Guest guest Posted April 14, 2010 Report Share Posted April 14, 2010 Good luck, I hope she writes more about pssd. Its good your doing something to help raise awareness. I have started a group on facebook warning people of the dangers of these drugs mainly pssd. To: SSRIsex Sent: Wed, April 14, 2010 3:50:14 AMSubject: Raising Awareness Hi everyone. I know we have spoken many times about raising awareness but I feel we as a group do not always do all that we can to make that happen. Today I decided to contact a journalist that I felt could help. I also thought that perhaps if several of us email her she will be more likely to cover the issue. Recently Sharon Begley, a Senior Editor at Newsweek, wrote an article "The Depressing News About Anti-Depressants: Studies suggest that the popular drugs are no more effective than a placebo. In fact, they may be worse." http://www.newsweek.com/id/232781/page/1I felt she seems to be someone willing to confront the fact that SSRIs may not be very effective, and are actually destructive for many people. She did cover sexual side effects in the article but not the fact that they can continue after people stop taking the drugs. I was hoping some of you may be willing to be proactive and contact her with your story or thoughts on PSSD to help raise awareness. Her email is: sharonlbegley@ gmail.comYou can read about her here: http://www.newsweek.com/id/32249She is a Senior Editor at Newsweek. Below is the email I sent her. Dear Sharon Begley, First of all I wanted to thank you for writing your recent article "The Depressing News About Antidepressants. " I also enjoyed your book, "Train Your Mind, Change Your Brain." Anyhow the reason I am contacting you is I wanted to address one thing you did not include in the article concerning SSRIs. It is well known that the drugs cause sexual side effects. What is less well known is that for some people, the side effects do not go away upon termination of the drug (even years after they quit taking the medication). I unfortunately suffer from this condition, termed Post SSRI Sexual Dysfunction, or PSSD.There is a support board for people with this issue and what many say is they wish somehow to raise awareness of this issue, as none of us were told that the sexual side effects that SSRIs can cause can continue after termination of the drug. For many, their psychiatrist or physician were not even aware of this. Only a few specialists (such as Dr. Goldstein with San Diego Sexual Medicine) have treated or are familiar with the condition. My suspicion is that PSSD is under diagnosed, not that it is rare. Many people have trouble talking about such things with their doctors. Indeed a year ago I would probably have been too embarrassed to write to a journalist such as yourself about this issue, but at this point feel it is my responsibility. My hope is that if you do another article on SSRIs (or write a follow up to the most recent one) that you could address this condition. I am frustrated first with the lack of awareness that SSRIs can cause long lasting side effects even when one stops using them, and with the pharmaceutical industries denial/lack of reporting of these problems. I also feel for the many young men like myself (I am only 26) who have difficulty forming relationships and miss out on a large component of life because of these drugs. I thought perhaps you would be someone willing to listen. I am one of the few people with this issue who has a background in science so I felt it might put me in a position where I would be taken more seriously. I have a degree in molecular biology from UC San Diego and will be beginning a Ph.D program at Stanford in the fall. As a scientist I am always skeptical of things I read online, especially anecdotal accounts from individuals (so I understand if you are skeptical of me), but in this instance I have done enough reading, including the few medical/psychiatry journals that have covered it to become convinced that the condition is in fact real and was caused by the medications. I hope you can trust me enough to look into it. Anyhow, thanks again for helping to inform the public about SSRIs, and how they are over prescribed and not necessarily that effective. I think that there is too much money pushing these drugs (tv commercials, free samples given to doctors, etc) and not enough people questioning if they should be prescribed. I wish my doctor never prescribed me Effexor. I was going through a breakup of a long term relationship, and should have just toughed my way through it and gone to counseling. Instead I took a drug that did not help my depression at all, had severe side effects, and has caused me problems to this day. I hope that perhaps I can help prevent this from happening to others by contacting you. Thanks for your time. If you decide to write something about this I could also point you towards some resources for information. I know many people with this issue will appreciate it greatly if you choose to cover the issue. Sincerely, [My Name] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2010 Report Share Posted April 14, 2010 Sharon wrote back to me an is interested in looking into the issue. Here is her email. Contact her with personal stories if you feel comfortable doing so. She would rather have you use the email she provided me below. I am replying to her questions. I just through it might be good if others gave her their stories. " Thanks very much, . Count me among those who did not know that sexual dysfunction persists after someone stops taking an SSRI. Does it get reported to the FDA as an adverse event, or through any other post-marketing system? And/or, can you point me to any studies? I wonder what the mechanism is, since I would have thought that once the drug is cleared from the body any side effects would go away. Anyway, again, I appreciate your letting me know. I'll see what I can learn, and if you have any leads send them along at your convenience. (ps a better email for me is sharon.begley@...). " > > Hi everyone. > > I know we have spoken many times about raising awareness but I feel we as a group do not always do all that we can to make that happen. Today I decided to contact a journalist that I felt could help. I also thought that perhaps if several of us email her she will be more likely to cover the issue. > > Recently Sharon Begley, a Senior Editor at Newsweek, wrote an article " The Depressing News About Anti-Depressants: Studies suggest that the popular drugs are no more effective than a placebo. In fact, they may be worse. " http://www.newsweek.com/id/232781/page/1 > > I felt she seems to be someone willing to confront the fact that SSRIs may not be very effective, and are actually destructive for many people. She did cover sexual side effects in the article but not the fact that they can continue after people stop taking the drugs. > > I was hoping some of you may be willing to be proactive and contact her with your story or thoughts on PSSD to help raise awareness. > > Her email is: sharonlbegley@... > You can read about her here: http://www.newsweek.com/id/32249 > She is a Senior Editor at Newsweek. > > > Below is the email I sent her. > > Dear Sharon Begley, > > First of all I wanted to thank you for writing your recent article " The Depressing News About Antidepressants. " I also enjoyed your book, " Train Your Mind, Change Your Brain. " > > Anyhow the reason I am contacting you is I wanted to address one thing you did not include in the article concerning SSRIs. It is well known that the drugs cause sexual side effects. What is less well known is that for some people, the side effects do not go away upon termination of the drug (even years after they quit taking the medication). I unfortunately suffer from this condition, termed Post SSRI Sexual Dysfunction, or PSSD. > > There is a support board for people with this issue and what