Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 I have Hashi's and Pernicious Anemia (as well as adrenal fatigue). Pernicious Anemia is called an autoimmune disease. It is B12. You lack the intrinsic factor to absorb it. I take sublingual vs the shots. We are going to test again in Feb and see if my B12 is better, if not she wants to move to shots. Kate At 08:20 PM 1/17/2006, you wrote: >I asked the questions on the Google home page: What is Pernicious Anemia? >And this is one of the eight or so answers which came back. > >Pernicious anemia--A deficiency of the oxygen-carrying red blood cells that >often occurs in people with autoimmune diseases of the thyroid gland. > >Interesting. > >Terijo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 What a strange answer they gave! Pernicious Anemia is that particular condition of the red blood cells, but brought on by a B12 deficiency, permanent in nature, as a person's digestive tract can no longer absorb B12, so it must be taken by injection and/or sublingually to absorb it, all the rest of one's life. There are usually antibodies in the gut that have destroyed the way to absorb it. The anemia described there is the result of this deficiency. pernicious anemia - interesting > I asked the questions on the Google home page: What is Pernicious Anemia? > And this is one of the eight or so answers which came back. > > Pernicious anemia--A deficiency of the oxygen-carrying red blood cells that > often occurs in people with autoimmune diseases of the thyroid gland. > > Interesting. > > Terijo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 In all the books I read, they called the anitbodies " intrinsic factor " without really explaining what it was. Best-- Courtenay --- wrote: There are usually antibodies in the gut that have destroyed the way to absorb it. The anemia described there is the result of this deficiency. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 I have read that with real Pernicious Anemia, you have to do the shots. After my husband had cancer (before I knew him), they gave him B12 shots. He said they hurt. He also said they work really well. --- Kate Guynn wrote: --------------------------------- I have Hashi's and Pernicious Anemia (as well as adrenal fatigue). Pernicious Anemia is called an autoimmune disease. It is B12. You lack the intrinsic factor to absorb it. I take sublingual vs the shots. We are going to test again in Feb and see if my B12 is better, if not she wants to move to shots. Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Kate, I too have PA and Hashi's...and I recently switched to the Folbic tabs...was not sure that it make a difference but my B12 is going up so it's working. For the past 4 years I've been on shots...but my thyroid doc tells me that getting a daily dose (the tablets) is better for me overall than the once-a-month B12 shot. Let me know what happens with your levels when you go next month. I'm curious now! wrote: I have Hashi's and Pernicious Anemia (as well as adrenal fatigue). Pernicious Anemia is called an autoimmune disease. It is B12. You lack the intrinsic factor to absorb it. I take sublingual vs the shots. We are going to test again in Feb and see if my B12 is better, if not she wants to move to shots.KateAt 08:20 PM 1/17/2006, you wrote:>I asked the questions on the Google home page: What is Pernicious Anemia?>And this is one of the eight or so answers which came back.>>Pernicious anemia--A deficiency of the oxygen-carrying red blood cells that>often occurs in people with autoimmune diseases of the thyroid gland.>>Interesting.>>Terijo ¤º°`°º¤ø,¸¸,ø¤¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤¤ø,¸¸,ø¤¤ Don't Take Life Seriously. It's Not Permanent! Blessings & Joy, The Tee in Texas! ¤º°`°º¤ø,¸¸,ø¤¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤¤ø,¸¸,ø¤¤ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Actually there are studies out that say that the sublingual is just as a effective as the shots. That's the research that I found. Kate At 12:08 AM 1/18/2006, you wrote: >I have read that with real Pernicious Anemia, you have >to do the shots. After my husband had cancer (before >I knew him), they gave him B12 shots. He said they >hurt. He also said they work really well. > >--- Kate Guynn wrote: > > >--------------------------------- >I have Hashi's and Pernicious Anemia (as well as >adrenal >fatigue). Pernicious Anemia is called an autoimmune >disease. It