Guest guest Posted April 30, 2010 Report Share Posted April 30, 2010 sharon.begley (at) newsweek. com (I have to type it like this or it won't display) > > > > > > I went ahead and e-mailed Sharon Begley Friday morning. I know I expressed some reservations about e-mailing her in a previous posting to this blog--so that's why I thought I should inform people that I went ahead anyhow. > > > > > > The e-mail address I used didn't contain my real name--but, I am hoping she will accept it anyhow. > > > > > > In my letter to Ms. Begley I told yer it was okay to contact me using that e-mail address. > > > > > > I have not received an e-mail from Ms. Begley acknowledging my letter. > > > > > > I hope others will send her an e-mail to encourage her to investigate PSSD--and, if you do may I suggest that you include in your e-mail why you think your PSSD is due to SSRI and not psychological in origin--any circumstantial evidence such as time lines and if you were having normal sex prior to developing PSSD--and especially if you were able to have normal sex prior to PSSD while very depressed--to show her that you could still function sexually in past even though you were struggling with some mental/emotional problems. I say this because I expect Ms. Begley will here psychiatrists/ psychologists try to convince her that our PSSD is a manifestation of some psychological pathology and not due to the medication we took. > > > > > > Its been my experience that psychiatry over uses the " its probably psychological " and that this is a diagnoses that can never be proved and is not based on scientific evidence--but, instead is a diagnoses by default--and this diagnoses can also be used to give patients the shuffle--what I mean is to get rid of a patients whose health circumstances are inconvenient. Has anyone ever heard of someone who was told their ache or pain was psychological who was later diagnosed with a serious physical illness--I think this happens all the time. I think when a doctor gives a diagnoses that a physical complaint is really psychological that they have no scientific evidence to back that up--no tests, etc.--and, that they either don't have a clue whats wrong with you but don't want to admit that--or, they know your problem is probably physical in origin--but, they find your health problem inconvenient to pursue helping--so they will try to get rid of you by > > > saying its probably psychological- -and refer you to a mental health professional- -who will not dispute its psychological. Has anyone ever heard of a mental health professional telling a patient their complaints are not psychological and are instead physical--I don't think that happens very often--I think psychiatry would claim all illnesses are psychological if they could get away with it. I think much of psychiatry is based on conjecture and speculation and can't be backed up with empirical-scientifi c evidence.  However, I admit there may be some die hard psychiatrists out there who really believe some patients can experience physical illness that is influenced by ones environmental influences-- and I have to admit that don't totally disbelieve that can happen--but, I still believe that doctors have no proven method of determining which patients with physical illnesses have organic-physical causes and which are caused by environmental > > stresses. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2010 Report Share Posted April 30, 2010 Here you go: http://www.newsweek.com/id/232781 Contact her if you haven't yet also. I think she will actually cover it. > > > > I went ahead and e-mailed Sharon Begley Friday morning. I know I expressed some reservations about e-mailing her in a previous posting to this blog--so that's why I thought I should inform people that I went ahead anyhow. > > > > The e-mail address I used didn't contain my real name--but, I am hoping she will accept it anyhow. > > > > In my letter to Ms. Begley I told yer it was okay to contact me using that e-mail address. > > > > I have not received an e-mail from Ms. Begley acknowledging my letter. > > > > I hope others will send her an e-mail to encourage her to investigate PSSD--and, if you do may I suggest that you include in your e-mail why you think your PSSD is due to SSRI and not psychological in origin--any circumstantial evidence such as time lines and if you were having normal sex prior to developing PSSD--and especially if you were able to have normal sex prior to PSSD while very depressed--to show her that you could still function sexually in past even though you were struggling with some mental/emotional problems. I say this because I expect Ms. Begley will here psychiatrists/ psychologists try to convince her that our PSSD is a manifestation of some psychological pathology and not due to the medication we took. > > > > Its been my experience that psychiatry over uses the " its probably psychological " and that this is a diagnoses that can never be proved and is not based on scientific evidence--but, instead is a diagnoses by default--and this diagnoses can also be used to give patients the shuffle--what I mean is to get rid of a patients whose health circumstances are inconvenient. Has anyone ever heard of someone who was told their ache or pain was psychological who was later diagnosed with a serious physical illness--I think this happens all the time. I think when a doctor gives a diagnoses that a physical complaint is really psychological that they have no scientific evidence to back that up--no tests, etc.--and, that they either don't have a clue whats wrong with you but don't want to admit that--or, they know your problem is probably physical in origin--but, they find your health problem inconvenient to pursue helping--so they will try to get rid of you by > > saying its probably psychological- -and refer you to a mental health professional- -who will not dispute its psychological. Has anyone ever heard of a mental health professional telling a patient their complaints are not psychological and are instead physical--I don't think that happens very often--I think psychiatry would claim all illnesses are psychological if they could get away with it. I think much of psychiatry is based on conjecture and speculation and can't be backed up with empirical-scientifi c evidence.  However, I admit there may be some die hard psychiatrists out there who really believe some patients can experience physical illness that is influenced by ones environmental influences-- and I have to admit that don't totally disbelieve that can happen--but, I still believe that doctors have no proven method of determining which patients with physical illnesses have organic-physical causes and which are caused by environmental > stresses. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2010 Report Share Posted April 30, 2010 Have any of you, ever sent an e-mail and didn't receive a reply--only to worry about whether or not it was received, by the intended recipient? It has been 7 days, since I sent my e-mail, to Ms. Begley, at Newsweek magazine--and, I have not received a reply from her. So, I have attached a copy of that letter bellow--in case anyone is interested. If someone can find a reason in my letter--for why she might not have acknowledged it--please let me know. Could the e-mail address that I used to send that letter to Ms. Begley be incorrect?ShaunFrom: Shaun Reilly Subject: I have permanent sexual dysfunction from ssri-anti-depressant medication.To: sharon.begley@...Date: Friday, April 23, 2010, 9:10 AM To: Sharon Begley, Newsweek Magazine Dear Ms. Begley, I understand you may be interested in learning about people who have experienced sexual dysfunctions from anti-depressant medications that did not go away after they stopped taking the medication--which is being called: Post SSRI Anti-Depressant Sexual Dysfunction [PSSD]. I learned this from a posting by on a blog site devoted to this syndrome. I understand from ’s postings that he has e-mailed you and that you have e-mailed him back. He put your e-mail address on his recent posting on