many say is they wish somehow to raise awareness of this issue, as none of us were told that the sexual side effects that SSRIs can cause can continue after termination of the drug. For many, their psychiatrist or physician were not even aware of this. Only a few specialists (such as Dr. Goldstein with San Diego Sexual Medicine) have treated or are familiar with the condition. My suspicion is that PSSD is under diagnosed, not that it is rare. Many people have trouble talking about such things with their doctors. Indeed a year ago I would probably have been too embarrassed to write to a journalist such as yourself about this issue, but at this point feel it is my responsibility. > > My hope is that if you do another article on SSRIs (or write a follow up to the most recent one) that you could address this condition. I am frustrated first with the lack of awareness that SSRIs can cause long lasting side effects even when one stops using them, and with the pharmaceutical industries denial/lack of reporting of these problems. I also feel for the many young men like myself (I am only 26) who have difficulty forming relationships and miss out on a large component of life because of these drugs. > > I thought perhaps you would be someone willing to listen. I am one of the few people with this issue who has a background in science so I felt it might put me in a position where I would be taken more seriously. I have a degree in molecular biology from UC San Diego and will be beginning a Ph.D program at Stanford in the fall. As a scientist I am always skeptical of things I read online, especially anecdotal accounts from individuals (so I understand if you are skeptical of me), but in this instance I have done enough reading, including the few medical/psychiatry journals that have covered it to become convinced that the condition is in fact real and was caused by the medications. I hope you can trust me enough to look into it. > > Anyhow, thanks again for helping to inform the public about SSRIs, and how they are over prescribed and not necessarily that effective. I think that there is too much money pushing these drugs (tv commercials, free samples given to doctors, etc) and not enough people questioning if they should be prescribed. I wish my doctor never prescribed me Effexor. I was going through a breakup of a long term relationship, and should have just toughed my way through it and gone to counseling. Instead I took a drug that did not help my depression at all, had severe side effects, and has caused me problems to this day. I hope that perhaps I can help prevent this from happening to others by contacting you. > > Thanks for your time. If you decide to write something about this I could also point you towards some resources for information. I know many people with this issue will appreciate it greatly if you choose to cover the issue. > > Sincerely, > > [My Name] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2010 Report Share Posted April 14, 2010 I just realized for some reason the board is blocking the email address. The email address is sharon.begley (at) newsweek dot com . Please write her. I think she might be willing to write an article about our problems. You could mention suggested you contact her for case reports, or something like that . > > > > Hi everyone. > > > > I know we have spoken many times about raising awareness but I feel we as a group do not always do all that we can to make that happen. Today I decided to contact a journalist that I felt could help. I also thought that perhaps if several of us email her she will be more likely to cover the issue. > > > > Recently Sharon Begley, a Senior Editor at Newsweek, wrote an article " The Depressing News About Anti-Depressants: Studies suggest that the popular drugs are no more effective than a placebo. In fact, they may be worse. " http://www.newsweek.com/id/232781/page/1 > > > > I felt she seems to be someone willing to confront the fact that SSRIs may not be very effective, and are actually destructive for many people. She did cover sexual side effects in the article but not the fact that they can continue after people stop taking the drugs. > > > > I was hoping some of you may be willing to be proactive and contact her with your story or thoughts on PSSD to help raise awareness. > > > > Her email is: sharonlbegley@ > > You can read about her here: http://www.newsweek.com/id/32249 > > She is a Senior Editor at Newsweek. > > > > > > Below is the email I sent her. > > > > Dear Sharon Begley, > > > > First of all I wanted to thank you for writing your recent article " The Depressing News About Antidepressants. " I also enjoyed your book, " Train Your Mind, Change Your Brain. " > > > > Anyhow the reason I am contacting you is I wanted to address one thing you did not include in the article concerning SSRIs. It is well known that the drugs cause sexual side effects. What is less well known is that for some people, the side effects do not go away upon termination of the drug (even years after they quit taking the medication). I unfortunately suffer from this condition, termed Post SSRI Sexual Dysfunction, or PSSD. > > > > There is a support board for people with this issue and what many say is they wish somehow to raise awareness of this issue, as none of us were told that the sexual side effects that SSRIs can cause can continue after termination of the drug. For many, their psychiatrist or physician were not even aware of this. Only a few specialists (such as Dr. Goldstein with San Diego Sexual Medicine) have treated or are familiar with the condition. My suspicion is that PSSD is under diagnosed, not that it is rare. Many people have trouble talking about such things with their doctors. Indeed a year ago I would probably have been too embarrassed to write to a journalist such as yourself about this issue, but at this point feel it is my responsibility. > > > > My hope is that if you do another article on SSRIs (or write a follow up to the most recent one) that you could address this condition. I am frustrated first with the lack of awareness that SSRIs can cause long lasting side effects even when one stops using them, and with the pharmaceutical industries denial/lack of reporting of these problems. I also feel for the many young men like myself (I am only 26) who have difficulty forming relationships and miss out on a large component of life because of these drugs. > > > > I thought perhaps you would be someone willing to listen. I am one of the few people with this issue who has a background in science so I felt it might put me in a position where I would be taken more seriously. I have a degree in molecular biology from UC San Diego and will be beginning a Ph.D program at Stanford in the fall. As a scientist I am always skeptical of things I read online, especially anecdotal accounts from individuals (so I understand if you are skeptical of me), but in this instance I have done enough reading, including the few medical/psychiatry journals that have covered it to become convinced that the condition is in fact real and was caused by the medications. I hope you can trust me enough to look into it. > > > > Anyhow, thanks again for helping to inform the public about SSRIs, and how they are over prescribed and not necessarily that effective. I think that there is too much money pushing these drugs (tv commercials, free samples given to doctors, etc) and not enough people questioning if they should be prescribed. I wish my doctor never prescribed me Effexor. I was going through a breakup of a long term relationship, and should have just toughed my way through it and gone to counseling. Instead I took a drug that did not help my depression at all, had severe side effects, and has caused me problems to this day. I hope that perhaps I can help prevent this from happening to others by contacting you. > > > > Thanks for your time. If you decide to write something about this I could also point you towards some resources for information. I know many people with this issue will appreciate it greatly if you choose to cover the issue. > > > > Sincerely, > > > > [My Name] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 Thanks for your smart initiative. Especially journalists and authors who are critical about psychiatry and psycho medication should be contacted personally via email and invited tot join our Yahoo group. > > Hi everyone. > > I know we have spoken many times about raising awareness but I feel we as a group do not always do all that we can to make that happen. Today I decided to contact a journalist that I felt could help. I also thought that perhaps if several of us email her she will be more likely to cover the issue. