Jump to content
RemedySpot.com

Re: thyroid and LBD PLEASE RESPOND (LURKERS TOO)

Rate this topic


Guest guest

Recommended Posts

KJ,

That is so interesting. My husband had the " cocktail " years years ago for

" hyperthyroidism " and he has been on .1 mg of Synthroid forever since then.

Just recently his TSH was over 7, so they upped his Synthroid to .112 mg per

day.

After all these years, I do not understand why the level went up. I have

wondered also about the thyroid, and every time I mentioned it to our primary

doctor, he " poo-pooed it " .

He is also on B12 1,000 mcg for when his B12 level was " 64 " ...in 1999...we

thought he had a B12 deficiency and that is when the tremor and " not being as

sharp " became obvious. I still think this played a role, but his B12 level is

normal as long as he takes the B12...when he stops, the level goes down.

Marilyn

In a message dated 9/1/03 3:53:17 PM Eastern Daylight Time,

kjjakob@... writes:

> Subj: thyroid and LBD PLEASE RESPOND (LURKERS TOO)

> Date:9/1/03 3:53:17 PM Eastern Daylight Time

> From: kjjakob@... (KJ Jakobson)

> Reply-to: <A

HREF= " mailto:LBDcaregivers " >LBDcaregivers </A>

> To: LBDcaregivers ('LBDcaregivers ')

>

>

>

>

> Dear everyone,

>

> How many of our loved ones are on thyroid medication - synthroid, etc? Is

> there any possibility there is a connection. I think that if there are 400

> members on this list that's a pretty good sample to see if the rate of

> incidence of thyroid problems is greater than the average for people over

> 65.

>

> Please even if you are just a lurker if your loved one has a thyroid

> problem along with LBD, please just write a quick email saying so. If you

> know their med and dosage include that. Also if the condition developed

> before or after their LBD symptoms started.

>

> If you don't want to post on the list please email me directly at

> kjjakob@....

>

> At the conference in LaCrosse someone suggested that there seemed to be a

> lot of LBD patients on this list who also had thyroid problems. Lets see if

> we can establish that objectively as it has come up in three different

> posts this week.

>

> PLEASE HELP THIS EFFORT, it may be nothing but it may lead to something.

>

> Geri and Russ what about the patient population you work with?

>

> Thanks KJ

>

>

Link to comment
Share on other sites

KJ, good to hear from you.

My mother has never had any thyroid problems as far as I know. I was wondering

as to whether there is a link between low blood pressure and heart problems and

LBD as when people mention the meds their loved ones are on therre is usually

some low blood pressure medication.

Can I suggest you run a poll. The Caregiver's site gives you the ability to

create a poll. Just click on the link below.

http://groups.yahoo.com/group/LBDcaregivers/editsurvey

thyroid and LBD PLEASE RESPOND (LURKERS TOO)

Dear everyone,

How many of our loved ones are on thyroid medication - synthroid, etc? Is

there any possibility there is a connection. I think that if there are 400

members on this list that's a pretty good sample to see if the rate of

incidence of thyroid problems is greater than the average for people over

65.

Please even if you are just a lurker if your loved one has a thyroid

problem along with LBD, please just write a quick email saying so. If you

know their med and dosage include that. Also if the condition developed

before or after their LBD symptoms started.

If you don't want to post on the list please email me directly at

kjjakob@....

At the conference in LaCrosse someone suggested that there seemed to be a

lot of LBD patients on this list who also had thyroid problems. Lets see if

we can establish that objectively as it has come up in three different

posts this week.

PLEASE HELP THIS EFFORT, it may be nothing but it may lead to something.

Geri and Russ what about the patient population you work with?

Thanks KJ

Link to comment
Share on other sites

,

I was just about to reply to you about the honey when your note came

through. I didn't know about the poll feature. I will definitely check it

out.

Try the way my mother also has low blood pressure although it is just a

tendency not clinically official.

Thank you so much for the honey. I haven't had a chance to take it to my

mom's yet as it just came. I want to research its beneficial properties to

convince her caregivers to use it.

Will you allow me to reimburse you for it? That way you can send off more

of it to others. Send me an email with your mailing address please.

It was wonderful to meet you in LaX. I have been so busy with Nurse Aid

training and job hunting and researching my mom's drugs that I haven't had

time to write the individual notes that I have wanted to send to each of

you that I met there. And this week I start a temp job so things will get

even busier.