this blog site—and, I hope his posting were correct in the way they suggest you might be interested in this subject and that you would be okay with being contacted by people who have this syndrome. I suffer from this condition that is being called: Post SSRI Anti-Depressant Sexual Dysfunction [PSSD]--which began about 6 years ago in 2004—so, I have been off the anti-depressant that caused it for about 6 years. You are probably wondering why I blame the anti-depressant for my sexual dysfunctions. I am a middle aged male and never experienced such sexual dysfunctions prior to a couple years ago. I had a very consistent and reliable sexual experience history leading up until my PSSD began a couple years ago. My sexual dysfunctions started out with extreme sensitivity and extremely premature ejaculation--all while I was taking the anti-depressants—and, then a few months after I quit taking the anti-depressants I experienced a shift to the other extreme--where I could not feel pleasure or any feeling of impending ejaculation—and, I could no longer ejaculate—not even from trying abnormally longer amounts of stimulation than I ever needed previously. I searched for several years in libraries and on the internet before I found this yahoo blog site where the people were describing symptoms identical to my own—but, I was previously not able to find in old medical books any references to such a combination of sexual dysfunctions that I and the others on this blog site are reporting. One of the few doctors to have published an article on the subject—a doctor Audrey Bahrick—points out in her journal article that doctors should be aware that these type of sexual dysfunctions were not known to medical science prior to the introduction of SSRI anti-depressant medications—which she says contradicts the common dismissal explanations that many have received by their doctors that their symptoms must be psychological—but, if psychological disorders can cause the symptoms of PSSD—then why isn’t it published prior to the introduction of anti-depressants? Dr. Audrey Bahrick also includes in her journal article a reference to several medical studies done by/for testing the benefit of anti-depressants to treat men suffering from premature ejaculation. Apparently doctors have found that by making fine adjustments in the dosage of an anti-depressant they can modulate the time it takes a man to achieve ejaculation along with using other techniques in combination. But, what I found most interesting from these studies is that the men in the study where asked to report whether they continued to experience any of the perceived improvements 6 months after they stopped taking the anti-depressant—and about 34 out of 126 men reported some continued changes in their sexual function. And, she sites another study by different doctors where it found similar results. Is this not compelling evidence that anti-depressants are capable of causing some lasting effects on a mans sexuality long after they have stopped taking the treatment-medication—so, why shouldn’t one extrapolate that the medicine can cause other sexual effects that don’t go away after the medicine is stopped—in both men and women? And why isn’t this effect being researched more? By the way--Doctor Audrey Bahrick is the clinical director of the University of Iowa Student Psychology Services. And Dr. Bahricks article I refer to above can be found by going on the internet to: http://bentham.org/open/topsyj/openaccess2.htm And then use this web sites search feature to go to: open psychology journal And then scroll down till you find her article titled: Persistence of sexual dysfunction side effects after discontinuation of antidepressant medications: Emerging evidence. I just heard about the following internet address to go to a video where a doctor discusses PSSD—its impressive: http://www.sexsmartfilms.com/free-videos/libido-lost/ Oh, before I forget it I have read your article titled: The Depressing News about Antidepressants. So, you might find it interesting that I have tried about ten different anti-depressants on off for about 25 years now and at no time did I experience any noticeable improvement in my mood from taking them—not even a placebo effect. And, although I have never met you—I appreciate you’re writing this article and can respect anyone who has the courage to risk alienating both the pharmaceutical industry and psychiatric industry. I wish someone would have provide me the information contained in your article over 25 years ago—so, I would not have wasted so much on treatments that had so little chance of helping me. I wasn’t told that the sexual side effects of the SSRI anti-depressants I have taken could continue long after I stopped taking them or be permanent. I don’t know whether my doctors new this or not—but, I would think that the drug companies and the FDA probably new from having complaints channeled to them—especially since some SSRI’s have been in use for about 25 years now. I have tried to get medical attention for my sexual dysfunction from: urologists, psychiatrists, and neurologists—but, none have indicated they were aware that SSRI’s anti-depressants could cause permanent sexual dysfunctions. I suspect that a majority of those with this affliction are either reluctant to talk to their doctor about it or if they do are automatically dismissed with doctor assuming their condition is psychological—not giving any consideration that it could be the medication. So, that’s why it would be very helpful for someone like you to investigate “Post SSRI Anti-Depressant Sexual Dysfunction [PSSD]â€â€”because I don’t see either the FDA or the drug manufactures doing any investigations—not unless they feel pressured to do so by wide spread public pressure from the exposure someone like your self could bring to this matter. The manufacturers of anti-depressants could stand to loose billions if they were to publicly admit to PSSD—and, psychiatrist could loose half of their practice if they were to stop using anti-depressants so I don’t see either doing any investigations or informing their patients of the potential for permanent sexual dysfunctions from anti-depressants. This affliction has made my life miserable and causes me to think life is not worth living. Can you imagine how many people may be suffering like me and how they all are suffering in isolation because they are not aware of others like me and are being dismissed by their doctors just like I am? And, what percentage is afraid to mention it to their doctor because of embarrassment. Thank you for your time in reading my letter. I hope you will pursue this issue and help get the truth out in a way that the public can access it. By the way I am reluctant to reveal my name to you or give you so much detail of my affliction that my doctors could extrapolate from it who I am—should my story get out in the public—but, I felt it important to at least contact you to let you know there are more sufferers than —and, so I hope you appreciate that this affliction is so painful to me that I am motivated to contact you despite my apprehension due to the sensitive subject. But you may contact me using the same e-mail address that I used to send this letter to you. 