is >B12. You lack the intrinsic factor to absorb it. I >take sublingual vs the >shots. We are going to test again in Feb and see if >my B12 is better, if >not she wants to move to shots. > >Kate > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Courtenay, I have "real" Pernicious Anemia - what is "fake" PA? <smile> I have taken shots for 4 years and in Sept my thyroid doc put me on B12 tablets... apparently the tablets get absorbed in the intestines as the stomach can no longer make Intrinsic Factor (IF) to bind with the B12. Have your hubby give it a 60 day trial...that is basically what I did cos I didn't believe that it would truly work...well it works!!! Yeah the shots are a pain cos they have to be given into the muscle, requiring a nice long syringe needle too. Try the pills and see...if they don't work then he can always go back to the shots.. Cheers, TeeCourtenay wrote: I have read that with real Pernicious Anemia, you haveto do the shots. After my husband had cancer (beforeI knew him), they gave him B12 shots. He said theyhurt. He also said they work really well.--- Kate Guynn wrote:---------------------------------I have Hashi's and Pernicious Anemia (as well asadrenal fatigue). Pernicious Anemia is called an autoimmunedisease. It is B12. You lack the intrinsic factor to absorb it. Itake sublingual vs the shots. We are going to test again in Feb and see ifmy B12 is better, if not she wants to move to shots.Kate ¤º°`°º¤ø,¸¸,ø¤¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤¤ø,¸¸,ø¤¤ Don't Take Life Seriously. It's Not Permanent! Blessings & Joy, The Tee in Texas! ¤º°`°º¤ø,¸¸,ø¤¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤¤ø,¸¸,ø¤¤ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 No offense to your husband but in the interest of those who may be warned off from B-12 injections on his report, I think maybe Hubby may be trying to get some sympathy or got a nurse that gave bad injections because I gave myself the shots years ago and they didn't hurt. M.Kate Guynn wrote: Actually there are studies out that say that the sublingual is just as a effective as the shots. That's the research that I found.KateAt 12:08 AM 1/18/2006, you wrote:>I have read that with real Pernicious Anemia, you have>to do the shots. After my husband had cancer (before>I knew him), they gave him B12 shots. He said they>hurt. He also said they work really well.>>--- Kate Guynn wrote:>>>--------------------------------->I have Hashi's and Pernicious Anemia (as well as>adrenal>fatigue). Pernicious Anemia is called an autoimmune>disease. It is>B12. You lack the intrinsic factor to absorb it. I>take sublingual vs the>shots. We are going to test again in Feb and see if>my B12 is better, if>not she wants to move to shots.>>Kate>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 You have cut things out of context. I am NOT the one whos husband had shots. I am the one who has pernicious anemia and has done the research that states that B12 sublingual is just as effective as the shots. Kate At 11:47 AM 1/18/2006, you wrote: >No offense to your husband but in the interest of those who may be warned >off from B-12 injections on his report, I think maybe Hubby may be trying >to get some sympathy or got a nurse that gave bad injections because I >gave myself the shots years ago and they didn't hurt. >M. > >Kate Guynn wrote: >Actually there are studies out that say that the sublingual is just as a >effective as the shots. That's the research that I found. > >Kate > > >At 12:08 AM 1/18/2006, you wrote: > >I have read that with real Pernicious Anemia, you have > >to do the shots. After my husband had cancer (before > >I knew him), they gave him B12 shots. He said they > >hurt. He also said they work really well. > > > >--- Kate Guynn wrote: > > > > > >--------------------------------- > >I have Hashi's and Pernicious Anemia (as well as > >adrenal > >fatigue). Pernicious Anemia is called an autoimmune > >disease. It is > >B12. You lack the intrinsic factor to absorb it. I > >take sublingual vs the > >shots. We are going to test again in Feb and see if > >my B12 is better, if > >not she wants to move to shots. > > > >Kate > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Yes, interesting. What do they recommend? Iron? Thanks. > > I asked the questions on the Google home page: What is Pernicious Anemia? > And this is one of the eight or so answers which came back. > > Pernicious anemia--A deficiency of the