Guest guest Posted August 15, 2002 Report Share Posted August 15, 2002 Hi everyone, That was me sending a unsigned question. I just found out Rochelle has Celiac. I can't believe it. I finally went back to the nutrionist/biochemist doctor for the results of Rochelle's bloodtests. The doctor said Rochelle had Celiac and at risk for Diabetes. Thyroid is at risk too. I just found out today and have not had time to digest this new diagnosis. I still can't believe it. She had no symptoms!!! Other than the Autism. She will have to be on a special diet for life. I thought she just needed a little vitamin supplement. Tell me it's ok. This week has been very hectic and I haven't read all the posts for the last few days. We had a hair anaylsis done and now I need to get a water purifier and bottled water. No wheat, no eggs, no peanut butter, no dairy. I don't know what I am going to feed this child. A friend did lend me book and I am blessed to have a supportive friend. I have to say though that I am still shocked. The doctor thinks my son should be tested too! The whole family is going on this diet except maybe the bread thing. The gluten/wheat free bread is just gross. I love fresh bread. Does anyone know a good recepe for gluten/wheat bread? I am going out to buy a bread machine this weekend. I will not give Rochelle those brick breads from Fresh fields. Why are we all tested so? I don't expect an answer to that question. I clearly remember a post by someone, was it that their child is allergic to almost everything. God bless you. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2002 Report Share Posted August 15, 2002 > Tell me it's ok. Diane, It is OK! Life goes on for us and it will for you. Be sure to get other family members tested before they start the diet At first we only had JJ on the diet and I made 2 dinner types every night. That was a pain. So even before was tested we all went GF at home. As time passes it gets easier. Just hang in there. I will help all I can. & Garry, parents of (11 ds), (10 ds), JJ (8 ds/autism/celiac), (7 ds/ADHD/Celiac/hearing impaired), and Esther (5 ds). All adopted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 In a message dated 8/16/02 9:45:31 AM Eastern Daylight Time, DPLigon@... writes: > Dawn (can she have other > peanut butters, like sunflower seeds made into peanut butter or > macadamian nuts? sometimes these can be tolerated better) I know > can help, and all the other moms who are doing this now!! > Thanks for everyone's support. I think she can have nuts that are not peanuts. My friend just brought over some homemade chicken nuggets and cereal that is gfcf. Today Rochelle woke up with a draining ear. Off to the doctor. It is sooo smelly and green. I've never seen it this bad. She is bearly complaining. This diet is quite overwelming. Alot to read. Glad I have you all to get info from. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 -Diane, thinking of you so much!! It will be okay, I know all these changes will help Rochelle, even though I know how hard it will be, but glad they figured all of this out! I even tried this diet with for the autism, it really worked out okay, and I am not even much of a cook. I will pray for ya, and I know you can do it, we are all cheering you on, God Bless you too, Dawn (can she have other peanut butters, like sunflower seeds made into peanut butter or macadamian nuts? sometimes these can be tolerated better) I know can help, and all the other moms who are doing this now!! Dawn, s mom -- In @y..., dben937342@a... wrote: > Hi everyone, > That was me sending a unsigned question. I just found out Rochelle has > Celiac. I can't believe it. I finally went back to the nutrionist/biochemist > doctor for the results of Rochelle's bloodtests. The doctor said Rochelle had > Celiac and at risk for Diabetes. Thyroid is at risk too. I just found out > today and have not had time to digest this new diagnosis. I still can't > believe it. She had no symptoms!!! Other than the Autism. She will have to be > on a special diet for life. I thought she just needed a little vitamin > supplement. Tell me it's ok. > > This week has been very hectic and I haven't read all the posts for the last > few days. We had a hair anaylsis done and now I need to get a water purifier > and bottled water. No wheat, no eggs, no peanut butter, no dairy. I don't > know what I am going to feed this child. A friend did lend me > book and I am blessed to have a supportive friend. I have to say though that > I am still shocked. The doctor thinks my son should be tested too! The whole > family is going on this diet except maybe the bread thing. The gluten/wheat > free bread is just gross. I love fresh bread. Does anyone know a good recepe > for gluten/wheat bread? I am going out to buy a bread machine this weekend. I > will not give Rochelle those brick breads from Fresh fields. Why are we all > tested so? I don't expect an answer to that question. I clearly remember a > post by someone, was it that their child is allergic to almost > everything. God bless you. > Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 In a message dated 8/15/02 6:58:50 PM Pacific Daylight Time, dben937342@... writes: << Hi everyone, That was me sending a unsigned question. I just found out Rochelle has Celiac. I can't believe it. >> Diane, Gosh, I'm so sorry you have another mountain to climb. It's downright amazing how we deal with all the stuff thrown at us, but we do...and most of the time we do it pretty darn well! I'll keep you in my prayers that this mountain be much smaller than it looks right now. (((((hugs))))) Gail :-) Some days are a total waste of makeup. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2005 Report Share Posted June 29, 2005 Hmmmm, wow. I have Fibromyalgia and Chronic Fatigue, both obviously come on like a knife all at once supposedly from some " trauma " . I wonder if I should get tested for celiac??? Kris Hi Suze, Just wondering what you think about this: My gastroenterologist thought that the real problems for celiac start when your body has sustained some " insult " . In my case he said he thinks it was a virus that may have really set it off. (He thinks a virus was behind the Lake Tahoe CFS outbreak in 1986 that I was sorely infected with. They called it Epstein-Barr back then..) He said he thinks celiac is " the great mimic " and that is why it is so often underdiagnosed.. Your candida must have come about from some other " insult " no? Did you take a lot of antibiotics around that time for something? Or what caused the imbalance? ~Robin Quote Link to comment Share on other sites More sharing options...
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