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Guest guest Posted April 30, 2010 Report Share Posted April 30, 2010 The letter sounds great to me. She could just be very busy. I would wait a week and try resending, if you have not received a response. Have any of you, ever sent an e-mail and didn't receive a reply--only to worry about whether or not it was received, by the intended recipient? It has been 7 days, since I sent my e-mail, to Ms. Begley, at Newsweek magazine--and, I have not received a reply from her. So, I have attached a copy of that letter bellow--in case anyone is interested. If someone can find a reason in my letter--for why she might not have acknowledged it--please let me know. Could the e-mail address that I used to send that letter to Ms. Begley be incorrect? Shaun Subject: I have permanent sexual dysfunction from ssri-anti-depressant medication. To: sharon.begley@...Date: Friday, April 23, 2010, 9:10 AM To: Sharon Begley, Newsweek Magazine Dear Ms. Begley, I understand you may be interested in learning about people who have experienced sexual dysfunctions from anti-depressant medications that did not go away after they stopped taking the medication--which is being called: Post SSRI Anti-Depressant Sexual Dysfunction [PSSD]. I learned this from a posting by on a blog site devoted to this syndrome. I understand from ’s postings that he has e-mailed you and that you have e-mailed him back. He put your e-mail address on his recent posting on this blog site—and, I hope his posting were correct in the way they suggest you might be interested in this subject and that you would be okay with being contacted by people who have this syndrome. I suffer from this condition that is being called: Post SSRI Anti-Depressant Sexual Dysfunction [PSSD]--which began about 6 years ago in 2004—so, I have been off the anti-depressant that caused it for about 6 years. You are probably wondering why I blame the anti-depressant for my sexual dysfunctions. I am a middle aged male and never experienced such sexual dysfunctions prior to a couple years ago. I had a very consistent and reliable sexual experience history leading up until my PSSD began a couple years ago. My sexual dysfunctions started out with extreme sensitivity and extremely premature ejaculation--all while I was taking the anti-depressants—and, then a few months after I quit taking the anti-depressants I experienced a shift to the other extreme--where I could not feel pleasure or any feeling of impending ejaculation—and, I could no longer ejaculate—not even from trying abnormally longer amounts of stimulation than I ever needed previously. I searched for several years in libraries and on the internet before I found this yahoo blog site where the people were describing symptoms identical to my own—but, I was previously not able to find in old medical books any references to such a combination of sexual dysfunctions that I and the others on this blog site are reporting. One of the few doctors to have published an article on the subject—a doctor Audrey Bahrick—points out in her journal article that doctors should be aware that these type of sexual dysfunctions were not known to medical science prior to the introduction of SSRI anti-depressant medications—which she says contradicts the common dismissal explanations that many have received by their doctors that their symptoms must be psychological—but, if psychological disorders can cause the symptoms of PSSD—then why isn’t it published prior to the introduction of anti-depressants? Dr. Audrey Bahrick also includes in her journal article a reference to several medical studies done by/for testing the benefit of anti-depressants to treat men suffering from premature ejaculation. Apparently doctors have found that by making fine adjustments in the dosage of an anti-depressant they can modulate the time it takes a man to achieve ejaculation along with using other techniques in combination. But, what I found most interesting from these studies is that the men in the study where asked to report whether they continued to experience any of the perceived improvements 6 months after they stopped taking the anti-depressant—and about 34 out of 126 men reported some continued changes in their sexual function. And, she sites another study by different doctors where it found similar results. Is this not compelling evidence that anti-depressants are capable of causing some lasting effects on a mans sexuality long after they have stopped taking the treatment-medication—so, why shouldn’t one extrapolate that the medicine can cause other sexual effects that don’t go away after the medicine is stopped—in both men and women? And why isn’t this effect being researched more? By the way--Doctor Audrey Bahrick is the clinical director of the University of Iowa Student Psychology Services. And Dr. Bahricks article I refer to above can be found by going on the internet to: http://bentham.org/open/topsyj/openaccess2.htm And then use this web sites search feature to go to: open psychology journal And then scroll down till you find her article titled: Persistence of sexual dysfunction side effects after discontinuation of antidepressant medications: Emerging evidence. I just heard about the following internet address to go to a video where a doctor discusses PSSD—its impressive: http://www.sexsmartfilms.com/free-videos/libido-lost/ Oh, before I forget it I have read your article titled: The Depressing News about Antidepressants. So, you might find it interesting that I have tried about ten different anti-depressants on off for about 25 years now and at no time did I experience any noticeable improvement in my mood from taking them—not even a placebo effect. And, although I have never met you—I appreciate you’re writing this article and can respect anyone who has the courage to risk alienating both the pharmaceutical industry and psychiatric industry. I wish someone would have provide me the information contained in your article over 25 years ago—so, I would not have wasted so much on treatments that had so little chance of helping me. I wasn’t told that the sexual side effects of the SSRI anti-depressants I have taken could continue long after I stopped taking them or be permanent. I don’t know whether my doctors new this or not—but, I would think that the drug companies and the FDA probably new from having complaints channeled to them—especially since some SSRI’s have been in use for about 25 years now. I have tried to get medical attention for my sexual dysfunction from: urologists, psychiatrists, and neurologists—but, none have indicated they were aware that SSRI’s anti-depressants could cause permanent sexual dysfunctions. I suspect that a majority of those with this affliction are either reluctant to talk to their doctor about it or if they do are automatically dismissed with doctor assuming their condition is psychological—not giving any consideration that it could be the medication. So, that’s why it would be very helpful for someone like you to investigate “Post SSRI Anti-Depressant Sexual Dysfunction [PSSD]”—because I don’t see either the FDA or the drug manufactures doing any investigations—not unless they feel pressured to do so by wide spread public pressure from the exposure someone like your self could bring to this matter. The manufacturers of anti-depressants could stand to loose billions if they were to publicly admit to PSSD—and, psychiatrist could loose half of their practice if they were to stop using anti-depressants so I don’t see either doing any investigations or informing their patients of the potential for permanent sexual dysfunctions from anti-depressants. This affliction has made my life miserable and causes me to think life is not worth living. Can you imagine how many people may be suffering like me and how they all are suffering in isolation because they are not aware of others like me and are being dismissed by their doctors just like I am? And, what percentage is afraid to mention it to their doctor because of embarrassment. Thank you for your time in reading my letter. I hope you will pursue this issue and help get the truth out in a way that the public can access it. By the way I am reluctant to reveal my name to you or give you so much detail of my affliction that my doctors could extrapolate from it who I am—should my story get out in the public—but, I felt it important to at least contact you to let you know there are more sufferers than —and, so I hope you appreciate that this affliction is so painful to me that I am motivated to contact you despite my apprehension due to the sensitive subject. But you may contact me using the same e-mail address that I used to send this letter to you. 