Re: tsh levels and hyper/suppression

[Guest guest]

Sue,

I'm on a suppressed dose of T4/T3 combination, and my TSH is wayyyyyyy

suppressed,

but I am far from being hyper.

It's because my Free T3 and my Free T4 are within the " range " . For most

Hashimoto's

sufferers, we have to have a suppressed TSH in order to stop the thyroid

from working, and

doing more distruction.

How long have you been hypo? What is the cause? Are you on anything other

than T4?

Lynn

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[Guest guest]

For most Hashimoto'ssufferers, we have to have a suppressed TSH in order to stop the thyroid from working, anddoing more distruction.

I am curious about this statement. I have Hashi's (diagnosed in April 2005). I am on Armour 90mg. I go for a check up this month. I am sure I will get another 30mg increase. That's what he usually does. How long does it take for the thyroid to stop working? I have a book about Hypothyroidism. It doesn't really explain Hashi's. I need to find more information on Hashi's. I am tired of feeling this way.

Deborah

[Guest guest]

For most Hashimoto'ssufferers, we have to have a suppressed TSH in order to stop the thyroid from working, anddoing more distruction.

I am curious about this statement. I have Hashi's (diagnosed in April 2005). I am on Armour 90mg. I go for a check up this month. I am sure I will get another 30mg increase. That's what he usually does. How long does it take for the thyroid to stop working? I have a book about Hypothyroidism. It doesn't really explain Hashi's. I need to find more information on Hashi's. I am tired of feeling this way.

Deborah

[Guest guest]

Hi Lynn,

I have Hashimoto’s with goiter and am hypo. Been diagnosed for two years and was on levoxyl only til this past weekend when I added T3. I also changed docs from jaime cruz to my now-doc, Dr. diane fetchick here in san antonio. She’s working with me on my other ‘symptoms’ of high cholesterol in past two years, weight gain, etc... And I know from knowing myself that something has gone screwy but am not gonna put all my eggs in one basket and leave it up to this doctor and my thyroid. I changed my diet, got rid of high glycemic foods, exercise 5 times a week and am losing weight... It’s a full package deal for me and I am also perimenopausal so I can’ t see waiting and hoping that all my symptoms will be treated by one doctor for one disease when many factors and I do mean a large many, can cause the same exact symptoms of hypo or hyper.

I added the T3 cuz my weight was stuck even with low fat low carbs and high energy and exercise. My TSH was out of range but my T3 and T4 IN range and still my doc agreed we can add the T3 so I am trying that...

If you have a HIGHLY supressed TSH and don’t feel any of the hyper symptoms that is AWESOME... The racy heartbeat, sweating, and insomnia that some report sounds AWFUL...

Sue

Sue,

I'm on a suppressed dose of T4/T3 combination, and my TSH is wayyyyyyy

suppressed,

but I am far from being hyper.

It's because my Free T3 and my Free T4 are within the " range " . For most

Hashimoto's

sufferers, we have to have a suppressed TSH in order to stop the thyroid

from working, and

doing more distruction.

How long have you been hypo? What is the cause? Are you on anything other

than T4?

Lynn

[Guest guest]

Everyone is different with Hashi's. You need to be working off temps,

free's and symptoms. I am at 4 grains right now and my doctor and I are

working on a raise to 4 1/4. My TSH has always been suppressed from the

time I started Armour. My Free's were in the dump and are now at

mid-range. My temp averages are getting close to normal still a average of

98.3-98.4, so I know I am getting close to maintenance. My ferritin is in

the pits(12), but my B-12 up. So I have to balance those as well...oh and

I have adrenal fatigue. I still have fatigue, but most of that may be a

split between adrenals and iron stores. I do still get cold at

times. I'll stop raises once my temps are consistently an average

98.6. Right now I'm working on the best iron form for me! Always something!

Kate

Hashi's, Pernicious Anemia, and Anemia

At 05:30 PM 3/8/2006, you wrote:

>

>

>For most

>Hashimoto's

>sufferers, we have to have a suppressed TSH in order to stop the thyroid

>from working, and

>doing more distruction.

