Re: Celiac blood test vs stool test -- ? for Heidi

December 29, 2004

I'm not Heidi, but this is what I did. Blood first and it was negative then

a year later, stool with gene test. Positive. Dh has a milder form than I.

I have full blown autoimmune disease.

Fine's a fine guy and he will answer all your questions via email even

before you get tested. He has been great for us.

Connie Bernard

http://www.PandoraPads.com

Organic Cotton Feminine Pads, Tampons, Nursing Pads,

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Celiac blood test vs stool test -- ? for Heidi

Heidi,

I just listened to the Science Friday bit on celiac. I know that

you've said Dr. Fine's stool test is the best test for celiac. The

doctor on the Science Friday program recommends getting a " simple

blood test " and doesn't mention the stool test.

Because I'm gluten-intolerant (self-diagnosed, but no doubts), I want

to encourage my sisters to get tested. They might be more inclined

to do the blood test because it'll be cheaper.

I'm thinking of suggesting the blood test, but if it's negative, to

then do the stool test. What say you?

Thanks,

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December 29, 2004

:

>I just listened to the Science Friday bit on celiac. I know that

>you've said Dr. Fine's stool test is the best test for celiac. The

>doctor on the Science Friday program recommends getting a " simple

>blood test " and doesn't mention the stool test.

Most docs don't know about the stool test. It's patented too,

and a lot more expensive, so there may be insurance issues.

>Because I'm gluten-intolerant (self-diagnosed, but no doubts), I want

>to encourage my sisters to get tested. They might be more inclined

>to do the blood test because it'll be cheaper.

>

>I'm thinking of suggesting the blood test, but if it's negative, to

>then do the stool test. What say you?

That could work. Most people don't want to do a stool sample

anyway ... I had the kit for more than a month before I could

convince myself to do it, and you KNOW I'm not unduly

squeamish!

And give them the " Dangerous Grains " book!

The one problem with the blood test is that the docs will say

a " low " level of anti-gliadin IgA is " ok " . The other problem is that

a lot of gluten-intolerant folks are also low on total IgA, which

throws the results off: so be sure they do a total celiac panel,

which also tests for IgG and anti-tissue transglutamase. They

should also test for total IgA ... being low on IgA is a problem

in itself, leaves you prone to infections, and gluten intolerant

people are more likely than average to be low IgA.

>

Heidi Jean

December 30, 2004

[heidi] That could work. Most people don't want to do a stool sample

anyway ... I had the kit for more than a month before I could

convince myself to do it, and you KNOW I'm not unduly

squeamish!

[lisa] I forget about that. I've had so many stool tests (both in

Africa when I had parasites and in the USA when I needed to make sure

they were gone) that they're old hat to me! I'd forgotten the ick-

factor from the first few times!

It's funny thinking about the difference between the tests in the two

countries (US and Kenya, though 10 yrs ago). Here, they give you

latex gloves, special collection containers, bottles w/preservative,

overnight express envelopes already filled out. There, they

said, " after you poop, you have one hour to get your sample back to

us. " No nice sanitary kit, no nothing! And, of course, you needed

to do that during business hours!

When I first did a sample here, I was taken aback by the amount of

paraphenalia necessary. LOL! Seemed kinda nice and kinda ridiculous

at the same time.

Connie -- thanks for sharing your story. It helps.

December 30, 2004

wrote:

>>>I just listened to the Science Friday bit on celiac. I know that

>>>you've said Dr. Fine's stool test is the best test for celiac. The

>>>doctor on the Science Friday program recommends getting a " simple

>>>blood test " and doesn't mention the stool test.

Heidi wrote:

>Most docs don't know about the stool test. It's patented too,

>and a lot more expensive, so there may be insurance issues.

Connie wrote:

My insurance paid for my stool test and gene test from enterolab. They

didn't pay for the shipping charges because that's not covered, but they

paid for my test at 100% since I had met my deductible. The codes enterolab

provides you with are no different than any other lab codes. They give you

the procedure codes and the diagnosis code on the receipt so you can submit

it for reimbursement. It is actually cheaper to do the stool test because

you can avoid the scope which is the most expensive factor in all of this.

wrote:

>>>Because I'm gluten-intolerant (self-diagnosed, but no doubts), I want

>>>to encourage my sisters to get tested. They might be more inclined

>>>to do the blood test because it'll be cheaper.