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Guest guest Posted May 1, 2010 Report Share Posted May 1, 2010 I have written quite a lot to professionals and more often than not I don't get reply. These prominent people are very busy with huge mail bags and just can't reply to everyone. I have so far always got a reply from Irvin Kirsch, author of The Antidepresssant Myth, but it is very brief and he usually say's no more than, 'thanks for that, Kaivey', and that's about it. I would have loved to have got into a dialogue with him and spoke more in detail about PSSD, but that's how it is. Polly Toynbee of the Guardian always replies to me but it is usually no more than a 'thanks'. It must be very hard replying to all those emails. Jay ph, author of the Gene Myth usually replies to me as well but he didn't last time. I sent him the Dr Shipko video but I never asked him a question, I just sent him the link. If you are sensitive, like me, you might feel if as you have said something wrong but it isn't like that. Just think yourself lucky if you get a reply. Kaivey > > > Subject: I have permanent sexual dysfunction from > ssri-anti-depressant medication. > To: sharon.begley@... > Date: Friday, April 23, 2010, 9:10 AM > > > > > > To: Sharon Begley,                                    Â\                               > > >       Newsweek > Magazine > >  > >  > > Dear Ms. Begley, > >  > > I understand you may be interested in learning about people > who have experienced sexual dysfunctions from anti-depressant medications that > did not go away after they stopped taking the medication--which is being > called: Post SSRI Anti-Depressant Sexual > Dysfunction [PSSD]. I learned this from > a posting by on a blog site devoted to this syndrome. I understand from ’s postings that he > has e-mailed you and that you have e-mailed him back. He put your e-mail address on his recent > posting on this blog site†" and, I hope his posting were correct in the way they > suggest you might be interested in this subject and that you would be okay with > being contacted by people who have this syndrome. > >  > > I suffer from this condition that is being called: Post SSRI Anti-Depressant Sexual Dysfunction > [PSSD]--which began about 6 years ago in 2004†" so, I have been off the > anti-depressant that caused it for about 6 years. > >  > > You are probably wondering why I blame the anti-depressant > for my sexual dysfunctions. I am a > middle aged male and never experienced such sexual dysfunctions prior to a > couple years ago. I had a very consistent > and reliable sexual experience history leading up until my PSSD began a couple > years ago. My sexual dysfunctions > started out with extreme sensitivity and extremely premature ejaculation--all > while I was taking the anti-depressants†" and, then a few months after I quit > taking the anti-depressants I experienced a shift to the other extreme--where I > could not feel pleasure or any feeling of impending ejaculation†" and, I could no > longer ejaculate†" not even from trying abnormally longer amounts of stimulation > than I ever needed previously. I searched > for several years in libraries and on the internet before I found this yahoo > blog site where the people were describing symptoms identical to my own†" but, I > was previously not able to find in old medical books any references to such a > combination of sexual dysfunctions that I and the others on this blog site are > reporting.  One of the few doctors to > have published an article on the subject†" a doctor Audrey Bahrick†" points out in > her journal article that doctors should be aware that these type of sexual dysfunctions > were not known to medical science prior to the introduction of SSRI > anti-depressant medications†" which she says contradicts the common dismissal explanations > that many have received by their doctors that their symptoms must be > psychological†" but, if psychological disorders can cause the symptoms of > PSSD†" then why isn’t it published prior to the introduction of anti-depressants? > > >  > > Dr. Audrey Bahrick also includes in her journal article a > reference to several medical studies done by/for testing the benefit of > anti-depressants to treat men suffering from premature ejaculation. Apparently doctors have found that by making > fine adjustments in the dosage of an anti-depressant they can modulate the time > it takes a man to achieve ejaculation along with using other techniques in > combination. But, what I found most > interesting from these studies is that the men in the study where asked to > report whether they continued to experience any of the perceived improvements 6 > months after they stopped taking the anti-depressant†" and about 34 out of 126 > men reported some continued changes in their sexual function.  And, she sites another study by different > doctors where it found similar results.  Is this not compelling evidence that > anti-depressants are capable of causing some lasting effects on a mans > sexuality long after they have stopped taking the treatment-medication†" so, why > shouldn’t one extrapolate that the medicine can cause other sexual effects that > don’t go away after the medicine is stopped†" in both men and women? And why isn’t this effect being researched > more? > >  > > By the way--Doctor Audrey Bahrick is the clinical director > of the University of Iowa Student Psychology Services. > >  > > And Dr. Bahricks article I refer to above can be found by > going on the internet to: http://bentham.org/open/topsyj/openaccess2.htm > >  > > And then use this web sites search feature to go to: open psychology journal > >  > > And then scroll down till you find her article titled: Persistence of sexual dysfunction side > effects after discontinuation of antidepressant medications: Emerging > evidence. > >  > > I just heard about the following internet address to go to a > video where a doctor discusses PSSD†" its impressive: http://www.sexsmartfilms.com/free-videos/libido-lost/ > > >  > > Oh, before I forget it I have read your article titled: The Depressing News about > Antidepressants. So, you might find it > interesting that I have tried about ten different anti-depressants on off for > about 25 years now and at no time did I experience any noticeable improvement > in my mood from taking them†" not even a placebo effect. And, although I have never met you†" I > appreciate you’re writing this article and can respect anyone who has the > courage to risk alienating both the pharmaceutical industry and psychiatric > industry. I wish someone would have > provide me the information contained in your article over 25 years ago†" so, I > would not have wasted so much on treatments that had so little chance of > helping me. > >  > > I wasn’t told that the sexual side effects of the SSRI > anti-depressants I have taken could continue long after I stopped taking them > or be permanent. I don’t know whether my > doctors new this or not†" but, I would think that the drug companies and the FDA > probably new from having complaints channeled to them†" especially since some > SSRI’s have been in use for about 25 years now. > > >  > > I have tried to get medical attention for my sexual > dysfunction from: urologists, psychiatrists, > and neurologists†" but, none have indicated they were aware that SSRI’s > anti-depressants could cause permanent sexual dysfunctions.  