>I am curious about this statement. I have Hashi's (diagnosed in April

>2005). I am on Armour 90mg. I go for a check up this month. I am sure I

>will get another 30mg increase. That's what he usually does. How long

>does it take for the thyroid to stop working? I have a book about

>Hypothyroidism. It doesn't really explain Hashi's. I need to find more

>information on Hashi's. I am tired of feeling this way.

>Deborah

[Guest guest]

Deborah,

I found out back in 2000 that I had Hashimoto's, but from my elevated TSH

at least back in 1994. I was way

too dumb to realize that I needed to see a Dr. (got results at a

heath fair)

So finally when I started to be symptomatic, I went to the Dr. complaing

mainly that my hair was falling out!

She checked the TSH and sure enough it was elevated. She then said

" Well, let's just wait " Hello, wait for what?

That's when I went to an Endo. first of MANY! He said with my

anti-bodies so high 2000's that my thyroid would

probably stop working within a year.

Let's see, 6 years later, my anti-bodies are now, slowly

dropping.

I don't think you will find it anywhere, when and how the thyroid will

stop working. It's so individual, just like

prescrbing thyroid medication.

I'm sorry I can't tell you more. But I would have my anti-bodies

checked every now and then id I were you.

They are a good indication on how you feel, as well. When mine are

elevated (for the most part) I feel bad.

I do know, now since I have a very suppressed TSH and high Free

T4-Free T3 I feel much better, AND

my nodule shrunk!

For me that was the key, suppressed TSH......Lynn

At 05:30 PM 3/8/2006, you wrote:

For most

Hashimoto's

sufferers, we have to have a suppressed TSH in order to stop the thyroid

from working, and

doing more distruction.

I am curious about this

statement. I have Hashi's (diagnosed in April 2005). I am on

Armour 90mg. I go for a check up this month. I am sure I will

get another 30mg increase. That's what he usually does. How

long does it take for the thyroid to stop working? I have a book

about Hypothyroidism. It doesn't really explain Hashi's. I

need to find more information on Hashi's. I am tired of feeling

this way.

Deborah

[Guest guest]