>>>

>>>I'm thinking of suggesting the blood test, but if it's negative, to

>>>then do the stool test. What say you?

Heidi wrote:

>That could work. Most people don't want to do a stool sample

>anyway ... I had the kit for more than a month before I could

>convince myself to do it, and you KNOW I'm not unduly

>squeamish!

Connie wrote:

It's really not a big deal. I had been off gluten when I did mine so I had

to get back on it to do the test. Dr. Fine says that if you can't afford to

do the test you can take a 1 qt plastic tub with a tight fitting lid and put

the entire sample (It is one complete BM) into that and freeze it for up to

6 months. Then you just send that to him when he sends you the kit.

And give them the " Dangerous Grains " book!

>The one problem with the blood test is that the docs will say

>a " low " level of anti-gliadin IgA is " ok " . The other problem is that

>a lot of gluten-intolerant folks are also low on total IgA, which

>throws the results off: so be sure they do a total celiac panel,

>which also tests for IgG and anti-tissue transglutamase. They

>should also test for total IgA ... being low on IgA is a problem

>in itself, leaves you prone to infections, and gluten intolerant

>people are more likely than average to be low IgA.

Connie wrote:

I'm not Heidi, but do you mind if I take a stab at this?

One important difference to note between Dr. Fine's test and the blood test

is this: Dr. Fine's test is considered new. It is considered by some old

school GI docs to be controversial. The reason being that they feel that

people are being diagnosed with gluten sensitivity without being scoped.

(I'll explain below.)

The thing is that part of the definition of Celiac disease includes villi

damage. GI professionals say that this is a problem because it does not

catch people with the disease until there is major damage in the large

intestine. They say that another means of diagnosing is necessary so that

the damage can be prevented, but still do not revise the definition. Change

is slow in the medical community.

The celiac blood panel tests for several things in the blood including the

presence of IgA and IgG gluten antibodies, and anti-tissue transglutinase

antibodies. These things usually show up in the blood when a person has

damaged villi. If there is not significant damage to the villi, it likely

won’t show up in the blood. Because these antibodies are made in the GI

tract first, they show up there first. Dr. Fine is testing for their

presence in the stool based on this. He developed his test after years of

reading other people's research and doing his own in the lab.

Dr. Fine comes from a research background in academia. He taught at Baylor

medical school in Texas, one of the best in the South. He ran the lab

there. My GI doctor worked in that lab with Dr. Fine while in school. Dr.

Fine is listed on most all Celiac websites along with a small number of

other GI docs who are considered the top in this country. This is a list of

about 8 doctors and includes Dr. Green from Columbia University who did the

NPR interview. Dr Fine has a reputation as one of the TOP Celiac docs in the

US.

In order to diagnose celiac disease, most GI docs consider a colonoscopy

with biopsy the gold standard. They scope you and biopsy several places,

sometimes only 3-4. The trouble with that is that they can miss some of the

spots that show villi damage. I have read that 6-8 spots should be biopsied

to get a good enough sample. Also the pathology lab can be a problem; some

of them don't count it as positive if they consider it borderline, so you

get a negative report when actually you are probably positive. Also the

large intestine is about 22 ft long. The damage begins in the upper

portions and moves downward, so there could be little damage at the

beginning. The malabsorption range can be a good indicator of villi damage.

Villi damage will almost always show up as dietary fat malabsorption.

(Another way to gauge this is if the stool floats it has too high a fat

content usually due to malabsorption.) The GI community will almost not

consider it a valid diagnosis without the scope and the positive biopsy

since it is part of the definition.

The great thing about Dr. Fine's test is that he can tell you BEFORE you

have villi damage and before you have autoimmune disease and before you have

the other types of autoimmune diseases that often follow celiac. I opted

out of being scoped. I had btdt 2 times about 8 years prior and was not

looking forward to that. Also I realized the limitations of that procedure.