oxygen-carrying red blood cells that > often occurs in people with autoimmune diseases of the thyroid gland. > > Interesting. > > Terijo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Kate, Will you let us know if the sublingual B12 improves your levels? Thanks. > > I have Hashi's and Pernicious Anemia (as well as adrenal > fatigue). Pernicious Anemia is called an autoimmune disease. It is > B12. You lack the intrinsic factor to absorb it. I take sublingual vs the > shots. We are going to test again in Feb and see if my B12 is better, if > not she wants to move to shots. > > Kate > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 You bet! Kate At 12:04 PM 1/18/2006, you wrote: >Kate, > >Will you let us know if the sublingual B12 improves your levels? >Thanks. > > > > > > > I have Hashi's and Pernicious Anemia (as well as adrenal > > fatigue). Pernicious Anemia is called an autoimmune disease. It >is > > B12. You lack the intrinsic factor to absorb it. I take >sublingual vs the > > shots. We are going to test again in Feb and see if my B12 is >better, if > > not she wants to move to shots. > > > > Kate > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Actually, no. If you don't get the B12 into your blood stream then there is nothing to bind to any iron found in your blood. Thus, iron pills would do nothing for you. B12 is required to bind iron to red blood cells. No B12 = no life. It is a requirement at all levels of human life. That is also why vegetarians end up with PA sometimes...they neglect to get their B12 from vitamins etc. Cheers, Tee wrote: Yes, interesting. What do they recommend? Iron?Thanks. >> I asked the questions on the Google home page: What is Pernicious Anemia?> And this is one of the eight or so answers which came back.> > Pernicious anemia--A deficiency of the oxygen-carrying red blood cells that> often occurs in people with autoimmune diseases of the thyroid gland.> > Interesting.> > Terijo> ¤º°`°º¤ø,¸¸,ø¤¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤¤ø,¸¸,ø¤¤ Don't Take Life Seriously. It's Not Permanent! Blessings & Joy, The Tee in Texas! ¤º°`°º¤ø,¸¸,ø¤¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤¤ø,¸¸,ø¤¤ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 I went and checked with my husband regarding the shots he had after cancer treatment. He got them at the VA. He said, in retrospect, it may have been the administration of the shots, not the shot itself. Also, from what I understand, he wasn't in a good way at the time from all the treatment of the stomach cancer. So B12 shots= no pain, if administered correctly, I guess. --- Marilyn wrote: > No offense to your husband but in the interest of > those who may be warned off from B-12 injections on > his report, I think maybe Hubby may be trying to get > some sympathy or got a nurse that gave bad > injections because I gave myself the shots years ago > and they didn't hurt. > M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 I was not trying to indicate that your pernicious anemia is not real. I'm sorry if my post gave that impression. I've been doing a lot of reading on B12 and pernicious anemia lately, as I've been having issues with my own low B12. I have not been tested for pernicious anemia, as far as I know, but given my lab tests, my ability to absorb it is possible. It's folate that was giving me problems. So, I had stopped taking my B-Complex about nine months ago, and then my B12 levels started to go through the floor.... Anyway, I've been taking sublingual B12 for 29 days, and a B-Complex for about a week, and I am seeing definite improvements. I did read, though, that B12 binds with folate, so I've been eating lots of folate rich foods, until I felt I could tolerate the B-Complex. Regarding my husband, he did not have PA, thank goodness. He had a really weird form of stomach cancer and generally couldn't eat much for the two years he was under treatment. That's how his B12 levels ended up depleted. --- Tee wrote: > Courtenay, I have " real " Pernicious Anemia - what > is " fake " PA? <smile> > I have taken shots for 4 years and in Sept my > thyroid doc put me on B12 tablets... > apparently the tablets get absorbed in the > intestines as the stomach can no longer make > Intrinsic Factor (IF) to bind with the B12. Have > your hubby give it a 60 day trial...that is > basically what I did cos I didn't believe that it > would truly work...well it works!!! Yeah the shots > are a pain cos