You have brought up one of the most important parts of endocrine function that there is, and it is THE most important one----that no part of the endocrine system works independently of the others, i.e., every substance made in the "circle" affects some or most of the others, and particularly for women entering a new phase of life, at whatever age that occurs individually. Some of us are very affected from our teens and twenties onward by gliches in the female hormones and/or in other endocrine problems, and some are not so much as with the thyroid, adrenals, ovaries, etc......It is all very individual as to which ones are affected by what, i.e., which came first, the chicken or the egg, so to speak. This is why almost every single one of us actually needs a doc who has a very vast understanding of ALL of these hormones and how they all work together and which ones are "off", from person to person. The ONLY reason why I haven't completely addressed all of mine is because I've been without insurance and finanacial means to do so. Other than that, I understand that all of this works together. Many of the people on these sites have/are in the same pickle I've been in also. Then there are those who have money and doctors and changes at their fingertips. This can be where the info sharing comes in at. I'm 54, had female hormone problems starting as early as my late twenties, probably due to (guessing) having a tubiligation at that time, cutting off the "electrical highway" that feeds in progesterone, testosterone, estrogens, and other things. This was not clearly known at that time, or, if it was, nobody was telling most of us this. Then, at a time that I was not aware of all my options, I then had a hyst at age 35, due to fibrocystic tumors in the uterus, which MAY or may not have been caused by having no progesterone (the highway closed off), thus having unbridled estrogens going hog wild on my body systems all over, probably including my thyroid. Then living in one of the most industrially dirtiest areas of this nation (U.S.), down on the Tx Gulf Coast. Then start the allergies (maybe genes in there for that OR now an adrenal system that had taken all it could take, due to all these imbalances, also due to emotional stress and very bad marriages and abuse), so now it had become multiple. The adrenal system, hypothalamus, pituitary, ovaries, and all other substances of hormonal origin all work together (even the human growth hormone made up in the brain by the same organs), and when something goes awry with one, MOST of the time, something goes awry with another/others. Obviously, when we get to a certain point in aging, our basic female/male hormones are going to dwindle, but in modern times, if we get the right combo of substances from the outside, maybe we don't have to suffer as much as in former times, though we are still going to age and die eventually. Also, if we have the knowledge from our youth onward, maybe we could have avoided some of these pitfalls we've had (I HOPE there are plenty of people on our sites who have just begun having these problems and don't have to go through all of this). This is where shared info and knowledge come in concerning the whole endocrine system and how it all works and what can happen, but may not necessarily, from person to person. Where there are a "million mouths" with what happened to them individually, there is more reasoning and info. Sometimes even debate and arguing, if you want to put it that way, lol. Then, we can pick from what may work for us and try it, have a list of docs to try from, so that we don't spend yrs suffering from all of these things. Someone is ALWAYS going to jump in on these forums and say either "wrong", "right", "maybe", or "gee, I didn't know that", or "This is MY take on this". That's what makes the info sharing on these sites so fantastic and utterly mind boggling. We may not always agree, and most of the time there's going to be plenty we don't agree on, but I know one thing----if it weren't for these sites, I suppose I would still be in the dark about a lot of things and could very well be dead by now. Yes, I agree, it is a multiple trial thing, and nothing in the endocrine system works in isolation from another thing, and many times, in the process of info seeking, we find out things about ourselves that we would not have dreamed was going on inside our bodies. What works for one person doesn't necessarily work for someone else, so there is no patent "formula".

Re: tsh levels and hyper/suppression

Hi Lynn,I have Hashimoto’s with goiter and am hypo. Been diagnosed for two years and was on levoxyl only til this past weekend when I added T3. I also changed docs from jaime cruz to my now-doc, Dr. diane fetchick here in san antonio. She’s working with me on my other ‘symptoms’ of high cholesterol in past two years, weight gain, etc... And I know from knowing myself that something has gone screwy but am not gonna put all my eggs in one basket and leave it up to this doctor and my thyroid. I changed my diet, got rid of high glycemic foods, exercise 5 times a week and am losing weight... It’s a full package deal for me and I am also perimenopausal so I can’ t see waiting and hoping that all my symptoms will be treated by one doctor for one disease when many factors and I do mean a large many, can cause the same exact symptoms of hypo or hyper.I added the T3 cuz my weight was stuck even with low fat low carbs and high energy and exercise. My TSH was out of range but my T3 and T4 IN range and still my doc agreed we can add the T3 so I am trying that... If you have a HIGHLY supressed TSH and don’t feel any of the hyper symptoms that is AWESOME... The racy heartbeat, sweating, and insomnia that some report sounds AWFUL... Sue

Sue,I'm on a suppressed dose of T4/T3 combination, and my TSH is wayyyyyyy suppressed,but I am far from being hyper.It's because my Free T3 and my Free T4 are within the "range". For most Hashimoto'ssufferers, we have to have a suppressed TSH in order to stop the thyroid from working, anddoing more distruction.How long have you been hypo? What is the cause? Are you on anything other than T4?Lynn

[Guest guest]

