Re: Is anyone having a bad summer like me?

[Guest guest]

-

I think there are many who are. I have a double whammy as I work next to the

WTC site and on a humid day, there is a terrible smell emminating from that

area, I'm sure there are chemicals or something in the air. Sometimes on a

humid day, it takes all I can do to get to the bus stop.

Sylvia

[Guest guest]

Sorry , but I don't have an answer for you. I can't tolerate the heat

and humidity like I used to. I live in St. Louis, and we have been out of power

for a week. The heat indices have been as high as 106 (at 10pm!) I believe I

will have repercussions for quite some time due to outage. Hang in there and

try to stay cool inside

Jane

[Guest guest]

Hi

Sorry things are not great for you, yes its the same for me, i live in the uk

and the temps are hot at the mo, the fibro pain is not so bad but the weather

has made me more tired and struggling to do daily tasks.

The damp weather makes my fibro worse but the hot weather seems to help it,

though now we have had some rain today things might get worse, i'll just have to

wait and see!

Unfortunately I have not any advice because Ive only had cfs/fibro for seven

months so im also after any advice ! Good luck and I hope things pick up soon.

Best wishes

Sandy

[Guest guest]

Hi ,

Answer, is yes...

Jeanette

Is anyone having a bad summer like me?

I was wondering if anyone else is having a bad summer like me. The

humitiy is so bad that I hurt all day. I have fibro, CFS, spurs on

neck and spine, and a herniated disc that is causing the sciatic to

hurt. But, the weather is taking a toll on me. Has anyone found

anything to help the pain? I am in physical Ther. but, I feel like it

is not helping, but been going for just 3 visits. Help please!

[Guest guest]

Hi , Sandy

My name is Jules and I live in the UK. I was diagnosed with Fibromyalgia & ME

in 2002. I am sorry that you are both not feeling well. Pain is a problem for me

too. Regarding advice - A warm shower, long soak in a warm bath, heat pack, cold

pack, massage, pain medication. Trying to disstract yourself to take your mind

off the pain - watching tv, dvd, reading, listening to the radio, music.

[Guest guest]

Having the same problems here , and no, so far I haven't found anything

to help much. I stay in my home, with the air conditioner on, and this barely

takes the edge off along with the Ultram I'm on and also the Flexaril. I just

feel I need to accept I'll always be in pain like this.

Rhonda

Is anyone having a bad summer like me?

I was wondering if anyone else is having a bad summer like me. The

humitiy is so bad that I hurt all day. I have fibro, CFS, spurs on

neck and spine, and a herniated disc that is causing the sciatic to

hurt. But, the weather is taking a toll on me. Has anyone found

anything to help the pain? I am in physical Ther. but, I feel like it

is not helping, but been going for just 3 visits. Help please!

[Guest guest]

Dear Rhonda,

Well here in Australia we are in our winter. I love it. The humidity of our

summers really knocks me about terribly and I have so much less energy then in

winter.

Regards Nerida

Rhonda Huffman wrote:

Having the same problems here , and no, so far I haven't found

anything to help much. I stay in my home, with the air conditioner on, and this

barely takes the edge off along with the Ultram I'm on and also the Flexaril. I

just feel I need to accept I'll always be in pain like this.

Rhonda

[Guest guest]

I'm having a particularly bad summer as well.

This bout of bad pain, fatigue, and depression has lasted about two

months now. I haven't had such a long stretch since I was first

diagnosed. With the hot weather, we've had a lot of thunderstorms which

I've noticed does seem to make my conditions worse.

Tami

[Guest guest]

Hi Jules

Hows things with you?

Thanks for the advice, most of those things do help, except the massage, when

I had a massage it made the pain worse, and now i wont have another one, I

suppose different things work for different people, alot of things are trial and

error so ive found out the hard way !

Where abouts are you from, i come from lincolnshire.

All the best Sandy

jules smith wrote:

Hi , Sandy

My name is Jules and I live in the UK. I was diagnosed with Fibromyalgia & ME in

2002. I am sorry that you are both not feeling well. Pain is a problem for me

too. Regarding advice - A warm shower, long soak in a warm bath, heat pack, cold

pack, massage, pain medication. Trying to disstract yourself to take your mind

off the pain - watching tv, dvd, reading, listening to the radio, music.

[Guest guest]

YES!!! I feel as if I've been beaten with a BIG stick!! Debby

Tami Brady wrote:

I'm having a particularly bad summer as well.

This bout of bad pain, fatigue, and depression has lasted about two

months now. I haven't had such a long stretch since I was first

diagnosed. With the hot weather, we've had a lot of thunderstorms which

I've noticed does seem to make my conditions worse.

Tami

[Guest guest]

summer has beeb really badd for me

fibro fog seems to be with me all the time

pain does it ever leave

im on oxygen 24/7 helps to breathe have copd and heart problems

wonder what winter will bring

marianne oconnor li n.y

Encouraging one another as long as it is called Today!

the lord be with you all

[Guest guest]

Thanks to everyone that replied to my question. This has been a bad summer for

me and I wanted to see if others had this. Thank you again.

NC

[Guest guest]

,

Oh heck yes. This summer has been the worst. I have been out of work on

disability since may 15 due to the incredible, unrelenting pain and fog.

Having to play musical Doctors has NOT helped any, I finally got a doctor to

see me who is: a. on my insurance b. does NOT charge $150.00 extra

every time I need him to fill out/sign simple one or two page documents for

work so I can keep my job and c. does treat Fibro.

So far this summer, I have been told I am too stupid to know WHAT symptoms I

am having, that Fibromyalgia is NOT a disease and i need to see a

psychiatrist, I have a psychiatrist who does not want to continue seeing me

after he gets my meds stable and psychologist who is willing (thank

goodness) to learn about fibro. I also have an internist who apparently

wont treat anything more complicated than a simple cold, so I cant get any

pain relief until the end of september unless I go to the hospital. Ultram

is making me jittery and even more sleepless, I have finally run out of the

few lortab I was hoarding, and if I take enough Xanax to put me to sleep, I

sleep for 20 hrs at a time-and still wake up feeling like I was run over by

a beer wagon. And I have had trouble remembering how to spell my name.

Literally. This fog/cognitive dissonance stuff is, for me, the worst part

of the disease. I have always been very mentally organized, and very smart,

flexible, quick to learn, etc. Not this year. I cant even read a book I

havent read before without having to take notes, reread it 5 or 6 times,

then I STILL dont remember or understand half of what I read. Which is

probably the most depressing thing that has ever happened to me.

I live in FL, where the weather is like this 9 months out of the year, so it

can't be just the heat/humidity. My fiance and I are actually looking into

moving to the Charlotte, NC area because they seem to have better weather

most of the year, without being hip-deep in snow all winter. And they have

many docs on the various fibro good doctor lists. We also have friends

there, who are sending us lots of info, and we are going to visit them

several times over the next year or two to see what it is like for ourselves

B

" I'm not a person who thinks the world would be entirely different if it was run

by women. If you think that, you've forgotten what high school was like. "

Madeleine Albright

[Guest guest]

Bad Summer??????????? It's so bad that my brain won't even function well

enough to explain how bad!

I try to remember that this has happened before...and that I finally did get

a bit better...but each time I have one of these long term flare ups I truly

think it is worse than the ones that came before. Instead of slowly getting

better, as I had hoped...I think I am on a very gradual downhill trend...and

I find that frightening.

Jan in NH