they have to be given into the > muscle, requiring a nice long syringe needle too. > Try the pills and see...if they don't work then he > can always go back to the shots.. > Cheers, Tee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 I can only imagine that the treatment at the VA for stomach cancer years ago was far less than pleasant. It is likely that everything hurt. He has my total sympathy for that and I wish him great health in the future. M.Courtenay wrote: I went and checked with my husband regarding the shotshe had after cancer treatment. He got them at the VA.He said, in retrospect, it may have been theadministration of the shots, not the shot itself. Also, from what I understand, he wasn't in a good wayat the time from all the treatment of the stomachcancer. So B12 shots= no pain, if administered correctly, Iguess. --- Marilyn wrote:> No offense to your husband but in the interest of> those who may be warned off from B-12 injections on> his report, I think maybe Hubby may be trying to get> some sympathy or got a nurse that gave bad> injections because I gave myself the shots years ago> and they didn't hurt.> M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Six guys from his unit or group or whatever it's called died from the same cancer around the same time. I met him about five years after he finished his service. He's doing well now, over ten years cancer free, although I wish he would get checked more regularly. He's a real tough guy when it comes to pain, sometimes too tough. Thank you, Marilyn. --- Marilyn wrote: > I can only imagine that the treatment at the VA for > stomach cancer years ago was far less than pleasant. > It is likely that everything hurt. He has my total > sympathy for that and I wish him great health in the > future. > M. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 I've tried the sublingual B12 and didn't have the same results as the shot. Could have been because of the dosage in the shot tho. I was told by the doctors I went to that the B12 pills are of no use, but don't know for sure. Can't say I saw a tremendous effect from the sublingual B12, but I think its worth a try. Its easy and less trouble!Kate Guynn wrote: Actually there are studies out that say that the sublingual is just as a effective as the shots. That's the research that I found.KateAt 12:08 AM 1/18/2006, you wrote:>I have read that with real Pernicious Anemia, you have>to do the shots. After my husband had cancer (before>I knew him), they gave him B12 shots. He said they>hurt. He also said they work really well.>>--- Kate Guynn wrote:>>>--------------------------------->I have Hashi's and Pernicious Anemia (as well as>adrenal>fatigue). Pernicious Anemia is called an autoimmune>disease. It is>B12. You lack the intrinsic factor to absorb it. I>take sublingual vs the>shots. We are going to test again in Feb and see if>my B12 is better, if>not she wants to move to shots.>>Kate>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 How many mcg was it? I try to do two 2500mcg per day. Of course the doctor will say that, they don't make a co-pay off that ;-) Seriously, make sure that you are taking around 500mcg per day and that it is sublingual, I fully agree that a B12 that is swallowed is useless in pernicious anemia. Try it for 6-8 weeks and have your blood tested. Kate At 02:51 PM 1/18/2006, you wrote: >I've tried the sublingual B12 and didn't have the same results as the >shot. Could have been because of the dosage in the shot tho. I was told >by the doctors I went to that the B12 pills are of no use, but don't know >for sure. Can't say I saw a tremendous effect from the sublingual B12, >but I think its worth a try. Its easy and less trouble! >Kate Guynn wrote: >Actually there are studies out that say that the sublingual is just as a >effective as the shots. That's the research that I found. > >Kate > > >At 12:08 AM 1/18/2006, you wrote: > >I have read that with real Pernicious Anemia, you have > >to do the shots. After my husband had cancer (before > >I knew him), they gave him B12 shots. He said they > >hurt. He also said they work really well. > > > >--- Kate Guynn wrote: > > > > > >--------------------------------- > >I have Hashi's and Pernicious Anemia (as well as > >adrenal > >fatigue). Pernicious Anemia is called an autoimmune > >disease. It is > >B12. You lack the intrinsic factor to absorb it. I > >take sublingual vs the > >shots. We are going to test again in Feb and