Again thanks so much for the honey, it is really sweet (ha-ha) of you to

have sent it.

KJ

Re: thyroid and LBD PLEASE RESPOND (LURKERS TOO)

KJ, good to hear from you.

My mother has never had any thyroid problems as far as I know. I was

wondering as to whether there is a link between low blood pressure and

heart problems and LBD as when people mention the meds their loved ones are

on therre is usually some low blood pressure medication.

Can I suggest you run a poll. The Caregiver's site gives you the ability

to create a poll. Just click on the link below.

http://groups.yahoo.com/group/LBDcaregivers/editsurvey

thyroid and LBD PLEASE RESPOND (LURKERS TOO)

Dear everyone,

How many of our loved ones are on thyroid medication - synthroid, etc?

Is

there any possibility there is a connection. I think that if there are

400

members on this list that's a pretty good sample to see if the rate of

incidence of thyroid problems is greater than the average for people over

65.

Please even if you are just a lurker if your loved one has a thyroid

problem along with LBD, please just write a quick email saying so. If you

know their med and dosage include that. Also if the condition developed

before or after their LBD symptoms started.

If you don't want to post on the list please email me directly at

kjjakob@....

At the conference in LaCrosse someone suggested that there seemed to be a

lot of LBD patients on this list who also had thyroid problems. Lets see

if

we can establish that objectively as it has come up in three different

posts this week.

PLEASE HELP THIS EFFORT, it may be nothing but it may lead to something.

Geri and Russ what about the patient population you work with?

Thanks KJ

Link to comment
Share on other sites

Husband just going for thyroid check this week. His is enlarged.

thyroid and LBD PLEASE RESPOND (LURKERS TOO)

Dear everyone,

How many of our loved ones are on thyroid medication - synthroid, etc? Is

there any possibility there is a connection. I think that if there are 400

members on this list that's a pretty good sample to see if the rate of

incidence of thyroid problems is greater than the average for people over

65.

Please even if you are just a lurker if your loved one has a thyroid

problem along with LBD, please just write a quick email saying so. If you

know their med and dosage include that. Also if the condition developed

before or after their LBD symptoms started.

If you don't want to post on the list please email me directly at

kjjakob@....

At the conference in LaCrosse someone suggested that there seemed to be a

lot of LBD patients on this list who also had thyroid problems. Lets see if

we can establish that objectively as it has come up in three different

posts this week.

PLEASE HELP THIS EFFORT, it may be nothing but it may lead to something.

Geri and Russ what about the patient population you work with?

Thanks KJ

Link to comment
Share on other sites

Marilyn,

I think there might be a connection too. Lets see what results we get with this

poll.

KJ

Re: thyroid and LBD PLEASE RESPOND (LURKERS TOO)

KJ,

That is so interesting. My husband had the " cocktail " years years ago for

" hyperthyroidism " and he has been on .1 mg of Synthroid forever since then.

Just recently his TSH was over 7, so they upped his Synthroid to .112 mg per

day.

After all these years, I do not understand why the level went up. I have

wondered also about the thyroid, and every time I mentioned it to our primary

doctor, he " poo-pooed it " .

He is also on B12 1,000 mcg for when his B12 level was " 64 " ...in 1999...we

thought he had a B12 deficiency and that is when the tremor and " not being as

sharp " became obvious. I still think this played a role, but his B12 level is

normal as long as he takes the B12...when he stops, the level goes down.

Marilyn

In a message dated 9/1/03 3:53:17 PM Eastern Daylight Time,

kjjakob@... writes:

> Subj: thyroid and LBD PLEASE RESPOND (LURKERS TOO)

> Date:9/1/03 3:53:17 PM Eastern Daylight Time

> From: kjjakob@... (KJ Jakobson)

> Reply-to: <A

HREF= " mailto:LBDcaregivers " >LBDcaregivers </A>

> To: LBDcaregivers ('LBDcaregivers ')

>

>

>

>

> Dear everyone,

>

> How many of our loved ones are on thyroid medication - synthroid, etc? Is

> there any possibility there is a connection. I think that if there are 400

> members on this list that's a pretty good sample to see if the rate of

> incidence of thyroid problems is greater than the average for people over

> 65.

