Re: Re: Bowel Disease (very long)

[Guest guest]

_____

From: [mailto:sturnwald@...]

Sent: Thursday, February 10, 2005 2:05 PM

Subject: Re: Bowel Disease (very long)

Good to meet you !

>Oh, yes, one other difference... my Aidan actually had positive

>allergy tests. His first was egg white, which I removed from my diet

>ASAP & saw improvement, a month later he started again & the allergy

>test showed severe cows' whey allergy, and on & on.... His allergy

>tests now show only a cows milk whey allergy, but we still see

>negatvie bowel reactions to many of the same things you listed.

That's the problem we have too. We continue to lose foods - one right after

the other.

>We are now to the point we avoid almost exactly what you do with

>yours. I am so looking forward to the answers you get.

Maybe we can swap recipes

>BTW, Aidan's projectile vomiting began at 3 days of age, so I assume

>he was born in this condition. When did yours start & how was your

>pregnancy? (if you dont mind me being nosy!)

Aidan was in the ER at two weeks of age with bloody diarrhea. I cannot

remember when the projectile vomiting started but it was well underway by

the time he went into the ER. Yes, I do believe he was born with his

condition. My pregnancy seemed alright. I was miserable as I usually am

during pregnancy, but it went much smoother than my older son. I had

pre-eclampsia with both pregnancies very badly. It never progressed to

full-blown eclampsia.

>We recently started giving him the coconut milk tonic in EFLF & he

>was doing awesome on it & finally starting to put on a little

Ok, never heard of coconut milk tonic in EFLF, can you explain that further

to me, please? I'm up for giving anything a try.

Alese

[Guest guest]

>Sally says its a good sub for people who cannot get raw milk

>or who are allergic, so I figure it might be good for em?? Its alot

>less work than the rice milk I was making & seems much healthier to

>me. I'd give up milk all together, but my son would not have it...

>he is addicted!

My Aidan loved rice milk. He misses it I think and when we went SCD, I

switched him to juice (which never DID sit well with me - pre-SCD my kids

never drank juice). Aidan only drank his rice milk and water. With all the

supplements he takes, I have to put them in something to hide the taste so

my choices were milk or juice.

>I was told Aidan was " probably autistic " at 22 months. We chose not

>to have him evaluated & went to a naturopath instead.

Ya know, if I had to do it all over again, I wouldn't have Liam (my autistic

son - 4 yrs) diagnosed either. It didn't do us one bit of good and was a

massive headache. We've gotten a lot further with our chiro who actually

did metabolic testing and saw there were some massive problems laying

underneath the surface. We're addressing those problems and the re-tests

and his behavior are starting to tell a story of recovery. My Aidan is

currently speech delayed but he's not autistic - he doesn't show the signs

Liam showed at his age and even earlier. We started speech therapy at home

teaching him sign language so he can communicate and we're going to play the

waiting game a little longer to see if something clicks.

>I'm looking forward to having a third child after a few years of NT

Good luck - hopefully things will go well with the next little one. As for

me, I'm done. I'm not a pleasant human being when I'm pregnant so I'm

calling my child bearing days over. We are probably going to have more kids

- we just plan on adopting them or pursuing a permanent foster care

placement situation. I'd like to get these two squared away before we start

thinking about adding another one.

Good luck to you too! This has been a fascinating, albeit frustrating

journey so far.

Alese

[Guest guest]

-

>Guar gum, brrrrrr. Why not try some coconut milk without all that

>stuff? That way, you

>can see if it is a problem with the coconut milk or just all the

>additives. Here is where we

>get our coconut milk:

>

>http://www.wildernessfamilynaturals.com/mall/pure_and_naturals_coconut_milk_f.A\

SP

Great stuff, but the containers are ridiculous. They're narrow-mouthed

bottles, which means that in cool weather you have to heat the milk to get

it out, thus mixing the cream and water, which you don't always want to do,

and the caps are, in my experience at least, uniformly rusted on the

inside, and that rust taints the upper layer of coconut cream.

-

[Guest guest]

At 08:16 AM 3/9/2005, you wrote:

>I am trying

>the IBS diet now. That's not working. I am looking into N.A.E.T., an

>allergy elimination program.I have contacted a few chiropractors

>that do this.

>

>Anyway, being tested by an allergist for food allergies should help

>you. and then a rotation diet with the foods you CAN eat.

>

>Blessings to you,

>Del

Oh Del, I'm sorry to hear about all that! From what I've read, the IgG

allergies happen because of " leaky gut " , and you can get them

to just about anything that gets into your blood. But the question

is, why would your gut not be in good shape?

The Alpha Nutrition program is allergen free, and some folks

use that, but seems like something else is going on.

Heidi Jean

[Guest guest]

>I think I should not have lost my kefiili grains! At least the

>kefiili was keeping my gut in good bacteria. This probably would not

>have ever happened if I had not lost the grains. If not that that I

>too, am at a lost as to how it happened!

Well shoot, THAT is something I can fix! Do you want me to send more?

I just mailed off a batch, if they survive I can mail off more.

>Does it sound like something more than leaky gut to you? I am

>interested in hearing any opinions you have.

I don't know ... it seems for ME that I DO have to rely on a lot

of probiotics to keep an even keel, so to speak. Lately that

means kefir beer. But Dom is experimenting with kefir suppositories (oh,

I know!). It seems that that bacteria in kefir might make the cells

in the gut wall less permeable, they provoke the cells into growing

faster (I just skimmed the article, so don't take this definitively). Hearing

you say that about the kefir on the same day was just too coincidental.

Some folks with autistic kids feed the kids the GRAINS (because they

are casein intolerant) and it works. Gotta be a zonulin thing.

>I will look into the Alpha Nutrition program. Never heard of it.

Seems pricey, but it might be an interesting option. I've heard of

it used in some studies as a baseline.

For me, the feast/fast eating seems to work. I think it's because

the gut gets a REST and it can recover and rebuild, but I'm just

guessing. OTOH I'm having a problem with being too skinny!

>

Heidi Jean