see if > >my B12 is better, if > >not she wants to move to shots. > > > >Kate > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Yes, every bit of research I've done on it says that the sublingual is just as good. Yrs ago, they didn't know that they could put it in liquid or dissolving capsule form under the tongue, so yes, the shot WAS the only thing at the time. Now there is also a nasal spray that they're all saying is even more effective than sublingual, and both ways are much more convenient too, than making a trip to the doc's office to get a shot every week or month. Re: pernicious anemia - interesting > Actually there are studies out that say that the sublingual is just as a > effective as the shots. That's the research that I found. > > Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 I had those shots back after the birth of my first child, and it is the B12 itself that burns going in. That's why they shouldn't push it into the muscle rapidly, mainly because the medicine is thick. Ouch! Re: pernicious anemia - interesting > I have read that with real Pernicious Anemia, you have > to do the shots. After my husband had cancer (before > I knew him), they gave him B12 shots. He said they > hurt. He also said they work really well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Intrinsic Factor is a substance that naturally occurs in the digestive tract. I believe that it is closely connected with having the antibodies for Celiac Disease that end up destroying the Instrinsic Factor, along with the ability to absorb many things, including B12. There are other antibodies, but the Antigliadin Antibody is one of the ones for Celiac. Re: pernicious anemia - interesting > In all the books I read, they called the anitbodies > " intrinsic factor " without really explaining what it > was. > > Best-- > > Courtenay > > --- wrote: > > There are usually antibodies in the gut that have > destroyed the way to absorb it. The anemia described > there is the result of > this deficiency. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Thanks, . I hate it when popular medical reference books use a term they don't completely define. This makes sense. --- wrote: --------------------------------- Intrinsic Factor is a substance that naturally occurs in the digestive tract. I believe that it is closely connected with having the antibodies for Celiac Disease that end up destroying the Instrinsic Factor, along with the ability to absorb many things, including B12. There are other antibodies, but the Antigliadin Antibody is one of the ones for Celiac. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 How awful! Did you feel better after your shots? Courtenay. --- wrote: --------------------------------- I had those shots back after the birth of my first child, and it is the B12 itself that burns going in. That's why they shouldn't push it into the muscle rapidly, mainly because the medicine is thick. Ouch! - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 My B-12 was already pretty high, but Dr. R put me on Metanx for the folic acid and B-6 (my F. A. was low). The metanx has raised my b-12 by a couple hundred points. But, I don't have any absorption problems (at least not with B-12) Dillman wrote: I've tried the sublingual B12 and didn't have the same results as the shot. Could have been because of the dosage in the shot tho. I was told by the doctors I went to that the B12 pills are of no use, but don't know for sure. Can't say I saw a tremendous effect from the sublingual B12, but I think its worth a try. Its easy and less trouble!Kate Guynn wrote: Actually there are studies out that say that the sublingual is just as a effective as the shots. That's the research that I found.KateAt 12:08 AM 1/18/2006, you wrote:>I have read that with real Pernicious Anemia, you have>to do the shots. After my husband had cancer (before>I knew him), they gave him B12 shots. He said they>hurt. He also said they work really well.>>--- Kate Guynn wrote:>>>--------------------------------->I have Hashi's and Pernicious Anemia (as well as>adrenal>fatigue). Pernicious Anemia is called an autoimmune>disease. It is>B12. You lack the intrinsic factor to absorb it. I>take sublingual vs the>shots. We are going to test again in Feb and see if>my B12 is better, if>not she wants to move to shots.>>Kate>>>>>> Quote Link to comment Share on other sites More sharing options...
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