and accepted myself for who I am,

I went off my medications - only to have the sexuality I fought so hard for

obliterated and made obsolete by a limp, numb, unresponsive dick, muted orgasm,

and blunted libido. It's the height of existential cruelty - and has been very

hard to extinguish my anger and resentment and rise above it. That the

medications intended to rescue me from depression should make concrete a set of

depressing circumstances is ironic to say the least! (Even now, I can imagine a

contingent of individuals celebrating my PSSD as God's intervention in my

homosexual perversion...and that's just sad.)

> > > > >

> > > > > The thought of suicide is an old, old...friend - well, maybe not a

friend so much as a companion or familiar next-door neighbor who comes knocking

to borrow sugar more often than is welcome. I've learned to keep a bag of sugar

at the door and not chat long. As tempting as it has been to free myself of all

this pain and frustration, I must believe that things will work out. I cling to

the idea that when they do, that when it all comes together - I will have

achieved a great personal victory against incredible odds.

> > > > >

> > > > > So - I would say that in the midst of your discouragement - pull it

together. Remember that there are others who have gone before and who will come

after - and many, many of us alongside you. And your charge is to live on and

conjure hope in whatever way you can.

> > > > >

> > > > > I believe that hope itself - deliberate, disciplined optimism - is a

critical factor in healing. Thinking defeat, feeling failure, nurturing anger

and resentment, embracing hopelessness and despair - while completely justified,

are all counter-productive. At root, each of these emotions is a neurochemical

event and contributes to a personal neuropsychological culture which if

persistently indulged is a prescription to solidify your current state - perhaps

worsen it - rather than emerge from it in health and wholeness.

> > > > >

> > > > > Actively hoping, recognizing you are not alone, and having faith in

your body's ability to heal itself in time are as important as fish oil,

B-vitamins, testosterone, dostinex, filabanserin, or whatever the next trend in

PSSD treatment might be.

> > > > >

> > > > > That's all I got. Hang in there.

> > > > >

> > > > > sam

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[Guest guest]

It must be a different Goldstein. Check out the website:

http://www.sandiegosexualmedicine.com/?page=about-us/home

> > >

> > > ����� I had an initial phone consultation with Dr.Goldstein

couple of weeks ago and discussed my case with him (PSSD after using Sertraline

for 3 months). Also, mentioned to him about our yahoo group through which I came

to know about him.

> > > �������������� He said about 30/40 people came

to him for treatment and he claimed to have successfully treated some of them.

He said he could basically�categorize these people into 3 groups: those who

did not respond to treatment; those who continue taking the medication and see

relief of PSSD symptoms and those, who after using the medication for sometime,

were able to keep the gains from the treatment and hence no longer need the

meds.

> > > ������������ I know that there have atleast been

3/4 people in the last 3 months or so that started his treatment and started

getting better. Have there been cases that successfully recovered from his

treatment and no longer need the meds? Just the other day, someone wrote about

how he was able to get better from pssd by going back on Prozac plus Buspar. Its

been 1yr for me since the onset of PSSD and I'm getting desperate.

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> >

>

[Guest guest]

Is anyone aware of anyone with PSSD having any success with Goldstein?

> > > >

> > > > ����� I had an initial phone consultation with Dr.Goldstein

couple of weeks ago and discussed my case with him (PSSD after using Sertraline

for 3 months). Also, mentioned to him about our yahoo group through which I came

to know about him.

> > > > �������������� He said about 30/40 people

came to him for treatment and he claimed to have successfully treated some of

them. He said he could basically�categorize these people into 3 groups: those

who did not respond to treatment; those who continue taking the medication and

see relief of PSSD symptoms and those, who after using the medication for

sometime, were able to keep the gains from the treatment and hence no longer

need the meds.

> > > > ������������ I know that there have atleast been

3/4 people in the last 3 months or so that started his treatment and started

getting better. Have there been cases that successfully recovered from his

treatment and no longer need the meds? Just the other day, someone wrote about

how he was able to get better from pssd by going back on Prozac plus Buspar. Its

been 1yr for me since the onset of PSSD and I'm getting desperate.

