Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 I am having my third meeting with my new pain management doc tomorrow morning. So far, our meetings have been pleasant, but basically useless. I've been on a trial run of Neurontin for the last month and a half. It hasn't helped at all. I am seriously considering requesting we drop the Neurontin and do a trial run with MS-Contin. From what I've read, it looks like it might be something that could help give me back some quality of life. I am not concerned about addiction, but am wondering about the side effects. If any of you are willing to share your Ms-Contin experiences with me, I would appreciate it. Thanks Lyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 hey lyndi, everybody's different. but my experience with ms contin were kind of mixed. MS Contin stands for Morphine Sulfate Contin. I discovered through several published studies that morphine taken orally is not that great of a painkiller, though the opposite is true if it's taken IV or IM. Now, I'm suggesting that. just telling you my opinion and by the way, I'm not a doctor, just a pain sufferer who has done tons of research -- on my own -- about what works and what doesn't and why that is. If I were you........ I would ask the doctor to give you a trial script for oxicontin, which contains the drugs Oxicodone, the same thing that's in percodans, but without all that tylenol. what ever you do, be sure not to crush the pills or chew them, because they are time-release, and it will release all the dose into your system at one time. Now, , is that's your goal, I can send you to another chat room. just e-mail me personally. But really, we pain sufferers MUST learn how to take this stuff responsibly or we'll shoot ourselves in the foot and all the nay sayers will say " see, I told you can't give narcotics to people who are in pain without turning them into junkies, so let's stop trying and make them suffer.''' No No No we don't want that. We want to show them that we're resonsible people like everybody else who happens to have a debilitating disorder called chronic pain. BY the way, I've only heard of several cases where neurontin actually works. It's usually just a way for the dr to be able to say the he tried something non-narcotic before putting you on the hard stuff. (In other words, he's covering his ass at the cost of your pain) Stick around... you'll learn the tricks. > I am having my third meeting with my new pain > management doc tomorrow > morning. So far, our meetings have been pleasant, > but basically useless. > I've been on a trial run of Neurontin for the last > month and a half. It > hasn't helped at all. > > I am seriously considering requesting we drop the > Neurontin and do a trial > run with MS-Contin. From what I've read, it looks > like it might be > something that could help give me back some quality > of life. I am not > concerned about addiction, but am wondering about > the side effects. > > If any of you are willing to share your Ms-Contin > experiences with me, I > would appreciate it. > > Thanks > Lyndi > > ===== sincerely, gary wiremen __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 Remember each person is different and ms contin has been a wonder drug for some but for me it was awful! I was so sick on it,i threw up non stop ,could not get out of bed,was so out of my mind i forgot i had children and was in such bad shape a neighbor had to call the kids dad from work to come get them because i was in such bad shape,I had horribile very real like nightmares and my pain went to a full blown 10 i ended up in the emergency room sick and dehydrated and almost crazy i was taking off of it and giving meds to stop throwing up and a shot of fentanyl to bring my pain down and rehydrated and then they put the patch on me and after 5 hrs there allowed to go home. As i said each is different i was one of the unfortanate ones who reacted badly to ms contin. gl Penny Texas Ms-Contin I am having my third meeting with my new pain management doc tomorrow morning. So far, our meetings have been pleasant, but basically useless. I've been on a trial run of Neurontin for the last month and a half. It hasn't helped at all. I am seriously considering requesting we drop the Neurontin and do a trial run with MS-Contin. From what I've read, it looks like it might be something that could help give me back some quality of life. I am not concerned about addiction, but am wondering about the side effects. If any of you are willing to share your Ms-Contin experiences with me, I would appreciate it. Thanks Lyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 My experience with morphine has been mixed. When given MS Contin after surgery for pain, it really did not do much. However, I have an implanted morphine pump that puts the morphine where it will reach the correct area, and it does a wonderful job. I guess the morphine in my pump is plain morphine, not MS Contin, but they are similar. Kay kayfrank3@... SF Bay Area Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 At 02:18 PM 1/13/02 -0500, you wrote: >I am seriously considering requesting we drop the Neurontin and do a trial >run with MS-Contin. Hi Lyndi, I was on MS Contin and MSIR for several years and two years ago was switched to OxyContin and OxyIR. I had good relief from MS Contin, although I think I was taking the breakthrough meds more often than I am now. I'm really not positive on that. If my pain is bad when it's time for the next dose, the OxyContin does take effect quicker. Everyone's experience is going to be different, but it's certainly something to talk about when you see the doctor. I was also tried on neurontin, with no benefit. Many others have had great results from it. Hower http://home.dejazzd.com/hower Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Hower wrote: > I was on MS Contin and MSIR for several years and two years ago was > switched to OxyContin and OxyIR. I had good relief from MS Contin, although > I think I was