>

> Please even if you are just a lurker if your loved one has a thyroid

> problem along with LBD, please just write a quick email saying so. If you

> know their med and dosage include that. Also if the condition developed

> before or after their LBD symptoms started.

>

> If you don't want to post on the list please email me directly at

> kjjakob@....

>

> At the conference in LaCrosse someone suggested that there seemed to be a

> lot of LBD patients on this list who also had thyroid problems. Lets see if

> we can establish that objectively as it has come up in three different

> posts this week.

>

> PLEASE HELP THIS EFFORT, it may be nothing but it may lead to something.

>

> Geri and Russ what about the patient population you work with?

>

> Thanks KJ

>

>

Link to comment
Share on other sites

Thanks Courage.

For this info to go further we need to ask how many people participated in

the poll? How many had BP problems? Is the ratio any different than the

incidence of BP problems in the general geriatric population?

Personally, I think BP problems are so common in elderly folks that it

would be surprising if LBD folks didn't commonly have them.

I am not certain thyroid problems are as common in the general population.

But these are only my personal impressions. I just want to learn more.

Its important for people to respond to the poll even if their answer is no.

Otherwise we won't get a representative picture.

KJ

thyroid and LBD PLEASE RESPOND (LURKERS TOO)

>Dear everyone,

>

>How many of our loved ones are on thyroid medication - synthroid, etc? Is

>there any possibility there is a connection. I think that if there are 400

>members on this list that's a pretty good sample to see if the rate of

>incidence of thyroid problems is greater than the average for people over

>65.

>

>Please even if you are just a lurker if your loved one has a thyroid

>problem along with LBD, please just write a quick email saying so. If you

>know their med and dosage include that. Also if the condition developed

>before or after their LBD symptoms started.

>

>If you don't want to post on the list please email me directly at

>kjjakob@....

>

>At the conference in LaCrosse someone suggested that there seemed to be a

>lot of LBD patients on this list who also had thyroid problems. Lets see

if

>we can establish that objectively as it has come up in three different

>posts this week.

>

>PLEASE HELP THIS EFFORT, it may be nothing but it may lead to something.

>

>Geri and Russ what about the patient population you work with?

>

>Thanks KJ

>

>

>

Link to comment
Share on other sites

No thyroid problems with mom. KJ, we did an informal poll and discovered

that many of our LO's have BP problems, either too high or too low.

Courage

thyroid and LBD PLEASE RESPOND (LURKERS TOO)

>Dear everyone,

>

>How many of our loved ones are on thyroid medication - synthroid, etc? Is

>there any possibility there is a connection. I think that if there are 400

>members on this list that's a pretty good sample to see if the rate of

>incidence of thyroid problems is greater than the average for people over

>65.

>

>Please even if you are just a lurker if your loved one has a thyroid

>problem along with LBD, please just write a quick email saying so. If you

>know their med and dosage include that. Also if the condition developed

>before or after their LBD symptoms started.

>

>If you don't want to post on the list please email me directly at

>kjjakob@....

>

>At the conference in LaCrosse someone suggested that there seemed to be a

>lot of LBD patients on this list who also had thyroid problems. Lets see if

>we can establish that objectively as it has come up in three different

>posts this week.

>

>PLEASE HELP THIS EFFORT, it may be nothing but it may lead to something.

>

>Geri and Russ what about the patient population you work with?

>

>Thanks KJ

>

>

>

Link to comment
Share on other sites

My mom has thyroid problems and is on Synthroid/Levothyroxin. I believe the

strength is .100mg (it is the yellow pill). She has been on it as long as I

can remember...before LBD diagnosis.

Kath

thyroid and LBD PLEASE RESPOND (LURKERS TOO)

> Dear everyone,

>

> How many of our loved ones are on thyroid medication - synthroid, etc? Is

> there any possibility there is a connection. I think that if there are 400

> members on this list that's a pretty good sample to see if the rate of

> incidence of thyroid problems is greater than the average for people over

> 65.

>

> Please even if you are just a lurker if your loved one has a thyroid

> problem along with LBD, please just write a quick email saying so. If you

> know their med and dosage include that. Also if the condition developed

> before or after their LBD symptoms started.

>

> If you don't want to post on the list please email me directly at

> kjjakob@....

>

> At the conference in LaCrosse someone suggested that there seemed to be a

> lot of LBD patients on this list who also had thyroid problems. Lets see

if

> we can establish that objectively as it has come up in three different

> posts this week.