Another problem with the way GI doctors are diagnosing celiac disease is

that some people with it never have villi damage. You can have neurological

problems with no villi damage. Also, it takes an average of 11 years to be

diagnosed with Celiac disease. Most people who have it NEVER get diagnosed

with it. This is a huge problem. I believe that Celiac disease accounts

for a large percentage of other autoimmune disease in this country. Some of

these could be prevented with dietary changes.

I stopped trusting my health to doctors 20 year ago. I go to the doctor

when there is a problem and I go in for annual stuff, but I am in charge of

my body and I have to listen to my body, do my own research and take

responsibility for my own health. I have uncovered 2 autoimmune diseases on

my own in the past 2 years. This was after going to the doctor repeatedly

with not one doctor able to diagnoses a single problem. I went in and asked

for the labs to confirm each diagnosis when I had narrowed it down. If

there is a problem I keep looking until I find the answer. I don't take

" no " for an answer. My health is too important.

Thanks for hearing me through to the end of a very long post. I hope this

helps someone.

Connie Bernard

http://www.PandoraPads.com

Organic Cotton Feminine Pads, Tampons, Nursing Pads,

Natural Progesterone Cream, and Children's Supplements.

On-line Discount Voucher: nn242g223

December 30, 2004

I second everything Connie said. Particularly:

>[Connie] The great thing about Dr. Fine's test is that he can tell you BEFORE

you

>have villi damage and before you have autoimmune disease and before you have

>the other types of autoimmune diseases that often follow celiac. I opted

>out of being scoped. I had btdt 2 times about 8 years prior and was not

>looking forward to that. Also I realized the limitations of that procedure.

[Heidi] This is really important. The " state of the art " in celiac is about like

diagnosing diabetes by looking for gangrene and blindness

or high blood pressure by looking for strokes. The researchers are

now saying that if you react to gluten, sooner or later it WILL cause damage.

If you want to avoid the damage, get diagnosed EARLY.

The kicker in that is that probably 1/3 of the US is reacting to gluten.

Since a lot of the reactions are mental (depression, anger, ADD),

autoimmune disease, and lowered resistance to disease in general, it's probably

having a huge impact on society, both in health care costs and the

state of society.

> [Connie] I stopped trusting my health to doctors 20 year ago. I go to the

doctor

>when there is a problem and I go in for annual stuff, but I am in charge of

>my body and I have to listen to my body, do my own research and take

>responsibility for my own health. I have uncovered 2 autoimmune diseases on

>my own in the past 2 years. This was after going to the doctor repeatedly

>with not one doctor able to diagnoses a single problem. I went in and asked

>for the labs to confirm each diagnosis when I had narrowed it down. If

>there is a problem I keep looking until I find the answer. I don't take

> " no " for an answer. My health is too important.

[Heidi] This is really important too. One of the reasons some docs won't test

for gluten intolerance is that they figure no one will stick to the

diet anyway. I say, it's up to you to decide that. But one of the neat

things that has happened lately is you can jolly well do your own testing,

just send it to the lab, plus more and more the docs seem to be willing

to do the test (and thus have insurance pay for it), even if it's just to

shut you up. With all the good info that's on the net now, you

can likely be far more informed on your condition than your doctor

is: they don't have the time to research some little niche disease.

>

Heidi Jean

December 31, 2004

> [Heidi] This is really important. The " state of the art " in celiac

is about like

> diagnosing diabetes by looking for gangrene and blindness

> or high blood pressure by looking for strokes. The researchers are

> now saying that if you react to gluten, sooner or later it WILL

cause damage.

> If you want to avoid the damage, get diagnosed EARLY.

>

> The kicker in that is that probably 1/3 of the US is reacting to

gluten.

> Since a lot of the reactions are mental (depression, anger, ADD),

> autoimmune disease, and lowered resistance to disease in general,

it's probably

> having a huge impact on society, both in health care costs and the

> state of society.

