Re: pernicious anemia - interesting

[Guest guest]

I haven't seen the nasal spray. Has anyone tried it? wrote: Yes, every bit of research I've done on it says that the sublingual is justas good. Yrs ago, they didn't know that they could put it in liquid ordissolving capsule form under the tongue, so yes, the shot WAS the onlything at the time. Now there is also a nasal spray that they're all sayingis even more effective than sublingual, and both ways are much moreconvenient too, than making a trip to the doc's office to get a shot everyweek or month. Re: pernicious anemia -

interesting> Actually there are studies out that say that the sublingual is just as a> effective as the shots. That's the research that I found.>> Kate

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[Guest guest]

Kate, I don't remember what the dosage was. Only went with what the doctor told me to use. After reading all the info. here, I'm going to try it again with the dosage you recommend. The shot had a tremendous effect for me. Helped so much with energy, clarity in the old noggin', etc. thanks for the suggestion!Kate Guynn wrote: How many mcg was it? I try to do two 2500mcg per day. Of course the doctor will say that, they don't make a co-pay off that ;-) Seriously, make sure that you are taking around 500mcg per day and that it is sublingual, I fully agree that a B12 that is swallowed is useless in pernicious anemia. Try it for 6-8 weeks and have your blood tested.KateAt 02:51 PM 1/18/2006, you

wrote:>I've tried the sublingual B12 and didn't have the same results as the >shot. Could have been because of the dosage in the shot tho. I was told >by the doctors I went to that the B12 pills are of no use, but don't know >for sure. Can't say I saw a tremendous effect from the sublingual B12, >but I think its worth a try. Its easy and less trouble!>Kate Guynn wrote:>Actually there are studies out that say that the sublingual is just as a>effective as the shots. That's the research that I found.>>Kate>>>At 12:08 AM 1/18/2006, you wrote:> >I have read that with real Pernicious Anemia, you have> >to do the shots. After my husband had cancer (before> >I knew him), they gave him B12 shots. He said they> >hurt. He also said they work really well.> >> >--- Kate

Guynn wrote:> >> >> >---------------------------------> >I have Hashi's and Pernicious Anemia (as well as> >adrenal> >fatigue). Pernicious Anemia is called an autoimmune> >disease. It is> >B12. You lack the intrinsic factor to absorb it. I> >take sublingual vs the> >shots. We are going to test again in Feb and see if> >my B12 is better, if> >not she wants to move to shots.> >> >Kate> >> >> >> >> >> >

[Guest guest]

No, I haven't tried that one yet.

Re: pernicious anemia - interesting

I haven't seen the nasal spray. Has anyone tried it?

[Guest guest]

Yes. He was a Dutch doctor (lightyrs ago) and didn't believe in the

cortisone treatment for Bell's Palsy, and that's what I had. A month's

worth of B12 shots made it all better. I've really got to wonder, though,

whether or not Bell's Palsy is actually a neurological manifestation of

severe B12 shortage, and that maybe the stress of a very long labor didn't

bring it out more. Don't know why I would have had a shortage then, though,

as I always felt wonderful in those days, never sick from anything (18 yrs

old, going on 19). Anyway, the Palsy went away, starting just one day after

he started the B12 shots, so I really didn't mind if the shots stung.

Re: pernicious anemia - interesting

> How awful! Did you feel better after your shots?

>

> Courtenay.