>

> PLEASE HELP THIS EFFORT, it may be nothing but it may lead to something.

>

> Geri and Russ what about the patient population you work with?

>

> Thanks KJ

>

>

>

Link to comment
Share on other sites

> Dear everyone,

>

> How many of our loved ones are on thyroid medication - synthroid,

etc? Is

> there any possibility there is a connection. I think that if there

are 400

> members on this list that's a pretty good sample to see if the

rate of

> incidence of thyroid problems is greater than the average for

people over

> 65.

>

> Please even if you are just a lurker if your loved one has a

thyroid

> problem along with LBD, please just write a quick email saying so.

If you

> know their med and dosage include that. Also if the condition

developed

> before or after their LBD symptoms started

>

> If you don't want to post on the list please email me directly at

> kjjakob@s...

>

> At the conference in LaCrosse someone suggested that there seemed

to be a

> lot of LBD patients on this list who also had thyroid problems.

Lets see if

> we can establish that objectively as it has come up in three

different

> posts this week.

>

> PLEASE HELP THIS EFFORT, it may be nothing but it may lead to

something.

>

> Geri and Russ what about the patient population you work with?

>

> Thanks KJ

KJ, my wife has been on thyroid medication..112mg levoxyl, for over

30 years, she has had AlZ and LBD since Mar 2001, but in the last 6

months the dosage has been reduced from .125 mg to .112 mg, I hope

this helps in your researce, jr_hunter@...

Link to comment
Share on other sites

Dear folks,

In addition to setting up the poll question about LBD and thyroid problems,

I also searched the archives. From all sources, the poll so far and the

archives there are 21 separate cases of LBD and thyroid problems. Most are

hypothyroid but a few are hyperthyroid and a few just say thyroid problems.

Betty wrote in July:

In two situations he explains that there can be a loss of dopamine leading

to parkinsonian symptoms. Not because of damage to the substantia niagra,

as would happen in typical PD, but to inability of the striatum to respond

to the dopamine. " In hypothyroidism, the body and the brain have decreased

amounts of thyroid hormone, and without sufficient thyroid hormone the

dopamine receptors of the striatum cannot respond to dopamine. " In

hypoparathyroidism, " the body doesn't make parathyroid hormone and without

that hormone, some aspects of brain function can be changed. One of these

is how the striatum responds to dopamine. " As you can see, these glandular

systems are very important. I had a benign thyroid tumor removed in

addition to the right half of my thyroid at age 23. It wasn't until I was

42 that I began taking medication for my underactive condition. My Mom and

brother also have hypothyroidism. Never before did I realize how important

thyroid function was to eventual health of certain brain structures until

I read this.

This explains a possible relationship to the motor symptoms but does not

explain what Eve wrote in Oct 2001:

" He was informed that there is a very high occurrence of hypothyroidism in

some people with dementia "

8 people so far have responded with NO thyroid problems for their LBD LOs.

Will keep you posted as the poll goes along.

One things for sure. I am going to request more attention be paid to my

mom's synthroid levels. Also does synthroid compensate for

hypoparathyroidism as well as hypothyroidism?

Betty? Russ? Geri?

KJ

Re: thyroid and LBD PLEASE RESPOND (LURKERS TOO)

> Dear everyone,

>

> How many of our loved ones are on thyroid medication - synthroid,

etc? Is

> there any possibility there is a connection. I think that if there

are 400

> members on this list that's a pretty good sample to see if the

rate of

> incidence of thyroid problems is greater than the average for

people over

> 65.

>

> Please even if you are just a lurker if your loved one has a

thyroid

> problem along with LBD, please just write a quick email saying so.

If you

> know their med and dosage include that. Also if the condition

developed

> before or after their LBD symptoms started

>

> If you don't want to post on the list please email me directly at

> kjjakob@s...

>

> At the conference in LaCrosse someone suggested that there seemed

to be a

> lot of LBD patients on this list who also had thyroid problems.

Lets see if

> we can establish that objectively as it has come up in three

different

> posts this week.

>

> PLEASE HELP THIS EFFORT, it may be nothing but it may lead to

something.

>

> Geri and Russ what about the patient population you work with?