[Rhonda]

Heidi, or anyone else who may know, I have a question about

autoimmune diseases, mainly RA (because dh has it) but also lupus as

my sister-in-law has it (and her brother has RA) - If a person has a

gluten intolerance and has an autoimmune disease that stemmed from

the gluten problem, can a person go off gluten and their immune

system heal itself? I know that the RA *damage* can't be undone, but

would going GF reverse the actual disease? IOW would you go back to

not having the autoimmune disease anymore? OR, would it mean that

the autoimmune disease would basically go into remission? Or just

maybe the symptoms lessen or go away? My goal in dh's RA is to

reduce or totally eliminate the Rx drugs he's on rather than continue

to increase the drugs dosages or go on stronger drugs as his rheumy

wants him to.

probably 1/3 of the US is reacting to gluten? - WOW! Where did you

come up with that number? It really wouldn't surprise me in the

slightest - but somehow I would have thought that the basic problem

with the sickness in the US is the SAD, not so much gluten in

particular but all the sugars and unhealthy polyunsaturated

fats/hydrogenated fats, as well as all the packaged junk food. There

are lots of people - myself included - that have been on the path of

cleaning up their diets, including eating more true whole grains, as

well as sprouted breads and now since reading NT also soaking the

grains prior to cooking. So if it's true that it may be up to 1/3 of

the population that's affected by gluten, then doing all the NT type

of eating really isn't going to dramatically improve many people's

health issues after all. I know that eating NT WILL improve a

person's health, but what I meant was that it might not be *enough*

or so it would seem.

Rhonda

December 31, 2004

I am on several autism lists. A large number of autistic children have gut

problems and are on GFCF and sometimes also soy and corn free. More often

than not, the gut heals and the gluten at least can be safely introduced...

Juie

Re: Celiac blood test vs stool test -- ? for Heidi

>

>> [Heidi] This is really important. The " state of the art " in celiac

> is about like

>> diagnosing diabetes by looking for gangrene and blindness

>> or high blood pressure by looking for strokes. The researchers are

>> now saying that if you react to gluten, sooner or later it WILL

> cause damage.

>> If you want to avoid the damage, get diagnosed EARLY.

>>

>> The kicker in that is that probably 1/3 of the US is reacting to

> gluten.

>> Since a lot of the reactions are mental (depression, anger, ADD),

>> autoimmune disease, and lowered resistance to disease in general,

> it's probably

>> having a huge impact on society, both in health care costs and the

>> state of society.

>

> [Rhonda]

> Heidi, or anyone else who may know, I have a question about

> autoimmune diseases, mainly RA (because dh has it) but also lupus as

> my sister-in-law has it (and her brother has RA) - If a person has a

> gluten intolerance and has an autoimmune disease that stemmed from

> the gluten problem, can a person go off gluten and their immune

> system heal itself? I know that the RA *damage* can't be undone, but

> would going GF reverse the actual disease? IOW would you go back to

> not having the autoimmune disease anymore? OR, would it mean that

> the autoimmune disease would basically go into remission? Or just

> maybe the symptoms lessen or go away? My goal in dh's RA is to

> reduce or totally eliminate the Rx drugs he's on rather than continue

> to increase the drugs dosages or go on stronger drugs as his rheumy

> wants him to.

>

> probably 1/3 of the US is reacting to gluten? - WOW! Where did you

> come up with that number? It really wouldn't surprise me in the

> slightest - but somehow I would have thought that the basic problem

> with the sickness in the US is the SAD, not so much gluten in

> particular but all the sugars and unhealthy polyunsaturated

> fats/hydrogenated fats, as well as all the packaged junk food. There

> are lots of people - myself included - that have been on the path of

> cleaning up their diets, including eating more true whole grains, as

> well as sprouted breads and now since reading NT also soaking the

> grains prior to cooking. So if it's true that it may be up to 1/3 of

> the population that's affected by gluten, then doing all the NT type

> of eating really isn't going to dramatically improve many people's

> health issues after all. I know that eating NT WILL improve a

> person's health, but what I meant was that it might not be *enough*

> or so it would seem.

