Welcome Susie

[Guest guest]

Welcome to this group. You will find help in so many different

ways. My dad was diagonsed with LBD less than a year ago and he died

on Monday, May 12.

I know exactly how you feel when he can't find the words and cries

because he knows something is wrong. We told my dad what he had and

he could usually remember, but sometimes he forgot. Telling him he

couldn't drive anymore was very difficult. The problem with this

disease is one week or even day they will seem fine, and the next

they are very confused and my dad would fall a lot. We never really

got to the hallucinations. My dad was able to live at home and our

goal was to let him live at home as long as we could. My mom works

full-time, and my dad did pretty well so I thought until I had to

take care of him when my mom had surgery and I realized that she had

been covering for him. He would get his mind set on something and

not let it go. He was planning this big garden this year, but I

guess he will be planting up in heaven.

You need to make sure that you have a back-up caregiver as this is

very important if the main caregiver gets sick, it happened to us

more then once. My mom also had power of attorney for my dad. It is

so heartbreaking to see our parents and loved ones go through this.

Even when my dad could hardly communicate with us in hospice, I could

tell he was crying and that was hard.

If you lived in Iowa Sandie and I could meet with you. She has been

so good to my family. My dad did not want a feeding tube or any

other life saving things. That is also very important as a family

you need to talk about those things before you have to make some

major decisions.

This disease seems to have no time table. We all just learn to take

one day at a time.

We are all here to help you with this walk with the beast.

C.

Adel, Ia