I suspect that a majority of those with this > affliction are either reluctant to talk to their doctor about it or if they do > are automatically dismissed with doctor assuming their condition is > psychological†" not giving any consideration that it could be the medication. > >  > > So, that’s why it would be very helpful for someone like you > to investigate “Post SSRI Anti-Depressant Sexual Dysfunction [PSSD]â€â€ " because I > don’t see either the FDA or the drug manufactures doing any investigations†" not > unless they feel pressured to do so by wide spread public pressure from the > exposure someone like your self could bring to this matter. The manufacturers of anti-depressants could > stand to loose billions if they were to publicly admit to PSSD†" and, > psychiatrist could loose half of their practice if they were to stop using > anti-depressants so I don’t see either doing any investigations or informing > their patients of the potential for permanent sexual dysfunctions from > anti-depressants. > >  > > This affliction has made my life miserable and causes me to > think life is not worth living. Can you imagine how many people may be > suffering like me and how they all are suffering in isolation because they are > not aware of others like me and are being dismissed by their doctors just like > I am? And, what percentage is afraid to > mention it to their doctor because of embarrassment. > >  > > Thank you for your time in reading my letter. I hope you will pursue this issue and help > get the truth out in a way that the public can access it. > >  > > By the way I am reluctant to reveal my name to you or give > you so much detail of my affliction that my doctors could extrapolate from it > who I am†" should my story get out in the public†" but, I felt it important to at > least contact you to let you know there are more sufferers than †" and, so > I hope you appreciate that this affliction is so painful to me that I am > motivated to contact you despite my apprehension due to the sensitive subject. > >  > > But you may contact me using the same e-mail address that I > used to send this letter to you. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 Shaun, Thanks for your thoughtful input. You seem intelligent and wise and you may be very valuable in our allied fight against PSSD. You can very well use a fictious name in such an email about PSSD. You could explain in that email why you are using such a nickname, if you like. Or you can mention that later if a frequent email communication would result. That frequent communication is not very likely though, since important authors and journalists are very busy persons. You could use your nickname from this Yahoo-group or use another nickname. And you can use an anonymous webmail (email) adress at www.gmail.com. That is free and safe. I would recommend to send a first email with a maximum of 400 words. You can explain more if the person responds. You don't have to use the phone if you don't feel safe about your privacy, with the possible chance of being voice recorded. Write friendly, respectful, constructive and informative. Don't use that email as a way to widely vent your anger and despair, but help the journalist/author to write a successful publication with impact. Respect his commercial interests as an author or scientist. If the journalist doesn't respond, your email was no spilled effort, because he might yet have read your email very well. And you can send the same text to hundreds of journalists, tv-producers, pharmacological researchers, psychiatrists, politicians, internet forums etc. in many countries. Contacting relevant persons is the only hope that some day research will be done about PSSD. That research may result in a cure and in more restraint in prescription of SSRIs, esp. for children. Step forward. Send your mail. Do it for the millions of children, in all nations. Big pharma is hypnotizing the world with false fairytails. We have the gloomy ominous knowledge about PSSD. We have the moral obligation to help spreading this grim reality. > So, I have been contemplating, contacting her by e-mail. > But, I would not be comfortable revealing my real name Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 Has anyone heard anything more about Sharon Begley--a senior editor at Newsweek Magazine--that originaly posted about--that some people were hopefull she might consider investigating PSSD--for possibly writting an article for her magazine? I seem to recal somthing about some reorganization and/or some financial problems, on the television news a while back, regarding Newsweek Magazine.Shaun Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2010 Report Share Posted June 16, 2010 Millions of patients should never be prescribed antidepressants, scientists say http://www.naturalnews.com/029004_antidepressants_patients.html (NaturalNews) Roughly half the population should never be prescribed antidepressant drugs because they are only likely to become more depressed, according to a new study conducted by researchers from Columbia University and the New York State Psychiatric Institute and published in the journal Neuron.Scientists have known for some time that antidepressant drugs only work in about half of patients. Research has discovered that although the drugs are designed to raise circulating levels of the neurotransmitter chemical serotonin in the brain, they actually produce the opposite effect in large numbers of people."The more antidepressants try to increase serotonin production, the less serotonin [they] actually produce," researcher Rene Hen said.An estimated 11 percent of U.S. women and 5 percent of men in non-institutionalized settings are currently taking antidepressants.Genetic and brain imaging studies have led some scientists to believe that the explanation for this effect lies in the actual make up of the brain, specifically in the numbers of 1A serotonin receptors found in the raphe neurons deep in the brain's center. Although higher numbers of these receptors on raphe neurons are correlated with decreased responsiveness to antidepressants, scientists have had trouble testing the hypothesis directly.In the new study, scientists genetically engineered mice to contain either high or low numbers of 1A receptors in their raphe neurons. They found that in mice with higher levels of receptors, antidepressants actually lowered serotonin levels rather than lowering them -- consistent with the effect seen in people whose bodies resist the drugs. The researchers then lowered the number of receptors in these mice and re-tested them. The mice then became responsive to the drugs."By simply tweaking the number of receptors down, we were able to transform a non-responder into a responder," Hen said.Rather than suggesting that antidepressant use be scaled back, however, Hen and colleagues expressed eagerness to find ways to suppress the activity of some of the 1A neurons in the raphe receptors of people who are resistant to the drugs, so that everyone can be treated with them equally.Sources for this story include: http://www.telegraph.co.uk/health/healthnews/6981217/Millions-of-patients-should-not-be-prescribed-antidepressants.html http://www.sciencedaily.com/releases/2010/01/100113122303.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2010 Report Share Posted June 16, 2010 She emailed me a few months back that her company was laying off staff and restructuring due to the recession and that she did not have permission to cover the story right now. When her company is stable again she will try to get permission to cover the story. I'm dissapointed that I have not heard anymore but I don't like to pester professionals especially when they uually very busy and have huge mailbags. I thought I would ask her again in 3 months time which would mean that would 6 months since I last contacted her. If anything new comes up about PSSD that we find in the meantime I will be send it to her. That Dr Stuart Shipko film has been a godsend, I must of sent it to about 30 diferent professianls by now. I recently sent it to Dr Basant K. Puri, who pioneered research on brain regeneration, omega 3 EPA, and depression. I was hoping he would come back with some good news but I heard nothing. I wish have kept a record of who I have posted the video to. Kaivey > > Has anyone heard anything more about > > Sharon Begley--a senior editor at Newsweek Magazine--that originaly posted about--that some people were hopefull she might consider investigating PSSD--for possibly writting an article for her magazine? I seem to recal somthing about some reorganization and/or some financial problems, on the television news a while back, regarding Newsweek Magazine. > > Shaun > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2010 Report Share Posted November 9, 2010 Hi Kaivey, 'Just wanted you to know I had your request bookmarked for some time, had forgotten it, but