Re: CFS and Pelvic Floor Spasm

[Guest guest]

As my doctor said to me a few years ago, not all your ailments are from CFS. I

cannot see how, by any stretch of imagination or creativity, any possible

connection between a mechanical failure of the pelvic floor and CFS.

CFS and Pelvic Floor Spasm

I have Chronic Fatigue Syndrome and have recently been told that I

have pelvic floor spasm. I'm told that this is the reason for rectal

pain when I sit. They don't seem to be able to find any other cause

for the pain. Has anyone else been told they have PFS? I'm wondering

if this is yet another condition associaed with CFS. It seems there's

no end to the chronic problems associated with CFS. Arrrrgh!

[Guest guest]

I have never been diagnosed with that,but I sometimes feel like my insides are

gonna fall out, like a pulling down of my internal organs. I was dxd with CFIDS

7 years ago and I don't remember ever having that sensation before, not even

thru 3 pregnancies???

meridian6262 wrote: I have Chronic Fatigue

Syndrome and have recently been told that I

have pelvic floor spasm. I'm told that this is the reason for rectal

pain when I sit. They don't seem to be able to find any other cause

for the pain. Has anyone else been told they have PFS? I'm wondering

if this is yet another condition associaed with CFS. It seems there's

no end to the chronic problems associated with CFS. Arrrrgh!

Jane

[Guest guest]

possible muscle loss?

STL Jane

Engel wrote:

As my doctor said to me a few years ago, not all your ailments are

from CFS. I cannot see how, by any stretch of imagination or creativity, any

possible connection between a mechanical failure of the pelvic floor and CFS.

[Guest guest]

Meridian,

I agree with . You might want to investigate something called IC,

Interstitial Cystitis, not just cystitis, or a bladder infection. It's a rare

bladder disease that causes many painful symptoms and spasm, and pelvic floor

pain and spasm is one. Sometimes frequent and painful urination. The bladder

walls flake and peal off. What is causing the pelvic floor to spasm? They have

a web site. Try seeing a Neurologist, and ask the nurses if he/she has treated

IC. If they don't know what you're talking about, move on; don't waste your

time.

Engel wrote:

As my doctor said to me a few years ago, not all your ailments are

from CFS. I cannot see how, by any stretch of imagination or creativity, any

possible connection between a mechanical failure of the pelvic floor and CFS.

CFS and Pelvic Floor Spasm

I have Chronic Fatigue Syndrome and have recently been told that I

have pelvic floor spasm. I'm told that this is the reason for rectal

pain when I sit. They don't seem to be able to find any other cause

for the pain. Has anyone else been told they have PFS? I'm wondering

if this is yet another condition associaed with CFS. It seems there's

no end to the chronic problems associated with CFS. Arrrrgh!

[Guest guest]

Dear janel450: Thanks for your e-mail and so sorry to hear that you are

having these frustrating complications.

When this happened to me...felt just like you..pelvic floor feels like

something is falling out...and, in my case was...I asked my primary care

doctor....why is the uterus and bladder falling. Her reply was that it is common

after

pregnancy...some have it happen sooner or later, others have it never

happen. I was only pregnant once, with my son. It was a very hard delivery..but,

he

turned out healthy and handsome. With me, I had a long and slow recovery and

one of the many things diagnosed as a result of bearing..I had a spastic

colon. Today, the spastic colon is referred in many cases as IBS. Now, that I

have done 20 years of research into FM, producing and directing over 40 events,

8 of which were national conferences in Seattle, WA., I have learned so-o-o

much, but, I didn't learn enough until the fall of the pelvic floor. Even

though I had doctors who were specialists in their areas of pain....none had

figured out why I was having off and on burning and pelvic floor pain.

colonoscopies were done since...CT and Ultra Sounds were done....doctors

couldn't

figure it out. So-o-o, I ventured out to new doctors searching for better

answers....and, thank God...I ran into several younger female doctors who knew

what

it was and what to do.

I have learned that when we feel something is wrong....that something is

wrong! It is not time to worry....just a single to keep searching for a doctor

with the answers, so that you can get back to pain free and to living life in

comfort to enjoy your family and your dreams.

I am here for questions that you may have....to help you find the help you

need.

God Bless You and Yours, Hendricksen at Fibromyalgia Freedom House

in Sunny Seattle, WA.

[Guest guest]

I have Chronic

Fatigue Syndrome and have recently been told that I

> have pelvic floor spasm. I'm told that this is the reason for rectal

> pain when I sit. They don't seem to be able to find any other cause

> for the pain. Has anyone else been told they have PFS? I'm wondering

> if this is yet another condition associaed with CFS. It seems

there's

> no end to the chronic problems associated with CFS. Arrrrgh!

>

> Jane

>

In May of this year I had a hysterectomy and the bladder was pushed

up and placed on a netted hammack so to speak. During the operation,

the two doctors discovered a bulge protroding in the left area of the

wall. They said it didn't appear to be a tumor and I was sent to

specialists to discover that my bowel on the left side was inflammed

and torturously swollen with diagnosis of diverticulitis...ccolons

small pouches that bulge outward through weak spots, like an inner

tube that pokes through weak places in a tire. Also; CT's showed that

the left adrenal gland was swollen and inflammed, along with the left

kidney, which also showed a small cyst. I had complained to doctors

since the onset in 1998, of pelvic pain...it took my uterus and

bladder to start falling out (felt a bubble size ball at the vagina

opening...for a new doctor to send me to specialists. Yes, her

opinion was correct. So, now I feel great..took me since May to start

recovering. I no longer have FM pain...nor, the up and down moods

with fatigue of CFS. Write me if you like...God Bless Us All,

Hendricksen, Fibromyalgia Freedom House nonprofit/charity

fmcfs@...

