Sandy -- Hi all Sun evening and they sent home today. It seems so

June 22, 2003

Sandy and Ron -- I'm so happy to hear is home with you. That's

where she needs to be right now.

Sandy, as for that so-called 'neurologist' -- don't you be worrying

about your patient status. If he does somehow get you fired as a

patient, please let him know there will be over 300 LBDcaregivers

filling up his web page with not only pertinent information on LBD

but also extraneous junk!

'I am woman'

'I am invincible'

This would be a good song for us (sorry guys -- you'll have to find

your own.)

Joni

> far that we don't know what the problem was but there was/is an

> infection somewhere. UTI culture, blood culture etc. They " think "

> it might have been the start of bronchitis. We are to see our

> Family Doctor this week the cultures and results should be in by

> then. I am reassured that her heart rhythm and vitals are good. I

> am happy that our current meds are currently making life

> fairly " normal " for her. We might have a couple hallucinations

of

> minor nature that are easily dealt with here and there. It is easy

> after every waking hour being non reality mixed with reality.

>

> I went to church and baptism for two of my Grandchildren this

> morning and sent Ron to hospital to be with . He said she was

> clear headed when he got there but within about 45 minutes she went

> what we call " fuzzy " on him. Didn't know where she was etc etc.

>

> Didn't know she was home when she got here. She napped this

> afternoon woke up a little stronger able to walk by herself. I am

> mystified - I'd have considered it an LBD episode if not for the

> fever. She is on antibiotics.

>

> Will keep you posted - thanks for all your prayers. I'm still

> furious that a Neurologist could tell me point blank that there are

> no meds contraindicated for LBD. Hope he doesn't have his partner

> fire me as patient for telling him what I thought. LOL

>

> Sandy (OH)

Recommended Posts