>

> Thanks KJ

KJ, my wife has been on thyroid medication..112mg levoxyl, for over

30 years, she has had AlZ and LBD since Mar 2001, but in the last 6

months the dosage has been reduced from .125 mg to .112 mg, I hope

this helps in your researce, jr_hunter@...

Link to comment
Share on other sites

My granda never had any thyroid problems either, his earliest symptoms showed up

after a fall in which he sustained a nasty blow to his head.

.x

thyroid and LBD PLEASE RESPOND (LURKERS TOO)

>Dear everyone,

>

>How many of our loved ones are on thyroid medication - synthroid, etc? Is

>there any possibility there is a connection. I think that if there are 400

>members on this list that's a pretty good sample to see if the rate of

>incidence of thyroid problems is greater than the average for people over

>65.

>

>Please even if you are just a lurker if your loved one has a thyroid

>problem along with LBD, please just write a quick email saying so. If you

>know their med and dosage include that. Also if the condition developed

>before or after their LBD symptoms started.

>

>If you don't want to post on the list please email me directly at

>kjjakob@....

>

>At the conference in LaCrosse someone suggested that there seemed to be a

>lot of LBD patients on this list who also had thyroid problems. Lets see if

>we can establish that objectively as it has come up in three different

>posts this week.

>

>PLEASE HELP THIS EFFORT, it may be nothing but it may lead to something.

>

>Geri and Russ what about the patient population you work with?

>

>Thanks KJ

>

>

>

Link to comment
Share on other sites

I believe that I did tell you that my husband was just diagnosed with a thyroid

problem. LBD was diagnosed almost a year ago.

Simmel

Re: thyroid and LBD PLEASE RESPOND (LURKERS TOO)

> Dear everyone,

>

> How many of our loved ones are on thyroid medication - synthroid,

etc? Is

> there any possibility there is a connection. I think that if there

are 400

> members on this list that's a pretty good sample to see if the

rate of

> incidence of thyroid problems is greater than the average for

people over

> 65.

>

> Please even if you are just a lurker if your loved one has a

thyroid

> problem along with LBD, please just write a quick email saying so.

If you

> know their med and dosage include that. Also if the condition

developed

> before or after their LBD symptoms started

>

> If you don't want to post on the list please email me directly at

> kjjakob@s...

>

> At the conference in LaCrosse someone suggested that there seemed

to be a

> lot of LBD patients on this list who also had thyroid problems.

Lets see if

> we can establish that objectively as it has come up in three

different

> posts this week.

>

> PLEASE HELP THIS EFFORT, it may be nothing but it may lead to

something.

>

> Geri and Russ what about the patient population you work with?

>

> Thanks KJ

KJ, my wife has been on thyroid medication..112mg levoxyl, for over

30 years, she has had AlZ and LBD since Mar 2001, but in the last 6

months the dosage has been reduced from .125 mg to .112 mg, I hope

this helps in your researce, jr_hunter@...

Link to comment
Share on other sites

Hi, KJ!

Just wanted to respond to the thyroid question. My dad has no thyroid

problems. He actually has no other health problems, with the exception of his

eyesight, besides LBD. His eyesight has failed him, but he has always has poor

eyesight from the time he was a boy.

Thanks,

Piper

Link to comment
Share on other sites

Ditto to Piper's reply....my Dad has no thyroid problems either,

though he has no visual problems either. No other health problems

whatso ever.

> Hi, KJ!

>

> Just wanted to respond to the thyroid question. My dad has no

thyroid

> problems. He actually has no other health problems, with the

exception of his

> eyesight, besides LBD. His eyesight has failed him, but he has

always has poor

> eyesight from the time he was a boy.

>

> Thanks,

>

> Piper

>

>

>

Link to comment
Share on other sites

Dear Coyote:

Oh! well, since I am here... This cought my eye, as a new " lurker "

LOL.

My dad had no thyroid problems, but his eyesight deteriorated a lot.

He had 20/10 vision all his life before LBD. He also was extremely

healthy and had a very good diet. No red meats, wine once in a

while. He smoked as a young man, but not anymore for the last 50

years. The past few years he developed high cholesterol and blood

pressure.

Josie

> > Hi, KJ!

> >

> > Just wanted to respond to the thyroid question. My dad has no

> thyroid

> > problems. He actually has no other health problems, with the

> exception of his

> > eyesight, besides LBD. His eyesight has failed him, but he has

> always has poor

> > eyesight from the time he was a boy.