went ahead and did what you asked today. Here is the message I emailed to Ms. Begley: Hi Again Sharon, Someone from the SSRIsex support group asked if I would send you this link. In it Dr. Stuart Shipko says that sexual side effects from SSRIs are more common than previously reported and may not always resolve once the medication has been discontinued: http://www.sexsmartfilms.com/free-videos/libido-lost/ You can also watch this same video on YouTube and see the comment I made, and his response to it. I hope this is a help to you. Sincerely, > > > > > > > > > > > > > > > > recently posted, on this blog site, about > > > > his contacting Sharon Begley, a Senior Editor, at Newsweek > > > > magazine. He has suggested that it could be helpful, for > raising > > > > awareness about PSSD, that others might also consider contacting > her, to tell about > > > > their PSSD experiences. > > > > > > > > > > > > > > > > So, I have been contemplating, contacting her by e-mail. > > > > > > > > > > > > > > > > But, I would not be comfortable revealing my real name--should > doing so put me > > > > at risk, of public exposure--as I don't want the general public to > know I have > > > > a sexual dysfunction and I don't want people to know I received > treatment for a > > > > psychological problem-- as I fear embarrassment and ridicule and > possible > > > > employment discrimination. > > > > > > > > > > > > > > > > So, do you think communicating anonymously, using my fictitious > name, that I > > > > use for this blog site, would be helpful? Or, will she not > trust my > > > > information, if it’s sent anonymously? Will I be just > wasting my effort? > > > > > > > > > > > > > > > > > > > > Will the News Week reporter want the option of talking on > phone--another > > > > opportunity for risk of public exposure†" such as from caller > I.D. or from voice > > > > recognition--should my voice be recorded and then played back in a > venue that is > > > > public? > > > > > > > > > > > > > > > > I hesitated to post on this blog site for a long time--even with > the use of a fictitious > > > > name in my e-mail address. I guess it’s because I am > not used to discussing > > > > issues of sexual nature in a public forum. It took a long > time--telling > > > > myself no one will know who you are--and, that it could be > important to help > > > > with awareness as to how many are suffering†" and, it might be > helpful to let > > > > others know there are others with this affliction. > > > > > > > > > > > > > > > > So, what do you think about my e-mail the report at News Week > magazine? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010 Great stuff, . Actually soon after I asked you about this I contacted Sharon myself but she said her newspaper was going through too much change at the time for her to write something about PSSD. Anyhow, your reminder about this condition might get her interestd again. This could be a huge story for any paper brave enough to publish it. One day soon someone will print it. Kaivey > > > > > > > > > > > > > > > > > > > > recently posted, on this blog site, about > > > > > his contacting Sharon Begley, a Senior Editor, at Newsweek > > > > > magazine. He has suggested that it could be helpful, for > > raising > > > > > awareness about PSSD, that others might also consider contacting > > her, to tell about > > > > > their PSSD experiences. > > > > > > > > > > > > > > > > > > > > So, I have been contemplating, contacting her by e-mail. > > > > > > > > > > > > > > > > > > > > But, I would not be comfortable revealing my real name--should > > doing so put me > > > > > at risk, of public exposure--as I don't want the general public to > > know I have > > > > > a sexual dysfunction and I don't want people to know I received > > treatment for a > > > > > psychological problem-- as I fear embarrassment and ridicule and > > possible > > > > > employment discrimination. > > > > > > > > > > > > > > > > > > > > So, do you think communicating anonymously, using my fictitious > > name, that I > > > > > use for this blog site, would be helpful? Or, will she not > > trust my > > > > > information, if it’s sent anonymously? Will I be just > > wasting my effort? > > > > > > > > > > > > > > > > > > > > > > > > > Will the News Week reporter want the option of talking on > > phone--another > > > > > opportunity for risk of public exposure†" such as from caller > > I.D. or from voice > > > > > recognition--should my voice be recorded and then played back in a > > venue that is > > > > > public? > > > > > > > > > > > > > > > > > > > > I hesitated to post on this blog site for a long time--even with > > the use of a fictitious > > > > > name in my e-mail address. I guess it’s because I am > > not used to discussing > > > > > issues of sexual nature in a public forum. It took a long > > time--telling > > > > > myself no one will know who you are--and, that it could be > > important to help > > > > > with awareness as to how many are suffering†" and, it might be > > helpful to let > > > > > others know there are others with this affliction. > > > > > > > > > > > > > > > > > > > > So, what do you think about my e-mail the report at News Week > > magazine? > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010 Sharon doesn't have to write an article herself. She can use an existing text about PSSD. > > Great stuff, . > > Actually soon after I asked you about this I contacted Sharon myself but she said her newspaper was going through too much change at the time for her to write something about PSSD. Anyhow, your reminder about this condition might get her interestd again. This could be a huge story for any paper brave enough to publish it. One day soon someone will print it. > > Kaivey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010 Someone suggested that, when we send the link to Dr. Shipko's video, we also send people the links to a couple of articles about SSRIs and sexual dysfunction. I don't seem to be able to find those links. Did you by any chance send them to Ms. Begley? Kay > > > > > > > > > > > > > > > > > > > > > > > > recently posted, on this blog site, about > > > > > > his contacting Sharon Begley, a Senior Editor, at Newsweek > > > > > > magazine. He has suggested that it could be helpful, for > > > raising > > > > > > awareness about PSSD, that others might also consider contacting > > > her, to tell about > > > > > > their PSSD experiences. > > > > > > > > > > > > > > > > > > > > > > > > So, I have been contemplating, contacting her by e-mail. > > > > > > > > > > > > > > > > > > > > > > > > But, I would not be comfortable revealing my real name--should > > > doing so put me > > > > > > at risk, of public exposure--as I don't want the general public to > > > know I have > > > > > > a sexual dysfunction and I don't want people to know I received > > > treatment for a > > > > > > psychological problem-- as I fear embarrassment and ridicule and > > > possible > > > > > > employment discrimination. > > > > > > > > > > > > > > > > > > > > > > > > So, do you think communicating anonymously, using my fictitious > > > name, that I > > > > > > use for this blog site, would be helpful? Or, will she not > > > trust my > > > > > > information, if it’s sent anonymously? Will I be just > > > wasting my effort? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Will the News Week reporter want the option of talking on > > > phone--another > > > > > > opportunity for risk of public exposure†" such as from caller > > > I.D. or from voice > > > > > > recognition--should my voice be recorded and then played back in a > > > venue that is > > > > > > public? > > > > > > > > > > > > > > > > > > > > > > > > I hesitated to post on this blog site for a long time--even with > > > the use of a fictitious > > > > > > name in my e-mail address. I guess it’s because I am > > > not used to discussing > > > > > > issues of sexual nature in a public forum. It took a long > > > time--telling > > > > > > myself no one will know who you are--and, that it could be > > > important to help > > > > > > with awareness as to how many are suffering†" and, it might be > > > helpful to let > > > > > > others know there are others with this affliction. > > > > > > > > > > > > > > > > > > > > > > > > So, what do you think about my e-mail the report at News Week > > > magazine? > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2010 Report Share Posted November 11, 2010 I sent them to her when I first contacted her. The articles can be accessed in the database section. > > > > > > > > > > > > > > > > > > > > > > > > > > > > recently posted, on this blog site, about > > > > > > > his contacting Sharon Begley, a Senior Editor, at Newsweek > > > > > > > magazine.