When a Hashi's gland functions, it goes into further self destruction, simply (well maybe not so simply) because the factors that used to recognize "self" as harmless, don't exist, are messed up, so those marvelous little factors that make antibodies, do make antibodies against the thyroid hormones themselves, that is, the ones that are produced directly at the site of the thyroid. More thyroid function, more antibody attacks, more destruction. Antibodies destroy so much, settle down for awhile, thyroid has rested, then it goes to produce more hormone, antibodies attack, more destruction, thyroid rests, starts production again, then antibodies attack..........It's a neverending cycle that goes on for some people ALL their lives, some for a short few yrs. So individual and IS still a mystery that hasn't been solved, but by suppressing the TSH, they thyroid itself is not going to produce it's own hormones, so the antibodies are not going to attack. All hormone is replaced from the outside, the thyroid rests, but is pretty useless in Hash's, if it's done right. If a person feels horribly hyper on the amt of hormone it's taking them to suppress the TSH, then yes, they are in trouble there. I, frankly, don't feel any different with a .005 TSH or a .05 TSH or a 1.0 TSH, except I suspect that when my TSH was higher than 1, it gave a BIG opportunity for more of those antibodies to attack because they will multiply in #s and will mobilize. I was kept at a 5 to a 5.5 TSH for yrs, and I know that's why my thyroid itself went eventually downhill and so did my health, period. We're not even mentioning what they can do to the inner ears or other body parts, from all that physical stress.

Re: tsh levels and hyper/suppression

For most Hashimoto'ssufferers, we have to have a suppressed TSH in order to stop the thyroid from working, anddoing more distruction.

I am curious about this statement. I have Hashi's (diagnosed in April 2005). I am on Armour 90mg. I go for a check up this month. I am sure I will get another 30mg increase. That's what he usually does. How long does it take for the thyroid to stop working? I have a book about Hypothyroidism. It doesn't really explain Hashi's. I need to find more information on Hashi's. I am tired of feeling this way.

Deborah

[Guest guest]

,

You always have such excellent points. I admire your knowledge and

how much education you have gained. You are so right about the

entire endocrine system. Of all the so-called " endocrinologists " I

saw, none of them considered the entire endocrine system as a

whole. They would look at the thyroid and that's about it. Most

patients have to beg for adrenal testing and they like to leave the

female hormone testing up to the GYN's. Why is it so many profess

to be endocrine experts and just consider one tiny part?

>

> Re: tsh levels and hyper/suppressionYou

have brought up one of the most important parts of endocrine

function that there is, and it is THE most important one----that no

part of the endocrine system works independently of the others,

i.e., every substance made in the " circle " affects some or most of

the others, and particularly for women entering a new phase of life,

at whatever age that occurs individually.

[Guest guest]

Oh gee whiz (((blushing))), thanks . No, I really don't understand how

someone who has supposedly studied the entire endocrine system, gotten a

full degree and a practice, just can't seem to put it all together, or just

doesn't want to. In the old days, doctors all consulted with each other,

had conferences about their patients and how they could all make it all work

for that patient, together as one unit, doing their part. Now it's as

though they're all treating different body parts, as though those members

aren't part of the same body. Hey docs, wake up and smell the coffee, it's

the only way that it all works. Doesn't take a degree to figure that one

out, just some common sense. Now if I could just make the $$$$$$$$$$ they

make, lol.

Re: tsh levels and hyper/suppression

> ,

>

> You always have such excellent points. I admire your knowledge and

> how much education you have gained. You are so right about the

> entire endocrine system. Of all the so-called " endocrinologists " I

> saw, none of them considered the entire endocrine system as a

> whole. They would look at the thyroid and that's about it. Most

> patients have to beg for adrenal testing and they like to leave the

> female hormone testing up to the GYN's. Why is it so many profess

> to be endocrine experts and just consider one tiny part?