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 Cool. Are you willing to share the name and web adress of this group? > I have started a group on facebook warning people of the dangers of these drugs mainly pssd. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 It would be great if a PSSD patient would be willing to give an interview via telephone or even with a tv-camera. > > I just realized for some reason the board is blocking the email address. The email address is sharon.begley (at) newsweek dot com . Please write her. I think she might be willing to write an article about our problems. You could mention suggested you contact her for case reports, or something like that . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 Yes here is the link to my facebook group warning people of anti depressant drugs: http://www.facebook.com/home.php?#!/group.php?gid=117301888286197 & ref=mf To: SSRIsex Sent: Fri, April 16, 2010 1:50:59 PMSubject: Re: Raising Awareness Cool. Are you willing to share the name and web adress of this group?> I have started a group on facebook warning people of the dangers of these drugs mainly pssd. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 There is a guy who posted something on youtube. I sent her that link . > > > > I just realized for some reason the board is blocking the email address. The email address is sharon.begley (at) newsweek dot com . Please write her. I think she might be willing to write an article about our problems. You could mention suggested you contact her for case reports, or something like that . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 I used to tell my girlfriend that I can't feel love and she thought I didn't care. VinnySubject: Re: Re: Raising AwarenessTo: SSRIsex Date: Friday, April 16, 2010, 1:14 PM Yes here is the link to my facebook group warning people of anti depressant drugs: http://www.facebook .com/home. php?#!/group. php?gid=11730188 8286197 & ref=mf From: stevehazek <stevehazekyahoo (DOT) com>To: SSRIsex@yahoogroups .comSent: Fri, April 16, 2010 1:50:59 PMSubject: Re: Raising Awareness Cool. Are you willing to share the name and web adress of this group?> I have started a group on facebook warning people of the dangers of these drugs mainly pssd. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 recently posted, on this blog site, about his contacting Sharon Begley, a Senior Editor, at Newsweek magazine. He has suggested that it could be helpful, for raising awareness about PSSD, that others might also consider contacting her, to tell about their PSSD experiences. So, I have been contemplating, contacting her by e-mail. But, I would not be comfortable revealing my real name--should doing so put me at risk, of public exposure--as I don't want the general public to know I have a sexual dysfunction and I don't want people to know I received treatment for a psychological problem-- as I fear embarrassment and ridicule and possible employment discrimination. So, do you think communicating anonymously, using my fictitious name, that I use for this blog site, would be helpful? Or, will she not trust my information, if it’s sent anonymously? Will I be just wasting my effort? Will the News Week reporter want the option of talking on phone--another opportunity for risk of public exposure—such as from caller I.D. or from voice recognition--should my voice be recorded and then played back in a venue that is public? I hesitated to post on this blog site for a long time--even with the use of a fictitious name in my e-mail address. I guess it’s because I am not used to discussing issues of sexual nature in a public forum. It took a long time--telling myself no one will know who you are--and, that it could be important to help with awareness as to how many are suffering—and, it might be helpful to let others know there are others with this affliction. So, what do you think about my e-mail the report at News Week magazine? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 If you start your email with this sentence: " Not for publication, " she will not print *anything* in the letter without your permission. This is very basic journalistic ethics and in a respectable place like Newsweek you don't have to worry about it. I would use your real name and contact info. If at any time she wants you to drop your no-publication stance, you could agree with the stipulation that you are left anonymous. > > > > recently posted, on this blog site, about > his contacting Sharon Begley, a Senior Editor, at Newsweek > magazine. He has suggested that it could be helpful, for raising > awareness about PSSD, that others might also consider contacting her, to tell about > their PSSD experiences. > > > > So, I have been contemplating, contacting her by e-mail. > > > > But, I would not be comfortable revealing my real name--should doing so put me > at risk, of public exposure--as I don't want the general public to know I have > a sexual dysfunction and I don't want people to know I received treatment for a > psychological problem-- as I fear embarrassment and ridicule and possible > employment discrimination. > > > > So, do you think communicating anonymously, using my fictitious name, that I > use for this blog site, would be helpful? Or, will she not trust my > information, if it’s sent anonymously? Will I be just wasting my effort? > > > > > Will the News Week reporter want the option of talking on phone--another > opportunity for risk of public exposure†" such as from caller I.D. or from voice > recognition--should my voice be recorded and then played back in a venue that is > public? > > > > I hesitated to post on this blog site for a long time--even with the use of a fictitious > name in my e-mail address. I guess it’s because I am not used to discussing > issues of sexual nature in a public forum. It took a long time--telling > myself no one will know who you are--and, that it could be important to help > with awareness as to how many are suffering†" and, it might be helpful to let > others know there are others with this affliction. > > > > So, what do you think about my e-mail the report at News Week magazine? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 I can understand your concern. When I emailed Bosely of the Guardian about our problem I was not anomynous and I worried about the press really wanted to know a lot more about me. I didn't say I had PSSD but I was quite worried about any exposure I might get. Saying that, I'm sure Sharon Begley would respect your/ our wishes. But you have highlighted something important for me: I reckon this is one of the reasons why PSSD is so unknown. Only my two brothers, two work collegues, and my girlfriend know of my condition. Apart from my girlfriend it took me a number of years before I told anyone else, including my mum, who is now not with us. You might think that telling two work collegues is pretty brave but I can totally trust them. Now if 1 in 4 people taking serotonin boosting antidepressants are likely to get PSSD then I reckon there are millions out there who don't know what has happened to them because their doctors don't believe them. I went for years with PSSD before I discovered this site and found out what was really wrong. I then became very depressed for a while because I had thought I was suffering from a stress disorder and that I would recover quickly when I felt better. For many people PSSD is a silent lonely suffering so I am really please that Vornan has put in so much effort to keep this site going. It must take a lot of work. With thanks, Kaivy > > > > recently posted, on this blog site, about > his contacting Sharon Begley, a Senior Editor, at Newsweek > magazine. He has suggested that it could be helpful, for raising > awareness about PSSD, that others might also consider contacting her, to tell about > their PSSD experiences. > > > > So, I have been contemplating, contacting her by e-mail. > > > > But, I would not be comfortable revealing my real name--should doing so put me > at risk, of public exposure--as I don't want the general public to know I have > a sexual dysfunction and I don't want people to know I received treatment for a > psychological problem-- as I fear embarrassment and ridicule and possible > employment discrimination. > > > > So, do you think communicating anonymously, using my fictitious name, that I > use for this blog site, would be helpful? Or, will she not trust my > information, if it’s sent anonymously? Will I be just wasting my effort? > > > > > Will the News Week reporter want the option of talking on phone--another > opportunity for risk of public exposure†" such as from caller I.D. or from voice > recognition--should my voice be recorded and then played back in a venue that is > public? > > > > I hesitated to post on this blog site for a long time--even with the use of a fictitious > name in my e-mail address. I guess it’s because I am not used to discussing > issues of sexual nature in a public forum. It took a long time--telling > myself no one will know who you are--and, that it could be important to help > with awareness as to how many are suffering†" and, it might be helpful to let > others know there are others with this affliction. > > > > So, what do you think about my e-mail the report at News Week magazine? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 I remember more clearly now. I contacted Bosely of the Guardian through hotmail using a different name. That could be a safer way to contact prominent people and tell them about PSSD. Kaivey > > > > recently posted, on this blog site, about > his contacting Sharon Begley, a Senior Editor, at Newsweek > magazine. He has suggested that it could be helpful, for raising > awareness about PSSD, that others might also consider contacting her, to tell about > their PSSD experiences. > > > > So, I have been contemplating, contacting her by e-mail. > > > > But, I would not be comfortable revealing my real name--should doing so put me > at risk, of public exposure--as I don't want the general public to know I have > a sexual dysfunction and I don't want people to know I received treatment for a > psychological problem-- as I fear embarrassment and ridicule and possible > employment discrimination. > > > > So, do you think communicating anonymously, using my fictitious name, that I > use for this blog site, would be helpful? Or, will she not trust my > information, if it’s sent anonymously? Will I be just wasting my effort? > > > > > Will the News Week reporter want the option of talking on phone--another > opportunity for risk of public exposure†" such as from caller I.D. or from voice > recognition--should my voice be recorded and then played back in a venue that is > public? > > > > I hesitated to post on this blog site for a long time--even with the use of a fictitious > name in my e-mail address. I guess it’s because I am not used to discussing > issues of sexual nature in a public forum. It took a long time--telling > myself no one will know who you are--and, that it could be important to help > with awareness as to how many are suffering†" and, it might be helpful to let > others know there are others with this affliction. > > > > So, what do you think about my e-mail the report at News Week magazine? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 Perhaps I have less danger in making my story public than many of you. I'm just a 62 yr old grandma who substitutes at a school. Initially I tried to change my email address, but didn't know how. Anyway, 'thought I'd share the response I got to the email I sent Ms Begley. Here goes: RE: It's Not Just the SSRIs & #8207; From: Begley, Sharon (Sharon.Begley@...) Sent: Thu 4/15/10 6:30 AM To: numb25yrs (lindakmulvey@...) Thanks very much, . I have indeed been hearing from readers aboutthis issue, and will look into it. The problem so far is that data donot exist showing that persistence of these side effects is indeedcaused by the meds, or if the connection is just a statistical fluke,correlational but not causal. Anyway, I will continue to see what I canfind out. Allbest, Sharon Begley Science editor Newsweek 395 Hudson Street New York, NY 10014 It's Not Just the SSRIs Dear Ms. Begley, I found your email address in a message posted by one of the members ofthe Yahoo group on persistent sexual side effects of SSRIs. Hesuggested we write to you so you would know how extensive the problemis. Well, there are at least two of us in that group who have thesekind of effects from being forced to take antipsychotics, and thendiscontinuing them. Neither of us could find a support group with aspecific forum for our kind of loss, so we joined the one for those whohave taken SSRIs. I have searched for others who, like me, have become numb fromneuroleptics, but I have only found a few that have written about it onthe web. It's a subject that is difficult for many people to talkabout, and then, if they think you're mentally ill, no one believes youanyway. I did find an article in a journal that stated that one of themain reasons people don't want to take antipsychotic meds is because ofthe sexual side effects. It's called " Sexual Dysfunction: the ForgottenTaboo " (from " Mental Health Nursing " , January 1, 2005) http://www.encyclopedia.com/doc/1P3-777721421.html (It is now an article you have to pay to see. Fortunately I made a copyof it before it became that way.) I have been off neuroleptics for over 26 yrs, but I am still numb in mysaddle area. Here is the link to my channel on YouTube. On it I wrotemy story and posted a video explaining how I know what drug damaged me: http://www.youtube.com/user/Kay1948 > > > > > > > > recently posted, on this blog site, about > > his contacting Sharon Begley, a Senior Editor, at Newsweek > > magazine. He has suggested that it could be helpful, for raising > > awareness about PSSD, that others might also consider contacting her, to tell about > > their PSSD experiences. > > > > > > > > So, I have been contemplating, contacting her by e-mail. > > > > > > > > But, I would not be comfortable revealing my real name--should doing so put me > > at risk, of public exposure--as I don't want the general public to know I have > > a sexual dysfunction and I don't want people to know I received treatment for a > > psychological problem-- as I fear embarrassment and ridicule and possible > > employment discrimination. > > > > > > > > So, do you think communicating anonymously, using my fictitious name, that I > > use for this blog site, would be helpful? Or, will she not trust my > > information, if it’s sent anonymously? Will I be just wasting my effort? > > > > > > > > > > Will the News Week reporter want the option of talking on phone--another > > opportunity for risk of public exposure†" such as from caller I.D. or from voice > > recognition--should my voice be recorded and then played back in a venue that is > > public? > > > > > > > > I hesitated to post on this blog site for a long time--even with the use of a fictitious > > name in my e-mail address. I guess it’s because I am not used to discussing > > issues of sexual nature in a public forum. It took a long time--telling > > myself no one will know who you are--and, that it could be important to help > > with awareness as to how many are suffering†" and, it might be helpful to let > > others know there are others with this affliction. > > > > > > > > So, what do you think about my e-mail the report at News Week magazine? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 Your story got me thinking because I am reading the book "Prozac Backlash." One thing the author talks about in his book is the similarities between antipsychotics or what used to be call major tranquilizers and SSRIs. He says that the reason we find similar side effects between these two kinds of drugs is because of what they do to our dopamine levels. Whereas antipsychotics directly decrease dopamine levels, SSRI’s indirectly decrease dopamine levels. He states “elevated serotonin levels trigger a compensatory drop in dopamine.†It seems like this is why drugs like Wellbutrin are suppose to have less sexual side effects as they are a norepinephrine and dopamine reuptake inhibitor. To: SSRIsex Sent: Thu, April 22, 2010 10:15:48 AMSubject: Re: Raising Awareness Perhaps I have less danger in making my story public than many of you. I'm just a 62 yr old grandma who substitutes at a school. Initially I tried to change my email address, but didn't know how. Anyway, 'thought I'd share the response I got to the email I sent Ms Begley. Here goes: RE: It's Not Just the SSRIs & #8207;From: Begley, Sharon (Sharon.Begley@ newsweek. com) Sent: Thu 4/15/10 6:30 AM To: numb25yrs (lindakmulvey@ hotmail.com) Thanks very much, . I have indeed been hearing from readers aboutthis issue, and will look into it. The problem so far is that data donot exist showing that persistence of these side effects is indeedcaused by the meds, or if the connection is just a statistical fluke,correlational but not causal. Anyway, I will continue to see what I canfind out. Allbest, Sharon Begley Science editor Newsweek 395 Hudson Street New York, NY 10014 It's Not Just the SSRIs Dear Ms. Begley, I found your email address in a message posted by one of the members ofthe Yahoo group on persistent sexual side effects of SSRIs. Hesuggested we write to you so you would know how extensive the problemis. Well, there are at least two of us in that group who have thesekind of effects from being forced to take antipsychotics, and thendiscontinuing them. Neither of us could find a support group with aspecific forum for our kind of loss, so we joined the one for those whohave taken SSRIs. I have searched for others who, like me, have become numb fromneuroleptics, but I have only found a few that have written about it onthe web. It's a subject that is difficult for many people to talkabout, and then, if they think you're mentally ill, no one believes youanyway. I did find an article in a journal that stated that one of themain reasons people don't want to take antipsychotic meds is because ofthe sexual side effects. It's called "Sexual Dysfunction: the ForgottenTaboo" (from "Mental Health Nursing", January 1, 2005) http://www.encyclopedia.com/doc/1P3-777721421.html (It is now an article you have to pay to see. Fortunately I made a copyof it before it became that way.) I have been off neuroleptics for over 26 yrs, but I am still numb in mysaddle area. Here is the link to my channel on YouTube. On it I wrotemy story and posted a video explaining how I know what drug damaged me: http://www.youtube. com/user/ Kay1948> >> > > > > > recently posted, on this blog site, about> > his contacting Sharon Begley, a Senior Editor, at Newsweek> > magazine. He has suggested that it could be helpful, for raising> > awareness about PSSD, that others might also consider contacting her, to tell about> > their PSSD experiences.> > > > > > > > So, I have been contemplating, contacting her by e-mail.> > > > > > > > But, I would not be comfortable revealing my real name--should doing so put me> > at risk, of public exposure--as I don't want the general public to know I have> > a sexual dysfunction and I don't want people to know I received treatment for a> > psychological problem-- as I fear embarrassment and ridicule and possible> > employment discrimination.> > > > > > > > So, do you think communicating anonymously, using my fictitious name, that I> > use for this blog site, would be helpful? Or, will she not trust my> > information, if it’s sent anonymously? Will I be just wasting my effort? > > > > > > > > > > Will the News Week reporter want the option of talking on phone--another> > opportunity for risk of public exposureâ€"such as from caller I.D. or from voice> > recognition- -should my voice be recorded and then played back in a venue that is> > public?> > > > > > > > I hesitated to post on this blog site for a long time--even with the use of a fictitious> > name in my e-mail address. I guess it’s because I am not used to discussing> > issues of sexual nature in a public forum. It took a long time--telling> > myself no one will know who you are--and, that it could be important to help> > with awareness as to how many are sufferingâ€"and, it might be helpful to let> > others know there are others with this affliction.> > > > > > > > So, what do you think about my e-mail the report at News Week magazine?> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 Hi , Could you please send the video link below about PSSD by Dr Stuart Shipko to Sharon Begley. He's a neurologist and a psychiatrist and seems to be some sort of consultant. I think we could be onto something here. One day soon - I predict - PSSD will be a very big story indeed.. http://www.sexsmartfilms.com/free-videos/libido-lost/ Thanks, Kaivey > > >> > > > > > > > > recently posted, on this blog site, about> > > his contacting Sharon Begley, a Senior Editor, at Newsweek> > > magazine. He has suggested that it could be helpful, for raising> > > awareness about PSSD, that others might also consider contacting her, to tell about> > > their PSSD experiences.> > > > > > > > > > > > So, I have been contemplating, contacting her by e-mail.> > > > > > > > > > > > But, I would not be comfortable revealing my real name--should doing so put me> > > at risk, of public exposure--as I don't want the general public to know I have> > > a sexual dysfunction and I don't want people to know I received treatment for a> > > psychological problem-- as I fear embarrassment and ridicule and possible> > > employment discrimination.> > > > > > > > > > > > So, do you think communicating anonymously, using my fictitious name, that I> > > use for this blog site, would be helpful? Or, will she not trust my> > > information, if it’s sent anonymously? Will I be just wasting my effort? > > > > > > > > > > > > > > > Will the News Week reporter want the option of talking on phone--another> > > opportunity for risk of public exposureâ€"such as from caller I.D. or from voice> > > recognition--should my voice be recorded and then played back in a venue that is> > > public?> > > > > > > > > > > > I hesitated to post on this blog site for a long time--even with the use of a fictitious> > > name in my e-mail address. I guess it’s because I am not used to discussing> > > issues of sexual nature in a public forum. It took a long time--telling> > > myself no one will know who you are--and, that it could be important to help> > > with awareness as to how many are sufferingâ€"and, it might be helpful to let> > > others know there are others with this affliction.> > > > > > > > > > > > So, what do you think about my e-mail the report at News Week magazine?> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 She said she would not post my identity in any article she writes. Just request that she does not use yours. She understood our need for privacy. I used my real name () and my real email when I contacted her. If your real name is not Shaun, you could just use this fake name and it would probably be fine. I just want her to realize this is a real problem. A Newsweek article would really get us some exposure. Just give a little bit about your case and ask if she can write an article. I am hoping if several people contact her it will motivate her to write an article on it. She just wrote an article showing that SSRI's aren't effective. - > > > > recently posted, on this blog site, about > his contacting Sharon Begley, a Senior Editor, at Newsweek > magazine. He has suggested that it could be helpful, for raising > awareness about PSSD, that others might also consider contacting her, to tell about > their PSSD experiences. > > > > So, I have been contemplating, contacting her by e-mail. > > > > But, I would not be comfortable revealing my real name--should doing so put me > at risk, of public exposure--as I don't want the general public to know I have > a sexual dysfunction and I don't want people to know I received treatment for a > psychological problem-- as I fear embarrassment and ridicule and possible > employment discrimination. > > > > So, do you think communicating anonymously, using my fictitious name, that I > use for this blog site, would be helpful? Or, will she not trust my > information, if it’s sent anonymously? Will I be just wasting my effort? > > > > > Will the News Week reporter want the option of talking on phone--another > opportunity for risk of public exposure†" such as from caller I.D. or from voice > recognition--should my voice be recorded and then played back in a venue that is > public? > > > > I hesitated to post on this blog site for a long time--even with the use of a fictitious > name in my e-mail address. I guess it’s because I am not used to discussing > issues of sexual nature in a public forum. It took a long time--telling > myself no one will know who you are--and, that it could be important to help > with awareness as to how many are suffering†" and, it might be helpful to let > others know there are others with this affliction. > > > > So, what do you think about my e-mail the report at News Week magazine? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2010 Report Share Posted April 25, 2010 Hi Group, If you haven't contacted Sharon Begley yet please do. sharon.begley (at) newsweek . com I really hope she writes something. - > > > > > > > > recently posted, on this blog site, about > > his contacting Sharon Begley, a Senior Editor, at Newsweek > > magazine. He has suggested that it could be helpful, for raising > > awareness about PSSD, that others might also consider contacting her, to tell about > > their PSSD experiences. > > > > > > > > So, I have been contemplating, contacting her by e-mail. > > > > > > > > But, I would not be comfortable revealing my real name--should doing so put me > > at risk, of public exposure--as I don't want the general public to know I have > > a sexual dysfunction and I don't want people to know I received treatment for a > > psychological problem-- as I fear embarrassment and ridicule and possible > > employment discrimination. > > > > > > > > So, do you think communicating anonymously, using my fictitious name, that I > > use for this blog site, would be helpful? Or, will she not trust my > > information, if it’s sent anonymously? Will I be just wasting my effort? > > > > > > > > > > Will the News Week reporter want the option of talking on phone--another > > opportunity for risk of public exposure†" such as from caller I.D. or from voice > > recognition--should my voice be recorded and then played back in a venue that is > > public? > > > > > > > > I hesitated to post on this blog site for a long time--even with the use of a fictitious > > name in my e-mail address. I guess it’s because I am not used to discussing > > issues of sexual nature in a public forum. It took a long time--telling > > myself no one will know who you are--and, that it could be important to help > > with awareness as to how many are suffering†" and, it might be helpful to let > > others know there are others with this affliction. > > > > > > > > So, what do you think about my e-mail the report at News Week magazine? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2010 Report Share Posted April 25, 2010 Done! Here is a copy of the message I sent her: Hi Again Sharon, Thank you so much for getting back to me about this. I have something else that may help you in your investigation. Someone from our Yahoo group asked me to pass this link along to you that has a video about PSSD by Dr Stuart Shipko. He's a neurologist and a psychiatrist and seems to be some sort of consultant. http://www.sexsmartfilms.com/free-videos/libido-lost/ Perhaps you can get in touch with him with any questions you have. > > > > > > > > > > > > > > > > recently posted, on this blog site, about > > > > his contacting Sharon Begley, a Senior Editor, at Newsweek > > > > magazine. He has suggested that it could be helpful, for > raising > > > > awareness about PSSD, that others might also consider contacting > her, to tell about > > > > their PSSD experiences. > > > > > > > > > > > > > > > > So, I have been contemplating, contacting her by e-mail. > > > > > > > > > > > > > > > > But, I would not be comfortable revealing my real name--should > doing so put me > > > > at risk, of public exposure--as I don't want the general public to > know I have > > > > a sexual dysfunction and I don't want people to know I received > treatment for a > > > > psychological problem-- as I fear embarrassment and ridicule and > possible > > > > employment discrimination. > > > > > > > > > > > > > > > > So, do you think communicating anonymously, using my fictitious > name, that I > > > > use for this blog site, would be helpful? Or, will she not > trust my > > > > information, if it’s sent anonymously? Will I be just > wasting my effort? > > > > > > > > > > > > > > > > > > > > Will the News Week reporter want the option of talking on > phone--another > > > > opportunity for risk of public exposure†" such as from caller > I.D. or from voice > > > > recognition--should my voice be recorded and then played back in a > venue that is > > > > public? > > > > > > > > > > > > > > > > I hesitated to post on this blog site for a long time--even with > the use of a fictitious > > > > name in my e-mail address. I guess it’s because I am > not used to discussing > > > > issues of sexual nature in a public forum. It took a long > time--telling > > > > myself no one will know who you are--and, that it could be > important to help > > > > with awareness as to how many are suffering†" and, it might be > helpful to let > > > > others know there are others with this affliction. > > > > > > > > > > > > > > > > So, what do you think about my e-mail the report at News Week > magazine? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2010 Report Share Posted April 25, 2010 I went ahead and e-mailed Sharon Begley Friday morning. I know I expressed some reservations about e-mailing her in a previous posting to this blog--so that's why I thought I should inform people that I went ahead anyhow.The e-mail address I used didn't contain my real name--but, I am hoping she will accept it anyhow.In my letter to Ms. Begley I told yer it was okay to contact me using that e-mail address.I have not received an e-mail from Ms. Begley acknowledging my letter.I hope others will send her an e-mail to encourage her to investigate PSSD--and, if you do may I suggest that you include in your e-mail why you think your PSSD is due to SSRI and not psychological in origin--any circumstantial evidence such as time lines and if you were having normal sex prior to developing PSSD--and especially if you were able to have normal sex prior to PSSD while very depressed--to show her that you could still function sexually in past even though you were struggling with some mental/emotional problems. I say this because I expect Ms. Begley will here psychiatrists/psychologists try to convince her that our PSSD is a manifestation of some psychological pathology and not due to the medication we took.Its been my experience that psychiatry over uses the "its probably psychological" and that this is a diagnoses that can never be proved and is not based on scientific evidence--but, instead is a diagnoses by default--and this diagnoses can also be used to give patients the shuffle--what I mean is to get rid of a patients whose health circumstances are inconvenient. Has anyone ever heard of someone who was told their ache or pain was psychological who was later diagnosed with a serious physical illness--I think this happens all the time. I think when a doctor gives a diagnoses that a physical complaint is really psychological that they have no scientific evidence to back that up--no tests, etc.--and, that they either don't have a clue whats wrong with you but don't want to admit that--or, they know your problem is probably physical in origin--but, they find your health problem inconvenient to pursue helping--so they will try to get rid of you by saying its probably psychological--and refer you to a mental health professional--who will not dispute its psychological. Has anyone ever heard of a mental health professional telling a patient their complaints are not psychological and are instead physical--I don't think that happens very often--I think psychiatry would claim all illnesses are psychological if they could get away with it. I think much of psychiatry is based on conjecture and speculation and can't be backed up with empirical-scientific evidence. However, I admit there may be some die hard psychiatrists out there who really believe some patients can experience physical illness that is influenced by ones environmental influences--and I have to admit that don't totally disbelieve that can happen--but, I still believe that doctors have no proven method of determining which patients with physical illnesses have organic-physical causes and which are caused by environmental stresses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Hi Shaun, I am proud of you. She wrote back to me the first time I contacted her, and I hope the personal stories from all of you will convince her to write about this. She wrote quite a damning article on SSRIs a few months ago, so I figured she would be a good person to contact as she is already skeptical about these drugs. We can only hope she decides our story is news worthy. We'll see, we have a subscription of Newsweek at my place, and I hope she'll email us if she decides to write about it. Thanks again for helping raise awareness. Perhaps if enough of us do things like that eventually doctors can take it seriously and investigate cures. I also hope to prevent others from having to deal with the humiliating, frustrating condition. They should at least be made aware of this before they take these drugs. - > > I went ahead and e-mailed Sharon Begley Friday morning. I know I expressed some reservations about e-mailing her in a previous posting to this blog--so that's why I thought I should inform people that I went ahead anyhow. > > The e-mail address I used didn't contain my real name--but, I am hoping she will accept it anyhow. > > In my letter to Ms. Begley I told yer it was okay to contact me using that e-mail address. > > I have not received an e-mail from Ms. Begley acknowledging my letter. > > I hope others will send her an e-mail to encourage her to investigate PSSD--and, if you do may I suggest that you include in your e-mail why you think your PSSD is due to SSRI and not psychological in origin--any circumstantial evidence such as time lines and if you were having normal sex prior to developing PSSD--and especially if you were able to have normal sex prior to PSSD while very depressed--to show her that you could still function sexually in past even though you were struggling with some mental/emotional problems. I say this because I expect Ms. Begley will here psychiatrists/psychologists try to convince her that our PSSD is a manifestation of some psychological pathology and not due to the medication we took. > > Its been my experience that psychiatry over uses the " its probably psychological " and that this is a diagnoses that can never be proved and is not based on scientific evidence--but, instead is a diagnoses by default--and this diagnoses can also be used to give patients the shuffle--what I mean is to get rid of a patients whose health circumstances are inconvenient. Has anyone ever heard of someone who was told their ache or pain was psychological who was later diagnosed with a serious physical illness--I think this happens all the time. I think when a doctor gives a diagnoses that a physical complaint is really psychological that they have no scientific evidence to back that up--no tests, etc.--and, that they either don't have a clue whats wrong with you but don't want to admit that--or, they know your problem is probably physical in origin--but, they find your health problem inconvenient to pursue helping--so they will try to get rid of you by > saying its probably psychological--and refer you to a mental health professional--who will not dispute its psychological. Has anyone ever heard of a mental health professional telling a patient their complaints are not psychological and are instead physical--I don't think that happens very often--I think psychiatry would claim all illnesses are psychological if they could get away with it. I think much of psychiatry is based on conjecture and speculation and can't be backed up with empirical-scientific evidence. However, I admit there may be some die hard psychiatrists out there who really believe some patients can experience physical illness that is influenced by ones environmental influences--and I have to admit that don't totally disbelieve that can happen--but, I still believe that doctors have no proven method of determining which patients with physical illnesses have organic-physical causes and which are caused by environmental stresses. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Where can I get or look up the article she wrote on SSRIs a few months ago? To: SSRIsex Sent: Mon, April 26, 2010 5:50:56 PMSubject: Re: Raising Awareness Hi Shaun,I am proud of you. She wrote back to me the first time I contacted her, and I hope the personal stories from all of you will convince her to write about this. She wrote quite a damning article on SSRIs a few months ago, so I figured she would be a good person to contact as she is already skeptical about these drugs. We can only hope she decides our story is news worthy. We'll see, we have a subscription of Newsweek at my place, and I hope she'll email us if she decides to write about it. Thanks again for helping raise awareness. Perhaps if enough of us do things like that eventually doctors can take it seriously and investigate cures. I also hope to prevent others from having to deal with the humiliating, frustrating condition. They should at least be made aware of this before they take these drugs. - >> I went ahead and e-mailed Sharon Begley Friday morning. I know I expressed some reservations about e-mailing her in a previous posting to this blog--so that's why I thought I should inform people that I went ahead anyhow.> > The e-mail address I used didn't contain my real name--but, I am hoping she will accept it anyhow.> > In my letter to Ms. Begley I told yer it was okay to contact me using that e-mail address.> > I have not received an e-mail from Ms. Begley acknowledging my letter.