� He has suggested that it could be helpful, for > > > > raising > > > > > > > awareness about PSSD, that others might also consider contacting > > > > her, to tell about > > > > > > > their PSSD experiences. > > > > > > > > > > > > > > > > > > > > > > > > > > > > So, I have been contemplating, contacting her by e-mail. > > > > > > > > > > > > > > > > > > > > > > > > > > > > But, I would not be comfortable revealing my real name--should > > > > doing so put me > > > > > > > at risk, of public exposure--as I don't want the general public to > > > > know I have > > > > > > > a sexual dysfunction and I don't want people to know I received > > > > treatment for a > > > > > > > psychological problem-- as I fear embarrassment and ridicule and > > > > possible > > > > > > > employment discrimination. > > > > > > > > > > > > > > > > > > > > > > > > > > > > So, do you think communicating anonymously, using my fictitious > > > > name, that I > > > > > > > use for this blog site, would be helpful?� Or, will she not > > > > trust my > > > > > > > information, if it’s sent anonymously?� Will I be just > > > > wasting my effort?� > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Will the News Week reporter want the option of talking on > > > > phone--another > > > > > > > opportunity for risk of public exposure� " such as from caller > > > > I.D. or from voice > > > > > > > recognition--should my voice be recorded and then played back in a > > > > venue that is > > > > > > > public? > > > > > > > > > > > > > > > > > > > > > > > > > > > > I hesitated to post on this blog site for a long time--even with > > > > the use of a fictitious > > > > > > > name in my e-mail address.� I guess it’s because I am > > > > not used to discussing > > > > > > > issues of sexual nature in a public forum.� It took a long > > > > time--telling > > > > > > > myself no one will know who you are--and, that it could be > > > > important to help > > > > > > > with awareness as to how many are suffering� " and, it might be > > > > helpful to let > > > > > > > others know there are others with this affliction. > > > > > > > > > > > > > > > > > > > > > > > > > > > > So,� what do you think about my e-mail the report at News Week > > > > magazine? > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2010 Report Share Posted November 11, 2010 All I saw in the Database section were " Frequently Asked Questions " and " Personal Histories... " . I think one of the links might have been this one: http://psychrights.org/Research/Digest/SSRIs/PersistentSSRISexSideEffects.pdf ....and the other might have been the Wiki article: http://en.wikipedia.org/wiki/Post-SSRI_sexual_dysfunction Are these the ones you sent, or were there other ones? Maybe someone else remembers the post (I think I had it bookmarked but accidentally deleted it). I would like to have a good list in order to send them to any other people who might be able to help us get the word out in some way. Kay > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > recently posted, on this blog site, about > > > > > > > > his contacting Sharon Begley, a Senior Editor, at Newsweek > > > > > > > > magazine.� He has suggested that it could be helpful, for > > > > > raising > > > > > > > > awareness about PSSD, that others might also consider contacting > > > > > her, to tell about > > > > > > > > their PSSD experiences. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > So, I have been contemplating, contacting her by e-mail. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > But, I would not be comfortable revealing my real name--should > > > > > doing so put me > > > > > > > > at risk, of public exposure--as I don't want the general public to > > > > > know I have > > > > > > > > a sexual dysfunction and I don't want people to know I received > > > > > treatment for a > > > > > > > > psychological problem-- as I fear embarrassment and ridicule and > > > > > possible > > > > > > > > employment discrimination. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > So, do you think communicating anonymously, using my fictitious > > > > > name, that I > > > > > > > > use for this blog site, would be helpful?� Or, will she not > > > > > trust my > > > > > > > > information, if it’s sent anonymously?� Will I be just > > > > > wasting my effort?� > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Will the News Week reporter want the option of talking on > > > > > phone--another > > > > > > > > opportunity for risk of public exposure� " such as from caller > > > > > I.D. or from voice > > > > > > > > recognition--should my voice be recorded and then played back in a > > > > > venue that is > > > > > > > > public? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I hesitated to post on this blog site for a long time--even with > > > > > the use of a fictitious > > > > > > > > name in my e-mail address.� I guess it’s because I am > > > > > not used to discussing > > > > > > > > issues of sexual nature in a public forum.� It took a long > > > > > time--telling > > > > > > > > myself no one will know who you are--and, that it could be > > > > > important to help > > > > > > > > with awareness as to how many are suffering� " and, it might be > > > > > helpful to let > > > > > > > > others know there are others with this affliction. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > So,� what do you think about my e-mail the report at News Week > > > > > magazine? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 In later correspondence I sent her 6 of the medical journal articles, a link to the youtube video, a link to the group, and some other things. Recently I was in touch with Audrey Bahrick, one of the authors of a few of the articles in the database. She was also going to email Sharon Begley. I don't know what happened with that. Newsweek isn't doing to hot, due to the internet. I know some people mentioned that she may not be able to write on it. She did to an article pretty critical on SSRIs though. If we had got the info to her before that she may have included something, but I don't think she wants to publish a whole article just on this. Its too bad, a Newsweek cover story that then spoke about PSSD would really have helped our cause. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > recently posted, on this blog site, about > > > > > > > > > his contacting Sharon Begley, a Senior Editor, at Newsweek > > > > > > > > > magazine.� He has suggested that it could be helpful, for > > > > > > raising > > > > > > > > > awareness about PSSD, that others might also consider contacting > > > > > > her, to tell about > > > > > > > > > their PSSD experiences. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > So, I have been contemplating, contacting her by e-mail. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > But, I would not be comfortable revealing my real name--should > > > > > > doing so put me > > > > > > > > > at risk, of public exposure--as I don't want the general public to > > > > > > know I have > > > > > > > > > a sexual dysfunction and I don't want people to know I received > > > > > > treatment for a > > > > > > > > > psychological problem-- as I fear embarrassment and ridicule and > > > > > > possible > > > > > > > > > employment discrimination. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > So, do you think communicating anonymously, using my fictitious > > > > > > name, that I > > > > > > > > > use for this blog site, would be helpful?