[Guest guest]

Hey, I was just teasing about the "fake" PA <grin>... There is a very simple test for PA...it's called the Schilling Test. Painless and simple to get done...and there is no "grey" area with it.. you either have PA or you don't from the results. Google it and see if it might help you! My docs could not believe that I had PA cos I was only 42 years old at the time..so they kept testing me for everything else..and coming up empty..finally I did my own research and demanded the Schilling Test.. Voila - I have PA...docs can be stupid at times...so you will have to do your own research at times..trust your gut instinct! Cheers, TeeCourtenay wrote: I was not trying to

indicate that your perniciousanemia is not real. I'm sorry if my post gave thatimpression.I've been doing a lot of reading on B12 and perniciousanemia lately, as I've been having issues with my ownlow B12. I have not been tested for perniciousanemia, as far as I know, but given my lab tests, myability to absorb it is possible. It's folate thatwas giving me problems. So, I had stopped taking myB-Complex about nine months ago, and then my B12levels started to go through the floor....Anyway, I've been taking sublingual B12 for 29 days,and a B-Complex for about a week, and I am seeingdefinite improvements. I did read, though, that B12 binds with folate, soI've been eating lots of folate rich foods, until Ifelt I could tolerate the B-Complex.Regarding my husband, he did not have PA, thankgoodness. He had a really weird form of stomachcancer and generally

couldn't eat much for the twoyears he was under treatment. That's how his B12levels ended up depleted.--- Tee wrote:> Courtenay, I have "real" Pernicious Anemia - what> is "fake" PA? <smile>> I have taken shots for 4 years and in Sept my> thyroid doc put me on B12 tablets...> apparently the tablets get absorbed in the> intestines as the stomach can no longer make> Intrinsic Factor (IF) to bind with the B12. Have> your hubby give it a 60 day trial...that is> basically what I did cos I didn't believe that it> would truly work...well it works!!! Yeah the shots> are a pain cos they have to be given into the> muscle, requiring a nice long syringe needle too. > Try the pills and see...if they don't work then he> can always go back to the shots..>

Cheers, Tee>

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Blessings & Joy, The Tee in Texas! ¤º°`°º¤ø,¸¸,ø¤¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤¤ø,¸¸,ø¤¤

[Guest guest]

WOW. That's really interesting. Yet another good

reason to take vitamins. I've never met anyone in the

throes of Bell's Palsy, though I do know people who

have had it.

--- wrote:

---------------------------------

Yes. He was a Dutch doctor (lightyrs ago) and didn't

believe in the

cortisone treatment for Bell's Palsy, and that's what

I had. A month's

worth of B12 shots made it all better. I've really

got to wonder, though,

whether or not Bell's Palsy is actually a neurological

manifestation of

severe B12 shortage, and that maybe the stress of a

very long labor didn't

bring it out more. Don't know why I would have had a

shortage then, though,

as I always felt wonderful in those days, never sick

from anything (18 yrs

old, going on 19). Anyway, the Palsy went away,

starting just one day after

he started the B12 shots, so I really didn't mind if

the shots stung.

[Guest guest]

Thanks, Tee!

My post was stalled for days (?) so it didn't show up until I had

read all the other stuff on B12. Sounds like if you're deficient in

both, you should take both B12 and iron. Do you think they should

be taken at the same time? I take my B12 w/breakfast and iron

w/dinner because of thyroid meds.

> Yes, interesting. What do they recommend? Iron?

>

> Thanks.

>

>

[Guest guest]

The only iron that I get is from a multi-vitamin and I take it in the AM along with my b12 tablet. So I would think it does not matter when you take them...I just make sure that I don't take them too close to taking my Armour... Cheers,Tee wrote: Thanks, Tee!My post was stalled for days (?) so it didn't show up until I had read all the other stuff on B12. Sounds like if you're deficient in both, you should take both B12 and iron. Do you think they should be taken at the same time? I take my B12 w/breakfast and iron w/dinner because of thyroid meds.> Yes, interesting. What do they recommend? Iron?> > Thanks.> >

¤º°`°º¤ø,¸¸,ø¤¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤¤ø,¸¸,ø¤¤ Don't Take Life Seriously. It's Not Permanent!

Blessings & Joy, The Tee in Texas! ¤º°`°º¤ø,¸¸,ø¤¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤¤ø,¸¸,ø¤¤

[Guest guest]

My mother and I both seem to share B12 anemia. I

don't think that I have PA because my levels did go up

after taking a B-Complex for about four months. The

only reason I stopped was that I couldn't tolerate the

folate in it. Of course, my B12 levels dropped like a

stone in a lake. The doctor prescribed B12 over nine

months ago, but I had been so intolerant of

everything, that it has taken me up to now to finally

start that particular phase of my recovery.

