Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 My goodness Russ!! To have you award me with a '100% right' is a mighty accolade! I feel very honoured - so thank you. Gosh - you are the one who deserves the accolades! I suppose your post meant so much to me because of today - the 9th September. A year ago today I discharged my dad from hospital in Derby and moved him in with us here in Kent. My intention was to care for him in my home - and to apply so much love,care and attention that he simply HAD to get better! I can see him now, waiting excitedly like a child expecting Santa Claus to appear, clutching his hammering hand from thrashing wildly against his side. He was tripping over himself in eagerness to grab his belongings - he'd been up, dressed and pacing the corridor of his locked ward since dawn! He was in such a frenzied state he could barely speak coherently. He was deliriously happy to be set free of that prison .... he couldn't contain his anticipation and his belief that suddenly all would be getting so much better. He genuinely thought that he was 'fixed' and on the mend! And in some pathetic way, I too bought the lie. Even I was swept along in that LBD bastard lie - it fools everyone at some time. I began to believe that with medication and huge doses of loving kindness combined, the beast would relent. I guess that's why I have become so cynical and suspicious of medications and treatments, and why I feel keeping a diary is so very important. If I can achieve anything in memory of my dad, if I had the chance to do one thing it would be to issue the following warning from the rooftops; 1. Atypical anti-psychotics are dangerous. They are extremely powerful, mind altering drugs and should be administered with exceptional care, if at all. It is critical to be scrupulously observant because LBD sufferers are so very sensitive to drugs. 2. Keep off the benzodiazipines!!!! DON'T go down the route of epam or Lorazepam. They go straight to LBD hell! I'll get down off my soap-box now! Just be very careful. Hugs to all Sally xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 Hi there - I want to be sure I'm understanding your point on atypical anti-psychotocs. Would Seroquel be one of them? My FIL has been taking 25mg two times daily for three weeks. It has gotten rid of the hallucinations with no negative side affects yet - although we don't know what to expect for the future. Can you tell me what we should be watching for? Maybe that will be obvious. He does have someone with him 24 hr a day. Thanks, SEPJ > My goodness Russ!! > To have you award me with a '100% right' is a mighty accolade! I feel very honoured - so thank you. > Gosh - you are the one who deserves the accolades! > I suppose your post meant so much to me because of today - the 9th September. A year ago today I discharged my dad from hospital in Derby and moved him in with us here in Kent. My intention was to care for him in my home - and to apply so much love,care and attention that he simply HAD to get better! I can see him now, waiting excitedly like a child expecting Santa Claus to appear, clutching his hammering hand from thrashing wildly against his side. He was tripping over himself in eagerness to grab his belongings - he'd been up, dressed and pacing the corridor of his locked ward since dawn! > He was in such a frenzied state he could barely speak coherently. He was deliriously happy to be set free of that prison .... he couldn't contain his anticipation and his > belief that suddenly all would be getting so much better. > He genuinely thought that he was 'fixed' and on the mend! And in some pathetic way, I too bought the lie. Even I was swept along in that LBD bastard lie - it fools everyone at some time. I began to believe that with medication and huge doses of loving kindness combined, the beast would relent. > I guess that's why I have become so cynical and suspicious of medications and treatments, and why I feel keeping a diary is so very important. > If I can achieve anything in memory of my dad, if I had the chance to do one thing it would be to issue the following warning from the rooftops; > 1. Atypical anti-psychotics are dangerous. They are extremely powerful, mind altering drugs and should be administered with exceptional care, if at all. It is critical to be scrupulously observant because LBD sufferers are so very sensitive to drugs. > 2. Keep off the benzodiazipines!!!! DON'T go down the route of epam or Lorazepam. They go straight to LBD hell! > I'll get down off my soap-box now! > Just be very careful. > Hugs to all > Sally xx > > > > > Quote Link to comment Share on other sites More sharing options...
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