[Guest guest]

I have Chronic

Fatigue Syndrome and have recently been told that I

> have pelvic floor spasm. I'm told that this is the reason for rectal

> pain when I sit. They don't seem to be able to find any other cause

> for the pain. Has anyone else been told they have PFS? I'm wondering

> if this is yet another condition associaed with CFS. It seems

there's

> no end to the chronic problems associated with CFS. Arrrrgh!

>

> Jane

>

In May of this year I had a hysterectomy and the bladder was pushed

up and placed on a netted hammack so to speak. During the operation,

the two doctors discovered a bulge protroding in the left area of the

wall. They said it didn't appear to be a tumor and I was sent to

specialists to discover that my bowel on the left side was inflammed

and torturously swollen with diagnosis of diverticulitis...ccolons

small pouches that bulge outward through weak spots, like an inner

tube that pokes through weak places in a tire. Also; CT's showed that

the left adrenal gland was swollen and inflammed, along with the left

kidney, which also showed a small cyst. I had complained to doctors

since the onset in 1998, of pelvic pain...it took my uterus and

bladder to start falling out (felt a bubble size ball at the vagina

opening...for a new doctor to send me to specialists. Yes, her

opinion was correct. So, now I feel great..took me since May to start

recovering. I no longer have FM pain...nor, the up and down moods

with fatigue of CFS. Write me if you like...God Bless Us All,

Hendricksen, Fibromyalgia Freedom House nonprofit/charity

fmcfs@...

[Guest guest]

I have Chronic

Fatigue Syndrome and have recently been told that I

> have pelvic floor spasm. I'm told that this is the reason for rectal

> pain when I sit. They don't seem to be able to find any other cause

> for the pain. Has anyone else been told they have PFS? I'm wondering

> if this is yet another condition associaed with CFS. It seems there's

> no end to the chronic problems associated with CFS. Arrrrgh!

>

> Jane

>

Hmmm...Sounds like some of the descriptions of PFS to me. You might

want to Google PFS and see what you get. That's where I learned most

of what I know about it. Certainly not from my doctor who is much too

busy to explain anything. I'm going to start physical therapy for the

condition soon, so we'll see if it helps. That's one of the main

treatments for it. From my doctor's description of the therapy, it

sounds like it has a pretty high humiliation factor. (

[Guest guest]

> As my doctor said to me a few years ago, not all your

ailments are from CFS. I cannot see how, by any stretch of imagination

or creativity, any possible connection between a mechanical failure of

the pelvic floor and CFS.

>

>

,

Yeah, my investigation on the web has a lot of information about PFS

and IC. However, I'm pretty sure I don't have IC. I don't have most of

the primary symptoms of it, but I have a friend who does and I

certainly wouldn't want to have it. I don't know what's causing the

spasm and my doc didn't say. The information I've gleaned from the web

has all sorts of theories about what causes it, stress being one of them.

[Guest guest]

>

> As my doctor said to me a few years ago, not all your ailments are

from CFS. I cannot see how, by any stretch of imagination or

creativity, any possible connection between a mechanical failure of

the pelvic floor and CFS.

>

,

I doubt it, too, but I was just checking to see if others had the

problem also. My understanding that the condition is more like a

" charley horse " than a failure of the muscles. Oh, well...

[Guest guest]

Thank you so much - I was beginning to think I was crazy. Would my gyno be the

person to see?

STL (St. Louis) Jane

fmcfs@... wrote:

Dear janel450: Thanks for your e-mail and so sorry to hear that you

are

having these frustrating complications.

When this happened to me...felt just like you..pelvic floor feels like

something is falling out...and, in my case was...I asked my primary care

doctor....why is the uterus and bladder falling. Her reply was that it is common

after

pregnancy...some have it happen sooner or later, others have it never

happen. I was only pregnant once, with my son. It was a very hard delivery..but,

he

turned out healthy and handsome.

[Guest guest]

Your gyno would be the person to see. The condition is known as

" Cystocele " ... enter it into your browser for more details. The best

description I've read (with signs and alternatives in treatment) can

be found at: http://www.mayoclinic.com/health/cystocele/DS00665

How do I know? Got it! Its terribly uncomfortable, but not terribly

uncommon as we get into our late 30s and above.

Peri

>

> Thank you so much - I was beginning to think I was crazy. Would my

gyno be the person to see?

>

[Guest guest]

> >

> > Thank you so much - I was beginning to think I was crazy. Would my

> gyno be the person to see?

> >

>

My gynecologist is the first person I visited and she didn't detect a

cystocele. I do have a rectocele, but she and the colorectal surgeon

say this wouldn't be causing my pain. My gynecologist thought my

rectal pain was referred pain from my back (I have several herniated

discs). It was a colorectal surgeon who diagnosed the pelvic floor

spasm after a colonoscopy. I have an appointment next week with a

physical therapist for treatment. Apparently this is the preferred

treatment for this. I'll let you know if this works.