>

> Rhonda

>

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December 31, 2004

>>>probably 1/3 of the US is reacting to gluten? - WOW! Where did you come up

with that number? It really wouldn't surprise me in the slightest - but somehow

I would have thought that the basic problem with the sickness in the US is the

SAD, not so much gluten in particular but all the sugars and unhealthy

polyunsaturated fats/hydrogenated fats, as well as all the packaged junk

food.<<<

Not to mention vaccines, environmental chemicals, etc. But, I think all those

factors go towards messing up our systems so much (leaky gut, candida, etc.)

that we then can't tolerate things that we may've been able to if we were

healthy to start with.

With the '1/3 of the US' statement, most of those people wouldn't realise that

their irritable bowel symptoms, eczema, autism/ADD, irritability, sleeping

problems, tooth decay, you name it, is from gluten intolerance.

Cheers,

Tas'.

" Give it to us raw and wrrrrrrrrriggling " - Smeagol, LOTR.

December 31, 2004

>[Rhonda]

>Heidi, or anyone else who may know, I have a question about

>autoimmune diseases, mainly RA (because dh has it) but also lupus as

>my sister-in-law has it (and her brother has RA) - If a person has a

>gluten intolerance and has an autoimmune disease that stemmed from

>the gluten problem, can a person go off gluten and their immune

>system heal itself? I know that the RA *damage* can't be undone, but

>would going GF reverse the actual disease? IOW would you go back to

>not having the autoimmune disease anymore? OR, would it mean that

>the autoimmune disease would basically go into remission? Or just

>maybe the symptoms lessen or go away? My goal in dh's RA is to

>reduce or totally eliminate the Rx drugs he's on rather than continue

>to increase the drugs dosages or go on stronger drugs as his rheumy

>wants him to.

[Heidi] Going GF seems to make a lot of people better, but some folks

are left with permanent damage. In my case, that is Aspergers ... but say,

with T1 diabetes, once the pancreas is gone, it is GONE. There is no one

answer, it depends on the person. With RA though, good ol' cod liver

oil seems to help a lot. RA is often in response to other allergens though

(corn is a big one). Some folks really do get very much better, amazingly

so. Some folks take years to show any change. I think a lot of the difference

is the overall diet: eating probiotics, for instance. Kefir seems to be

miraculous

in this regard. As is CLO, and low-grain diets in general.

>probably 1/3 of the US is reacting to gluten? - WOW! Where did you

>come up with that number? It really wouldn't surprise me in the

>slightest - but somehow I would have thought that the basic problem

>with the sickness in the US is the SAD, not so much gluten in

>particular but all the sugars and unhealthy polyunsaturated

>fats/hydrogenated fats, as well as all the packaged junk food.

I supect it all works together, but one of the big things in this generation

is that gluten sensitive babies *survived*. There was a huge infant mortality

rate when folks started relying on wheat for the bulk of their calories, but

that changed when antibiotics were invented. I am an example of one

who would have died as a child, but made it due to penicillin. Gluten

intolerance

" goes underground " after age 7 or so, only to resurface in the late teens,

then it goes underground again til the 40's. Related to hormones, it seems.

Anyway, I didn't really have to deal with it until my 40's, but I was living

on antibiotics in the meantime, because my immune system was shot.

Breastfeeding also has a lot to do with it: if gluten is introduced about

5 months of age, in small amounts, WHILE breastfeeding, the individual

tends not to react to it so bad. My Mom didn't nurse so long!

But gluten in particular IS WEIRD ... most humans don't digest it

completely, esp. those with certain genotypes. It's just a new

thing for some of us: the folks in the Middle East don't have the

problematic genotype, it seems to have died out there. Northern

Europeans (read: Germans like me!) tend to react.

> There

>are lots of people - myself included - that have been on the path of

>cleaning up their diets, including eating more true whole grains, as

>well as sprouted breads and now since reading NT also soaking the

>grains prior to cooking. So if it's true that it may be up to 1/3 of

>the population that's affected by gluten, then doing all the NT type

>of eating really isn't going to dramatically improve many people's

>health issues after all. I know that eating NT WILL improve a

>person's health, but what I meant was that it might not be *enough*

>or so it would seem.