> >

> > Thanks,

> >

> > Piper

> >

> >

> >

Link to comment
Share on other sites

Hi Simmel

With my mother we had a similar experience, mother had a cataract done, 16

mnths ago, with a local, she reacted violently, moods, depression, hallac,

dreams, amazing stories about my father being a drug runner, she saw

furry animals, couldnt concerntrate, had periods when

she thought she couldnt breath, was going to die,

horrible and my father called the ambulance at least

3-4 times and mother was rushed off to hosiptal, nothing was ever found, she

returned home and became even more demanding and insistant, she began to

fidget and shake in her legs then after a great deal of medication and I

felt wrong dx I talked to who is a friend of our family, who

described his mothers symptoms, as a result

mother was taken to s Dr and he dx LBD, she is now in a home and on

med that has held her. I feel thougth that she is after several months of

good, begining to slip again. Just a thought cheers stella in NZ

Re: thyroid and LBD PLEASE RESPOND (LURKERS

TOO)

>

>

> Dear Coyote:

>

> Oh! well, since I am here... This cought my eye, as a new " lurker "

> LOL.

>

> My dad had no thyroid problems, but his eyesight deteriorated a lot.

> He had 20/10 vision all his life before LBD. He also was extremely

> healthy and had a very good diet. No red meats, wine once in a

> while. He smoked as a young man, but not anymore for the last 50

> years. The past few years he developed high cholesterol and blood

> pressure.

>

>

> Josie

>

>

>

> > > Hi, KJ!

> > >

> > > Just wanted to respond to the thyroid question. My dad has no

> > thyroid

> > > problems. He actually has no other health problems, with the

> > exception of his

> > > eyesight, besides LBD. His eyesight has failed him, but he has

> > always has poor

> > > eyesight from the time he was a boy.

> > >

> > > Thanks,

> > >

> > > Piper

> > >

> > >

> > >

Link to comment
Share on other sites

I am one of the older resident of this group. I lurk when the time is there

for me to do so.

Thyroid history? YES! If I recall it was at or around the same time the

creature started showing or maybe a little before.

Debbie Curtis Iowa

Link to comment
Share on other sites

Hello, my mother had Graves Disease (an overactive thyroid

condition) in 1958. She received radioactive iodine to shrink her

thyroid. Since that time she has been on Synthroid because of

an underactive thyroid. She has LBD and is currently taking

Synthroid (0.15 mg). By the way, one of my sisters had this

condition, I had it, my husband had it and my son when he was

12 years old had this. We are all taking replacement Synthroid.

Hope this helps,

> Dear everyone,

>

> How many of our loved ones are on thyroid medication -

synthroid, etc? Is

> there any possibility there is a connection. I think that if there

are 400

> members on this list that's a pretty good sample to see if the

rate of

> incidence of thyroid problems is greater than the average for

people over

> 65.

>

> Please even if you are just a lurker if your loved one has a

thyroid

> problem along with LBD, please just write a quick email saying

so. If you

> know their med and dosage include that. Also if the condition

developed

> before or after their LBD symptoms started.

>

> If you don't want to post on the list please email me directly at

> kjjakob@s...

>

> At the conference in LaCrosse someone suggested that there

seemed to be a

> lot of LBD patients on this list who also had thyroid problems.

Lets see if

> we can establish that objectively as it has come up in three

different

> posts this week.

>

> PLEASE HELP THIS EFFORT, it may be nothing but it may lead

to something.

>

> Geri and Russ what about the patient population you work

with?

>

> Thanks KJ

Link to comment
Share on other sites

  • 2 weeks later...

KJ -- my dad's thyroid was checked at least once that I know of and

it came back " normal " (yeah, right - what's 'normal' with the beast).

Anyway, I just know my dad eats everything in the place and still

loses weight. Sometimes I wonder if maybe the memory doesn't have

something to do with gaining weight?? I mean if you know you should

eat that huge piece of pizza because you're going to gain weight from

it, you put it back in the box. But, if there's no reason you know of

that you shouldn't eat that piece of pizza as well as every other

piece in the box ..... just a silly thought.

I would not be surprised if he does have a thyroid problem though.