taking the breakthrough meds more often than I am now. I'm > really not positive on that. If my pain is bad when it's time for the next > dose, the OxyContin does take effect quicker. Everyone's experience is > going to be different, but it's certainly something to talk about when you > see the doctor. > > I was also tried on neurontin, with no benefit. Many others have had great > results from it. > > Hower Well, the so-called " pain " doc was absolutely horrified when I mentioned MS-Contin. He said he has NEVER prescribed Ms-Contin or Oxycontin for anyone for longer than two weeks. He also said that any narcotic drugs including the contins, methadone, hydrocodone, tylenol3 etc are far too " dangerous " to be taken for any longer than a two week period. Then he added that narcotic based drugs do not work for my " kind " of pain. Good grief!! I've been living with chronic pain for almost thirty years and I've learned a thing or two about what works and what doesn't work. I've had half a dozen surgeries and still have lumbar and cervical stenosis, degenerative disk disease, fibromyalgia, arthritis, chronic migraines, and IBS. (I'm a wreck :-) So today when the doc said that narcotics were useless, I asked him what he suggested - short of hitting me with a brick. He prescribed Ultracet. Said it was a wonder drug for people " like me. " I was fuming when I left his office. Instead of going back to my office, I came home and looked up Ultracet on the net. All it is, is plain old Ultram (tramadol) with acetaminophen added to it. Been there, done that. Crikey! I'm supposed to meet with a neurosurgeon next week. Unfortunately, the neurosurgeon is the pain doc's partner. I am not holding out any hope for some sanity from either of them. Perhaps I should just cancel the appointment now and save myself some money. I've only been in the United States for a year and a half and I am beginning to wish I hadn't made the move. This starting over with new docs is a royal pain. Literally. Indianapolis is only 60 miles away - anybody know of a good all round doc in Indy? Completely Ticked Off In Bloomington Lyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Lyndi, I am sorry that your experience with doctors in the States has been so difficult. Obviously you have a doctor who has not read, nor educated himself on the treatment of patients with chronic pain. His attitudes suggest the " old traditional view " of most doctors that pain medication is to be given only until the body heals. Since our bodies will never heal and we are therefore in pain all the time, this is a ridiculous attitude for any MD to have. The other complication you are confronting is the attiude that anyone who asks for a narcotic pain medication must be a " drug-seeker. " An attitude which is misinformed and totally unwarranted, especially if the doctor has available a patients medical history of chronic pain. Less than 1% of chronic pain patients treated with narcotic pain relievers ever become addicted to the drugs. The fact that we are in pain again when the medication is metabolized out of our bodies, is not a sign of addiction. It is a sign that the pain meds do work to help us have a better quality of life than we have without proper pain management. Call the Indianapolis Medical Center of Indiana University, or one of the other large medical centers in the area. Ask for an appointment with the pain clinic. Or ask your doctor to request an appointment for you if they only take referrals. A pain management clinic should be able to find a way to help you, though it may take many visits over the next several months to find the proper doseages and timing to help you achieve the best level of pain control. Push, shove, yell, scream, demand, request, cry if you have to in order to get your doctors to understand that you need help. Also, ask a relative or a friend who knows how much pain you deal with daily to accompany you and go with you into the exam room. It is amazing how different doctors act when the patient has an advocate with them. Ray in Virginia who grew up in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Penny wrote: " i ended up in the emergency room sick and dehydrated and almost crazy i was taking off of it and giving meds to stop throwing up and a shot of fentanyl to bring my pain down and rehydrated and then they put the patch on me and after 5 hrs there allowed to go home. " I had the exact same reaction to Oxycodone. Now I'm on the Fentanyl patch with Morphine for breakthrough pain. Ms-Contin I am having my third meeting with my new pain management doc tomorrow morning. So far, our meetings have been pleasant, but basically useless. I've been on a trial run of Neurontin for the last month and a half. It hasn't helped at all. I am seriously considering requesting we drop the Neurontin and do a trial run with MS-Contin. From what I've read, it looks like it might be something that could help give me back some quality of life. I am not concerned about addiction, but am wondering about the side effects. If any of you are willing to share your Ms-Contin experiences with me, I would appreciate it. Thanks Lyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Hi Lyndi, I'm so sorry your having these problems with a doctor that supposedly understands chronic pain. Unfortunately there are pain clinics that don't believe in medications. (Narcotics) Some of these clinics are really into physical therapy, biofeed-back and the like, but they will not prescribe pain medication. I was with a clinic like that for a very short time. Their therapy's didn't work for me in fact I got worse. It pays to keep looking for a doctor that will treat you with respect. As Ray said it also helps to take someone who knows you well to the appt. also. This is what I did. Good luck to you. I hope you find someone soon who will treat your pain. Kathleen in Calif. Quote Link to comment Share on other sites More sharing options...
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