That is my basic thought. The Paleo folks, who ate a LOT of beef-like animals,

were healthy and robust. Their health went downhill as soon as they started

farming. This bit about grains being good for you is NOT supported by

archeology.

However, current epidemiological studies might show that " meat is bad " ... I

think

this is because they tend to include nitrate-laced meat, and grain fed meat.

Hardly anyone eats grass fed meat without nitrates! I do though, and since

I started, most of my health issues disappeared. I don't eat many grains

at all (though I do like potatoes: potatoes cause problems for some folks, but

they seem ok for me). Large amounts of corn make my fingers hurt, but TINY

amounts of gluten make me feel like I got the stomach flu or something: I

won't get near it voluntarily.

>

Heidi Jean

January 1, 2005

> [Heidi] Going GF seems to make a lot of people better, but some

folks

> are left with permanent damage. In my case, that is Aspergers ...

but say,

> with T1 diabetes, once the pancreas is gone, it is GONE.

[Rhonda]

Actually I was going to ask what type of symptoms you get when you do

eat gluten. Sometimes I think that so many of us go through life

feeling not quite right, but not really putting an answer to it as to

why. Then it just becomes a part of life - it's to be expected that

most everyone isn't really healthy. Tired, or cold all the time,

even hot flashes (this year is my first year of that) - but not

really working at fixing the problem, just thinking that " oh well,

it's my lot in life " I had an older woman tell me when she went thru

menopause that as long as she stayed away from sugar she didn't have

hot flashes. Humm, carbs - hot flashes - come to think of it. . .

And yet when I mentioned to a friend that there might be a connection

between my eating carbs at lunch and come back to work flashing for a

big part of the afternoon, she was totally surprised. I guess what

I'm trying to say is that I think that most people just put up with

whatever ails them as something that just happens and there's nothing

that can be done about it. I just like to think that there IS

something, and then go about trying to find it.

[Heidi]>There is no one

> answer, it depends on the person. With RA though, good ol' cod liver

> oil seems to help a lot. RA is often in response to other allergens

though

> (corn is a big one). Some folks really do get very much better,

amazingly

> so. Some folks take years to show any change. I think a lot of the

difference

> is the overall diet: eating probiotics, for instance. Kefir seems

to be miraculous

> in this regard. As is CLO, and low-grain diets in general.

[Rhonda]

How much kefir and how much CLO? In my own diet I have kefir 2 or 3

times a day, maybe a total of about 12 oz. I make up a fruit

smoothie in the morning using kefir, and dh has about 6 oz. He also

takes a little CLO, though I don't think it's enough. He consumes a

lot of canned red salmon (getting his omega 3s) - of course it's

between 2 slices of bread w/canola mayo and salsa LOL. I'd like to

see him eat more fermented foods, drop the bread and mayo and eat

more butter and coconut oil.

Well, the revelers have just started in - it's now 2005 here in

Oregon, and I guess it's about past my bedtime anyway.

Happy and healthy New Year everyone!

Rhonda

January 1, 2005

>>> He consumes a lot of canned red salmon (getting his omega 3s)<<<

Just be careful there. I've read that many (most?) of the canned fish,

especially the cheaper ones, have been stripped of their oil to make the

supplements.

Cheers,

Tas'.

January 1, 2005

> >>> He consumes a lot of canned red salmon (getting his omega 3s)

<<<

>

> Just be careful there. I've read that many (most?) of the canned

fish, especially the cheaper ones, have been stripped of their oil

to make the supplements.

>

> Cheers,

> Tas'.

[Rhonda]

He's switched over in the last couple of months to BumbleBee Alaska

Sockeye Red Salmon at over $4 for a 14.75 oz can. I'm sure hoping

the nutrition is there to offset the cost!

Rhonda

January 3, 2005

>

>[Rhonda]

>Actually I was going to ask what type of symptoms you get when you do

>eat gluten. Sometimes I think that so many of us go through life

>feeling not quite right, but not really putting an answer to it as to

>why.

[Heidi] Good question. There is a HUGE variety of symptoms,

which is why it's gone mostly ignored by the medical community.