> > > >

> > >

> >

>

[Guest guest]

Zoloft did you notice some improvements from last time?

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> > >

> > > I'm not too optimistic about filabanserin. It works like an

> > > antidepressant and takes weeks to be effective and this is where the

> > > danger lies. The brain is constantly fighting anything that tries to

> > > change its chemistry and if this keeps up for weeks, or months,

> > > eventually permanent, or semi-permnaent, changes to the brain can take

> > > place .

> >

>

[Guest guest]

Yes i have Dostinex!!!

[Guest guest]

I look forward to having news from you soon!

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> Yes i have Dostinex!!!

>

[Guest guest]

I have given my medical information from this forum and he Believes this is for

real and and he want to do everything to get me better! iam so happy.

> >

> > Yes i have Dostinex!!!

> >

>

[Guest guest]

i take it 2 times a week 0.5 pch

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> > > Yes i have Dostinex!!!

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[Guest guest]

That alone makes him better than most doctors. I went to a urologist today and

got the same old story. SSRIs couldn't cause this (even though I am a

geneticist and know that even if I had never heard of PSSD, theoretically I know

any drug could). He also didn't really say much for Soft Glans Syndrome which

is the main symptom I have in addition to reduced libido and sensation.

Goldstein has an open mind, something that is rare to find in a doctor sadly. I

just wish he wasn't so expensive.

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> > > Yes i have Dostinex!!!

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[Guest guest]

That attitude of doctors is quite disturbing and unscientific. Their reaction

should be: " PSSD caused bij an SSRI is not yet scientifically proven, but you

should report your story to the FDA (or other authority in other countries) " .

If enough PSSD reports are filed at the FDA, it is more likely that PSSD will be

investigated. So every member of this PSSD message board should report his PSSD

to the authority in his country that files side effect reports.

>

> That alone makes him better than most doctors. I went to a urologist today

and got the same old story. SSRIs couldn't cause this

[Guest guest]

thats my luck that the healtcare is for free here in the kingdom of the

Netherlans

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> > > > Yes i have Dostinex!!!

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[Guest guest]

does anyone know the right dosage?

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> > > > Yes i have Dostinex!!!

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[Guest guest]

I started using Arimidex for the elevated Estrogen levels and I've been feeling somewhat better. Erectile functioning is much better, but still there's no sensitivity. I'm thinking that I will probably try Indolplex DIM for controlling the Estrogen and limit the use of Arimidex. Also, I take Dostinex sometimes. Basically cycle Dostinex - use 0.5 mg per week for 3/4 weeks and stop for 2/3 weeks. Interesting thing with using Dostinex is that when I am on it, the erections are much better, but sensitivity is not better. But after coming off of Dostinex, I feel better for a few days before the effect goes away. In some cases, there is no permanent nerve damage or anything like that. Its probably much more complex and I don't konw what it is. All I know is this: I feel better occassionally and hope is that one day I would be able to recover. Good luck.--- On

Wed, 11/3/10, Clown senza trucco wrote:Subject: Re: Dr.Goldstein's treatmentTo: SSRIsex Date: Wednesday, November 3, 2010, 8:29 PM

Zoloft did you notice some improvements from last time?

> > >

> > >

> > > I'm not too optimistic about filabanserin. It works like an

> > > antidepressant and takes weeks to be effective and this is where the

> > > danger lies. The brain is constantly fighting anything that tries to

> > > change its chemistry and if this keeps up for weeks, or months,

> > > eventually permanent, or semi-permnaent, changes to the brain can take

> > > place .

> >

>

[Guest guest]

Start with 0.25mg x2 - per week and after a month increase it to 0.5 x2 if you are not seeing any effect.Subject: Re: Dr.Goldstein's treatmentTo: SSRIsex Date: Saturday, November 6, 2010, 6:26 PM

does anyone know the right dosage?

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> > > > Yes i have Dostinex!!!

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[Guest guest]

Iam now 1 week on Dostinex i see no improvement for how long should i try

this?

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> > > > > Yes i have Dostinex!!!