Joni

> Dear everyone,

>

> How many of our loved ones are on thyroid medication - synthroid,

etc? Is

> there any possibility there is a connection. I think that if there

are 400

> members on this list that's a pretty good sample to see if the rate

of

> incidence of thyroid problems is greater than the average for

people over

> 65.

>

> Please even if you are just a lurker if your loved one has a

thyroid

> problem along with LBD, please just write a quick email saying so.

If you

> know their med and dosage include that. Also if the condition

developed

> before or after their LBD symptoms started.

>

> If you don't want to post on the list please email me directly at

> kjjakob@s...

>

> At the conference in LaCrosse someone suggested that there seemed

to be a

> lot of LBD patients on this list who also had thyroid problems.

Lets see if

> we can establish that objectively as it has come up in three

different

> posts this week.

>

> PLEASE HELP THIS EFFORT, it may be nothing but it may lead to

something.

>

> Geri and Russ what about the patient population you work with?

>

> Thanks KJ

Link to comment
Share on other sites

KJ -- my dad's thyroid was checked at least once that I know of and

it came back " normal " (yeah, right - what's 'normal' with the beast).

Anyway, I just know my dad eats everything in the place and still

loses weight. Sometimes I wonder if maybe the memory doesn't have

something to do with gaining weight?? I mean if you know you should

eat that huge piece of pizza because you're going to gain weight from

it, you put it back in the box. But, if there's no reason you know of

that you shouldn't eat that piece of pizza as well as every other

piece in the box ..... just a silly thought.

I would not be surprised if he does have a thyroid problem though.

Joni

> Dear everyone,

>

> How many of our loved ones are on thyroid medication - synthroid,

etc? Is

> there any possibility there is a connection. I think that if there

are 400

> members on this list that's a pretty good sample to see if the rate

of

> incidence of thyroid problems is greater than the average for

people over

> 65.

>

> Please even if you are just a lurker if your loved one has a

thyroid

> problem along with LBD, please just write a quick email saying so.

If you

> know their med and dosage include that. Also if the condition

developed

> before or after their LBD symptoms started.

>

> If you don't want to post on the list please email me directly at

> kjjakob@s...

>

> At the conference in LaCrosse someone suggested that there seemed

to be a

> lot of LBD patients on this list who also had thyroid problems.

Lets see if

> we can establish that objectively as it has come up in three

different

> posts this week.

>

> PLEASE HELP THIS EFFORT, it may be nothing but it may lead to

something.

>

> Geri and Russ what about the patient population you work with?

>

> Thanks KJ

Link to comment
Share on other sites

Hey Joni....that would be SO cool if you just discovered some " silly

thought " that could be useful to those of us with a few to lose!!! :)

> > Dear everyone,

> >

> > How many of our loved ones are on thyroid medication -

synthroid,

> etc? Is

> > there any possibility there is a connection. I think that if

there

> are 400

> > members on this list that's a pretty good sample to see if the

rate

> of

> > incidence of thyroid problems is greater than the average for

> people over

> > 65.

> >

> > Please even if you are just a lurker if your loved one has a

> thyroid

> > problem along with LBD, please just write a quick email saying

so.

> If you

> > know their med and dosage include that. Also if the condition

> developed

> > before or after their LBD symptoms started.

> >

> > If you don't want to post on the list please email me directly

at

> > kjjakob@s...

> >

> > At the conference in LaCrosse someone suggested that there

seemed

> to be a

> > lot of LBD patients on this list who also had thyroid problems.

> Lets see if

> > we can establish that objectively as it has come up in three

> different

> > posts this week.

> >

> > PLEASE HELP THIS EFFORT, it may be nothing but it may lead to

> something.

> >

> > Geri and Russ what about the patient population you work with?

> >

> > Thanks KJ

Link to comment
Share on other sites

Hey Joni....that would be SO cool if you just discovered some " silly

thought " that could be useful to those of us with a few to lose!!! :)

> > Dear everyone,

> >

> > How many of our loved ones are on thyroid medication -

synthroid,

> etc? Is

> > there any possibility there is a connection. I think that if

there

> are 400

> > members on this list that's a pretty good sample to see if the

rate

> of

> > incidence of thyroid problems is greater than the average for

> people over

> > 65.

> >

> > Please even if you are just a lurker if your loved one has a

> thyroid

> > problem along with LBD, please just write a quick email saying

so.

> If you

> > know their med and dosage include that. Also if the condition

> developed

> > before or after their LBD symptoms started.