When I started reading the vitamin books I have around

the house, I discovered that folate intolerance and

B12 issues are basically siamese twins. One can

really kick-start the other, and B12 anemia can look

just like folate anemia. Plus, B12 binds with folate

in your blood in order to be transported throughout

your system. If you don't supplement folate, it will

leech what is already there.

The way I tried to get around is to take B-12 for four

weeks, eat a WHOLE lot of Brussel sprouts (four to

five times a week) and a few organic oranges from my

grandma's tree, and then gradually start adding in a

B-Complex. This is the first time I've successfully

been able to tolerate B vitamins, ever. They always

made me sleepy.

This is why I am so annoyed that I was intolerant of

Foltx, because I might not have been as sick last year

if my body had been amenable to that particular

compound of vitamins. Adding back in the vitamins

slowly has been a real a-ha! moment for me.

My best friend's mother had PA something awful in high

school. From being around their house, I know just

how bad pernicious anemia can be. She couldn't work,

off and on, for years.

--- Tee wrote:

> Hey, I was just teasing about the " fake " PA

> <grin>...

>

> There is a very simple test for PA...it's called

> the Schilling Test.

> Painless and simple to get done...and there is no

> " grey " area with it..

> you either have PA or you don't from the results.

>

> Google it and see if it might help you! My docs

> could not believe that I had PA cos I was only 42

> years old at the time..so they kept testing me for

> everything else..and coming up empty..finally I did

> my own research and demanded the Schilling Test..

> Voila - I have PA...docs can be stupid at

> times...so you will have to do your own research at

> times..trust your gut instinct!

>

> Cheers, Tee

>

[Guest guest]

My mother and I both seem to share B12 anemia. I

don't think that I have PA because my levels did go up

after taking a B-Complex for about four months. The

only reason I stopped was that I couldn't tolerate the

folate in it. Of course, my B12 levels dropped like a

stone in a lake. The doctor prescribed B12 over nine

months ago, but I had been so intolerant of

everything, that it has taken me up to now to finally

start that particular phase of my recovery.

When I started reading the vitamin books I have around

the house, I discovered that folate intolerance and

B12 issues are basically siamese twins. One can

really kick-start the other, and B12 anemia can look

just like folate anemia. Plus, B12 binds with folate

in your blood in order to be transported throughout

your system. If you don't supplement folate, it will

leech what is already there.

The way I tried to get around is to take B-12 for four

weeks, eat a WHOLE lot of Brussel sprouts (four to

five times a week) and a few organic oranges from my

grandma's tree, and then gradually start adding in a

B-Complex. This is the first time I've successfully

been able to tolerate B vitamins, ever. They always

made me sleepy.

This is why I am so annoyed that I was intolerant of

Foltx, because I might not have been as sick last year

if my body had been amenable to that particular

compound of vitamins. Adding back in the vitamins

slowly has been a real a-ha! moment for me.

My best friend's mother had PA something awful in high

school. From being around their house, I know just

how bad pernicious anemia can be. She couldn't work,

off and on, for years.

--- Tee wrote:

> Hey, I was just teasing about the " fake " PA

> <grin>...

>

> There is a very simple test for PA...it's called

> the Schilling Test.

> Painless and simple to get done...and there is no

> " grey " area with it..

> you either have PA or you don't from the results.

>

> Google it and see if it might help you! My docs

> could not believe that I had PA cos I was only 42

> years old at the time..so they kept testing me for

> everything else..and coming up empty..finally I did

> my own research and demanded the Schilling Test..

> Voila - I have PA...docs can be stupid at

> times...so you will have to do your own research at

> times..trust your gut instinct!

>

> Cheers, Tee

>