>

>

[Guest guest]

I agree. I am having trouble sleeping at night. It could be the weight gain, lack of energy and sending the last child to college far, far away. I take 60 mg. Armour and 50 mg of levoxyl in the mornings and 1 mg. of estrogen at night. Any thoughts on whether malaria medicine can be taken with thyroid meds? Thanks Kathy wrote: Oh gee whiz (((blushing))), thanks . No, I really don't understand howsomeone who has supposedly studied the entire endocrine system, gotten afull degree and a practice, just can't seem to put it all together, or justdoesn't want to. In the old days, doctors all consulted with each other,had conferences about their patients and how they could all make it all workfor that patient, together as one unit, doing

their part. Now it's asthough they're all treating different body parts, as though those membersaren't part of the same body. Hey docs, wake up and smell the coffee, it'sthe only way that it all works. Doesn't take a degree to figure that oneout, just some common sense. Now if I could just make the $$$$$$$$$$ theymake, lol. Re: tsh levels and hyper/suppression> ,>> You always have such excellent points. I admire your knowledge and> how much education you have gained. You are so right about the> entire endocrine system. Of all the so-called "endocrinologists" I> saw, none of them considered the entire endocrine system as a> whole.

They would look at the thyroid and that's about it. Most> patients have to beg for adrenal testing and they like to leave the> female hormone testing up to the GYN's. Why is it so many profess> to be endocrine experts and just consider one tiny part?>> Kathy Wesselink

Brings words and photos together (easily) with PhotoMail - it's free and works with Yahoo! Mail.

[Guest guest]

Kathy

Here is a link to some side effects of hydroxychloroquine, if that is what you or someone else is taking. I know that it's used to treat some symptoms of lupus and rheumatoid arthritis, sometimes. I don't see anything about thyroid effects anywhere I've read.

http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a601240.html#side-effects

Re: Re: tsh levels and hyper/suppression

I agree. I am having trouble sleeping at night. It could be the weight gain, lack of energy and sending the last child to college far, far away. I take 60 mg. Armour and 50 mg of levoxyl in the mornings and 1 mg. of estrogen at night. Any thoughts on whether malaria medicine can be taken with thyroid meds?

Thanks

Kathy

[Guest guest]

Kathy, Besides having Hashimoto and being Hyp0, I also have Palendromic Rheumatoidism aka PR and I have to take Plaquenil (anti-malerial); I've been on the Plaquenil for about 9 months now and it works great for PR. Have you been dxd with RA or PR? There is also another yahoo group called Palendromic and there are quite a few folks that use Plaquenil and can answer any questions you might have about the med. Cheers, Tee wrote: Kathy Here is a link to some side effects of hydroxychloroquine, if

that is what you or someone else is taking. I know that it's used to treat some symptoms of lupus and rheumatoid arthritis, sometimes. I don't see anything about thyroid effects anywhere I've read. http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a601240.html#side-effects Re: Re: tsh levels and hyper/suppression I agree. I am having trouble sleeping at night. It could be the weight gain, lack of energy and sending the last child to college far, far away. I take 60 mg. Armour and 50 mg of levoxyl in the mornings and 1 mg. of estrogen at night. Any thoughts on whether malaria medicine can be taken with thyroid meds? Thanks Kathy

¤º°`°º¤ø,¸¸,ø¤¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤¤ø,¸¸,ø¤¤ Don't Take Life Seriously. It's Not Permanent!

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[Guest guest]

Plaqenil IS aka Hydroxychloroquine, chemical name. It can have many side effects, but I don't see anything about thyroid effects, so don't know.

Re: Re: tsh levels and hyper/suppression

Kathy, Besides having Hashimoto and being Hyp0, I also have Palendromic Rheumatoidism aka PR and I have to take Plaquenil (anti-malerial); I've been on the Plaquenil for about 9 months now and it works great for PR.

Have you been dxd with RA or PR? There is also another yahoo group called Palendromic and there are quite a few folks that use Plaquenil and can answer any questions you might have about the med.

Cheers, Tee

wrote:

Kathy

Here is a link to some side effects of hydroxychloroquine, if that is what you or someone else is taking. I know that it's used to treat some symptoms of lupus and rheumatoid arthritis, sometimes. I don't see anything about thyroid effects anywhere I've read.

http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a601240.html#side-effects