� Or, will she not > > > > > > trust my > > > > > > > > > information, if it’s sent anonymously?� Will I be just > > > > > > wasting my effort?� > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Will the News Week reporter want the option of talking on > > > > > > phone--another > > > > > > > > > opportunity for risk of public exposure� " such as from caller > > > > > > I.D. or from voice > > > > > > > > > recognition--should my voice be recorded and then played back in a > > > > > > venue that is > > > > > > > > > public? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I hesitated to post on this blog site for a long time--even with > > > > > > the use of a fictitious > > > > > > > > > name in my e-mail address.� I guess it’s because I am > > > > > > not used to discussing > > > > > > > > > issues of sexual nature in a public forum.� It took a long > > > > > > time--telling > > > > > > > > > myself no one will know who you are--and, that it could be > > > > > > important to help > > > > > > > > > with awareness as to how many are suffering� " and, it might be > > > > > > helpful to let > > > > > > > > > others know there are others with this affliction. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > So,� what do you think about my e-mail the report at News Week > > > > > > magazine? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 We should start with small ambitions like small local newspapers and local radio and tv stations, internet radio stations, patient websites, university websites, student club websites, etc. Than we can refer to those former publications. That will convince the bigger media in te end. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > recently posted, on this blog site, about > > > > > > > > > > his contacting Sharon Begley, a Senior Editor, at Newsweek > > > > > > > > > > magazine.� He has suggested that it could be helpful, for > > > > > > > raising > > > > > > > > > > awareness about PSSD, that others might also consider contacting > > > > > > > her, to tell about > > > > > > > > > > their PSSD experiences. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > So, I have been contemplating, contacting her by e-mail. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > But, I would not be comfortable revealing my real name--should > > > > > > > doing so put me > > > > > > > > > > at risk, of public exposure--as I don't want the general public to > > > > > > > know I have > > > > > > > > > > a sexual dysfunction and I don't want people to know I received > > > > > > > treatment for a > > > > > > > > > > psychological problem-- as I fear embarrassment and ridicule and > > > > > > > possible > > > > > > > > > > employment discrimination. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > So, do you think communicating anonymously, using my fictitious > > > > > > > name, that I > > > > > > > > > > use for this blog site, would be helpful?� Or, will she not > > > > > > > trust my > > > > > > > > > > information, if it’s sent anonymously?� Will I be just > > > > > > > wasting my effort?� > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Will the News Week reporter want the option of talking on > > > > > > > phone--another > > > > > > > > > > opportunity for risk of public exposure� " such as from caller > > > > > > > I.D. or from voice > > > > > > > > > > recognition--should my voice be recorded and then played back in a > > > > > > > venue that is > > > > > > > > > > public? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I hesitated to post on this blog site for a long time--even with > > > > > > > the use of a fictitious > > > > > > > > > > name in my e-mail address.� I guess it’s because I am > > > > > > > not used to discussing > > > > > > > > > > issues of sexual nature in a public forum.� It took a long > > > > > > > time--telling > > > > > > > > > > myself no one will know who you are--and, that it could be > > > > > > > important to help > > > > > > > > > > with awareness as to how many are suffering� " and, it might be > > > > > > > helpful to let > > > > > > > > > > others know there are others with this affliction. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > So,� what do you think about my e-mail the report at News Week > > > > > > > magazine? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 > > We should start with small ambitions like small local newspapers and local radio and tv stations, internet radio stations, patient websites, university websites, student club websites, etc. Than we can refer to those former publications. That will convince the bigger media in te end. hi everyone, i have been watching all the conversations for awhile now. I have been watching people discuss getting publicity and wonder if any have heard of a group called Mindfreedom International. I think they might actually be affiliated with PsychRights (sp?) which i also think I have seen mentioned here before. anyway they are fairly influential and they are having an international event tomorrow where people call call in or ask questions. I am passing this along, in case anyone here wants to call in and ask mention this issue. hope this isn't inappropriate. im not trying to advertise anything, Im just forwarding the info as i received it.. http://www.mindfreedom.org/radio - reminder In less than 24 hours! Saturday, 13 November 2010 at 2 pm ET MADPRIDE LIVE RADIO HOUR -- free by web, phone or Skype Guests are all activists who personally experienced the mental health system: Celia Brown, Tenney, Pat Risser, Ed Knight. At 2 pm ET tomorrow, Saturday, go here: http://www.blogtalkradio.com/davidwoaks Call-in number can be used again just to listen: . You can listen or call in live from anywhere, free. Use Blogtalkradio web site, Skype or phone. Host is psychiatric survivor Oaks, director of MindFreedom International. Guests are all long-time activists for major change in the mental health system. All personally experienced being on the receiving end of mental health care: ** CELIA BROWN of NY: On the latest global news to change the mental health system. Celia is also president of MindFreedom International. ** LAUREN TENNEY: On upcoming state-wide activism in New York. ** PAT RISSER of Ohio: Just appointed to a key mental health federal advisory committee. Pat questions federal discrimination against programs run by mental health consumers and psychiatric survivors. ** ED KNIGHT: Calls for an investigation of the huge federal mental health agency, SAMHSA, after their heavy-handed interference with Alternatives 2010 conference. WHEN: This Saturday, 13 November 2010 -- 60 minutes: * USA: 11 am Pacific, 12 noon Mountain, 1 pm Central, 2 pm Eastern * UTC/GMT: 6 pm [18:00] * London/Dublin: 7 pm [19:00] * Berlin: 8 pm [20:00] * Melbourne: 6 am AT THAT TIME CLICK HERE to listen and call in LIVE (or click after the show to hear archives): http://www.blogtalkradio.com/davidwoaks For tips on calling via Skype for free, click here: http://3.ly/BlogtalkSkype Can't get to a computer that day? No problem! Back by popular demand! Extra lines have been added, and you can again use the call-in number just to listen, like a teleconference: . About the host MindFreedom director DAVID W. OAKS: http://www.mindfreedom.org/about-us/david-w-oaks ~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 Thanks. Possibly they also have an internet chat room where you can leave your message anonymously during the broadcast. These messages can be read out loud by the presenter in the show. Many internet radio stations have such a chat room. > hi everyone, i have been watching all the conversations for awhile now. I have been watching people discuss getting publicity and wonder if any have heard of a group called Mindfreedom International. I think they might actually be affiliated with PsychRights (sp?) which i also think I have seen mentioned here before. Quote Link to comment Share on other sites More sharing options...
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