> >

> > If you don't want to post on the list please email me directly

at

> > kjjakob@s...

> >

> > At the conference in LaCrosse someone suggested that there

seemed

> to be a

> > lot of LBD patients on this list who also had thyroid problems.

> Lets see if

> > we can establish that objectively as it has come up in three

> different

> > posts this week.

> >

> > PLEASE HELP THIS EFFORT, it may be nothing but it may lead to

> something.

> >

> > Geri and Russ what about the patient population you work with?

> >

> > Thanks KJ

Link to comment
Share on other sites

My mother has no thyroid problem with her LBD.

>

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: Re: thyroid and LBD PLEASE RESPOND (LURKERS TOO)

>Date: Sat, 20 Sep 2003 17:12:26 -0000

>MIME-Version: 1.0

>X-Originating-IP: 170.224.224.134

>Received: from n3.grp.scd.yahoo.com ([66.218.66.86]) by mc2-f10.hotmail.com

>with Microsoft SMTPSVC(5.0.2195.5600); Sat, 20 Sep 2003 10:15:31 -0700

>Received: from [66.218.66.94] by n3.grp.scd.yahoo.com with NNFMP; 20 Sep

>2003 17:14:30 -0000

>Received: (qmail 56901 invoked from network); 20 Sep 2003 17:14:29 -0000

>Received: from unknown (66.218.66.166) by m1.grp.scd.yahoo.com with QMQP;

>20 Sep 2003 17:14:29 -0000

>Received: from unknown (HELO n24.grp.scd.yahoo.com) (66.218.66.80) by

>mta5.grp.scd.yahoo.com with SMTP; 20 Sep 2003 17:14:29 -0000

>Received: from [66.218.67.143] by n24.grp.scd.yahoo.com with NNFMP; 20 Sep

>2003 17:14:08 -0000

>X-Message-Info: JGTYoYF78jHVO4h/gPR5OwE5gxxPC0J8

>X-eGroups-Return:

>sentto-2141318-20198-1064078070-cat86443=hotmail.com@...

>X-Sender: coyote81067@...

>X-Apparently-To: LBDcaregivers

>Message-ID: <bki1pq+btb5eGroups>

>In-Reply-To: <bkhs8s+8b44eGroups>

>User-Agent: eGroups-EW/0.82

>X-Mailer: Yahoo Groups Message Poster

>X-Yahoo-Profile: coyote_myst

>Mailing-List: list LBDcaregivers ; contact

>LBDcaregivers-owner

>Delivered-To: mailing list LBDcaregivers

>Precedence: bulk

>List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe >

>Return-Path:

>sentto-2141318-20198-1064078070-cat86443=hotmail.com@...

>X-OriginalArrivalTime: 20 Sep 2003 17:15:31.0583 (UTC)

>FILETIME=[CBB4F0F0:01C37F9A]

>

>Hey Joni....that would be SO cool if you just discovered some " silly

>thought " that could be useful to those of us with a few to lose!!! :)

>

> > > Dear everyone,

> > >

> > > How many of our loved ones are on thyroid medication -

>synthroid,

> > etc? Is

> > > there any possibility there is a connection. I think that if

>there

> > are 400

> > > members on this list that's a pretty good sample to see if the

>rate

> > of

> > > incidence of thyroid problems is greater than the average for

> > people over

> > > 65.

> > >

> > > Please even if you are just a lurker if your loved one has a

> > thyroid

> > > problem along with LBD, please just write a quick email saying

>so.

> > If you

> > > know their med and dosage include that. Also if the condition

> > developed

> > > before or after their LBD symptoms started.

> > >

> > > If you don't want to post on the list please email me directly

>at

> > > kjjakob@s...

> > >

> > > At the conference in LaCrosse someone suggested that there

>seemed

> > to be a

> > > lot of LBD patients on this list who also had thyroid problems.

> > Lets see if

> > > we can establish that objectively as it has come up in three

> > different

> > > posts this week.

> > >

> > > PLEASE HELP THIS EFFORT, it may be nothing but it may lead to

> > something.

> > >

> > > Geri and Russ what about the patient population you work with?

> > >

> > > Thanks KJ

>

_________________________________________________________________

Share your photos without swamping your Inbox. Get Hotmail Extra Storage

today! http://join.msn.com/?PAGE=features/es

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...