Most (70%) of the folks that test " gluten intolerant " have zero

symptoms that they notice, though also most of those do " feel better "

when they don't eat gluten. But the list of known symptoms is huge ...

aches and pains, cancer sores, migraines, tummy troubles (from diarrhea

to constipation, gas, rumblings, major pains), cirrosis of the liver,

pancrease problems, gall bladder problems, thryoid problems,

depression, schizophrenia, sjogren's, lupus, T1 diabetes, weight loss,

weight gain, infertility, miscarriages, plus all manner of vitamin deficiencies.

> Then it just becomes a part of life - it's to be expected that

>most everyone isn't really healthy. Tired, or cold all the time,

>even hot flashes (this year is my first year of that) - but not

>really working at fixing the problem, just thinking that " oh well,

>it's my lot in life " I had an older woman tell me when she went thru

>menopause that as long as she stayed away from sugar she didn't have

>hot flashes. Humm, carbs - hot flashes - come to think of it. . .

>And yet when I mentioned to a friend that there might be a connection

>between my eating carbs at lunch and come back to work flashing for a

>big part of the afternoon, she was totally surprised. I guess what

>I'm trying to say is that I think that most people just put up with

>whatever ails them as something that just happens and there's nothing

>that can be done about it. I just like to think that there IS

>something, and then go about trying to find it.

[Heidi] I ignored all my " minor " issues til they got so bad I couldn't

function. My feet were hurting so bad I couldn't walk to the

mailbox, I had almost no short-term memory, I was totally out

of shape and panting after climbing the stairs, my eyes would

" run out of water " at night so I couldn't open them in the AM,

I had heart palpitations and IBS and horrible gas. And migraines.

But I didn't think anything was wrong with me especially ... I tried

the diet mostly to disprove it and because of the Asperger symptoms.

For something specific, like " hot flashes " there is a ton of stuff

on the Net. Nowadays I just keep experimenting.

>[Rhonda]

>How much kefir and how much CLO? In my own diet I have kefir 2 or 3

>times a day, maybe a total of about 12 oz. I make up a fruit

>smoothie in the morning using kefir, and dh has about 6 oz. He also

>takes a little CLO, though I don't think it's enough. He consumes a

>lot of canned red salmon (getting his omega 3s) - of course it's

>between 2 slices of bread w/canola mayo and salsa LOL. I'd like to

>see him eat more fermented foods, drop the bread and mayo and eat

>more butter and coconut oil.

[Heidi] Most people seem to have 1 tsp of CLO a day, but you'd

have to look it up, I think. Google on " Rheumatiod cod " or something

like that. CLO is different, joint wise, than other fish oil. It has the

effect of saving the cartilage between the bones from breaking down,

which is interesting! Seems your body produces cartilage attacking

enzymes (why? THAT sounds autoimmune to me, but they talk like

it's normal) and the CLO blocks the enzymes. So if you take CLO when

you are younger, you can save your knees from osteoarthritis. RA is

also helped by CLO, tho it's a different disease.

I drink one kefir-beer a day, and that makes a very

noticable change in the toilet department. It doesn't seem to matter

how MUCH kefir beer, anything from 2 oz to 2 bottles is the same,

but I need it at least every other day. However, it is very, very tasty

so my primary aim in drinking it isn't medicinal! I can't handle kefir

itself, though the family does and the animals get it, but the kefir

beer seems to have the same probiotic effects. It's also easier to

make than most lacto-fermented beers (which don't have the same

effects).

I also seem to do better eating 1-2 dishes of kimchi a day ... it doesn't

seem to make a noticable difference digestion wise, but it changes

my skin. I suspect it helps in the vitamin K dept. Also it is full of

ground up whole anchovies, which are full of minerals. But again,

it is really tasty, so I'm not primarily eating it for the vitamins.

One interesting thing this winter ... it is COLD, and my hands are

often in dishwater, and I keep forgetting to use handcream. But

my hands are totally smooth and clear. They used to be kind

of red, flakey, and dry. I don't know what exactly made that

change, or when!

Happy new year to you too!

>

Heidi Jean

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