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[Guest guest]

For 1 month. I saw improvements in 2/3 weeks.Subject: Re: Dr.Goldstein's treatmentTo: SSRIsex Date: Thursday, November 11, 2010, 7:02 PM

Iam now 1 week on Dostinex i see no improvement for how long should i try this?

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> > > > > Yes i have Dostinex!!!

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[Guest guest]

And your libido is improving with time and treatement?

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> > > > I'm not too optimistic about filabanserin. It works like an

>

> > > > antidepressant and takes weeks to be effective and this is where the

>

> > > > danger lies. The brain is constantly fighting anything that tries to

>

> > > > change its chemistry and if this keeps up for weeks, or months,

>

> > > > eventually permanent, or semi-permnaent, changes to the brain can take

>

> > > > place .

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[Guest guest]

I dont really have issues with libido. My problem is numbness, lack of spontaneous erections and difficulty with erections.And I am yet to see a lasting improvement from the treatment.Subject: Re: Dr.Goldstein's treatmentTo: SSRIsex Date: Tuesday, November 16, 2010, 3:45 AM

And your libido is improving with time and treatement?

>

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>

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> > > > I'm not too optimistic about filabanserin. It works like an

>

> > > > antidepressant and takes weeks to be effective and this is where the

>

> > > > danger lies. The brain is constantly fighting anything that tries to

>

> > > > change its chemistry and if this keeps up for weeks, or months,

>

> > > > eventually permanent, or semi-permnaent, changes to the brain can take

>

> > > > place .

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[Guest guest]

Call me an idiot, but that's what i consider problems with libido...

I dont really have issues with libido. My problem is numbness, lack of spontaneous erections and difficulty with erections.And I am yet to see a lasting improvement from the treatment.Subject: Re: Dr.Goldstein's treatmentTo: SSRIsex Date: Tuesday, November 16, 2010, 3:45 AM

And your libido is improving with time and treatement?

>

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>

> > > >

>

> > > > I'm not too optimistic about filabanserin. It works like an

>

> > > > antidepressant and takes weeks to be effective and this is where the

>

> > > > danger lies. The brain is constantly fighting anything that tries to

>

> > > > change its chemistry and if this keeps up for weeks, or months,

>

> > > > eventually permanent, or semi-permnaent, changes to the brain can take

>

> > > > place .

>

> > >

>

> >

>

[Guest guest]

You can call ME an idiot too. It seems to me that if you have libido you are

able to get horny, but I can't imagine getting horny if you have genital

anesthesia. (I have not been horny in over 27 yrs, nor have I been able to feel

anything in my saddle area for that amount of time.)

I'm sure that the amount of damage varies for each individual in this group, so,

take heart, some of you WILL experience healing if you take good care of

yourselves. (I wouldn't go experimenting with MORE drugs though, if I were

you.)

If you listened to my interview on Watchdog Radio you may remember that the

first time I was given Haldol and Cogentin I WAS able to get significant sexual

arousal, about two years after discontinuing them...

(I remember a young man walked me home from a dance at the Old Town School of

Folk Music in Chicago, kissed me goodnight, and I FINALLY GOT HORNY AGAIN!!! I

was SO ELATED!!!)

The feelings were never to be quite as strong as they had been, but I DID go on

to marry and have two children before I once more became delusional from sleep

deprivation, was put on the same drugs again, and experienced permanent loss of

feeling after discontinuing them. One of the variables in MY particular case,

which I forgot to mention on the show, was that I was tandem nursing. I must

have had aLOT of prolactin in my system already. That may be why the damage was

so severe. I don't know.

'Wish I knew if there were others who could relate.

Kay

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> > > > > > I'm not too optimistic about filabanserin. It works like an

> > >

> > > > > > antidepressant and takes weeks to be effective and this is where the

> > >

> > > > > > danger lies. The brain is constantly fighting anything that tries to

> > >

> > > > > > change its chemistry and if this keeps up for weeks, or months,

> > >

> > > > > > eventually permanent, or semi-permnaent, changes to the brain can

take

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> > > > > > place .