> > I hope others will send her an e-mail to encourage her to investigate PSSD--and, if you do may I suggest that you include in your e-mail why you think your PSSD is due to SSRI and not psychological in origin--any circumstantial evidence such as time lines and if you were having normal sex prior to developing PSSD--and especially if you were able to have normal sex prior to PSSD while very depressed--to show her that you could still function sexually in past even though you were struggling with some mental/emotional problems. I say this because I expect Ms. Begley will here psychiatrists/ psychologists try to convince her that our PSSD is a manifestation of some psychological pathology and not due to the medication we took.> > Its been my experience that psychiatry over uses the "its probably psychological" and that this is a diagnoses that can never be proved and is not based on scientific evidence--but, instead is a diagnoses by default--and this diagnoses can also be used to give patients the shuffle--what I mean is to get rid of a patients whose health circumstances are inconvenient. Has anyone ever heard of someone who was told their ache or pain was psychological who was later diagnosed with a serious physical illness--I think this happens all the time. I think when a doctor gives a diagnoses that a physical complaint is really psychological that they have no scientific evidence to back that up--no tests, etc.--and, that they either don't have a clue whats wrong with you but don't want to admit that--or, they know your problem is probably physical in origin--but, they find your health problem inconvenient to pursue helping--so they will try to get rid of you by> saying its probably psychological- -and refer you to a mental health professional- -who will not dispute its psychological. Has anyone ever heard of a mental health professional telling a patient their complaints are not psychological and are instead physical--I don't think that happens very often--I think psychiatry would claim all illnesses are psychological if they could get away with it. I think much of psychiatry is based on conjecture and speculation and can't be backed up with empirical-scientifi c evidence. However, I admit there may be some die hard psychiatrists out there who really believe some patients can experience physical illness that is influenced by ones environmental influences-- and I have to admit that don't totally disbelieve that can happen--but, I still believe that doctors have no proven method of determining which patients with physical illnesses have organic-physical causes and which are caused by environmental stresses.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Would it be possible to put Sharon Begley's email address as a sticky post so it's easy to find? I cant find it via search. > > > > I went ahead and e-mailed Sharon Begley Friday morning. I know I expressed some reservations about e-mailing her in a previous posting to this blog--so that's why I thought I should inform people that I went ahead anyhow. > > > > The e-mail address I used didn't contain my real name--but, I am hoping she will accept it anyhow. > > > > In my letter to Ms. Begley I told yer it was okay to contact me using that e-mail address. > > > > I have not received an e-mail from Ms. Begley acknowledging my letter. > > > > I hope others will send her an e-mail to encourage her to investigate PSSD--and, if you do may I suggest that you include in your e-mail why you think your PSSD is due to SSRI and not psychological in origin--any circumstantial evidence such as time lines and if you were having normal sex prior to developing PSSD--and especially if you were able to have normal sex prior to PSSD while very depressed--to show her that you could still function sexually in past even though you were struggling with some mental/emotional problems. I say this because I expect Ms. Begley will here psychiatrists/ psychologists try to convince her that our PSSD is a manifestation of some psychological pathology and not due to the medication we took. > > > > Its been my experience that psychiatry over uses the " its probably psychological " and that this is a diagnoses that can never be proved and is not based on scientific evidence--but, instead is a diagnoses by default--and this diagnoses can also be used to give patients the shuffle--what I mean is to get rid of a patients whose health circumstances are inconvenient. Has anyone ever heard of someone who was told their ache or pain was psychological who was later diagnosed with a serious physical illness--I think this happens all the time. I think when a doctor gives a diagnoses that a physical complaint is really psychological that they have no scientific evidence to back that up--no tests, etc.--and, that they either don't have a clue whats wrong with you but don't want to admit that--or, they know your problem is probably physical in origin--but, they find your health problem inconvenient to pursue helping--so they will try to get rid of you by > > saying its probably psychological- -and refer you to a mental health professional- -who will not dispute its psychological. Has anyone ever heard of a mental health professional telling a patient their complaints are not psychological and are instead physical--I don't think that happens very often--I think psychiatry would claim all illnesses are psychological if they could get away with it. I think much of psychiatry is based on conjecture and speculation and can't be backed up with empirical-scientifi c evidence.  However, I admit there may be some die hard psychiatrists out there who really believe some patients can experience physical illness that is influenced by ones environmental influences-- and I have to admit that don't totally disbelieve that can happen--but, I still believe that doctors have no proven method of determining which patients with physical illnesses have organic-physical causes and which are caused by environmental > stresses. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Shaoron Begly has just told me that she will be joining our group when she gets permission to cover the story. Her company is going through massive restructering at the moment (lay offs) and so it will be some time before she can fully cover our story. But she is determined she will do - she really wants to help. If this becomes a big story around the world and is accepted as fact, you can bet the drug companies will start investing massively to find a cure because this will be a big earner for them. It's a shame I just want to kill them, though. Kaivey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2010 Report Share Posted April 30, 2010 Seriously! Wow, I am glad I contacted her and posted her info on here so everyone could contact her. This is great news. Hopefully she gets permission. And yes maybe it will motivate the drug companies to do something. Even if we cannot stand them, and even if it doesn't help find a cure right away, think how many others out there are having these problems and don't know what is wrong or are afraid to come forward. This could really get the news out to help them and get it exposed to more psychiatrists so that they will know about it. I am glad she will be joining the board. I say welcome and thanks Sharon for listening to what we have to say. > > Shaoron Begly has just told me that she will be joining our group when she gets permission to cover the story. Her company is going through massive restructering at the moment (lay offs) and so it will be some time before she can fully cover our story. But she is determined she will do - she really wants to help. > > If this becomes a big story around the world and is accepted as fact, you can bet the drug companies will start investing massively to find a cure because this will be a big earner for them. It's a shame I just want to kill them, though. > > Kaivey > Quote Link to comment Share on other sites More sharing options...
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