- I had used animations that did not show in the group e-mail!

[Guest guest]

- sorry if my message seemed confusing with lacking extra words!

-- Re: Sunshine re - Hello - I am new to the group -

needing support

Hi Sunshine, good of you to post. You will find a lot of caring and

supportive people in this group. I've only been a member since 28 April and

I have derived great benefit already.

My heart aches for you. You say your family are not close to your father.

My father died 18 months ago (had diabetes, didn't have LBD). I was not

close to him, we had fought nearly my entire life. He was sick especially

over the last year. I was able to spend some time with him over that last

year and help out as much as I could. He very much appreciated that, as

evidenced when I was introduced to one of his childhood friends six months

before he died. I am one of four and he introduced me as " our pride and joy

.. This was despite me being of the opinion that he never liked me and

favoured my siblings. He and I spent some quality times together before he

died, and I feel really grateful that I was able to achieve peace.

One of my brother's, on the other hand, had been in battle with Dad for some

months prior to his death, and he is still bitter with Dad.

I guess what I am saying is that, even though you are not close, spending

time with him is a worthwhile thing to do. If you were able to communicate

this with your brother, he would in the long run be grateful as well.

Having said all that, it is a heavy burden you carry, and my thoughts are

with you. If your father does indeed have LBD, do NOT let anyone prescribe

neuroleptic drugs. Some definitions of neuroleptics are on the website

below.

http://groups.yahoo.com/group/LBDcaregivers/files/MEMBER%20PROFILES/

Hello - I am new to the group - needing support

Hello All,

I have just joined the group. My Father is in hospital (8 weeks

today) and has the symptoms of LBD and connections to Alzheimers. I

am coping with this heart rendering experience alone. I have a

brother but sadly not supporting me as I hoped and lives very far,

which would not alter the if he lived closer I believe. I am

emotional and too sensitive/compassionate for his understanding. He

is more detached and cold towards the event and thinks of

nurses/doctors doing their best I guess and in some ways thinks his

Father had died I guess. We are not close to my Father, but I have

given all I can to care and show compassion with love to my Father.

My Father is bedridden also with other physical problems.

I am getting really depressed seeing his lack of abilities in life.

He went into hopsital after a serious accident of cutting his head,

that needed stitches and broke two partsof his left arm and then

consequently has deterioated in his health. After a month he has

started eating and simple sentences were spoken and now its more

babbling - sleeping most of the time. I am so grateful this support

group exsists and discovered this through a brilliant website and

thank you for givng more info on other sites also.

www.zarcrom.com/users/alzheimers/odem/lewy1.html

I have downloaded so much information on LBD from the site above and

now can research more. I am seeing my Father soon in hospital and

they are awaiting an x-ray in a few weeks to then see if the

orthopaeds will discharge him and then he will need 24 hr care in a

nursing home. I hope he will go to another hospital for intermediate

care as I never wanted him in a Nursing Home until he would not know

me as sadly that part of not recognising me seems close. He has a

partner, but sadly she lacks understanding of how the whole

experience is making me feel. There is such a turmoil of emotions and

I did become depleted in my energies. I am a lone parent caring for a

young son without family or friends to support - a distant friend via

telephone has been the best support so far.

Take Care and thank you making time to read my words,

Hugs for all,

Sunshine