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[Guest guest]

I may have said this before, but

you might want to get checked (MRI) for a Tarlov cyst in your

lower spine.  I have one.  No symptoms with me, but if it

presses on the "right" nerves, it can make you numb, make you

incontinent, make you -- well, let's just say doubly incontinent

-- and kill your sexuality.

Ann

 

You can call ME an idiot too. It seems to me that if you

have libido you are able to get horny, but I can't imagine

getting horny if you have genital anesthesia. (I have not

been horny in over 27 yrs, nor have I been able to feel

anything in my saddle area for that amount of time.)

I'm sure that the amount of damage varies for each

individual in this group, so, take heart, some of you WILL

experience healing if you take good care of yourselves. (I

wouldn't go experimenting with MORE drugs though, if I

were you.)

If you listened to my interview on Watchdog Radio you may

remember that the first time I was given Haldol and

Cogentin I WAS able to get significant sexual arousal,

about two years after discontinuing them...

(I remember a young man walked me home from a dance at the

Old Town School of Folk Music in Chicago, kissed me

goodnight, and I FINALLY GOT HORNY AGAIN!!! I was SO

ELATED!!!)

The feelings were never to be quite as strong as they had

been, but I DID go on to marry and have two children

before I once more became delusional from sleep

deprivation, was put on the same drugs again, and

experienced permanent loss of feeling after discontinuing

them. One of the variables in MY particular case, which I

forgot to mention on the show, was that I was tandem

nursing. I must have had aLOT of prolactin in my system

already. That may be why the damage was so severe. I don't

know.

'Wish I knew if there were others who could relate.

Kay

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> > > > > > I'm not too optimistic about

filabanserin. It works like an

> > >

> > > > > > antidepressant and takes

weeks to be effective and this is where the

> > >

> > > > > > danger lies. The brain is

constantly fighting anything that tries to

> > >

> > > > > > change its chemistry and if

this keeps up for weeks, or months,

> > >

> > > > > > eventually permanent, or

semi-permnaent, changes to the brain can take

> > >

> > > > > > place .

> > >

> > > > >

> > >

> > > >

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[Guest guest]

2 weeks on Dostinex i see no improvement. i will stay on for the nex 2 weeks.

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> > > > > > Yes i have Dostinex!!!

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[Guest guest]

Let's get this straight Ann.

You think that, after I lost my job in 1975, couldn't sleep for a week, became

delusional, and was on Haldol and Cogentin for about 4 mos, I might have

developed a cyst in my lower spine causing genital anesthesia for aprox 2 yrs?

Then, you think the cyst RE-EMERGED in 1981, about 1 mo after I gave birth at to

my second child, after experiencing more sleep dep because I was overworked and

couldn't get my children to sleep at the same time, and after becoming

delusional again and being forcibly injected with haldol? (This time I was on

haldol and cogentin for only about a week or so and after that I experienced

numbness for a couple of years. However, I remember that SOME of my feelings

started to come back.)

Finally, you think that, in 1983, after I flew to Chicago with both children to

try and help my father, who'd had a heart attack, after I couldn't sleep for

another week because my mother was hysterical and yelling at me, and after I

became delusional and was flown back to CA and injected with haldol again, this

cyst GREW BACK and caused me to be numb for more than 27 yrs!!!????? (This time

I was only on haldol and cogentin for three days, while I was in the hospital;

then, when I got home, I flushed it down the toilet!)

I don't think so...

Kay

PS Have you read my story on YouTube? If not, you can find it in the Database.

Click on " Personal Histories... " , and type in " Kay " in the search box.

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> > > > > > > > I'm not too optimistic about filabanserin. It works like an

> > > > >

> > > > > > > > antidepressant and takes weeks to be effective and this is where

the

> > > > >

> > > > > > > > danger lies. The brain is constantly fighting anything that

tries to

> > > > >

> > > > > > > > change its chemistry and if this keeps up for weeks, or months,

> > > > >

> > > > > > > > eventually permanent, or semi-permnaent, changes to the brain

can take

> > > > >

> > > > > > > > place .

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[Guest guest]

3 weeks on Dostinex i see no improvement

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> > > > > > > Yes i have Dostinex!!!

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